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RMJ

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Everything posted by RMJ

  1. RMJ
    Please let us know the results of your endoscopy/biopsy when available!
  2. RMJ
    We’ll listen! I think sometimes families don’t believe the celiac diagnosis and thnk it is just a fad. I once asked a doctor if a drug would affect my intestines because I had celiac. His response was that I probably didn’t have it! I was able to respond that I had just had a positive biopsy a few weeks before. Sometimes family members are afraid they ...
  3. RMJ
    A number of studies have looked at the amount of gluten that causes symptoms and/or changes to antibody levels or villi in patients with celiac disease. FDA reviewed these studies prior to setting the allowable level of gluten in gluten free foods at 20 ppm. They saw a LOT of variability between individuals. 20 ppm is safe for many, but not all, people...
  4. RMJ
    Welcome to the forum! How strict is strict? I started by reading labels and avoiding anything where the ingredients indicated gluten. Antibody testing said it was not enough. Then I only ate things labeled gluten free. Not enough. Now I eat mainly whole foods, with small amounts of certified gluten free foods. Even my vitamin D is certified gluten...
  5. RMJ
    My GI, who is a researcher at a university hospital, had a very good endoscope with enough magnification to see my blunted villi. I believe there is also some technique involved. But as others have said, things can be visually ok and still have damage seen under a microscope.
  6. RMJ
    It is going to vary from person to person. Mine went from 110 (high) to 19 (just barely in nirmal range) in 11 months. You should certainly see a drop in 6 months.
  7. RMJ
    Happy belated birthday!!! I thought of you earlier this month when at a December celebration in a local park with lots of food vendors. I was thinking what a good idea a gluten free food truck was. I remember your early posts, you have come so far mentally and physically, keep up the good work!
  8. RMJ
    You could try the gluten free diet for six months then have your antibody levels remeasured. If the tTG IgA goes down, it would suggest that gluten was causing your body to make that antibody. Celiac damage can be missed in an endoscopy.
  9. RMJ
    Here is a summary of the information from the FDA, for those who don’t want to read the whole thing. Open Original Shared Link
  10. RMJ
    Here is a direct link to the FDA document Open Original Shared Link
  11. RMJ
    Thank you for that information and idea. I don’t know if I react to oats because I don’t have symptoms. I’m actually on a six month trial of pure oats now and am about to have my TTG retested to see if oats affect my levels. If oats are a problem for me I will definitely have to think about shared-with-oats lines.
  12. RMJ
    Luckily the bakery is at the opposite end of the store from the produce where I shop. I eat mainly whole foods and rarely eat out. I do like cereal for breakfast! Since I don’t have symptoms I don’t know when I’ve been CC’d. I probably avoid a lot more things than I need to since I can’t tell what is raising my antibodies. After 5 years my DGP IgA i...
  13. RMJ
    Thanks Ennis.
  14. RMJ
    GIG certified foods are supposed to be less than 10ppm. I only eat in completely gluten free restaurants, or two in my area that have procedures certified by GIG.
  15. RMJ
    Would you eat Certified Gluten Free cereal produced on shared equipment? I’ve been eating Nature’s Path gluten free cereal. It is certified gluten free. Labeling has a statement that it is made in a facility with peanuts, tree nuts and soy. But the website talks about how they clean their equipment before making gluten free cereals and discarding the...
  16. RMJ
    What matters is not how you compare to others, but how you compare to the normal range for your test. Different test manufacturers use different scales. The IgA you refer to as being normal might be total IgA, not celiac-related IgA. Total IgA is often run with celiac tests to see if the celiac test is valid. (If total IgA is low a negative celiac-related...
  17. RMJ
    That I can eat anything labeled gluten free.
  18. RMJ
    The endoscopy was negative for celiac, but showed inflammation of the esophagus (esophagitis) and stomach (gastritis). R/O stands for rule out. Blood tests also negative for celiac.
  19. RMJ
    Icelandgirl, I think your doctor sounds reasonable. Your body is showing a genuine cholesterol issue (carotid partial blockage) and he is recommending lifestyle changes before drugs. I hope you can make a dietary adjustment that helps.
  20. RMJ
    Congratulations!
  21. RMJ
    I have a possible allergy to contrast dyes so my doctor prescribes pretreatment with prednisone and Benadryl.
  22. RMJ

    ARCHIVED Oatmeal

    RMJ replied to AmandaD's topic in Coping with Celiac Disease

    I don’t have obvious symptoms. My GI said I could try them for 6 months then retest my antibody levels.
  23. RMJ
    Some of Target's generics for Tylenol, Advil and Aleve are labeled gluten free.
  24. RMJ
    Congratulations. Keep up the good work.
  25. RMJ
    No, it won't tell you that, you'd have to call each manufacturer, if their website still lists it as a product. Based on the ingredients I found for sulfasalazine from one manufacturer (Greenstone) I'm not sure why it isn't safe, but that seems to be the consensus on the internet. Greenstone had starch but didn't list the source, that might be the problem...
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