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RMJ

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Everything posted by RMJ

  1. RMJ
    I was asymptomatic with high lab values.
  2. RMJ
    Thank you! Reading material while sheltering at home from COVID.
  3. RMJ
    Thank you so much! I am in the medical/pharmaceutical field and am definitely interested since my celiac antibodies are supersensitive but my symptoms aren’t. I’m hoping GliadinX can help with the gluten contamination I’m getting somewhere and get those antibody levels back to normal.
  4. RMJ
    I wish they had given more information so I could read their publications on enzymes.
  5. RMJ
    I’m glad you have a plan, but one month gluten free might not be enough to relieve symptoms, especially if you’re new to the gluten free diet and don’t know all the places that it can hide. Also, some people find when they go gluten free and then back onto gluten that their symptoms are worse. If it were me I’d try to get the celiac testing without doing a...
  6. RMJ
    When I saw a dietician specializing in celiac disease she also recommended Napa Valley Naturals vinegar. However, that was a few years ago and I see that Stonewall has changed from cherry to oak barrels, which some say are sealed with wheat flour paste. The Stonewall site just says no gluten ingredients.
  7. RMJ
    Sounds like you’re being very careful!
  8. RMJ
    My antibody levels are very susceptible to gluten contamination. I started by not eating anything with gluten-containing ingredients. Levels were lower, but still high. Then I went to making sure everything said gluten free. Levels lower but some still high. Now I only eat processed food that is certified gluten free. What level of gluten free is...
  9. RMJ
    Here is the actual paper. https://reader.elsevier.com/reader/sd/pii/S0013935120307593?token=AD041164D401C712CEDDFC8789A5F23844825982FD6EDC077403B0FB7E6FCA5EA16CBAC7FF1B1CA94E71ADA8463E6153 However, correlation does not always equal causation.
  10. RMJ
    There are several antibody tests for celiac disease including TTG IgA, TTG IgG, DGP IgA, DGP IgG and sometimes EMA. Total IgA is run as a control. TTG = tissue transglutaminase, DGP = deamidated gliadin peptides; IgA and IgG are two classes of antibody; EMA = endomysial antigen which looks for TTG IgA in a different way. The total IgA control is done because...
  11. RMJ
    It is frustrating being a silent celiac. I don’t have symptoms, at least none that I’ve figured out. However, based on my antibody levels, I’m also a super sensitive celiac. My antibodies crept up this year and I don’t know why, therefore I have to cut back on anything that has the slightest chance of contamination. If I had symptoms I could probably have a ...
  12. RMJ
    A crumb CAN hurt someone with celiac disease. Perhaps this will help (I hope you can see it, parts of the website require a paid subscription but I think this page is public). https://www.glutenfreewatchdog.org/news/what-does-10-mg-of-gluten-look-like/
  13. RMJ
    Indirectly via symptom relief and antibody levels.
  14. RMJ
    Not all doctors do a second endoscopy.
  15. RMJ
    The IgA is normal, but that is total IgA, not IgA related to celiac disease. It is measured to ensure that the results for the TTG IgA are relevant. Each manufacturer has their own normal range for TTG IgA, so the Mayo Clinic range may not be the same as the range for your lab. Unfortunately if your results have no normal range you’ll have to wait a...
  16. RMJ
    Yes, you need to be eating plenty of gluten prior to an endoscopy, for at least two weeks. A slice or two of bread per day should be enough. If I were you, I’d get the blood test now, in the manner you mentioned, so that if negative because you’re gluten light it won’t be in your medical records. If doctors saw a negative result they might stop looki...
  17. RMJ
    How much wheat/rye/barley are you eating at the moment? I can’t tell if you went gluten free after your test 11 years ago.
  18. RMJ
    I like to go to the manufacturer for this type of information. Found this on the Nesquik site, although sometimes the answers can vary depending on the country where the item is sold: https://www.nesquik.com/en/faq “All Nesquik ready-to-drink products are gluten free. None of the Nesquik Powder varieties are gluten free and may contain wheat. Please r...
  19. RMJ
    Each manufacturer of the test has their own range for what is positive. Do you know the normal range for your test? Also, some people with celiac disease have normal transglutaminase antibodies but high deamidated gliadin peptide antibodies. Not all doctors order the test for the latter.
  20. RMJ
    I think the anti-TTG is showing how things are going with your daughter, not every doctor looks at anti-DGP.
  21. RMJ
    My anti TissueTransglutaminase came down to normal in a year but it took six years for my anti-DGP (deamidated gliadin peptide) antibodies to come down to the normal range. Your daughter’s results are definitely going in the right direction. They seem to drop about by half per year, perhaps next year they’ll be in the normal range. It is great that she...
  22. RMJ
    Lundberg has certified gluten free rice. I don’t know if all of their rice is certified but a lot is.
  23. RMJ
    Did the celiac panel include DGP (deamidated gliadin peptides)? Some panels include it, some don’t. Some people are only positive on the DGP test. Unfortunately, the degree of positivity on the celiac antibody tests don’t necessarily correlate with the amount of villi damage.
  24. RMJ
    It took me several years to get all of my antibody levels in the normal range, where they stayed for several years. I had my annual blood tests earlier this week and the DGP IgA was low positive, the DGP IgG was negative but much higher than usual. Even those of us with years of experience can mess up. I’ve tried to make a list of changes to diet/p...
  25. RMJ
    In 6 to 12 months you should have the blood tests redone. If the Deamidated gliadin IgA level goes down on the gluten free diet and if your symptoms improve, that would be evidence that gluten really is a problem.
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