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RMJ

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Everything posted by RMJ

  1. RMJ
    Refined grains are fortified because valuable nutrients are removed during the refining process (for example when making white flour out of whole wheat). They do not remove nutrients from our bodies.
  2. RMJ
    Hi Cara, Since I no longer get the horrendous headaches that can go with migraines, I just try to keep functioning. If I get an aura it lasts about 30 minutes but most of that time I can still see pretty well. If I get the loss of vision that only lasts about 5 minutes. In fact, I find they are less bothersome and I feel less "blah" if I keep working...
  3. RMJ
    I get about 6-12 migraines a year and 1 or 2 are the loss of vision type. I've had migraines for decades but that type started about 12 years ago. I'm lucky, I don't get much of a headache anymore, just the visual stuff and feeling blah for a few days. I get either the typical flashing light type of aura or the loss of vision where it seems like a windowshade...
  4. RMJ
    Hi Cara123. I just wanted to say that I also get the type of migraines where I lose vision in one eye for a few minutes. Very scary the first time - I'm used to it now. I hope you get some answers soon.
  5. RMJ
    Dextrin is made by breaking down starch. If the starch came from wheat, there could be contamination with wheat protein (gluten). But I think in the US if dextrin is from wheat it is supposed to say so.
  6. RMJ
    Sometimes lactose intolerance goes along with Celiac until healing of the villi occurs, you may want to try eliminating dairy for a while.
  7. RMJ
    I started by reading ingredients on labels and avoiding known gluten sources. My antibodies came down but were still high. Then I went to only buying prepared foods that were labeled gluten free. Antibodies further down, one still high. I mainly eat whole foods now, and only buy certified gluten free prepared foods, rice and nuts - hoping that will put...
  8. RMJ
    My GI said that her endoscope has enough magnification to see the villi, she saw visually that mine were blunted and the pathology report agreed. I think she said she had to flush some water across the villi to get a good look at them, maybe to see how they moved? and that not all GIs went to the trouble to do that.
  9. RMJ

    ARCHIVED Discouraged

    RMJ replied to Fbmb's topic in Coping with Celiac Disease

    Those Doritos don't have gluten ingredients but could be contaminated and are not tested for gluten - so you take your chances eating them. If the reaction was to gluten and not just to junk food it would set healing back some but not all the way to square one.
  10. RMJ

    ARCHIVED Discouraged

    RMJ replied to Fbmb's topic in Coping with Celiac Disease

    Cool Ranch Doritos are not on the Frito Lay gluten free list. Open Original Shared Link
  11. RMJ
    About 95% of my diet fits that, with a little certified gluten free (not junk food). If my antibodies aren't normal next year I'll go for 100%. Although I don't have symptoms, I did just feel better eating mostly that way. I was surprised that my dietician, who specializes in GI issues, had not heard of it.
  12. RMJ
    Do you mean total IgA? Or Ttg or Dgp IgA?
  13. RMJ
    I can't help, but I can sympathize. I hope you get some advice! I've been trying to be gluten free for four years. My antibody levels have come way down but my DGP IgA is still high and my TTg IgA is still borderline positive. Each time I try a stricter diet they come down a little more. I'm now eating mainly whole foods plus some certified gluten free...
  14. RMJ
    It might have gone down, you can't tell because the first result was >100. It might have been 200 or 300 and now 101. I'd give it more time. Do you feel better?
  15. RMJ
    In a correctly functioning immune system antibodies bind to molecules that shouldn't be in the body and help to remove them - for example, bacteria and viruses. In allergies and autoimmune conditions the immune system overreacts. In an allergy, the IgE type of antibody binds with the allergen, for example a protein in wheat (most allergies are to proteins...
  16. RMJ
    I hope you continue to improve !
  17. RMJ
    I went to a registered dietician who specializes in Celiac. She was concerned about the balsamic vinegar I was using and suggested a different brand, Napa Valley Naturals.
  18. RMJ

    ARCHIVED Canker sores

    RMJ replied to kkgirl's topic in Doctors

    Posterboy, canker sores and oral thrush are NOT the same thing. Kkgirl, good luck with your doctor's appointment, those look painful.
  19. RMJ
    In most people the gluten free diet will reverse the damage, although it may not go all the way back to normal. You're young so there is a good chance you'll heal completely - children seem to heal better than older adults, we'll hope you heal like a child! Your toddler should heal up just fine. Intestinal lymphoma is very rare. Untreated patients...
  20. RMJ
    Yes, blunted is less damaged than atrophy. Blunted villi are shorter than normal, but they are there and available for absorbing nutrients. Atrophied villi are basically gone - the surface is flat with no villi projecting out.
  21. RMJ
    There is a whole spectrum of damage that is seen in celiac disease. Looking at your results another way: "Patchy flattening" - Only patchy, not all over, Yeah! "Isolated areas" - Isolated, not all over, Yeah! "Blunted villi" - Only blunted, that's great. You still have villi. In some people the villi are totally atrophied. "40 intraepithelial...
  22. RMJ
    Steak and potatoes? Ham and hash browns? (although ham gives me migraines).
  23. RMJ
    Some people with celiac can't eat oats, and some gluten free oats are not as gluten free as they could be. I'd try omitting those from your diet.
  24. RMJ
    I don't have symptoms either, so my doctor follows my antibodies (the whole panel was high when I was diagnosed). That is not ideal, the scientific literature says antibody tests are great for diagnosis but not so accurate for followup. At first I just read labels and avoided anything with gluten-containing ingredients. Antibodies went down but two were...
  25. RMJ
    I don't know if this would help, I've been eating Nature's Path Whole O's which are certified gluten free. They don't taste or crunch like cheerios (they are harder) but they are the same shape. They don't contain oats. They are also a lot more expensive than Cheerios.
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