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RMJ

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Everything posted by RMJ

  1. RMJ
    I looked at the labeling on the manufacturer website. It says it is gluten free. I’m sorry you’re dealing with bladder cancer.
  2. RMJ
    Docaz, are you saying that your children’s blood antibody levels with gluten-free diet plus enzyme are lower than with gluten-free diet alone? Do they take them with every meal, or only if contamination is expected? My blood levels are normal, but one of them is just barely in the normal range. I’m wondering if the enzymes could improve that one. S...
  3. RMJ
    The California Pizza Kitchen procedures have been evaluated and the pizzas tested by the certifying organization. Pizzas have also been tested by the Gluten Free Watchdog. If any customer feels “violated” they can report it not just to the restaurant but also to the certifying organization (GIG) who takes complaints very seriously (I had to complain onc...
  4. RMJ
    The California Pizza Kitchen chain has certified gluten free pizza. Their regular pizza crusts are not made at the individual restaurants, so there is no flour floating around. The gluten-free pizzas are prepared and cut at dedicated stations. They are baked in the same oven, but on foil.
  5. RMJ
    My father lives in a facility for seniors. The menu used to have gluten free items, now they have gluten friendly. If I have to eat there I order the plainest “gluten friendly” things I can find on the menu because I don’t trust them.
  6. RMJ
    Eating meat, fruits and veggies is good, as suggested above. If you’re eating any packaged foods, begin by reading the labels. Search for those that say gluten free. That’s the safest. If you eat something that doesn’t say gluten free read the ingredients and look for the words wheat, rye, or barley and avoid those. Eating at restaurants isn’t...
  7. RMJ
    I think it could be possible - a major glutening could be like a booster shot for the immune system. Hopefully your antibodies will go back down again as quickly as they did the first time.
  8. RMJ
    That is not a celiac test result. Celiac results are NOT reported as mg/dL. It is most likely a total IgA result. Were there any other results?
  9. RMJ
    Hi Cristiana, Interesting. Here the flu vaccine is one of the few things that health insurance pays for even before one has met the deductible.
  10. RMJ
    I’m curious - in the US the flu vaccine is recommended every year for almost everybody. Is that not the case in the UK?
  11. RMJ
    It doesn’t make sense to me scientifically that someone with celiac would have a compromised immune system. It is an autoimmune disease where the body attacks itself. With some other autoimmune diseases patients are given drugs to suppress the immune system, then they are more vulnerable. Scientific consensus does change sometimes with new data. ...
  12. RMJ
    That used to be true. Whether or not celiac can be diagnosed visually during endoscopy depends on the endoscope. Some newer ones have enough magnification to see the villi.
  13. RMJ
    The chance for cross contamination depends on each manufacturer and product. Some companies have dedicated production lines for gluten free products, some use the same lines for gluten-containing and gluten free products. When multiple products are processed on the same equipment there is a chance for cross contamination, although some manufacturers clean...
  14. RMJ
    Several gluten free cafes in my area couldn’t make it and have closed down.
  15. RMJ
    I’m glad you have an official diagnosis - that can make it easier to convince family, other doctors, etc. I would suggest trying to get the official results, especially the pathology report, from your previous endoscopy. If in the US they have to give them to you. Nurses have been known to forget to phone patients. Antibody tests aren’t perfect, an...
  16. RMJ
    I saw from other posts that you never had an endoscopy. I hope your new gastro recommends an endoscopy, to see if the antibodies correlate with some damage. If no damage though, you won’t know if you healed or never had it. Do you feel better without gluten?
  17. RMJ
    Distillation separates compounds based on the temperature at which they change from liquid to gaseous form. The gaseous form is recondensed and collected. Gluten stays in the original liquid. Fermentation chops up compounds but they are still there in smaller pieces.
  18. RMJ
    There is another scientific paper out that confirms what most of us know - it is very difficult to keep gluten out of our diets. The original paper is behind a paywall but this first link summarizes it. Most folks on “gluten-free” diets ingest unintended amounts Original paper
  19. RMJ
    Here are some recent guidelines from a good source. Sounds like you are doing the right thing by giving him some gluten but not too much. http://www.cureceliacdisease.org/wp-content/uploads/CdC_Newsletter_IssueOne_032019_v7.pdf
  20. RMJ
    I used to develop tests for antibodies. I would say the difference between 1 and 1.7, when both are in the negative range, is meaningless. If you were to run a test10 times using the same tube of blood there would be some variation in the results.
  21. RMJ
    There are some panels where if one is positive they do an additional test -perhaps it is something like that. Hope your doctor can find out something so you aren’t kept in suspense much longer!
  22. RMJ
    You know your body doesn’t appreciate gluten and that you will be going gluten free. I think the question is whether not having an official diagnosis would be detrimental to you. Sometimes a diagnosis is necessary to convince people to remain gluten free. Sometimes it is necessary so that college cafeterias, hospitals, etc. will provide you with safe f...
  23. RMJ
    Looking at the technical/FDA information for BioPlex, it looks a little different from some other tests. One test looks for IgA for both TTG and DGP, along with IgA deficiency, and the other looks for IgG for both TTG and DGP. So it looks like you were tested for everything. I don’t know why the lab wouldn’t put your actual numbers but “not detected” woul...
  24. RMJ
    It sounds like you are avoiding gluten, at least part of the time? Please remember that unfortunately, celiac testing, blood or endoscopy, won’t be accurate unless you’re eating gluten.
  25. RMJ
    The certifying organization certifies to 10ppm. That doesn’t mean all the vitamins have 10ppm, it means that is the maximum amount they might have. They might also have 0ppm but the analytical methods can’t verify that. However, it is not the ppm but the total amount of trace gluten ingested that causes problems for us super sensitives. Vitamin pills are...
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