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RMJ

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Everything posted by RMJ

  1. RMJ
    You didn’t forget, I hadn’t mentioned it before. But it does explain why my posts tend to be technical!
  2. RMJ
    Absolutely, I will take it as soon as they’ll give it to healthy 65-year olds. I would not take it if I had ever had an allergic reaction to a vaccine until more is known about the allergic reactions seen in the UK. I have a PhD in pharmacology and have been following this whole subject very closely. I’ve read the FDA guidance and skimmed the Pfizer, Mo...
  3. RMJ
    It is hard to tell without the ranges or units. The IgA is probably total IgA. Total IgA is tested to ensure that the celiac specific IgA test is valid. Are the units mg/dL? That would be total IgA and if so yours is in the normal range. The TTG AB IGA being <2 is highly likely to be in the normal range, just because of the way it is stated...
  4. RMJ
    If you buy nuts in the shell and shell them yourself they should be gluten free. You could even wash them before shelling to be extra careful. If you react to nuts handled this way then it is likely the nuts, not gluten contamination, that is the problem.
  5. RMJ
    GFCO limit is 10ppm and they have two distinctive logos, the old one and a new one. GFCO
  6. RMJ
    If the TTG result goes down on the gluten free diet that would be another indicator that you have celiac disease.
  7. RMJ
    This paper doesn’t look at IgA/TTG, but does look at biopsies and says that oats can affect villi in sensitive people. Molecular basis for oat intolerance in celiac disease
  8. RMJ
    Here is an article in a peer-reviewed journal that shows that beef is gluten free even if the cow ate gluten. Gluten would be digested into amino acids. Gluten analysis in beef samples
  9. RMJ
    You can do it! It is great that you are clearly supportive of your husband. Feel free to come back here as often as needed and ask lots of questions, and don’t beat yourself up if you make a mistake. Dinner with friends can be a real problem because so many people don’t understand where gluten can hide, and they won’t have done all of the research that ...
  10. RMJ
    Tests like this give accurate numbers within a range. There is a lower limit and an upper limit. Each manufacturer has their own range. If the upper limit for a manufacturer is 100, anything above that will just be reported as >100. Since that is definitely positive and antibody levels don’t necessarily correlate with the amount of damage, there is n...
  11. RMJ
    If a lab reports >100 instead of a specific number it is because to get a specific number they would have to dilute the sample and rerun it.
  12. RMJ
    My endoscopy was at a university medical center and my GI had an endoscope with enough magnification so that she could see my blunted villi. Not all endoscopes are that magnification. It is not unusual to have the small intestine look visually normal and have damage seen under a microscope. Hope you get definitive answers!
  13. RMJ
    Your celiac results are all negative. The total IgA is a little high but I’m guessing your doctor will say it’s not anything to worry about. Some labs say that the normal range goes up to 350mg/dL.
  14. RMJ
    You may also want to ask for a more complete panel of tests. You got the TTG antibody test, there is also a DGP (demidated gliadin peptide) antibody test.
  15. RMJ
    You could have the blood test repeated - if it has gone down on a low gluten diet and your symptoms have improved that would certainly say that gluten is a problem for you.
  16. RMJ
    I am a scientist and used to develop this type of test for other health issues. The cut off between positive and negative is chosen to give the most correct answers when compared to either biopsy results, or an already approved blood test. Sometimes the dividing line is chosen to be lower if it is a disease where you don’t want to risk missing people who a...
  17. RMJ
    There are several possible celiac tests. Are any of these words/abbreviations on your lab reports? Endymysial antigen or EMA Anti-Tissue Transglutaminase or TTG Deamidated Gliadin Peptides or DGP
  18. RMJ
    The antibody levels don’t necessarily correlate with the degree of damage or symptoms. My TTG IgA was 143 (positive greater than 19) and I had no symptoms. Next is a biopsy. Keep eating gluten until the biopsy or you could get a false negative.
  19. RMJ
    Here is a company where you can order tests online, then go into an associated lab for the blood draw. They operate in most states in the US. Looking at the sample report, it is the full celiac panel. Celiac antibody panel
  20. RMJ
    I’ve had a few dreams where I ate a dessert made with regular flour.
  21. RMJ
    Rye is one of the grains that has gluten in it that people with celiac disease react to, so no, there is no such thing as gluten free rye bread.
  22. RMJ
    To be sure you have an accurate diagnosis, you should continue eating gluten until you have your endoscopy.
  23. RMJ
    GFCO certification limit is 10ppm. Listed under program history
  24. RMJ
    Anxiety can be part of celiac disease. When is your endoscopy? I hope you don’t have to wait long for answers.
  25. RMJ
    I’m sorry I don’t understand the question? I didn’t mention anything one could purchase.
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