Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

RMJ

Advanced Members
 View Profile  See their activity

  • Posts

    1,550

  • Joined

  • Last visited

  • Days Won

    49

 Content Type 

Profiles

Forums

Events

Blogs

Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by RMJ

  1. RMJ
    You must be absorbing it or the blood level wouldn’t be high. Mine were higher than that (1631 pg/mL) when measured 9 years ago. I was not taking any supplements. My gastroenterologist didn’t have an explanation but wasn’t concerned. So far it doesn’t seem to have caused any harm!
  2. RMJ
    I eat beforehand, then don’t eat at the event unless I find something safe. I once just had white rice at an Asian restaurant. I tell people I have to be strictly gluten free and am there for their company, not for the food.
  3. RMJ
    I’m glad you’re not in denial about your diagnosis! Some people have a hard time accepting it. Did you have any celiac antibody blood tests in your previous location? In addition to the tests I listed, which are for celiac disease, you might want to be tested for your levels of various vitamins. I’ll let others say which tests might be most ...
  4. RMJ
    It worries me that you say you want to “verify my disease.” The endoscopy with biopsies is pretty much the gold standard for a celiac diagnosis. Do you not believe it? You could get tested for antibodies, however there are two issues. 1. If you’ve already had antibody tests and are looking to see if they have decreased on the gluten free diet,...
  5. RMJ
    Those findings can definitely be found with celiac disease, although they’re usually more severe. It could be celiac disease that hasn’t gotten really bad yet, or celiac disease that is partially healed. How much gluten were you eating in the month prior to the endoscopy? You should be eating gluten regularly for 6-8 weeks prior to blood wor...
  6. RMJ

    Confused and upset

    RMJ replied to Belll's topic in Doctors

    Whether or not you need a referral to a specialist probably depends on your health insurance. Some types require referrals, and some don’t. It is perfectly ok to go to another doctor if you feel the first doctor has been dismissive of your issues!
  7. RMJ
    There are several different antibody tests for celiac disease. Some people are only positive on the deamidated gliadin peptide antibody tests (DGP).
  8. RMJ
    A colonoscopy cannot detect celiac disease. Did you perhaps have an endoscopy? Biopsies done during an endoscopy can miss celiac disease because the damage may not be evenly distributed.
  9. RMJ
    I thought some forum members, especially those with neurological symptoms, might be interested in this free webinar, put on by the National Celiac Association and the Celiac Research Program at Harvard Medical School. Title is “The Intersection of Neurology and Celiac Disease.” September 30 webinar registration
  10. RMJ
    To see my notifications I don’t click on the right hand corner (which gives me what you show in the photo), I click on the “bell.”
  11. RMJ
    In most states in the US one can go online and order some blood tests, including those for celiac disease. You place the order online, then go in to a lab to get the blood drawn. One is www.MyMedLab.com, but there are others. They don’t all do a full celiac panel.
  12. RMJ
    Here is the abstract of a more recent paper (2020) that concludes in the discussion that your results would mean you are not at risk. Looks like the debate is ongoing! Celiac disease risk stratification based on HLA-DQ heterodimer (HLA-DQA1 ~ DQB1) typing in a large cohort of adults with suspected celiac disease
  13. RMJ
    I think it would, so maybe you do have some risk. I do find parts of the article and part of Table 1 confusing, like the number of copies. The HLA molecule has multiple subunits which I think is confusing me. I don’t know where they got the “genetic risk” scores. I’ll see if I can find a reference for that.
  14. RMJ
    I just went and looked at the scientific journal article that describes all of this and I may have misled you a bit. I’m a scientist but not a geneticist! It looks like with just one copy of DQ 2.2 you don’t have a risk for celiac disease. You would also need a copy of DQ 2.5 or DQ7. So in your case having DQ 2.2, you would need another marker to dev...
  15. RMJ
    I’m surprised it was presented this way, but here goes an attempt at an explanation. When doing genetic testing, tests often look at SNPs, or single nucleotide polymorphisms. This means instead of determining the DNA sequence of the entire gene, nucleotide by nucleotide, they just look at the single nucleotide spots that commonly vary from person t...
  16. RMJ
    I would just tell your new doctor that your previous doctor diagnosed you with celiac disease. Unless asked specifically, I would not give any details that would give him/her an opening to question that diagnosis. Unfortunately there are many doctors who seem to be “anti-celiac.”
  17. RMJ
    Trents, thank you for saying that one study showed the 44% figure. High prevalence of celiac disease among screened first-degree relatives As a scientist, when people just state that first degree relatives have a 44% chance it irritates me. It was one study, only cited by four papers since then. Other studies show quite different, and usually...
  18. RMJ
    Trying again, it looks like I linked the same article twice, sorry. Can celiac disease be prevented?
  19. RMJ
    Scientists have studied the development of celiac disease in at-risk children, looking at things like when to introduce gluten and how much. Here are links to two recent journal articles. Unfortunately, the studies don’t all agree and the recommendations change from year to year. Can celiac disease be prevented? Effect of food and viruses to t...
  20. RMJ
    Five days for results sounds about right. My last celiac serology took three days to get results but it was not a cascade. Usually with the cascade they do some of the tests, and if there is a positive they then do more, so that could take longer. It could also take longer if they have to send the serum to a different laboratory, plus there could...
  21. RMJ
    As I think you figured out, celiac disease does not make one immune compromised, our problem would be better described as immune enhanced. Many doctors don’t understand celiac which may be why the urgent care doctor didn’t disagree with you. Animals can be tested for, and treated for, ringworm. It would be sad if you had to give them up. How did...
  22. RMJ
    I thought of something else - was the antibody test that you had designed to look for antibodies in people naturally infected, or people who were vaccinated? That might make a difference in the range that is considered high. The FDA authorized tests are intended to look for prior natural infection and are not recommended to look at vaccination status.
  23. RMJ
    It took me three years to get my TtG IgA to the normal range, and six years for DGP IgA.
  24. RMJ
    Glad you finally have an answer!
  25. RMJ
    I’d say high antibodies to the coronavirus spike protein is good! One of the boosters being studied is supposed to increase them almost 10-fold, which is considered to be a good thing.
×
×
  • Create New...