Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Creon


beegal

Recommended Posts

beegal Rookie

Hi There,

I saw some older posts about Creon. I was prescribed this recently and tried calling the manufacturer (on hold over an hour with transferred three times), and still no one could confirm that this is gluten free. I am so frustrated with trying to call manufacturers about meds only to be told they do not have that information and will escalate it to their medical department. How can a company not know if their product contains gluten?! I know one thing for sure, I want to get involved with lobbying for better laws/ regulations for labeling prescription meds. I take very few, but anytime I have been prescribed something and want to confirm the med Is gluten free, it's like pulling teeth to get any info, and never timely. I have taken digestive enzymes for years, and that always helps, but does anyone know of something similar to Creon that is gluten free? I also want to check out the gliadin x, even though I know this is specific for breaking down gluten. I already have an enzyme from a different company for this/ any cross contamination. The Creon would be for diarrhea I still have/ and a diagnosis of bile acid diarrhea.

Thanks for your thoughts!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



RMJ Mentor

Looking at the prescribing information (see section 11 in link) CREON does not have any ingredients that would be expected to contain gluten. The ingredients are all pretty refined and thus also unlikely to be contaminated.

If the enzymes were produced by bacteria one would have to look into the media the bacteria were grown in, but this is NOT the case.  In CREON the enzymes are an extract from pig pancreatic glands.

I think it is unlikely that CREON contains gluten. I agree, it would be so nice if manufacturers had to label drugs that contained gluten.

CREON prescribing information

beegal Rookie
3 minutes ago, RMJ said:

Looking at the prescribing information (see section 11 in link) CREON does not have any ingredients that would be expected to contain gluten. The ingredients are all pretty refined and thus also unlikely to be contaminated.

If the enzymes were produced by bacteria one would have to look into the media the bacteria were grown in, but this is NOT the case.  In CREON the enzymes are an extract from pig pancreatic glands.

I think it is unlikely that CREON contains gluten. I agree, it would be so nice if manufacturers had to label drugs that contained gluten.

CREON prescribing information

Agree with all you said too...!

Scott Adams Grand Master

You can see the active and inactive ingredients here, and it looks gluten-free but I did not look at every version:

https://dailymed.nlm.nih.gov/dailymed/

  • 1 year later...
Katie17 Newbie

I just spent 30 minutes on hold with Abbvie to be told their CREON doesn't contain gluten ingredients but they do not test it to confirm it's safe for Celiac patients. I'm curious if your script was from this same manufacturer and if you took it safely? Thanks so much.

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Kwinkle replied to Kwinkle's topic in Coping with Celiac Disease
      5

      I’m so confused…

    2. - Deanne jones replied to Matt13's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      28

      Can food allergies like milk and soy flatten villi?

    3. - knitty kitty replied to DayaInTheSun's topic in Coping with Celiac Disease
      12

      Being a burden to family/friends

    4. - Celiacandme replied to Kwinkle's topic in Coping with Celiac Disease
      5

      I’m so confused…

    5. - lmemsm replied to jasoncrest's topic in Gluten-Free Recipes & Cooking Tips
      4

      Recipe Apps?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,307
    • Most Online (within 30 mins)
      7,748

    XC Dad
    Newest Member
    XC Dad
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.1k

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)


  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Kwinkle
      Thank you. I already cut out dairy and eggs because I found out I was having a problem with them. To be honest I’m just getting worn out 😂 
    • Deanne jones
      Hi Kitty, thank you for your e mail,  I have seen a nutritionist who seemed to be happy with the food diary I had been keeping and nothing was mentioned about extra vitamins, and I’m still using milk etc . The steroids seem to be working and everything is functioning as it should however,  the course of tablets finish at the end of February and I have an appointment with the consultant early April probably followed by another endoscopy, as far as I’m aware I have not been tested for vitamin B and will definitely discuss it with the doctor on my next visit.      
    • knitty kitty
      It might be understandable to say "friends or family weeded me or you out of their lives". Some people are fearful of getting out of their comfortable known lives and having to make changes to accommodate another.   If they are too uncomfortable to walk a mile with me, I shake the dust off my feet and journey on.  They're just not ready to learn that lesson.  But you confidently keep going on your journey.  They can catch up later.  
    • Celiacandme
      You might also be sensitive to other things while you are healing. Dairy, for example. It won't harm you from a celiac standpoint but is inflammatory and could be bothering you. Have you been keeping a food & symptom journal? Might be worth it for a week to see if you notice something you are eating prior to the times you feel your worst. I hope you start feeling better soon. 
    • lmemsm
      Someone recently recommended Superfoods for looking up recipes free of allergens or intolerances.  It's a web site but there's also an app.
×
×
  • Create New...