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RMJ

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by RMJ

  1. RMJ
    Just be aware that your GE may say that GliadinX is useless. Mine does, but I disagree. I have a PhD in Pharmacology and have read the original research papers on it. It is intended to take care of gluten contamination, and the research shows that it can do that. It is not meant to handle a full gluten meal. But because it isn’t meant to handle a full g...
  2. RMJ
    I’ve never heard of either, I just wanted to say I’m sorry you’re having a new pain.
  3. RMJ
    Country Life vitamins are certified gluten free. I take their vitamin D. Country Life
  4. RMJ
    That yellow would be from the riboflavin (B2)
  5. RMJ
    The T cell response was observed “in vitro” (in a lab, not in someone’s body) so it isn’t directly related to villous atrophy. What it does say is that in some patients their immune system did react to the protein avenin from oats. Most studies that did biopsies didn’t show villous atrophy, although some subjects had annoying symptoms. Here is one st...
  6. RMJ
    If you really want to dig into this topic, here is a scientific paper summarizing research available in 2019. Overall they recommend not adding oats back until symptoms have resolved. They note that the strain of oats (something a consumer would never know) may make a big difference. Unfortunately it isn’t clear in all the studies they summarize if the o...
  7. RMJ
    It is a protein in oats that is somewhat related to the gluten in wheat, rye and barley. It can cause issues similar to gluten in about 10% of people with celiac disease.
  8. RMJ
    Very true, for most oats. Some growers specifically avoid fields, silos, trucks, etc that have processed wheat and produce “pure oats” that are gluten free. I’m very sensitive but can eat those. Some with celiac still react to those because of the avenin.
  9. RMJ
    I have NOT seen any evidence that this is the case with the mRNA COVID-19 vaccines. The information I can find on the Hepatitis B vaccine indicates that the problem is seen with people who have celiac disease and are not on a gluten free diet. https://celiac.org/about-celiac-disease/related-conditions/hepatitis-b/ Sometimes people with other...
  10. RMJ
    Thanks for the update. I’m glad you’ve gotten some answers and that your new doctor is really willing to try to find out what’s going on.
  11. RMJ
    I avoided oats for several years and got my antibodies down into a normal range before finally asking my gastroenterologist if I could eat them. She said we could do a test. I ate them for six months then she rechecked my antibodies. They didn’t go up, so I can eat oats.
  12. RMJ
    Doctor: “The only treatment I know is gluten free diet.” When I think about it, the gluten free diet doesn’t “treat” celiac the way some drugs treat diseases (like an antibiotic killing bacteria). It just stops the source of the damage. The body then must heal itself. When there is a lot of damage, that will be difficult and additional help may be ne...
  13. RMJ
    You could go strictly gluten free, see if you feel better, and see if the antibody levels go down. Celiac damage can be uneven and the surface area of the intestine is large. The doctor might have missed it.
  14. RMJ
    Here is the website from the company that makes the foods. They are gluten free. https://essentiallybetter.com
  15. RMJ
    The enzyme in villi tips that is frequently low in undiagnosed celiacs is lactase, which breaks lactose (from dairy) into glucose and galactose. When not broken down it can cause diarrhea. Of course damaged intestines could cause all sorts of absorption problems, followed by nutrient deficiencies and problems due to those deficiencies. There was a...
  16. RMJ
    I think the voice for celiac disease is substantially muted by those without celiac disease who treat gluten free as a fad diet. It also is very strange that many doctors seem “anti-celiac.” I once asked a doctor how a proposed test (unrelated to celiac) would affect my intestines because I have celiac disease. His response, “You probably don’t hav...
  17. RMJ
    I don’t have a link for the test method improvement. I’ve just observed that some now report < 10 or < 5ppm, and I know that in general analytical method sensitivity gets better as technology improves. If you really want I can search out the FDA document that describes how they set the 20 ppm limit.
  18. RMJ
    They do not use separate ovens. The certified gluten-free pizzas are put on a piece of foil before going into the oven. Their regular pizza dough is not made in house, so there isn’t flour floating around. I don’t know anything about their chick pea crust.
  19. RMJ
    There is a technical reason for not saying that “gluten free” means absolutely no gluten. When the regulations were published by FDA for gluten free labeling, the 20ppm level was chosen for two reasons. It is ok for most with celiac disease, and at that time that was about as low as most available analytical methods could detect. It would be nice if the...
  20. RMJ
    New information (August 4) from the Journal of the American Medical Association on myocarditis and pericarditis incidence after COVID vaccine. Again, most people improved. JAMA paper
  21. RMJ
    I clicked around and found this: https://www.celiac.com/profile/24026-kurzemiete/content/
  22. RMJ
    Celiac plus breastfeeding could certainly explain your DexaScan results. You’re young enough that vitamin D, calcium and weight-bearing exercise should help to build your bones back up.
  23. RMJ
    This link shows the ingredients for the Bausch and Lomb brand (click the “+” sign next to Ingredients and Appearance). Although there is a slight chance that the mannitol or hydroxyethyl cellulose could be derived from wheat, these ingredients are NOT proteins, and are highly processed so the chance of their containing gluten is extremely low. Dorzolamide Tim...
  24. RMJ
    That’s a higher degree of contamination than I was thinking of. That would bother me, especially the Mike‘s Hard Lemonade which is gluten removed. I’d want to wash the utensils prior to use. I’d probably want to wash them even if I didn’t have celiac disease! Can you convince him to not drink in the kitchen?
  25. RMJ
    I stop worrying at the level of: something might be contaminated by something that might be contaminated. The possible amount of gluten at that point is extremely tiny. If the spills are so large that you might actually ingest a visible amount of the product that would be different.
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