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RMJ

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by RMJ

  1. RMJ
    I looked at the original article. The researchers found that not all IELs are the same. Although IELs are increased overall in those with celiac disease, they found a subset of IELs that is decreased.
  2. RMJ
    I do too. The first time my mother gave me a vitamin pill I tried and tried to swallow it until all the coating had dissolved and the inside tasted really terrible! I usually take pills in a mouthful of food. Chew food until ready to swallow, then pop pill into my mouth and swallow with the food. I have a pill for osteoporosis (alendronate) that...
  3. RMJ
    I’m not sure what you mean by “I’m just not good with taking a large amount.” Do you have trouble swallowing the vitamin pills? (I do). If so, for vitamin D you could take a higher dose less often. Vitamin D is the only supplement I take. I take it because I have osteoporosis.
  4. RMJ
    I would be furious if this happened to me. Good for your boyfriend in noticing something that might contain gluten! It sounds like you have his support.
  5. RMJ
    You definitely will need vitamin D. Have you ever had your vitamin D levels checked?
  6. RMJ
    King Arthur makes some certified gluten free flours, but be careful they are not all certified. When I used a lot of Bob’s Red Mill flours my antibody levels went up. I’m a silent celiac so I can’t go by symptoms. My antibody levels went back to normal when I switched to King Arthur.
  7. RMJ
    Unfortunately there’s no clearcut answer to your question. Antibodies will often go up with continued exposure to the antigen, in this case gluten. But sometimes they’ll plateau or even go down. In your daughter’s case, I hope they’ll go up so you can skip the biopsy and start treatment (gluten free diet)!
  8. RMJ
    From what I can find, “gluten based bioplastics” are being studied. Whether they are actually used out in the real world or not I don’t know. Article on gluten based bioplastics
  9. RMJ
    As trents said, you did NOT have a full celiac panel. A full panel would include: Total IgA (if deficient, the other IgA-based tests might not be accurate). TTG-IgA TTG-IgG EMA DGP-IgA (Deamidated Gliadin Peptides) DGP-IgG Not everyone with celiac disease is positive on all tests.
  10. RMJ
    Trent, I’m confused. Crestor and Lipitor are medications to lower cholesterol, they’re not proton pump inhibitors (PPIs).
  11. RMJ
    It’s so great that you’re supporting him in his efforts to eat gluten free. I know some teenage boys need to eat a lot. We never had leftovers when my brother was that age. Some ideas to fill him up and/or get calories into him: Potatoes, perhaps baked with butter and cheese. Hamburgers, although no bread crumbs in it and no bun. Fresh fru...
  12. RMJ
    All four tests positive certainly is a good indication for celiac disease. I’m a little surprised you got the levels down to normal in 5 months, but my surprise may be because it took me 6 years to get deamidated gliadin IgA in the normal range. Has something changed in your diet around the time that symptoms started again? Or a change in medication? ...
  13. RMJ
    This looks like the most recent attempt in Congress to pass a law requiring labeling of medications with respect to gluten, although it didn’t make it through. HR2435 The National Celiac Association advocates for this type of labeling. National Celiac Association Perhaps write to your congressperson and ask them to introduce such legislation o...
  14. RMJ
    This is not one of the standard tests for celiac disease. This tests looks for antibodies against gluten. The celiac tests look for antibodies against either deamidated gliadin peptides or tissue transglutaminase. Here is some information about your test: IgG gluten test
  15. RMJ
    Just to clarify so that you get the information you need: is that LA meaning Los Angeles? Because LA is also the state code for Louisiana.
  16. RMJ
    I am also a fairly silent celiac. I’ve just had to go by the blood tests. After going gluten free I did discover that I had one symptom - nausea (that my doctor discounted). However it isn’t a matter of eat gluten and get immediate nausea. After enjoying a time relatively nausea-free I started to feel nauseated more often when I started baking wit...
  17. RMJ
    My TTG IgA came down pretty quickly, but my DGP IgA took six years to get into the normal range. I found that using foods labeled gluten free isn’t enough for me, it has to be certified gluten free.
  18. RMJ
    I’m not sure what Lysol wipes would do. Gluten can’t be inactivated with Lysol. It has to be physically removed. As for your glass and stainless pieces washed in shared dish water, with sponges, as long as they’re rinsed well afterwards with clean water and there is no visible residue left they should be fine. The washing/sponging loosens any g...
  19. RMJ
    I’m glad you’re feeling better and gaining weight! That’s great. I see from a previous post that your original level was >700. If that is how it was stated, greater than a number, you don’t know if it was actually 701 or 7500. If 7500 it could decrease by 90% and still be over 700! So until you get into a range with an actual number rather than be...
  20. RMJ
    I’ll start with the easy category: Anything metal or ceramic that can be thoroughly cleaned so no residue is visible (not a lot of nooks and crannies) is ok. Sanitizing will not remove/destroy gluten. It has to be physically removed. I’d replace the cutting board if it has any visible scratches.
  21. RMJ
    How wonderfully supportive to have the whole household gluten free!
  22. RMJ
    It says your stomach is normal.
  23. RMJ
    If you stop gluten prior to the endoscopy and no celiac damage is found you won’t know whether it is because she doesn’t have celiac disease or because you stopped gluten. If you don’t have a clear diagnosis of celiac disease from the doctor it can be harder to convince others (relatives, schools, and your daughter herself when she is older) that your ...
  24. RMJ
    With symptoms, family history and positive TTG and Endomysial antigen tests it is likely she has celiac disease. It would be best NOT to remove gluten from her diet now as that could affect any additional testing by the gastroenterologist. While celiac disease isn’t fun, it can be completely taken care of with a gluten free diet, and if she has it, ...
  25. RMJ
    As long as the final product tests under 20ppm the FDA allows this, and it is labeled correctly per FDA regulations. I still probably wouldn’t eat it.
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