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RMJ

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Everything posted by RMJ

  1. RMJ
    If the test report summary says “The sample tested below the lower limit of quantification for the assay used of 5 parts per million of gluten” that’s good! It means the test could not detect any gluten. There might be a teeny, teeny, tiny amount so small that the test could not detect it but it probably is truly gluten free. If there were 1 or 2 parts per m...
  2. RMJ
    Very interesting, thank you for posting.
  3. RMJ
    This study is not about a contamination rate, these are ingredients, albeit inactive. Ingredients like lactose need to be added in order to make tablets.
  4. RMJ
    Here is a link to the Hershey’s site where they list their gluten free products. Lava cake kisses are NOT listed there. https://www.thehersheycompany.com/content/corporate_SSF/en_us/whats-inside/gluten-free.html
  5. RMJ
    Sounds like a good doctor who understands celiac disease! My biopsy results only took 2 or 3 days, but you never know how busy the lab is. Positive vs negative should take the same amount of time - the pathologist has to look at slides under a microscope either way.
  6. RMJ
    How long have you been gluten free? If not too long you could have the blood tests for celiac. In some people it can take a while for the antibodies to come down to normal ranges. If positive it would indicate celiac. However if they came out negative you wouldn’t know anything - it might be recovered celiac or never celiac. Also, if negative, some stupid d...
  7. RMJ
    I go to a gluten free cafe where they serve falafel in a teff wrap.
  8. RMJ
    Were the tests run by the same lab? Each manufacturer has their own ranges and results can’t be compared.
  9. RMJ
    The documentation submitted to the FDA to get celiac antibody tests approved does not try to correlate positive antibody levels and degree of damage. Some manufacturers do have both weak positive and positive ranges, but when I looked at information on the FDA website a weak positive appeared to just mean it was near the cutoff, not any correlation to villi...
  10. RMJ
    I had mono in my mid-thirties, pre-celiac diagnosis. My main symptom was extreme tiredness (well, that and a very swollen lymph node in my armpit). I was out of work for a month. If you’ve only had it since the beginning of the month you probably just need more time to heal. You will get over it!
  11. RMJ
    It could be risky. I had one stubborn antibody level that finally went down to normal after I got rid of my brushed stainless steel saucepan. Might just be coincidence though.
  12. RMJ
    In addition to seeing if the gluten free diet eases your chest tightness and pain, after 6 months or so on the strict diet you could have your antibody levels retested and see if they go down. I had high levels on those 4 tests but no obvious symptoms. I say no obvious symptoms because I feel better on the gluten free diet.
  13. RMJ

    "Skeptical" doctors?

    RMJ replied to moleface's topic in Doctors

    There are so many doctors who seem anti-celiac disease and anti-gluten intolerance. Fortunately these diseases do not require a doctor’s presceiption to treat. I hope your symptoms resolve soon.
  14. RMJ
    Maybe get your air ducts cleaned if you have central heating? And a new vacuum cleaner, or take it apart and clean thoroughly. Good luck.
  15. RMJ
    Most of my antibody levels were normal within a year, but my DgP IgA was very stubborn and took several years and a very strict diet - eating limited processed food and that only when certified gluten free. You’re doing great for four months. Keep up the good work!
  16. RMJ
    I am also asymptomatic and my antibody levels decreased slowly. What type of processd foods do you eat?
  17. RMJ
    If a lab runs the same blood sample 10 times they probably won’t get the exact same result 10 times. The deamidated gliadin IgA differences might be that sort of test to test variability. Having said that, my GI was happy when my antibody levels that were within the normal range went down further. The CRP difference could be a real increase.
  18. RMJ
    You could try calling the manufacturer. The ingredients look fine but there is always a chance for contamination. Accord Healthcare Inc, 1009 Slater Road, Suite 210-B, Durham, NC 27703 (919) 941-7879
  19. RMJ
    That does not read like information from a package insert or manufacturer. Who is the actual manufacturer? Many companies make the generic and they might not all use the same inactive ingredients.
  20. RMJ
    After I finally got all my antibody levels down to the normal ranges I asked my GI if I could eat oats. She said I could try pure oats for 6 months then recheck antibodies. I got the type Ennis recommended above. Antibodies still ok after 6 months. I love my morning oatmeal!
  21. RMJ
    It took me several years to get my DGP IgA level down to normal. I only eat out at restaurants that are completely gluten free, or have procedures certified by the Gluten Intolerance Group. I don’t even do that very often. If necessary to be social I will go to a restaurant with coworkers and not eat.
  22. RMJ

    "Skeptical" doctors?

    RMJ replied to moleface's topic in Doctors

    I hooe you can get some answers with your new GI doc.
  23. RMJ
    Sometimes medical centers will change what lab they send samples to. My doctor used to use a lab with a cutoff of 19. Now they use a lab with a cutoff of 3. Unlike many blood tests, the celiac tests use units which vary from lab to lab.
  24. RMJ
    I am also a silent celiac. I had to be very strict and careful about contamination to get my antibodies down to the normal range. I know what you mean about preferring to have a symptom! I think I might get nauseated when I am glutened but I am not sure. I had trouble with nausea before I was diagnosed and now it is rare. When it does happen it is usually...
  25. RMJ
    Your doctor is potentially keeping her ill and underweight with celiac disease so she doesn’t join the obesity epidemic?! Definitely need a new doctor. Is this pediatrician a gastroenterologist? If not, can you see a pediatric gastroenterologist? Are you in the USA? In most states you can order some blood tests online without a doctor - you could get t...
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