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RMJ

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by RMJ

  1. RMJ
    If you order the labs yourself, and do it now, you also don’t have to worry about a doctor giving up on a possible celiac diagnosis if tests are negative, because you can do the gluten challenge and order them again.
  2. RMJ
    If you don’t have a doctor or insurance, how are you going to get the blood test? I ask because if you’ve only been off of gluten for about two months and you do have celiac disease you MIGHT still get a positive antibody test now. You wouldn’t be able to believe a negative because of two months gluten free, but you could believe a positive. I don’t...
  3. RMJ
    What are the results of your endoscopy? Were biopsies taken? There are other possible blood tests for celiac disease - deamidated gliadin peptide (DGP) IgA and IgG. Some patients only show positive on one of those.
  4. RMJ
    If it is the name brand Lexapro, the other ingredients besides escitalopram are: talc, croscarmellose sodium, microcrystalline cellulose/colloidal silicon dioxide, magnesium stearate, hypromellose, titanium dioxide and polyethylene glycol. The croscarmellose sodium, microcrystalline cellulose and hypromellose are all derivatives of cellulose, usually...
  5. RMJ
    SSRi stands for Selective Serotonin Reuptake Inhibitor. By inhibiting reuptake of serotonin it increases the level in the brain - thus acting as an antidepressant.
  6. RMJ
    Escitalopram is the generic name of the drug. To look up exact inactive ingredients one needs the name of the company who manufactures the drug, which you would have to find out from your pharmacy. It is usually on the container with the prescription, although sometimes abbreviated. Abbvie or Allergan manufacture the brand name Lexapro. There are a...
  7. RMJ
    You said you took Lexapro last year and it helped - if you didn’t have side effects perhaps consider taking it again? From what I can find online the ingredients should not have any gluten in them. If you post the name of the generic manufacturer here I can try to look up those ingredients for you. Stress/anxiety can definitely affect the bowels. I...
  8. RMJ
    I would ask to see the actual pathologist’s report of the biopsies rather than rely on what a nurse said on a phone call.
  9. RMJ
    I would definitely want to get a copy of the pathologists’s report on the biopsies, not just the GI doctor’s summary of the report.
  10. RMJ
    Have your symptoms also come back? Or is it just the blood tests that back up.
  11. RMJ
    A pathologist may recommend clinical correlation instead of giving a definite diagnosis if they just are evaluating the biopsies and don’t know the rest of the medical history. There IS clinical correlation. There is a positive antibody test, and two possible symptoms (not growing as expected and constipation). One thing you can do is a repeat antibody t...
  12. RMJ
    An endomysial antibody IGA of 1:160 is definitely positive, not slightly positive. It is four dilutions away from the normal of 1:10. This test is very specific for celiac disease. Tissue Transglutaminase antibody of 17 with a standard range of 0-3 is also definitely positive - I don’t know where the “celiacs normally have over 40” comes from. The ...
  13. RMJ
    It was a last minute luncheon with coworkers who had just been laid off that day so I didn’t have time to prepare!
  14. RMJ
    I once just had white rice when going to lunch with coworkers at a Thai restaurant.
  15. RMJ
    Perhaps something from this website would help to convince her. Coeliac Australia Or here, which says after a positive test diagnosis is confirmed by a small bowel biopsy. Health Direct (from gov.au)
  16. RMJ
    Most of the studies in the literature are usually trying to see how short a gluten challenge can be, so they don’t look for what you’re interested in. Here is a paper that does look at 2 weeks vs 4 weeks of gluten challenge and it certainly hasn’t leveled off by 4 weeks (see figure 2). The figure only shows the average results. The ranges listed in th...
  17. RMJ
    Before I had an endoscopy (delayed for unrelated reasons) the diagnosis in my medical record was “abnormal celiac antibody panel.” Would a formal diagnosis like that be enough for a school to take it seriously? (They probably wouldn’t even know what it meant).
  18. RMJ
    Paris has several wonderful gluten free bakeries. I don’t particularly like croissants so don’t remember if they had them, but I had a wonderful eclair.
  19. RMJ
    No I can’t cheat. It would be like a booster shot, increasing the damaging antibodies again.
  20. RMJ
    Good question. Because gluten is still making my body damage itself, even if I don’t feel the damage. It is an autoimmune disease meaning I have antibodies against my own tissues. My endoscopy showed damage in my intestines.
  21. RMJ
    There are many possible symptoms for celiac disease but some people have celiac disease without any of the usual symptoms - it is called silent celiac disease. That is what I have. I was tested because I have the genetic markers and migraine headaches. What I’m trying to say is, just because your symptoms are different from your friend does not mean y...
  22. RMJ
    Does he eat oats? Some with celiac disease react even to gluten free oats because of the avenin protein.
  23. RMJ
    Here are four medical journal articles that outline how to diagnose celiac disease. They all recommend duodenal (NOT colon) biopsies after a positive TTG test. The American College of Gastroenterology guidelines say that the gene test isn’t terribly useful. Perhaps you could ask your doctor why she won’t refer you for an endoscopy when that is the...
  24. RMJ
    I haven’t read of any scientists doing this experiment with gluten in celiac patients (probably unethical) so I can only make an educated guess based on general immunology knowledge and my experience being responsible for antibody production in rabbits (for use in medical diagnostic tests). For a while, introducing more of an antigen will make the a...
  25. RMJ
    You absolutely need a different doctor. The standard of care is to do an endoscopy to follow up a positive TTG or DGP test. Colonoscopies are NOT used to diagnose celiac disease.
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