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RMJ

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by RMJ

  1. RMJ
    I am also asymptomatic and my antibody levels decreased slowly. What type of processd foods do you eat?
  2. RMJ
    If a lab runs the same blood sample 10 times they probably won’t get the exact same result 10 times. The deamidated gliadin IgA differences might be that sort of test to test variability. Having said that, my GI was happy when my antibody levels that were within the normal range went down further. The CRP difference could be a real increase.
  3. RMJ
    You could try calling the manufacturer. The ingredients look fine but there is always a chance for contamination. Accord Healthcare Inc, 1009 Slater Road, Suite 210-B, Durham, NC 27703 (919) 941-7879
  4. RMJ
    That does not read like information from a package insert or manufacturer. Who is the actual manufacturer? Many companies make the generic and they might not all use the same inactive ingredients.
  5. RMJ
    After I finally got all my antibody levels down to the normal ranges I asked my GI if I could eat oats. She said I could try pure oats for 6 months then recheck antibodies. I got the type Ennis recommended above. Antibodies still ok after 6 months. I love my morning oatmeal!
  6. RMJ
    It took me several years to get my DGP IgA level down to normal. I only eat out at restaurants that are completely gluten free, or have procedures certified by the Gluten Intolerance Group. I don’t even do that very often. If necessary to be social I will go to a restaurant with coworkers and not eat.
  7. RMJ

    "Skeptical" doctors?

    RMJ replied to moleface's topic in Doctors

    I hooe you can get some answers with your new GI doc.
  8. RMJ
    Sometimes medical centers will change what lab they send samples to. My doctor used to use a lab with a cutoff of 19. Now they use a lab with a cutoff of 3. Unlike many blood tests, the celiac tests use units which vary from lab to lab.
  9. RMJ
    I am also a silent celiac. I had to be very strict and careful about contamination to get my antibodies down to the normal range. I know what you mean about preferring to have a symptom! I think I might get nauseated when I am glutened but I am not sure. I had trouble with nausea before I was diagnosed and now it is rare. When it does happen it is usually...
  10. RMJ
    Your doctor is potentially keeping her ill and underweight with celiac disease so she doesn’t join the obesity epidemic?! Definitely need a new doctor. Is this pediatrician a gastroenterologist? If not, can you see a pediatric gastroenterologist? Are you in the USA? In most states you can order some blood tests online without a doctor - you could get t...
  11. RMJ
    Can you take her to a pediatric gastroenterologist or would you need a referral from this unhelpful doctor? Sounds like he is making up his own range (>100) for positive which is not appropriate.
  12. RMJ
    You said you only buy things labeled gluten free. Perhaps you are sensitive to very low levels of gluten? I pretty much stick to things that are labeled as certified gluten free. Or you could eliminate processed foods entirely and try the Fasano diet.
  13. RMJ
    Do you live in the United States? If so you may be able to order your own celiac blood panels online.
  14. RMJ
    Don’t beat yourself up too much, Perhaps this is just what you needed to convince yourself to stay gluten free from now on!
  15. RMJ
    In this paper they conclude that CD57 cells do not appear to have a role in celiac disease. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2222270/
  16. RMJ
    I don’t know what a broccoli seed looks like, but alfalfa seeds are much smaller than wheat kernels. I would think you could wash the seeds thoroughly before sprouting, pick out anything that doesn’t look like an alfalfa seed, and you'd be ok.
  17. RMJ
    Discouraging? You already have one normal value! That’s great! And the TTG is the antibody against yourself so a great one to be in the normal range. Keep up the good work.
  18. RMJ
    The amount of gluten that causes visible (under a microscope) damage varies a lot from person to person. Researchers do studies where they take people with celiac who are on a gluten free diet, feed them known amounts of gluten, then do endoscopies and look for damage. Why knowingly cheat when you know you have celiac? I wouldn’t even want a Marsh 2...
  19. RMJ
    Hi, I also have crypts and tonsil stones but they don’t sound nearly as bad as yours. What have you tried for them? I have to gargle two or three times a day with Listerine or I get a sore throat. I also have to remove them occasionally.
  20. RMJ
    You’re a good friend. I’d ask her what she prefers, and if she hesitates about having you cook for her, don't push it. I will eat at my brother’s, but they check ingredients with me and I look at anything packaged.
  21. RMJ
    The immune system changes during pregnancy so perhaps that is why your reaction was different. Best to stay gluten free until you’ve had the baby.
  22. RMJ
    You were feeling better on the gluten free diet then decided to cheat and now feel worse? Why not just stay on the gluten free diet?
  23. RMJ
    If you are gluten free, it takes weeks of eating gluten to get the antibodies to a level where they can be measured.
  24. RMJ
    You could try going gluten free for 6 months and see if the TTG levels go down.
  25. RMJ
    It is possible to have systemic reactions from skin prick tests, but they are usually happen along with a positive skin reaction. Here is some info about ragweed/banana and itchy mouth. https://www.aaaai.org/conditions-and-treatments/library/allergy-library/outdoor-food-allergies-relate
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