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RMJ

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by RMJ

  1. RMJ
    Some of Target's generics for Tylenol, Advil and Aleve are labeled gluten free.
  2. RMJ
    Congratulations. Keep up the good work.
  3. RMJ
    No, it won't tell you that, you'd have to call each manufacturer, if their website still lists it as a product. Based on the ingredients I found for sulfasalazine from one manufacturer (Greenstone) I'm not sure why it isn't safe, but that seems to be the consensus on the internet. Greenstone had starch but didn't list the source, that might be the problem...
  4. RMJ
    Here is the FDA list of manufacturers, if my link works. It is on the 4th page of "S" drugs. Just click on the drug name. methylprednisolone is on the 4th page of Ms. https://www.accessdata.fda.gov/scripts/cder/daf/index.cfm?event=browseByLetter.page&productLetter=S&ai=0 They may not all be making it any more, but this may be a place to...
  5. RMJ
    Wow, it is nice that they call the manufacturer. I'll see if I can find a list of manufacturers on the FDA website.
  6. RMJ
    These are generic drugs that may be made by more than one manufacturer, you'd need to know the manufacturer to look up the inactive ingredients. I need to tell my pharmacy that I have celiac, I hadn't thought of that (I don't take anything on a regular basis).
  7. RMJ
    They might tell you what they saw visually, but visual doesn't always correlate with the biopsy. I got my biopsy results in a few days but most people here report a longer time.
  8. RMJ
    Yes you will hurt yourself eating gluten even if you don't have symptoms, although I'd call malabsorption a symptom. Some doctors don't seem to think Celiac is real. A doctor I was seeing for something unrelated to celiac recommended a test where radioactivity could accumulate in my small intestine. I asked if it would harm my intestine because I...
  9. RMJ
    Wifey, I agree, high result should be investigated, not just assume it is false positive because it is weird. (The marketing department couldn't believe the test could be wrong and was convinced I was going to go into anaphylactic shock when I did the cat allergen skin test).
  10. RMJ
    "For IgE allergy testing the false positive rates for both the skin prick tests and the blood tests are at 50-60%:" That is about food IgE allergy testing, allergy testing for pollens and cat dander is far better. I was just trying to define what a false positive is from a scientific point of view.
  11. RMJ
    A note about false positives (I used to develop blood tests for antibodies, similar to the celiac tests). False positives can be high or near the normal range. It just means that the result doesn't agree with the "gold standard" which for celiac is a biopsy, even though biopsies aren't perfect either. Repeating the test and getting the same result does...
  12. RMJ
    To support what Gemini said about inflammation, a brand new study showing a relationship between inflammation and heart disease. http://www.sciencemag.org/news/2017/08/anti-inflammatory-cuts-risk-heart-attack
  13. RMJ
    Looks like changes due to menopause are in the later stages https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2727246/
  14. RMJ
    How frustrating to have to wait so long to see the doctor and get your ultrasound results. My cholesterol has always been high (total 250 when I was 18) and got a little higher after going gluten free but that may be due to menopause at the same time. Several ultrasounds have shown nice clear carotid arteries, and a CT scan showed no calcium in my coronary...
  15. RMJ
    This paper seems to address your question, although not specifically about celiac: https://www.ncbi.nlm.nih.gov/pubmed/17284511
  16. RMJ
    The immunoglobulin A is a control test, not a test for celiac. Of the celiac tests, she just has one that is barely a weak positive. You may want to have her eat more gluten (perhaps away from home) and retest in 6 to 12 months.
  17. RMJ
    Sheila Crowe at UCSD, head of their Celiac Center. She also cowrote the book Celiac Disease for Dummies, which says that if you're still having problems after going gluten free, the doctor needs to keep looking. I find the people who schedule the appointments there a bit obnoxious, but Dr. Crowe is very nice. https://health.ucsd.edu/specialties/gastro...
  18. RMJ
    Have you had your antibody levels rechecked? If they've gone down maybe something else is causing your problems,
  19. RMJ
    I had slightly low vitamin D, but did not have anemia or other nutritional deficiencies prior to diagnosis.
  20. RMJ
    Two other completely gluten free cafes in The San Diego area (The Curious Fork doesn't make a big deal abut being gluten free on their website) https://www.healthycreations.com/ https://www.thecuriousfork.com/pages/cafe
  21. RMJ
    Frito-Lay does not test this type of Doritos to see if it is gluten free. They don't have gluten-containing ingredients, but could be contaminated. http://www.fritolay.com/nutrition/special-dietary-needs/us-gluten-free-products-and-products-not-containing-gluten-ingredients.htm
  22. RMJ
    I'm glad you have a definitive answer!
  23. RMJ
    I felt pretty awkward the first time I decided to go out with coworkers and not eat anything. It turned out fine and is much easier the second time!
  24. RMJ
    I would try to get genetic testing for your husband. If his genetics say he shouldn't have it, you'd know that your family can have celiac without the usual genes.
  25. RMJ
    True allergies are usually to proteins. Lecithin would have a lot less protein than soy flour. Does your daughter have a diagnosed soy allergy?
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