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RMJ

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by RMJ

  1. RMJ
    One still must watch out for ingredients added after distillation.
  2. RMJ
    It is not certified gluten free. On the Bailey’s website the only allergen they list is milk and milk products. That would indicate no wheat, but doesn’t say anything about rye and barley. Irish whiskey is made with barley, but the gluten should be removed by the distillation process.
  3. RMJ
    The small bowel is where the damage is seen in biopsies due to the antibodies attacking self. Biopsies of the large bowel are not used to diagnose celiac. As all of us with celiac know, and as you have said, the effects are far more widespread than just the small bowel.
  4. RMJ
    Histologic conditions are those that are seen in a biopsy under a microscope.
  5. RMJ
    Anti-gliadin is not anti-avenin but antibodies aren’t 100% specific - they may bind, with less affinity, to proteins that aren’t their main antigen. When working with antibodies in a laboratory, a lot of the work is finding an antibody that doesn’t cross react. Some of the research that says people with celiac react to oats may be due to contamination of oa...
  6. RMJ
    When I finally was sufficiently gluten free to have normal antibody levels I was not eating oats. I asked my GI if I could eat oats. She said to try pure (gluten free) oats for six months, then we’d retest antibody levels. Six months of oats didn’t affect the levels so now I can eat pure oats. There have been some research studies looking at celiac rea...
  7. RMJ
    Are your oats labeled gluten free? If not carefully processed, oats can be contaminated with wheat because of how they are grown and transported. One can buy “pure” oats, but even then about 10% of people with celiac disease react to oats in the same way that they react to wheat. Perhaps stop eating oats and see if that helps. Have you had your ant...
  8. RMJ
    The higher numbers do not necessarily correlate with a higher degree of damage in the intestine. What is the normal range for those lab results? Different labs use different units so the normal range varies from lab to lab. In Europe, if children have antibodies that are more than ten times the upper limit of the normal range and EMA (endomysial...
  9. RMJ
    In the US there is an organization that “certifies” foods as being gluten free. To differentiate these (<10ppm) from regular gluten free (<20ppm) there is a special symbol on the packaging. Hydrogenated starch hydrolysate is highly processed but MIGHT be manufactured from wheat starch and thus MIGHT have small amounts of gluten. It also might be ...
  10. RMJ
    Unless your oats are labeled gluten free, they would be the most likely due to contamination. I hope elimination of a few foods takes care of your antibody levels. Before starting steroids, I would think a biopsy, and if that is positive, perhaps a visit with a registered dietician skilled in celiac disease would be suggested. First to be sure there...
  11. RMJ
    If you’re only on day 10 and could have the blood tests done within the next few days the results would probably be accurate. For most people it takes longer than 2 weeks for the antibodies to return to normal. If you got a positive result you’d know you had the celiac antibodies. However, if you got a negative result, you couldn’t be sure if it was due t...
  12. RMJ
    Can I like this article 10 times?
  13. RMJ
    Perhaps your doctor can refer you to a registered dietician with experience with celiac to help you with an elimination diet. To be really thorough foods are introduced more than once to be sure the reaction is truly due to the food and not by chance.
  14. RMJ
    Is there anything in your diet that changed prior to the antibody increase? Different brand of something, etc.? I’m glad you’ll be getting another biopsy. There are specific things that can be seen in a biopsy that indicate refractory celiac. I hope they aren’t seen in yours!
  15. RMJ
    A few thoughts: I can understand what your nutrition specialist means - there is a point where ANY calorie is better than nothing. I’ve always been skinny, and when trying to gain weight I have to eat multiple small meals whether I am hungry or not. If I just eat to satisfy hunger I lose weight. I also find that nuts and peanut butter help b...
  16. RMJ
    Your diet doesn’t sound like it provides a whole lot of nutrition. Is it possible to work with the equivalent of a U.S. registered dietician in your country?
  17. RMJ
    Here’s one from Harvard: https://www.health.harvard.edu/diseases-and-conditions/celiac-disease
  18. RMJ
    What type of information source might she respect the most? Would she believe doctors, scientists, social media... I could find you articles on celiac from doctors/scientists at universities like Harvard, or a registered dietician on social media (Facebook)...
  19. RMJ
    It also seems obvious to me that parents who don’t want their children to be in a room with a number of other unvaccinated children shouldn’t have to send them to school. In other words, I’m not for forcing anyone to be with those who are unvaccinated when there is another option!
  20. RMJ
    To me it seems so obvious that those working in education should be vaccinated before they are required to be around groups of unvaccinated students. I’m glad you have had your second dose and will soon have your full immune response.
  21. RMJ
    I’ve never been diagnosed with an eating disorder but I think I was very close in college. I can well imagine that adding in the requirement to be gluten free would be overwhelming. Did you have professional help during your recovery when you were in high school? Perhaps renew that association? Or see an understanding registered dietician who specializes i...
  22. RMJ
    This paper discusses a case report of one patient with celiac, thrombosis and ascites. Celiac Disease Presenting as Budd-Chiari Syndrome A Google search on Celiac and ascites brings up some hits. They are mainly case reports - descriptions of individual patients. So it is possible, but not common.
  23. RMJ
    Different labs use different units of measure for celiac antibodies, so part of a difference could be that rather than a real difference. The way the tests work, within a lab, a higher value should mean more antibodies. However, the level of antibodies does not necessarily correlate with the degree of damage in the intestines or with symptoms.
  24. RMJ
    The reference ranges for the celiac antibody tests can be different from lab to lab because the units of measure are different and arbitrary. It is not that one lab thinks more antibody is needed to call it positive. If you ran the same sample at labs with different reference ranges, you’d get different numbers. For example, a 19 at a lab where the normal r...
  25. RMJ
    Here is info from the CDC from a few days ago. Please note death after vaccine is NOT necessarily death due to vaccine. “Over 189 million doses of COVID-19 vaccines were administered in the United States from December 14, 2020, through April 12, 2021. During this time, VAERS received 3,005 reports of death (0.00158%) among people who received a COVID-1...
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