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RMJ

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Everything posted by RMJ

  1. RMJ
    Many lab results for blood tests are reported with units of a weight divided by a volume, for example milligrams per milliliter (mg/mL). To report this way, individual results must be compared to results obtained with standards with known amounts of material. Take total IgA antibody for example. IgA can be highly purified from blood and measured to create...
  2. RMJ
    Celiac antibody results are not reported in absolute units, so cannot be compared from lab to lab. (If you want me to explain more about units I can - just ask. I used to develop tests similar to these and don’t know how much of a nerd to be on a forum). For your earlier results, your result was 19, and positive was greater than 10. Your result was a...
  3. RMJ
    The endoscopy is a good choice. Be sure to keep eating plenty of gluten until then. Please let us know the results!
  4. RMJ
    “Duodenal biopsy R/O Celiac” means Duodenal biopsy to rule out celiac. This information helps the pathologist know that he was to look for celiac damage. Since he mentioned Giardia and other microorganisms it means that he also looked for things besides celiac disease.
  5. RMJ
    I just looked them up - they’re even certified gluten free! Each product has a spot to click to get a list of ingredients and nutritional information. Allergen information Products
  6. RMJ
    The Ttg IgA is only one of four possible antibody tests for celiac. There is also Ttg IgG (which should be run if your total IgA is low, DGP IgA and DGP IgG. Some people are only positive on the DGP blood tests. (Deamidated gliadin peptides).
  7. RMJ
    It should prevent damage that would otherwise be caused by the contaminating amounts of gluten in the meal eaten along with taking it. Some people, including doctors, are against it because it doesn’t cure celiac disease, or because they think people will take it and not try to be gluten free. I think us celiac patients are smart enough to use it appropriately! ...
  8. RMJ
    I use it when I have to eat out (when I visit my father) but I’m a silent celiac so can’t say from first hand experience if it works or not. I’ve read some of the scientific studies and feel good about it from them.
  9. RMJ
    The company that makes GliadinX has gotten the raw ingredients and should have it available by early to mid-May, per their Facebook page.
  10. RMJ
    I haven’t experienced any side effects. I’ve been taking it for 1-1/2 years so far. I haven’t fallen all the way to the ground - my dog sometimes trips me but I recover my balance before hitting the ground. I think that “do you have a pet” should be one of the questions doctors ask when evaluating fall risks. Your caution is warranted. There definitel...
  11. RMJ
    I also try to avoid meds and I have a PhD in Pharmacology! I resisted Fosamax for years when doctors wanted to prescribe it for osteopenia. But when my Dexascan values finally hit osteoporosis and my doctor started listing my risk factors, I read up on the Fosamax mode of action and finally gave in. It is better than the first generation bisphosphonates...
  12. RMJ
    That Tissue Transglutaminase IgA value on a gluten free diet plus GI symptoms definitely sounds like celiac disease. I have osteoporosis, but in addition to celiac disease I have other risk factors - post-menopausal female, weight (low), race (white), family history. I’ve been taking (generic) Fosamax for a year and it seems to have stopped the b...
  13. RMJ
    Do you have other risk factors for osteoporosis? Or is this an unusual diagnosis for your sex/age/weight? Different labs have different normal ranges for celiac tests because the units are not absolute. Do you know the normal range for your test? Also, do you know which test was run? There are several different antibody tests for celiac disease. ...
  14. RMJ
    I’m glad you were able to share this. We’re here to try to help you. The molecular basis of one response to gluten in those with celiac disease is cytokine release. An overabundance of cytokines can explain the symptoms you experience. How do you determine that you’ve made a mistake and ingested gluten? I ask because if you figure it out short...
  15. RMJ
    I don’t understand why you’d go gluten free then do a challenge for the repeat blood tests. I would think you’d go gluten free to see if your antibody levels decreased. That would be an indicator that gluten is a problem for you. I also don’t know why you’d do a full elimination diet. Why not just do the simplest thing first, cut out gluten and see i...
  16. RMJ
    There is no test generally recognized by scientists for non-celiac gluten sensitivity.
  17. RMJ
    Immunoglobulin A just looks at your total IgA antibody. It is run because if low, the IgA test for celiac disease may not be valid. Your total IgA is a little bit high but probably close enough to the normal range to not worry about it being high. The celiac test is the Tissue Transglutaminase IgA and it is negative for celiac disease. Hope...
  18. RMJ
    It took me six years to get all my celiac antibodies down into the normal range. Then I started doing a lot of baking with BRM (Bob’s Red Mill) flours, and they started creeping up again. I know most people with celiac seem to be able to handle BRM but I can’t. I switched to King Arthur gluten free flours, which are certified gluten free, and my antibody lev...
  19. RMJ
    Low weight can cause periods to stop. I bet your daughter’s will come back when she gains some weight.
  20. RMJ
    What the article says is that the Allergy Dye Free LiquiGels are tested to be gluten free, the other Benadryl isn’t tested but doesn’t have gluten containing ingredients.
  21. RMJ
    Benadryl Allergy Dye Free LiquiGels are supposedly gluten free. The ingredients certainly look fine. I don’t see anything directly from the manufacturer that says they are but the writer of this article supposedly called them: Benadryl For generics, one would have to evaluate each one since the ingredients may differ from manufacturer to manufacturer. ...
  22. RMJ
    Budesonide has generics available, so probably no help from the manufacturers. I was able to find some coupons. I’ll put links to several. You’ll need to make sure it is the form you need (3mg capsules, NOT an inhaler or rectal foam!), since there are multiple budesonide formulations, set the amount you need, and set your location to find the pri...
  23. RMJ
    It only works as a laxative when taken by mouth, not via TPN. It isn’t absorbed well and causes water to be retained in the lumen of the intestines.
  24. RMJ
    Are you thin? I sometimes have a lump in my low right abdomen. It was there once when I was seeing a doctor and he said that it is part of my intestine, which can be felt in thin people.
  25. RMJ
    Wow, that sounds very distressing. It sounds like a panic attack waking you up from sleep is possible: Nocturnal panic attacks I hope you’re able to figure out how to stop the episodes.
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