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RMJ

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Latest Celiac Disease News & Research:

Everything posted by RMJ

  1. RMJ
    I used to have troubles with nausea but it finally went away when I got my celiac antibodies down to a normal level.
  2. RMJ
    I was going to suggest the same two things as Scott. Some people react to a protein in oats, even though the oats are gluten free. I don’t have symptoms but my antibodies have recently gone back up a bit, and the biggest change in my diet was adding BRM flours. I’m going to try certified gluten free flours instead. I thought BRM would be ok sin...
  3. RMJ
    Absolutely - every antibody was high for me but I had no digestive symptoms.
  4. RMJ
    Another part of the immune reaction to gluten in someone with celiac disease is the release of molecules called cytokines into the bloodstream. When the body overreacts these can have systemic inflammatory effects.
  5. RMJ
    The ttg test is for antibodies to Tissue Transglutaminase, which is an enzyme that normally occurs in the human body. That means that if you have high levels of the ttg antibodies you have antibodies against yourself, i.e. autoimmune. However, the levels of ttg antibodies do NOT necessarily correlate with the amount of damage to the intestines. Hope...
  6. RMJ
    The FDA summarized the available literature on the dose response to gluten before issuing the labeling regulations. There is an extreme variability in the literature for the dose to which people respond (symptoms and pathology). Some people had trouble with a few milligrams, others could tolerate hundreds. This makes sense to me. I used to be responsible...
  7. RMJ
    If certified by GFCO.org it must be lower than 10ppm.
  8. RMJ
    My dog eats a food with no gluten ingredients but it’s pretty high calorie. I’m looking for a new type for weight management because she’s gained a few pounds. I don’t want grain free because those foods have been associated with cardiac issues. It is amazing how many dog foods that don’t have wheat do have barley!
  9. RMJ
    From a look at their website, it does not look like they do the standard, scientifically accepted tests for celiac disease.
  10. RMJ
    I was asymptomatic with high lab values.
  11. RMJ
    Thank you! Reading material while sheltering at home from COVID.
  12. RMJ
    Thank you so much! I am in the medical/pharmaceutical field and am definitely interested since my celiac antibodies are supersensitive but my symptoms aren’t. I’m hoping GliadinX can help with the gluten contamination I’m getting somewhere and get those antibody levels back to normal.
  13. RMJ
    I wish they had given more information so I could read their publications on enzymes.
  14. RMJ
    I’m glad you have a plan, but one month gluten free might not be enough to relieve symptoms, especially if you’re new to the gluten free diet and don’t know all the places that it can hide. Also, some people find when they go gluten free and then back onto gluten that their symptoms are worse. If it were me I’d try to get the celiac testing without doing a...
  15. RMJ
    When I saw a dietician specializing in celiac disease she also recommended Napa Valley Naturals vinegar. However, that was a few years ago and I see that Stonewall has changed from cherry to oak barrels, which some say are sealed with wheat flour paste. The Stonewall site just says no gluten ingredients.
  16. RMJ
    Sounds like you’re being very careful!
  17. RMJ
    My antibody levels are very susceptible to gluten contamination. I started by not eating anything with gluten-containing ingredients. Levels were lower, but still high. Then I went to making sure everything said gluten free. Levels lower but some still high. Now I only eat processed food that is certified gluten free. What level of gluten free is...
  18. RMJ
    Here is the actual paper. https://reader.elsevier.com/reader/sd/pii/S0013935120307593?token=AD041164D401C712CEDDFC8789A5F23844825982FD6EDC077403B0FB7E6FCA5EA16CBAC7FF1B1CA94E71ADA8463E6153 However, correlation does not always equal causation.
  19. RMJ
    There are several antibody tests for celiac disease including TTG IgA, TTG IgG, DGP IgA, DGP IgG and sometimes EMA. Total IgA is run as a control. TTG = tissue transglutaminase, DGP = deamidated gliadin peptides; IgA and IgG are two classes of antibody; EMA = endomysial antigen which looks for TTG IgA in a different way. The total IgA control is done because...
  20. RMJ
    It is frustrating being a silent celiac. I don’t have symptoms, at least none that I’ve figured out. However, based on my antibody levels, I’m also a super sensitive celiac. My antibodies crept up this year and I don’t know why, therefore I have to cut back on anything that has the slightest chance of contamination. If I had symptoms I could probably have a ...
  21. RMJ
    A crumb CAN hurt someone with celiac disease. Perhaps this will help (I hope you can see it, parts of the website require a paid subscription but I think this page is public). https://www.glutenfreewatchdog.org/news/what-does-10-mg-of-gluten-look-like/
  22. RMJ
    Indirectly via symptom relief and antibody levels.
  23. RMJ
    Not all doctors do a second endoscopy.
  24. RMJ
    The IgA is normal, but that is total IgA, not IgA related to celiac disease. It is measured to ensure that the results for the TTG IgA are relevant. Each manufacturer has their own normal range for TTG IgA, so the Mayo Clinic range may not be the same as the range for your lab. Unfortunately if your results have no normal range you’ll have to wait a...
  25. RMJ
    Yes, you need to be eating plenty of gluten prior to an endoscopy, for at least two weeks. A slice or two of bread per day should be enough. If I were you, I’d get the blood test now, in the manner you mentioned, so that if negative because you’re gluten light it won’t be in your medical records. If doctors saw a negative result they might stop looki...
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