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motheroftwins2010

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by motheroftwins2010

  1. motheroftwins2010
    My first doctor started throwing around the refractory diagnosis possibility very early too because I actually got much worse on the gluten-free diet (I have been dairy free for many years before I even knew what celiac was), but I switched hospitals to U of Chicago and we finally figured out that I have fructose intolerance (malabsorbtion in the proper term...
  2. motheroftwins2010
    Yes, for unknown reasons pre-diagnosis my Vit D levels were a bit high at 79 (I did not take any supplements and was not eating dairy so we chalked it up to being outside a lot and being very fair) now I'm nearly 90 and they've asked me to cut back on my new multivitamin, even though I'm low on other things, to prevent it from getting dangerous.
  3. motheroftwins2010
    This is old but I know when people google these or search the forums there aren't always follow ups when the problem was solved. We solved my problem, it was not crohn's or hidden gluten, I have fructose malabsorbsion as well as bit of a sorbitol intolerance. Ironically I figured it out at the gluten free expo because most of the samples were sweetend with...
  4. motheroftwins2010
    Sorry I didn't reply earlier I've been busy. My fiance, the twins's dad, went to talk to them when he dropped them off and they really felt bad about it and apologized he told them it's not the end of the world but it's just an uncomfortable situation and so they gave my kids beads to put on the necklaces. They are hanging but the kitchen door to the garage...
  5. motheroftwins2010
    My twins are in preschool and I volunteered the other day and noticed they made colored pasta but forgot to inquire about it. My son has NCGS but thus far I haven't restricted play doh, pasta crafts, etc but he reacted so this morning at breakfast I asked what it was and if they washed their hands well afterwards. My daughter wouldn't tell me and was extremely...
  6. motheroftwins2010
    I am not sure how I didn't start cracking up right there but yeah scary how little people know about the things they are putting into their bodies. I am really getting good at not laughing in people's faces now a days!
  7. motheroftwins2010
    I had costrochondritis during my pregnancy on the right side near the xyphoid process I think that's what it's called. It never itched but it hurt like hell. There was no external marking either just internal pain. It did go away.
  8. motheroftwins2010
    To answer your question no I don't know any people with celiac disease who have not had a reaction after being gluten free and then again ingesting gluten. Everyone I've spoken too about this has had some reaction definitely not the same for everyone like me I do not get GI symptoms right away if at all but I get debilitating pain which can leave me unable...
  9. motheroftwins2010
    I had a waitress insist that the sauce in the lettuce cups had dairy in it. I knew it was dairy free and gluten free because one of the 4 times I've eaten out since being diagnosed was at this restaurant and discussed this with the manager and chef that it was gluten-free not contaminated and dairy free so I was confused as to why she insisted if had dairy...
  10. motheroftwins2010
    I'm so tempted to ask her what she thinks it is but I'm pretty sure it's just a b*tchy thing to do at this point.
  11. motheroftwins2010
    I think it's really a judgement call some well meaning relatives may not understand even if you give them a very informed run down. Some would be totally trustworthy. Restaurants a least reputable ones have to go by the health department standards and generally ones offering gluten free items have a special class or even sometimes a certification program...
  12. motheroftwins2010
    My future step-niece in-law is gluten free due to an intolerance allegedly. She's not someone I would want to be friends with if it weren't for me marrying her step-fathers brother but she's family. Anyhow since I have celiac and my son is ncgs we brought our own food to Easter lunch. My fiancee went over to her to offer her some gluten free brownies since...
  13. motheroftwins2010
    My celiac specialist dietician told me that most (not every single one just most) wines were naturally gluten free and really shouldn't be coming into contact with gluten UNLESS it's flavored. Any flavored wine or liquor should be avoided unless certified gluten free as it very well could contain gluten cross contamination. I think I am super sensitive I...
  14. motheroftwins2010
    Just an update for anyone who was wondering. My colonoscopy was completely normal so I was sent for a CT Scan to rule out lymphoma. I do not have lymphoma, however, during the CT scan they found inflammation near the end of my small intestine (not anywhere outside of the small intestine though) indicating Crohn's disease and recommended a colonoscpy to confirm...
  15. motheroftwins2010
    Thank you I know it takes a long time to heal but I'm actually getting worse when I was diagnosed I did not have daily diarrhea nor did I have stomach aches and pains now I'm up to 5-6 times a day and regular stomach pains. In addition to losing 7lbs in the first 10 days of going gluten free and not gaining it back. So rather than just feeling bad I'm worsening...
  16. motheroftwins2010
    I'm now at 9 weeks post diagnosis and on the gluten-free diet I am certain the gluten is all gone from our house and I don't eat processed foods or eat out but I'm now up to diarrhea 5-6 times a day (no matter what I eat or if I even eat), no weight gain still losing very small amounts of weight, bad fatigue, and stomach aches and pains all the time. My colonoscopy...
  17. motheroftwins2010
    Did you ever get an answer? I have a colonoscopy tomorrow because after being diagnosed with a biopsy with celiac and most of my symptoms rapidly got worse and my weight dropped dramatically in the first 10 days and I haven't improved or maintained any weight gain since Jan 3. They are looking for microscopic colitis first and foremost but I'm very concerned...
  18. motheroftwins2010
    My GI told me that the TTG IgA test is almost never wrong when it is positive. Although for an official diagnosis it would need to be biopsy confirmed but if I were you I would not gluten challenge just to confirm something that is basically 98 or 99% a sure thing.
  19. motheroftwins2010
    Quaker in general does not use gluten free facilities unless stated on the label gluten-free. If you got glutened I would bet on it being the quaker product.
  20. motheroftwins2010
    Ive found whole foods reputation as expensive is simply not true. Ive been comparing the prices with our two most popular grocery stores Dominick's (out of business now) and jewel osco and whole foods is the same or cheaper if buying regular groceries. Not to mention everything is in one store so i save time and gas too. I find trader joe's selections too...
  21. motheroftwins2010
    Asian Chicken Skewers with Peanut Sauce from my favorite gluten-free cook book (The Dairy-Free Gluten-Free Kitchen) and my own yet to be created/thought up quinoa salad with some sort of lemony-dill sauce!
  22. motheroftwins2010
    I did not have as many biopsies as you I had four. They all read the same Moderate vilious blunting and increase intraepithelial lympocytes. What the physician did note on visual inspection is that I have erosions but due to the wording I couldn't tell if it was in the stomach, duodenum or the small intestine itself. I also tested negative for H Pylori. ...
  23. motheroftwins2010
    I love my fitness pal I too am using it "backwards" I'm still healing so I havent gained anything but i used it 2.5 years prediagnosis and the weightloss i recorded on the app was one crucial peice of info that helped lead to my diagnosis. Every time I thought i knew how much i had lost i looked back and was able to give actual numbers to my doctor and I...
  24. motheroftwins2010
    The Dairy-free and Gluten-free Kitchen by Denise Jardine is amazing! I like that nothing processed is called for but if you have a milk sub you buy or stock you purchase and like you can use it and its full of great tasting recipes even my non gluten-free fammily loves it!
  25. motheroftwins2010
    It is a gross store the gluten free isle is in the same isle as the four bags and usually has exploded flour all over the floor its a nightmare and i think giving the health department a call is an excellent idea. I usually only buy my kids gluten free school snack cracker things there. That was the 1st and LAST time I will ever buy meat there. I saw the...
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