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RMJ

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by RMJ

  1. RMJ
    Hopefully Imaware will say the sample is fine, but if not, redo it when you can ship on a Monday or Tuesday. Then if there is a delay it still won’t sit somewhere over a weekend. This is an old trick used for shipping samples during clinical trials!
  2. RMJ
    Missing one day should be fine, you haven’t “lost” the previous 3 weeks. Antibodies don’t decline that quickly.
  3. RMJ
    The company should have data saying how long the sample can be stored. Too bad they don’t have a phone number. I hope they email you back early Monday morning with an answer!
  4. RMJ
    When I first saw my current gastroenterologist two years ago he shot down the idea of taking something to handle gluten contamination. Today he volunteered that studies were ongoing for something that might be taken to deal with gluten contamination. He was hopeful that it would be available in a few years. He emphasized that it would NOT be in place of...
  5. RMJ
    Here is an interesting study on gluten in barium sulfate suspensions: study
  6. RMJ
    The Vanilla Silq barium sulfate package insert does not include a full listing of ingredients. It just says emulsifiers and thickening agents. The safety data sheet talks about proprietary blends. Having worked in the pharmaceutical and medical device industry for several decades, this amazes me! Investigating further, they won a court case saying it should...
  7. RMJ
    If you have smooth dishes and utensils and they are visibly clean you should be fine. Things like wooden spoons and scratched plastic are what could be a problem because they are hard to get genuinely clean. My husband who eats gluten has his own dishes and utensils because we don’t have a dishwasher and I can often see/feel some bits of residue on h...
  8. RMJ
    This is certified gluten free: Country Life Maxi-Collagen I just went to the GFCO (Gluten Free Certification Organization) website, which certifies products as being gluten free, and put collagen into the search box. There were quite a few listings. GFCO product finder
  9. RMJ
    I would not call 37 significantly higher than 36. If a lab ran the same blood sample 10 times they would sometimes get 36 and sometimes 37. Even so, it is frustrating that the level hasn’t decreased. Sometimes it can be difficult to find the hidden gluten that someone is exposed to.
  10. RMJ
    No, unfortunately if you eliminate gluten and then restart it can take weeks of eating gluten for the antibody levels to increase. The challenge does not get shorter by going without gluten for some time.
  11. RMJ
    Congratulations! I hope the biopsy confirms the good news from the antibody tests.
  12. RMJ
    The antibody tests aren’t actually approved by FDA for monitoring celiac disease after diagnosis - although many, many doctors use them that way. I would think another endoscopy/biopsy would be in order to see if his intestine is still damaged. Is he growing well? Does he have any unresolved symptoms? Or is the only issue the lab result?
  13. RMJ
    Here are some ideas: If you have DH you do NOT need to be tested for celiac disease, so perhaps a new gastroenterologist who understands this? One who would refer you to a celiac savvy dietician to look at everything you’re eating? Try the “Fasano elimination diet” described in this paper: Indications and Use of the Gluten Contamination Elimination Diet ...
  14. RMJ
    I’m so glad you’re having such success with a gluten free diet! 🙂 I hope the bad days become less and less frequent until they’re just a memory.
  15. RMJ
    The follow-up test was the EMA. Where my labs are done, it isn’t performed unless the TTG-IgA is positive. Sometimes this is called reflex testing. The lab would use the same blood sample, a new blood draw wouldn’t be needed. Was there a value for the EMA? It would be in the format 1:5, or 1;10, or 1:20, or 1:40 etc.
  16. RMJ
    Looking at the ingredients in your link, it is VERY unlikely that any of them are derived from wheat. Hydroxypropyl cellulose is usually derived from wood or cotton (per Glutenfreedrugs). There is always a chance that an ingredient could be contaminated, but again that is unlikely. Here is contact info for Mallinckrodt generics. You could contact...
  17. RMJ
    Here is some more information about brewer’s yeast from a dietician who advocates for proper gluten free labeling. Per her advice it would be ok because it is labeled gluten free. However, some companies mislabel their food, not knowing where gluten can hide. Brewer’s yeast and gluten
  18. RMJ
    Yes, it is possible to have only one antibody test positive and still have celiac disease. If someone with celiac disease stops eating gluten, the antibody levels typically come down. You might have had more/higher positives if you had been eating the recommended amount of gluten prior to testing.
  19. RMJ
    Does eating everything hurt your stomach? Or just some things? Smaller, more frequent meals might help. You can minimize the chances of accidentally getting gluten by concentrating on whole foods that don’t have labels to read - meat, fresh fruits and vegetables (maybe cooked so easier to digest). Rice is inherently gluten free if there are no flavorings a...
  20. RMJ
    You could go gluten free for 6 to 12months and have the deamidated gliadin IgG retested. If it was lower or normal it would certainly indicate that your body has a problem with gluten. Also you could see if you feel better when gluten free. Luckily a doctor’s prescription is not needed to go gluten free!
  21. RMJ
    Please keep eating gluten until your endoscopy so you get accurate results!
  22. RMJ
    PhD Pharmacologist
  23. RMJ
    If you go by Mayo clinic reference levels, your 5 year old is within the total IgA range. I found another site that had 1-5 year olds 20-152 mg/dL, so your 5 year old is just barely above that. Pediatric antibody reference levels
  24. RMJ
    Total IgA was measured and was a little high. IF it had been low, then the TT IgG antibody test would have been done (reflex). It was high, so the TT IgG antibody test was not done. So the only question is why the total IgA was a little high. Lab normal ranges for total IgA tend to vary a bit, so that slight elevation of total IgA is probably not...
  25. RMJ
    That test is for diabetes mellitus, what about diabetes insipidus? Diabetes insipidus
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