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RMJ

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by RMJ

  1. RMJ
    Did the celiac panel include DGP (deamidated gliadin peptides)? Some panels include it, some don’t. Some people are only positive on the DGP test. Unfortunately, the degree of positivity on the celiac antibody tests don’t necessarily correlate with the amount of villi damage.
  2. RMJ
    It took me several years to get all of my antibody levels in the normal range, where they stayed for several years. I had my annual blood tests earlier this week and the DGP IgA was low positive, the DGP IgG was negative but much higher than usual. Even those of us with years of experience can mess up. I’ve tried to make a list of changes to diet/p...
  3. RMJ
    In 6 to 12 months you should have the blood tests redone. If the Deamidated gliadin IgA level goes down on the gluten free diet and if your symptoms improve, that would be evidence that gluten really is a problem.
  4. RMJ
    You could start with bloodwork, while on your current diet. If positive, it would indicate a problem with gluten, either the diet still contains some, or you’re not responding to the gluten free diet. However, if negative, it would not say anything about whether you have celiac disease because of being on the gluten free diet. If you’re having ann...
  5. RMJ
    Just an idea: Is the positive vs negative cutoff for your recent test the same as the previous ones? Each manufacturer sets their own numerical ranges. I think it is a good idea that you’re having another endoscopy. Hope it solves the mystery.
  6. RMJ
    There is a great book on eating disorders for patients and their loved ones, it is called The Golden Cage by Hilde Bruch. I would recommend it for your fiance. It will help him understand. If you go the in-patient route, be sure they are convinced of your celiac diagnosis so they don’t think you are refusing (gluten) food because of your other eating i...
  7. RMJ
    This website has the oxalate content of teff flour, but I don’t know anything about the reliability of the source. http://roosclues.blogspot.com/2012/01/oxalate-levels-of-grains-and-starches.html
  8. RMJ
    EDTA salts are chemically synthesized. It is very unlikely that the ingredient would be contaminated with gluten.
  9. RMJ
    False positives are possible, although unlikely. It is very possible to have celiac disease without symptoms, but with intestinal damage.
  10. RMJ
    Yes, it looks like a strong positive. The standards that the lab used to quantify the result only go so high. Theoretically a lab could dilute the sample and rerun to get it within range, then multiply the result by the dilution factor, but since it is definitely positive there’s really no reason for them to do that.
  11. RMJ
    The TTG numbers are expressed in arbitrary units which are not the same for all manufacturers of the tests. Therefore they can’t always be compared between labs. The TTG numbers are also not intended to indicate the degree of intestinal damage. The tests are evaluated by the FDA just looking for a correlation between a positive test and a positive b...
  12. RMJ
    Some people with celiac disease can’t eat any oats - they get the same reaction as to wheat, rye and barley. For those that can eat oats, there is the issue of contamination by other grains in the field, transport and storage. Quaker uses a sorting process that is supposed to remove other grains, but according to this page from their website, only i...
  13. RMJ
    One way to look at it, would the results of the endoscopy change your treatment? Unlikely. If there was no damage seen - great! If there was damage seen, it is only 5 months and your antibodies are not yet normal, so there could quite reasonably still be some damage. You already are on a gluten free diet. You’re doing well. Keep up the good work. ...
  14. RMJ
    Part II, April 1: ”Ironically, Pritchett was feeling well enough to ask his wife to go through the drive-through at McDonald’s and get him a couple of breakfast sandwiches and a Coke, then head to the hospital.”
  15. RMJ
    Oops, that should be endomysial antigen.
  16. RMJ
    EMA stands for endomysial antibodies. To run the EMA test, microscope slides have a thin slice of tissue put on them that includes a type of tissue called endomysium. Dilutions of the blood sample are added. If the person has celiac disease, their antibodies bind to the endomysium. Several other steps are performed to allow the antibodies to be visualized...
  17. RMJ
    The EMA and TTG IgA test look at the same IgA antibody, but the test is run quite differently. Both take blood samples, but the EMA test is read by having someone look under a microscope. I’ll see if I can find an explanation - I know the difference but being able to explain it is different than knowing it!
  18. RMJ
    The EMA usually looks for the Transglutaminase IgA antibody, which in your daughter’s case isn’t applicable due to her IgA deficit. With the antibody levels going down and symptoms resolving on the diet, I think you can be pretty sure she has celiac disease without need for a gluten challenge and biopsy.
  19. RMJ
    I am so sorry to hear about your wife. I am glad you thought to have your daughter tested. Here is some official European guidance on diagnosing children. http://www.espghan.org/fileadmin/user_upload/guidelines_pdf/Guidelines_2404/European_Society_for_Pediatric_Gastroenterology_.28.pdf Your daughter basically meets the criteria for diagnosis...
  20. RMJ
    Celiac disease, by damaging the intestines, can certainly keep you from absorbing nutrients and calories. It can take time to heal and absorb properly. Did you have a biopsy that showed the amount of intestinal damage, or just a blood test? Aside from gluten, do you have annoying symptoms when eating certain foods? Some people are intolerant...
  21. RMJ
    Why is someone with celiac having breakfast sandwiches at McDonalds (Part II April 1).
  22. RMJ
    After several years gluten and oat free and antibodies in the normal ranges I asked my gastroenterologist if I could eat oats. She had me eat them for 6 months and then retested my antibody levels. No effect! I can eat oats! I use Gluten Free Harvest oats.
  23. RMJ
    Not all people with celiac disease have digestive issues. I don’t, but celiac was confirmed by biopsy. Why was he tested? Why did someone suspect celiac?
  24. RMJ
    Were you eating much gluten prior to the test? If you weren’t that could make the values go down.
  25. RMJ
    I’m not sure why you’re limiting your calories on the meat and fruit? You can increase those. When I need to gain weight, fat is my friend! The page you linked lists olive oil, that can go on vegetables.
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