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RMJ

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by RMJ

  1. RMJ
    I also try to avoid meds and I have a PhD in Pharmacology! I resisted Fosamax for years when doctors wanted to prescribe it for osteopenia. But when my Dexascan values finally hit osteoporosis and my doctor started listing my risk factors, I read up on the Fosamax mode of action and finally gave in. It is better than the first generation bisphosphonates...
  2. RMJ
    That Tissue Transglutaminase IgA value on a gluten free diet plus GI symptoms definitely sounds like celiac disease. I have osteoporosis, but in addition to celiac disease I have other risk factors - post-menopausal female, weight (low), race (white), family history. I’ve been taking (generic) Fosamax for a year and it seems to have stopped the b...
  3. RMJ
    Do you have other risk factors for osteoporosis? Or is this an unusual diagnosis for your sex/age/weight? Different labs have different normal ranges for celiac tests because the units are not absolute. Do you know the normal range for your test? Also, do you know which test was run? There are several different antibody tests for celiac disease. ...
  4. RMJ
    I’m glad you were able to share this. We’re here to try to help you. The molecular basis of one response to gluten in those with celiac disease is cytokine release. An overabundance of cytokines can explain the symptoms you experience. How do you determine that you’ve made a mistake and ingested gluten? I ask because if you figure it out short...
  5. RMJ
    I don’t understand why you’d go gluten free then do a challenge for the repeat blood tests. I would think you’d go gluten free to see if your antibody levels decreased. That would be an indicator that gluten is a problem for you. I also don’t know why you’d do a full elimination diet. Why not just do the simplest thing first, cut out gluten and see i...
  6. RMJ
    There is no test generally recognized by scientists for non-celiac gluten sensitivity.
  7. RMJ
    Immunoglobulin A just looks at your total IgA antibody. It is run because if low, the IgA test for celiac disease may not be valid. Your total IgA is a little bit high but probably close enough to the normal range to not worry about it being high. The celiac test is the Tissue Transglutaminase IgA and it is negative for celiac disease. Hope...
  8. RMJ
    It took me six years to get all my celiac antibodies down into the normal range. Then I started doing a lot of baking with BRM (Bob’s Red Mill) flours, and they started creeping up again. I know most people with celiac seem to be able to handle BRM but I can’t. I switched to King Arthur gluten free flours, which are certified gluten free, and my antibody lev...
  9. RMJ
    Low weight can cause periods to stop. I bet your daughter’s will come back when she gains some weight.
  10. RMJ
    What the article says is that the Allergy Dye Free LiquiGels are tested to be gluten free, the other Benadryl isn’t tested but doesn’t have gluten containing ingredients.
  11. RMJ
    Benadryl Allergy Dye Free LiquiGels are supposedly gluten free. The ingredients certainly look fine. I don’t see anything directly from the manufacturer that says they are but the writer of this article supposedly called them: Benadryl For generics, one would have to evaluate each one since the ingredients may differ from manufacturer to manufacturer. ...
  12. RMJ
    Budesonide has generics available, so probably no help from the manufacturers. I was able to find some coupons. I’ll put links to several. You’ll need to make sure it is the form you need (3mg capsules, NOT an inhaler or rectal foam!), since there are multiple budesonide formulations, set the amount you need, and set your location to find the pri...
  13. RMJ
    It only works as a laxative when taken by mouth, not via TPN. It isn’t absorbed well and causes water to be retained in the lumen of the intestines.
  14. RMJ
    Are you thin? I sometimes have a lump in my low right abdomen. It was there once when I was seeing a doctor and he said that it is part of my intestine, which can be felt in thin people.
  15. RMJ
    Wow, that sounds very distressing. It sounds like a panic attack waking you up from sleep is possible: Nocturnal panic attacks I hope you’re able to figure out how to stop the episodes.
  16. RMJ
    The risk is increased in those with active celiac disease but doubling or tripling a tiny risk is still a tiny risk. The risk decreases once the gastrointestinal tract has healed. Here is a good article: Celiac disease and lymphoma
  17. RMJ
    The Gliadin DP IgA test measures IgA antibodies against deamidated gliadin peptides. The peptides are derived from the gliadin portion of gluten. The Gliadin DP IgG tests measures IgG antibodies, a different class of antibody, against the same peptides. The TTG IgA test measures IgA antibodies against tissue transglutaminase. This is the autoimmune...
  18. RMJ
    A lot of people are in denial when they get a diagnosis. You’re calculating positive predictive value for one test. You had two positive antibody tests, and two equivocal antibody tests. I don’t know how to put that into a calculation, but I’d think it would up the chances of your having celiac disease.
  19. RMJ
    I didn’t have typical celiac digestive symptoms - I was tested because there is a possible link between celiac and migraines. However, once I went gluten free and my antibody levels normalized I just felt better. Your celiac may cause issues that you don’t realize are due to celiac or even problems.
  20. RMJ
    After 6 months or more on the gluten free diet, you can see if the antibody levels decrease. If they do, that would be another indicator that you do indeed have celiac disease.
  21. RMJ
    Hopefully Imaware will say the sample is fine, but if not, redo it when you can ship on a Monday or Tuesday. Then if there is a delay it still won’t sit somewhere over a weekend. This is an old trick used for shipping samples during clinical trials!
  22. RMJ
    Missing one day should be fine, you haven’t “lost” the previous 3 weeks. Antibodies don’t decline that quickly.
  23. RMJ
    The company should have data saying how long the sample can be stored. Too bad they don’t have a phone number. I hope they email you back early Monday morning with an answer!
  24. RMJ
    When I first saw my current gastroenterologist two years ago he shot down the idea of taking something to handle gluten contamination. Today he volunteered that studies were ongoing for something that might be taken to deal with gluten contamination. He was hopeful that it would be available in a few years. He emphasized that it would NOT be in place of...
  25. RMJ
    Here is an interesting study on gluten in barium sulfate suspensions: study
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