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RMJ

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Everything posted by RMJ

  1. RMJ
    I doubt that it would be a problem unless dipped in flour. I’d just wash it once, which I’d do anyway for used sheets, and forget about it. Sanitization does not destroy gluten - it is a protein, not a microbe.
  2. RMJ
    I hope your biopsy will give you a definitive answer.
  3. RMJ
    My husband sometimes gets a red mark on his forehead. Not from DH, but I bought him some concealer and it hides it nicely.
  4. RMJ
    Would he notice if you got him gluten free bagels and bread?
  5. RMJ
    There are three main things that can lead to a low red cell count. Not making enough red cells, bleeding, or body destroying its own red cells. Of course each of those can have many causes. Sounds like your doc will be looking for intestinal bleeding.
  6. RMJ
    If you have celiac it will be easier to see if you are healing by repeating blood tests than by repeating the endoscopy/biopsy!
  7. RMJ
    Luckily a doctor’s prescription is NOT needed to go gluten free! I’d do what Tessa25 suggested. Go strictly gluten free for 6 months, see if you feel better, and have your antibodies retested.
  8. RMJ
    Have you checked to be sure there is no gluten in your supplements and probiotics?
  9. RMJ
    Found a package insert on the Par site (linked). The inactive ingredients are corn starch, lactose monohydrate, magnesium stearate, pregelatinized corn starch and sucrose. It is great that they list the source of starch, not everyone does! None of those ingredients should contain gluten, so any gluten would be from contamination. Pharmaceutical manufacturers...
  10. RMJ
    I looked on the FDA website and unfortunately Par Pharm is the only approved generic version. Did they say it actually contains an ingredient with gluten, or that it has a chance for contamination? I couldn’t find a label on the FDA site.
  11. RMJ
    There is no lab test for gluten intolerance Could you post your results, or at least the names of the tests within the celiac panel? Probably good to keep eating gluten and see a gastroenterologist for further testing.
  12. RMJ
    A lot of people with celiac disease react more strongly to gluten after having been gluten free for a while. If you “cheat” you might ruin your trip. If you’re going to Paris they have a number of completely gluten free restaurants/bakeries. There is a thread about it somewhere on this site!
  13. RMJ
    Researchers are working on some future tests for those not eating gluten, but right now you have to eat gluten to get accurate test results.
  14. RMJ
    I’m so glad you persisted!
  15. RMJ
    Those blood tests are for genetics, to see if you have the genes that predispose one to celiac. Almost a third of the population has the genes for celiac but only 1-2% develop it. You’d need antibody tests, and if those are positive an endoscopy, to find out if you have it.
  16. RMJ
    I would say the blood work confirms the biopsy suggestion of celiac, but I'm not a doctor. You might want to take all of your results (biopsy and blood) to another gastroenterologist and get a second opinion. Or at least make an appointment with your current one and have him explain why he thinks those positive results are negative. Sometimes mistakes...
  17. RMJ
    Your understanding is fine, I’d question your doctor! Only one of the tests has to be positive to go to the next step, an endoscopy.
  18. RMJ
    The gluten in wheat/barley is in the grain, not the stalks/leaves. I definitely would NOT worry about a tiny bit of grain that might contaminate the clippings, that are just a portion of the soil, that will be washed off of the vegetables.
  19. RMJ
    He could try going gluten free for six months and see if the antibody levels go down. If so, it would indicate that gluten causes him to make auto antibodies (antibodies against oneself).
  20. RMJ
    Many doctors will not give a firm celiac diagnosis without an endoscopy/biopsy. I think that is why you were told your results “indicated” celiac instead of being told you have celiac. With those antibody results it would be very surprising if the biopsy does not show celiac.
  21. RMJ
    Yes you can have normal CBC, liver enzymes, etc and still have celiac.
  22. RMJ
    I’m glad you found something that helps! If you have been gluten free for 5 months your endoscopy may be normal, but I doubt that you will want to do a gluten challenge.
  23. RMJ
    Two other completely gluten free restaurants I’ve been to are the Curious Fork, and 2Good2Be. The food is fine but nothing special. I go there because they should be safe places for me when I have lunch with friends.
  24. RMJ
    Hi Icelandgirl, I don’t have kids or experience with kids but I think Healthy Creations would be kid friendly. It is more of a cafe, had tables inside and outside. I like the falafel. Hopefully they are careful about where they get their garbanzos. I’m guessing the kids would like the zoo and Safari Park, and Sea World. The Botanical Garden in ...
  25. RMJ
    I live in San Diego. I don’t get symptoms from gluten so can’t be sure there aren’t issues but I try to be very careful and my antibodies are finally in the normal range. My favorite is Healthy Creations in Encinitas. Completely gluten free. Not at all fancy, but very tasty. If you like gardens, you could combine it with a trip to San Diego Botanical Garde...
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