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RMJ

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by RMJ

  1. RMJ
    In order to get my antibody levels down to a normal range I had to switch to only eating packaged foods that are certified gluten free, or come from a company with an excellent reputation amongst celiac patients. Not everyone is this sensitive. Of course meat, milk, fresh fruits and vegetables are naturally gluten free so I can eat those.
  2. RMJ
    For me, my DGP IgA took longer to normalize than the TTG IgA, and went up once when gluten contamination snuck into my diet and the TTG stayed normal.
  3. RMJ
    I usually check my TTG and DGP once a year. Once my antibody levels got down into the normal range, I’ve only had one time when the DGP IgA went back up to positive. After that I requested a test after 6 months to see if my dietary changes were working. I’ve had trouble with nausea recently so I asked my doctor to check sooner (and the results are all fin...
  4. RMJ
    The rapid reaction is due to cytokine release: Cytokine release in response to gluten challenge
  5. RMJ
    I think he may be partially right on each item. 1) It will obviously take time for villi to regrow so they can absorb nutrients. But some of the cytokine reactions to ingested gluten should stop when no more gluten is eaten. 2) A gluten challenge and endoscopy can diagnose celiac disease if there is enough damage. It just can’t rule it out if t...
  6. RMJ
    Since you did have a positive deamidated gliadin peptide IgA you could try a gluten free diet for a few months and see if you feel better. You don’t need a doctor’s permission to do that!
  7. RMJ
    The biopsy was and still is considered the gold standard for diagnosis of celiac disease.
  8. RMJ
    CT scans DO use radiation. MRIs don’t.
  9. RMJ
    Gluten Free Watchdog has found a problem with gluten-free Harvest oats. It is being investigated. I think this link will work for people who don’t subscribe to gluten-free Watchdog: gluten-free watchdog no longer recommends gluten-free Harvest Oats
  10. RMJ
    I’ve had the same problem with cakes. I don’t think there is enough protein structure to maintain the shape. I will often add an extra egg and make cupcakes instead.
  11. RMJ
    I’m guessing that the dentist makes Agape use an alcohol-containing mouthwash before they do any dental work? (In an attempt to minimize COVID transmission). My first dentist appointment post COVID included mouthwash.
  12. RMJ
    Glad you got a definitive answer! I’m glad you followed your instincts and insisted on the biopsy.
  13. RMJ
    I was never diagnosed with an ED, but I think I was awfully close to having anorexia. I would suggest getting more ED support, because a major change has been made in what you can eat, and I think the ED part of eating is a lot more complex than the gluten free part. Perhaps if you tell us some of your safe foods we can help evaluate if they “may contain” ...
  14. RMJ
    I’d be cautious. The bacillus species are normally a small portion of the intestinal flora. The company that makes the product published a paper in 2021 studying the product in a model of the human GI system and saying more research was needed in vitro and in vivo. I’d want to see some research studying the product in vivo in humans. Treatment wit...
  15. RMJ
    This organization fights for accurate labeling (hope I’m allowed to link her site here). Gluten Free Watchdog
  16. RMJ
    Scientists are starting to study what causes rapid and severe reactions to gluten in some with celiac disease, and one possibility is cytokine release. Here is a fairly readable paper that explains it: Patient factors influencing acute gluten reactions and cytokine release in treated coeliac disease I hope your specialist accepts symptoms...
  17. RMJ
    Walkinlab will have a physician who’s name will be on the order, even though he has never seen you or talked to you. I’ve used walkinlab.com several times, when my gastroenterologist only liked to test me once a year.
  18. RMJ
    Here is an example of a very comprehensive panel that you can order online from walkinlab.com, then go to a Labcorp site for the blood draw. It is $330. If you click on “sample report” you can get more detail. Depending on where you live, you may or may not be able to do this (I’m assuming you are in the US). Comprehensive celiac panel If you w...
  19. RMJ
    The products in this link are said to be gluten free. They only have the active ingredient, no inactive ingredients. Miralax products
  20. RMJ
    Flattened/atrophied villi are NOT the same thing as increased intraepithelial lymphocytes. Both are evaluated on a biopsy. This link describes the Marsh grades - looks like you’re Marsh 1? If you have celiac disease it is at a very early stage. Do you have any symptoms that led to testing? Marsh classification
  21. RMJ
    You’re correct, labs have different reference ranges for the tissue transglutaminase IgA because they measure in different units. It would be as if one lab measured in centimeters and one in inches, but for this test the units are amounts per volume, set by each test manufacturer, so there isn’t a conversion factor between them. The total IgA test doe...
  22. RMJ
    The Shingrix vaccine contains a protein from the virus, and an adjuvant. Adjuvants are added to vaccines to increase the immune response. Because of the specific adjuvant used (AS01B) there was a concern that Shingrix could cause flares of autoimmune diseases. My doctor didn’t want me to have the vaccine until it had been around for a while - to see i...
  23. RMJ
    Microwave over the oven - that makes sense! Hard to know if it’s an issue or not because it’s both hard to know what the orange gunk is, and whether it can detach. I definitely wouldn’t want steam to condense there and drip into her pasta.
  24. RMJ
    I’ll answer questions 4 and 6. 4. Disinfecting wipes will not do a better job removing gluten than dish soap. Gluten is not denatured by cleaning, it has to be physically removed. 6. If dishes are going to go into the dishwasher, yes you can wash gluten and gluten free dishes with the same sponge first. I don’t understand question 3 “cl...
  25. RMJ
    They are NOT at all the same disease. But people with one of them are more likely to have the other.
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