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RMJ

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Latest Celiac Disease News & Research:

Everything posted by RMJ

  1. RMJ
    I have not had these symptoms, but they’ve been reported by plenty of people who post here.
  2. RMJ
    Celiac disease can certainly have neurological symptoms. They can take a while to heal once you are gluten free.
  3. RMJ
    Researchers have found that some people labeled as having refractory celiac disease actually are just still eating a diet contaminated with gluten. https://pubmed.ncbi.nlm.nih.gov/23448408/ However, if the intraepithelial lymphocytes seen in your biopsy are abnormal that could be genuine refractory celiac. I hope that your next biopsy shows...
  4. RMJ
    The following quote about variants is from this week’s issue of Science magazine. The main variant currently seen is not expected to affect current vaccine efficacy. ”Pandemic spread of a virus in naïve populations can select for mutations that alter pathogenesis, virulence, and/or transmissibility. The ancestral form of severe acute respiratory synd...
  5. RMJ
    Might we need an annual COVID vaccine that varies each year like the flu vaccine? It all depends on what the COVID variants are. The coronavirus spike protein was chosen by Pfizer, Moderna and others as the antigen in the vaccine because it is absolutely necessary in order for the virus to infect our cells. If a random mutation led to much of a change in...
  6. RMJ
    In addition to choosing the vaccine you feel is safest, you might want to be sure that the facility where you receive it is able to treat allergic responses, and hang around for 15-30 minutes after the injection. Allergic reactions to vaccines typically happen pretty quickly. I had a drive up flu shot this year and they made everyone stay for 15 minutes...
  7. RMJ
    There is no aluminum in either the Pfizer or Moderna vaccine.
  8. RMJ
    There are two issues: What cereal to trust to be gluten free Does patient react to oats I personally have to use certified gluten free products to keep my antibody levels in the normal range. I sometimes eat Nature’s Path gluten free corn flakes which are certified gluten free although made on shared equipment. I went without oats u...
  9. RMJ
    Are the oats you are using labeled as gluten free oats? If not grown carefully or processed carefully they can be contaminated with wheat.
  10. RMJ
    I was originally tested for celiac disease because of my migraines. Some doctors feel they are related, some don’t. I do have celiac disease; eliminating gluten lessened, but didn’t completely eliminate, the migraines.
  11. RMJ
    Also, it is NOT the case that the same amount of antibody is being called positive at one lab and negative at another. The units are arbitrary, not absolute, set by each lab, and can’t be compared. A given amount of antibody might be measured as 4 lab A units and 20 lab B units.
  12. RMJ
    It depends on the range of your lab, which should be on the lab report. If it says high it is high.
  13. RMJ
    The normal range for TTG IgA depends on the manufacturer of the test. Some are 0 to 3, some 0 to 19... The units are arbitrary, not a specific unit of measure such as mg/dL, which is often, but not always, how total IgA is expressed.
  14. RMJ
    There are two ongoing phase 2/3 clinical trials that started in October. Preliminary results expected in May. Molnupiravir clinical trials
  15. RMJ
    It has not been proven one way or the other that vaccinated people can still spread the virus. It is a possibility that has not yet been fully studied. People are talking about it. It was discussed at the FDA advisory committee meeting. Pfizer plans to study it, I think Moderna is looking at it in their current trial. However, if everyone was vaccinated...
  16. RMJ
    I found a recent review article in a peer-reviewed journal discussing this subject. The only vaccine where there was a definite issue was the Hepatitis B vaccine. The other vaccines they reviewed seemed to work fine in celiac patients. Vaccinations and immune response in celiac disease
  17. RMJ
    It certainly sounds like celiac disease. European guidelines for diagnosing celiac in children allow skipping the biopsy if the TTG IgA is 10X the upper limit of normal range. https://www.espghan.org/dam/jcr:a82023ac-c7e6-45f9-8864-fe5ee5c37058/2020_New_Guidelines_for_the_Diagnosis_of_Paediatric_Coeliac_Disease._ESPGHAN_Advice_Guide.pdf Unfortunately...
  18. RMJ
    Fresh fruits and vegetables are considered safe, they don’t need to be labeled as gluten free. Just wash them thoroughly, especially during COVID times!
  19. RMJ
    1. People with celiac disease were not excluded from the trials, so with 18,000 vaccine recipients there were likely some with celiac disease. However, efficacy for them was not separated out. I doubt that they will be studied specifically by the vaccine sponsors. There are so many different diseases that people might have that they can’t look at every o...
  20. RMJ
    You might try the Gluten Contamination Elimination Diet, also called the Fasano diet, for a few months. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3598839/ Also, to help with bowel troubles, you might want to give up milk and milk products. When villi are damaged they don’t make the enzyme lactase, so milk sugars aren’t digested and can cause dia...
  21. RMJ
    For an endoscopy to diagnose celiac disease you must be eating gluten. If you’ve been on a gluten free diet for a while your villi recover and the endoscopy/biopsy won’t see the damage. I don’t understand why doctors have trouble believing someone has celiac disease. One of my doctors was considering a scan (for something unrelated to celiac) which...
  22. RMJ
    Antibody tests are only approved by FDA to detect celiac disease, not to monitor progress on the gluten free diet. Still lots of doctors use it to monitor progress and it does appear to be useful. As a general rule, eating less gluten leads to lower antibody levels which means less chance of autoimmune damage.
  23. RMJ
    I wanted to clarify but can’t seem to edit my post. Antibody levels can be strange. I used to be responsible for antibody production in animals. Even highly inbred lab animals gave very different responses to the same dose of antigen. Then suddenly some animal’s antibody levels would go down, even with continued exposure to the antigen. For an ...
  24. RMJ
    There is probably a correlation within one patient, but not from patient to patient.
  25. RMJ
    Not necessarily. The immune response involves both B cells, which make antibodies, and T cells, which produce cytokines. Cytokines are the molecules which lead to the feeling of: “I’ve been glutened.” So the antibodies are only part of the immune response. Plus not all antibodies are equal. Some bind more strongly to their target (higher “affinity”), so t...
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