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RMJ

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by RMJ

  1. RMJ
    Each manufacturer of the TTG IgA test sets their own units and their own range - so your result was negative. However, some people who have celiac disease are negative on the TTG but positive on the DGP (deamidated gliadin peptide) antibody test. Since you get symptoms you might ask your doctor for that one too.
  2. RMJ
    Your IgA was reported in grams per liter. Those with results in the hundreds are in milligrams per deciliter. 1 g/L is 100 mg/dL.
  3. RMJ
    It wasn’t due to glutening but in my 30s I had a tender, swollen lymph node in my armpit that turned out to be mononucleosis.
  4. RMJ
    You’re so generous to post your recipes here after all your hard work to perfect them.
  5. RMJ
    It is great that your blood test numbers are already normal. Did they test for both TTG and DGP antibodies? My TTG came into a normal range long before the DGP did.
  6. RMJ
    It is recommended to eat gluten for at least two weeks before an endoscopy. Plus it would be amazing to heal completely in 13 days. However, if the endoscopy did not show celiac, you would always wonder if you had eaten gluten for long enough. Tough decision. I’d probably want to get it over with and would be eating all my favorite gluten-containing f...
  7. RMJ
    I took this to mean that she said there were not shared lines or products with gluten. Now you say she wouldn’t say, and I’m confused :). I worked in the pharmaceutical industry. Even if they did have shared lines they have to clean extremely carefully because of the active ingredients. I would not worry about that for drugs.
  8. RMJ
    They can’t guarantee lack of cross contamination because they don’t test for it. However, based on her answers and the ingredients, it is unlikely to contain enough gluten to bother someone with celiac, if it contains any at all.
  9. RMJ
    Here are the inactive ingredients if I can cut and paste this. The numbers are unique ingrdient identifiers. And here is a link to contact Mylan: https://www.mylan.com/en/contact-mylan INACTIVE INGREDIENTS Ingredient Name Strength SILICON DIOXIDE (UNII: ETJ7Z6XBU4) MAGNESIUM...
  10. RMJ
    I don’t find any 1mg diazepam tablets on the FDA website. Are you in the US? If yes, might it be 10mg? There is a green 10mg tablet. Is there anything written on (embossed into) the tablets? Perhaps Mylan 477?
  11. RMJ
    If the test report summary says “The sample tested below the lower limit of quantification for the assay used of 5 parts per million of gluten” that’s good! It means the test could not detect any gluten. There might be a teeny, teeny, tiny amount so small that the test could not detect it but it probably is truly gluten free. If there were 1 or 2 parts per m...
  12. RMJ
    Very interesting, thank you for posting.
  13. RMJ
    This study is not about a contamination rate, these are ingredients, albeit inactive. Ingredients like lactose need to be added in order to make tablets.
  14. RMJ
    Here is a link to the Hershey’s site where they list their gluten free products. Lava cake kisses are NOT listed there. https://www.thehersheycompany.com/content/corporate_SSF/en_us/whats-inside/gluten-free.html
  15. RMJ
    Sounds like a good doctor who understands celiac disease! My biopsy results only took 2 or 3 days, but you never know how busy the lab is. Positive vs negative should take the same amount of time - the pathologist has to look at slides under a microscope either way.
  16. RMJ
    How long have you been gluten free? If not too long you could have the blood tests for celiac. In some people it can take a while for the antibodies to come down to normal ranges. If positive it would indicate celiac. However if they came out negative you wouldn’t know anything - it might be recovered celiac or never celiac. Also, if negative, some stupid d...
  17. RMJ
    I go to a gluten free cafe where they serve falafel in a teff wrap.
  18. RMJ
    Were the tests run by the same lab? Each manufacturer has their own ranges and results can’t be compared.
  19. RMJ
    The documentation submitted to the FDA to get celiac antibody tests approved does not try to correlate positive antibody levels and degree of damage. Some manufacturers do have both weak positive and positive ranges, but when I looked at information on the FDA website a weak positive appeared to just mean it was near the cutoff, not any correlation to villi...
  20. RMJ
    I had mono in my mid-thirties, pre-celiac diagnosis. My main symptom was extreme tiredness (well, that and a very swollen lymph node in my armpit). I was out of work for a month. If you’ve only had it since the beginning of the month you probably just need more time to heal. You will get over it!
  21. RMJ
    It could be risky. I had one stubborn antibody level that finally went down to normal after I got rid of my brushed stainless steel saucepan. Might just be coincidence though.
  22. RMJ
    In addition to seeing if the gluten free diet eases your chest tightness and pain, after 6 months or so on the strict diet you could have your antibody levels retested and see if they go down. I had high levels on those 4 tests but no obvious symptoms. I say no obvious symptoms because I feel better on the gluten free diet.
  23. RMJ

    "Skeptical" doctors?

    RMJ replied to moleface's topic in Doctors

    There are so many doctors who seem anti-celiac disease and anti-gluten intolerance. Fortunately these diseases do not require a doctor’s presceiption to treat. I hope your symptoms resolve soon.
  24. RMJ
    Maybe get your air ducts cleaned if you have central heating? And a new vacuum cleaner, or take it apart and clean thoroughly. Good luck.
  25. RMJ
    Most of my antibody levels were normal within a year, but my DgP IgA was very stubborn and took several years and a very strict diet - eating limited processed food and that only when certified gluten free. You’re doing great for four months. Keep up the good work!
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