Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

1 year.. antibody levels in weak positive range ?


fllstuart77

Recommended Posts

fllstuart77 Explorer

August was a year since I've been gluten free.  My antibody levels dropped from the 120's to 10 ( ttg iga )..  which is now weak positive ..   0 - 3 is normal... 4 - 10 weak positive..

My previous test showed my ttg iga at 13....  6 months later it only dropped by 3 points to 10...      My igg dropped a lot more though from 18 down to 7...  and is only 2 points from normal range now...

Shouldn't my ttg iga have dropped a lot more ???      why would it have dropped by only 3 points in 6 months ?

I have another test in December..     my Dr said he feels I'm 90% there...     but my stomach still feels upset daily....    better than it was a year ago..  but not like a normal feeling gut...

 

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cristiana Veteran

Hi fflstuart

I have been gluten free for 8 years, and very conscientious about it, and yet my tTG has never dropped below 14.   I used to worry about it but my gastroenterologist isn't at all worried - he actually said to me that if I lived on a diet of rice and water my figures might never get lower than that.

Interestingly I have been reading on this forum recently that consumption of dairy can stall recovery and as I have never really got rid of dairy in my diet that might be a reason why my numbers have a) been so low to come down and b) haven't gone lower.  Are you still consuming dairy?

Also, my own view (I'm not a medical person) is that as I suffer from one auto-immune condition that may predispose me to suffering from another.  If so, the condition may be under the medical radar but it could be contributing to me having slightly raised numbers.   I haven't got a list on me now but I recently read about a few conditions that can have this effect.  I hope someone else can chime in on this.

Cristiana

 

fllstuart77 Explorer

no dairy before i had these tests...     lately i've been eating lactose free cheese though....  over Lentil noodles

fllstuart77 Explorer
22 hours ago, cristiana said:

Hi fflstuart

I have been gluten free for 8 years, and very conscientious about it, and yet my tTG has never dropped below 14. 

 

Are you able to gain weight ??

Have your villi healed with 14 ttg? 

cristiana Veteran

Hi - yes, too much weight! Also, my villi are healed. 

GodsGal Community Regular

Hi,

I am not a medical professional. Your story reminds me of my story. In January 2020 my TTG IgA was >250 (normal range is <15). 11 months later it had dropped to 25.6. I was a bit discouraged that it had not dropped farther. But my GI specialist said that as long as it was going in the right direction, it is ok. This past June my TTG IgA was at 16.3, almost there!

Like your experience, my IGG also dropped a lot more quickly. 

Don't be discouraged. It takes time. Keep us posted!

RMJ Mentor

It took me three years to get my TtG IgA to the normal range, and six years for DGP IgA.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - PixieSticks replied to PixieSticks's topic in Super Sensitive People
      2

      Working in a kitchen with gluten?

    2. - BoiseNic replied to BoiseNic's topic in Dermatitis Herpetiformis
      11

      Skinesa

    3. - knitty kitty replied to Whyz's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      Feeling ill

    4. - Scott Adams replied to Brianne03's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Advantages vs. Disadvantages of having an official Celiac diagnosis

    5. - Scott Adams replied to Whyz's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      Feeling ill


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,530
    • Most Online (within 30 mins)
      7,748

    AnnmarieR
    Newest Member
    AnnmarieR
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.5k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • PixieSticks
      Hi yes! I was diagnosed 10 years ago through a biopsy. I’ve been gluten free ever since but no one I’m around is gluten free. I sometimes wore a surgical mask in the kitchen. but I believe particles were still getting through. I’ll definitely look into n95 instead. thanks for the reply. 
    • BoiseNic
      Ya I used to react to iodine, but it doesn't bother me anymore after strict adherence to a gluten-free diet for many years now. I am happy to report that for the first time ever in my life, a probiotic formula is not making me break out, but actually seems to be helping. The strains in this formula have been specifically tested to help with skin issues. It is gluten and dairy free also. 
    • knitty kitty
      @Whyz, I take a combination of Thiamin (Benfotiamin), B12 Cobalamine and Pyridoxine B6 for my pain and headaches.  Really works well without hurting the digestive tract.  Riboflavin B2 also helps with migraines.  Most newly diagnosed people have vitamin and mineral deficiencies.  Check with your doctor and nutritionist.   If you follow the updated gluten challenge guidelines, you can wait until two weeks (minimum) before your appointment, then eat lots of gluten, like six slices of gluten containing bread or "name your poison".   Here's the Updated Gluten Challenge Guidelines: Recommended intake of gluten should be increased to 10 grams of gluten per day for at least two weeks. Or longer. While three grams of gluten will begin the immune response, ten grams of gluten is needed to get antibody levels up to where they can be measured in antibody tests and changes can be seen in the small intestine.   Keep in mind that there are different amounts of gluten in different kinds of bread and gluten containing foods.  Pizza crust and breads that are thick and chewy contain more gluten than things like cake and cookies.   References: https://www.beyondceliac.org/celiac-disease/the-gluten-challenge/ And... Evaluating Responses to Gluten Challenge: A Randomized, Double-Blind, 2-Dose Gluten Challenge Trial https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7878429/?report=reader  "In our study, limited changes in Vh:celiac disease (villi height vs crypt depth - aka damage to the small intestine)  following 14-day challenge with 3 g of gluten were observed, in accordance with Sarna et al.  While the 3 g dose was sufficient to initiate an immune response, as detected by several biomarkers such as IL-2, the 10 g dose was required for enteropathy within the study time frame. Based on our data, we would suggest that gluten challenge should be conducted over longer durations and/or using doses of gluten of ≥ 3 g/day to ensure sufficient histological change can be induced." Keep us posted on your progress!
    • Scott Adams
      I don't believe that existing life insurance policies require such notifications--health checks are typically done before such policies are obtained. I believe it would primarily affect any new policy you get, and perhaps any policy renewal.
    • Scott Adams
      You could go gluten-free now, and then start eating lots of gluten for at least 2 weeks before your endoscopy--just be sure to tell your doctor about this beforehand. If your symptoms go away on a gluten-free diet, it is further evidence of celiac disease and/or non-celiac gluten sensitivity.  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.  
×
×
  • Create New...