Jump to content

RMJ

Advanced Members
 View Profile  See their activity

  • Posts

    1,577

  • Joined

  • Last visited

  • Days Won

    51

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by RMJ

  1. RMJ
    Many doctors don’t even do routine followup endoscopies any more. Was yours a routine followup or due to continuing symptoms? I agree that full healing of villi and thus absorption of nutrients would be ideal. The term “blunted villi” doesn’t say how blunted, so unless the pathology report said something about villous height to crypt depth ratio (...
  2. RMJ
    I only had the one endoscopy. My GI wasn’t worried that I still had blunted villi. My antibody levels are now normal. I never had specific symptoms, although I generally feel better now, less fatigue. I think not having excess lymphocytes any more would be an improvement. Since you still have symptoms I hope your doctors will still look for a...
  3. RMJ
    I don’t know what sort of labeling TJs does for gluten free. In general, if a company labels some products gluten free, then has a product not labeled gluten free, I would be very cautious with that product.
  4. RMJ
    Four years after I started my gluten free diet I still had “focal mild villous blunting.” One of the four antibodies tested was also still a little high (all four had been high at first). Unfortunately, I wasn’t able to have a biopsy prior to going gluten free so don’t know if the blunting was an improvement or not. Did you have a biopsy when diagnos...
  5. RMJ
    I hope your procedure was successful and that you get a definitive answer from the biopsies.
  6. RMJ
    If you’re baking, the King Arthur gliten free flours are enriched with some B vitamins
  7. RMJ
    What organization certifies them? I didn’t see a logo.
  8. RMJ
    Another good indicator for celiac disease without getting a biopsy would be if your antibody levels go down after you’ve been strictly gluten free for 6-12 months.
  9. RMJ
    However, I don’t think the FDA regulation applies to supplements? (At least the original rule didn’t). Perhaps the manufacturer considers Kachava to be a supplement not a food? It looks like their label says “Supplement Facts” not “Nutrition Facts.”
  10. RMJ
    In the US if there is less than 20ppm or less than 10 ppm gluten, food containing barley still canNOT be labeled gluten free, or no gluten or any such synonym UNLESS the grain has been processed to remove gluten and that is stated on the labeling. Just using a tiny amount so the overall product meets the 20 ppm standard is not acceptable. See questions...
  11. RMJ
    You must be doing a great job with the gluten free diet. That’s a good decrease for three months! I’m glad your doctor is looking into your symptoms further with an MRI. So often once celiac is diagnosed any other GI symptoms are attributed to it. I hope you get an answer soon.
  12. RMJ
    I also agree. I would add, be sure to wash your hands at the end of a shift, or before eating if you have a break and a snack.
  13. RMJ
    That is a very high antibody level! It is going to take a while to come down to normal, so she will still have those anti-self antibodies trying to do damage for a while. Four weeks gluten free is not very long. It is unfortunately fairly normal for gastroenterologists to not be terribly helpful in the healing from celiac disease. I hope you can find...
  14. RMJ
    How long have you been gluten free? If you have additional tests done while gluten free you could get false negative results.
  15. RMJ
    I gave a caution but was hoping the research had found the range used by that lab.
  16. RMJ
    Please be careful with interpretation if there wasn’t a reference range included. The units are not absolute, so each manufacturer makes their own range. Sometimes negative is 0-3, sometimes 0-19, from what you’ve seen sometimes 0.0 to 0.4 . . .
  17. RMJ
    Interesting. Thanks for posting.
  18. RMJ
    Total IgA is reasonable. I don’t know why the doctor ordered total IgG. Hopefully actual celiac results will be available soon!
  19. RMJ
    Both of the posted tests have units of mg/dL (milligrams per deciliter). Those are total IgG and IgA, NOT celiac antibodies. Celiac antibodies don’t have units of weight per volume.
  20. RMJ
    This result is just looking at total IgG, one type of antibody, but not to any specific antigen. This test is not looking for celiac disease. The celiac disease results are not listed, they are pending. I’m a little surprised this was ordered. Doctors often order a total IgA test, since the most common antibodies increased in celiac disease are in t...
  21. RMJ
    When I was in college I majored in nutrition science but did not want to be a dietician. I didn’t want to advise people on how to eat and find out the science changed and I’d been giving them bad advice!
  22. RMJ
    I don’t know about the certifier for these croissants, but the FDA allows wheat starch in foods labeled gluten free, if the product meets the 20ppm limit for gluten. However, it must have this statement on the product: “The wheat has been processed to allow this food to meet the Food and Drug Administration (FDA) requirements for gluten-free foods.” ...
  23. RMJ
    Gluten free flour blends can be very different and make big differences in how a baking recipe comes out. I usually have better luck when I use recipes from the company that makes the flour.
  24. RMJ
    I’m sure I’ve heard that there is no gluten or wheat in injectables. I just searched the FDA inactive ingredients database for gluten, wheat, barley, and rye. None are listed as being used in injectables. Wheat starch can be used in tablets.
  25. RMJ
    I don’t see it on this page of the Pepsico website, but sometimes manufacturers say on their websites to check the label on the actual lot of product in question. Ah, here it is on the barbecue crisps page: Lays baked crisps barbecue flavored On the earlier page I linked, I see that barbecue crisps are listed as gluten free, but not barbecue c...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.