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RMJ

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Everything posted by RMJ

  1. RMJ
    Tests like this give accurate numbers within a range. There is a lower limit and an upper limit. Each manufacturer has their own range. If the upper limit for a manufacturer is 100, anything above that will just be reported as >100. Since that is definitely positive and antibody levels don’t necessarily correlate with the amount of damage, there is n...
  2. RMJ
    If a lab reports >100 instead of a specific number it is because to get a specific number they would have to dilute the sample and rerun it.
  3. RMJ
    My endoscopy was at a university medical center and my GI had an endoscope with enough magnification so that she could see my blunted villi. Not all endoscopes are that magnification. It is not unusual to have the small intestine look visually normal and have damage seen under a microscope. Hope you get definitive answers!
  4. RMJ
    Your celiac results are all negative. The total IgA is a little high but I’m guessing your doctor will say it’s not anything to worry about. Some labs say that the normal range goes up to 350mg/dL.
  5. RMJ
    You may also want to ask for a more complete panel of tests. You got the TTG antibody test, there is also a DGP (demidated gliadin peptide) antibody test.
  6. RMJ
    You could have the blood test repeated - if it has gone down on a low gluten diet and your symptoms have improved that would certainly say that gluten is a problem for you.
  7. RMJ
    I am a scientist and used to develop this type of test for other health issues. The cut off between positive and negative is chosen to give the most correct answers when compared to either biopsy results, or an already approved blood test. Sometimes the dividing line is chosen to be lower if it is a disease where you don’t want to risk missing people who a...
  8. RMJ
    There are several possible celiac tests. Are any of these words/abbreviations on your lab reports? Endymysial antigen or EMA Anti-Tissue Transglutaminase or TTG Deamidated Gliadin Peptides or DGP
  9. RMJ
    The antibody levels don’t necessarily correlate with the degree of damage or symptoms. My TTG IgA was 143 (positive greater than 19) and I had no symptoms. Next is a biopsy. Keep eating gluten until the biopsy or you could get a false negative.
  10. RMJ
    Here is a company where you can order tests online, then go into an associated lab for the blood draw. They operate in most states in the US. Looking at the sample report, it is the full celiac panel. Celiac antibody panel
  11. RMJ
    I’ve had a few dreams where I ate a dessert made with regular flour.
  12. RMJ
    Rye is one of the grains that has gluten in it that people with celiac disease react to, so no, there is no such thing as gluten free rye bread.
  13. RMJ
    To be sure you have an accurate diagnosis, you should continue eating gluten until you have your endoscopy.
  14. RMJ
    GFCO certification limit is 10ppm. Listed under program history
  15. RMJ
    Anxiety can be part of celiac disease. When is your endoscopy? I hope you don’t have to wait long for answers.
  16. RMJ
    I’m sorry I don’t understand the question? I didn’t mention anything one could purchase.
  17. RMJ
    I used to have troubles with nausea but it finally went away when I got my celiac antibodies down to a normal level.
  18. RMJ
    I was going to suggest the same two things as Scott. Some people react to a protein in oats, even though the oats are gluten free. I don’t have symptoms but my antibodies have recently gone back up a bit, and the biggest change in my diet was adding BRM flours. I’m going to try certified gluten free flours instead. I thought BRM would be ok sin...
  19. RMJ
    Absolutely - every antibody was high for me but I had no digestive symptoms.
  20. RMJ
    Another part of the immune reaction to gluten in someone with celiac disease is the release of molecules called cytokines into the bloodstream. When the body overreacts these can have systemic inflammatory effects.
  21. RMJ
    The ttg test is for antibodies to Tissue Transglutaminase, which is an enzyme that normally occurs in the human body. That means that if you have high levels of the ttg antibodies you have antibodies against yourself, i.e. autoimmune. However, the levels of ttg antibodies do NOT necessarily correlate with the amount of damage to the intestines. Hope...
  22. RMJ
    The FDA summarized the available literature on the dose response to gluten before issuing the labeling regulations. There is an extreme variability in the literature for the dose to which people respond (symptoms and pathology). Some people had trouble with a few milligrams, others could tolerate hundreds. This makes sense to me. I used to be responsible...
  23. RMJ
    If certified by GFCO.org it must be lower than 10ppm.
  24. RMJ
    My dog eats a food with no gluten ingredients but it’s pretty high calorie. I’m looking for a new type for weight management because she’s gained a few pounds. I don’t want grain free because those foods have been associated with cardiac issues. It is amazing how many dog foods that don’t have wheat do have barley!
  25. RMJ
    From a look at their website, it does not look like they do the standard, scientifically accepted tests for celiac disease.
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