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RMJ

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by RMJ

  1. RMJ
    I’ve had that trouble in the past and it was diagnosed as depression. Perhaps a therapist or gluten-free antidepressant?
  2. RMJ
    If you eat 1 kilogram (2.2 pounds) of food that contains 20ppm (parts per million) of gluten, you would have eaten 20 milligrams (mg) of gluten. Many, but not all, people with celiac can tolerate that amount. When FDA set 20ppm as the limit it was partly because it would be safe for most with celiac, and because at that time most analytical methds for...
  3. RMJ
    I’d add the blood test for deamidated gliadin peptides, DGP IgA and IgG.
  4. RMJ
    Diagnosed at 57
  5. RMJ
    Congratulations!
  6. RMJ
    I’m the only one in my family.
  7. RMJ
    You asked how I keep from being hungry if I go to restaurants/parties and don’t eat. I just eat ahead of time. There used to be a thread going here where people posted what they were cooking for dinner that night. It all sounded delicious, and not as if people were depriving themselves at all!
  8. RMJ
    I think you have a very smart endocrinologist and a caring GI, although that may not matter to you right now. I was tested because of my migraines. I didn’t think I had symptoms, but once I went strictly gluten free I just felt better and had more energy (although still the same migraines). Maybe that fatigue is due to celiac. I’ve been to work lunches and...
  9. RMJ
    Wheat starch cannot be converted to wheat protein - I would not trust anything that they say!
  10. RMJ
    If there is a Target near you, they have a lot of store brand (up and up) drugs labeled gluten free, for example ibuprofen and acetaminophen.
  11. RMJ
    Please let us know the results of your endoscopy/biopsy when available!
  12. RMJ
    We’ll listen! I think sometimes families don’t believe the celiac diagnosis and thnk it is just a fad. I once asked a doctor if a drug would affect my intestines because I had celiac. His response was that I probably didn’t have it! I was able to respond that I had just had a positive biopsy a few weeks before. Sometimes family members are afraid they ...
  13. RMJ
    A number of studies have looked at the amount of gluten that causes symptoms and/or changes to antibody levels or villi in patients with celiac disease. FDA reviewed these studies prior to setting the allowable level of gluten in gluten free foods at 20 ppm. They saw a LOT of variability between individuals. 20 ppm is safe for many, but not all, people...
  14. RMJ
    Welcome to the forum! How strict is strict? I started by reading labels and avoiding anything where the ingredients indicated gluten. Antibody testing said it was not enough. Then I only ate things labeled gluten free. Not enough. Now I eat mainly whole foods, with small amounts of certified gluten free foods. Even my vitamin D is certified gluten...
  15. RMJ
    My GI, who is a researcher at a university hospital, had a very good endoscope with enough magnification to see my blunted villi. I believe there is also some technique involved. But as others have said, things can be visually ok and still have damage seen under a microscope.
  16. RMJ
    It is going to vary from person to person. Mine went from 110 (high) to 19 (just barely in nirmal range) in 11 months. You should certainly see a drop in 6 months.
  17. RMJ
    Happy belated birthday!!! I thought of you earlier this month when at a December celebration in a local park with lots of food vendors. I was thinking what a good idea a gluten free food truck was. I remember your early posts, you have come so far mentally and physically, keep up the good work!
  18. RMJ
    You could try the gluten free diet for six months then have your antibody levels remeasured. If the tTG IgA goes down, it would suggest that gluten was causing your body to make that antibody. Celiac damage can be missed in an endoscopy.
  19. RMJ
    Here is a summary of the information from the FDA, for those who don’t want to read the whole thing. https://www.fda.gov/Drugs/ResourcesForYou/Consumers/BuyingUsingMedicineSafely/EnsuringSafeUseofMedicine/ucm410373.htm?utm_campaign=CDER New 12%2F13&utm_medium=email&utm_source=Eloqua&elqTrackId=919af0fb176f4c228f2e6c4f6c66cedf&elq=703...
  20. RMJ
    Here is a direct link to the FDA document https://www.fda.gov/downloads/Drugs/GuidanceComplianceRegulatoryInformation/Guidances/UCM588216.pdf
  21. RMJ
    Thank you for that information and idea. I don’t know if I react to oats because I don’t have symptoms. I’m actually on a six month trial of pure oats now and am about to have my TTG retested to see if oats affect my levels. If oats are a problem for me I will definitely have to think about shared-with-oats lines.
  22. RMJ
    Luckily the bakery is at the opposite end of the store from the produce where I shop. I eat mainly whole foods and rarely eat out. I do like cereal for breakfast! Since I don’t have symptoms I don’t know when I’ve been CC’d. I probably avoid a lot more things than I need to since I can’t tell what is raising my antibodies. After 5 years my DGP IgA i...
  23. RMJ
    Thanks Ennis.
  24. RMJ
    GIG certified foods are supposed to be less than 10ppm. I only eat in completely gluten free restaurants, or two in my area that have procedures certified by GIG.
  25. RMJ
    Would you eat Certified Gluten Free cereal produced on shared equipment? I’ve been eating Nature’s Path gluten free cereal. It is certified gluten free. Labeling has a statement that it is made in a facility with peanuts, tree nuts and soy. But the website talks about how they clean their equipment before making gluten free cereals and discarding the...
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