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Galixie

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Galixie

  1. Galixie
    I am only repeating what I was told, so I don't really know myself. Last night I was reading this article that seems to indicate (in rats anyway) that inflammation can affect nutrient absorption. So that's interesting. Open Original Shared Link
  2. Galixie
    Thank you for the replies. The second endoscopy was really mainly looking for an ulcer. I only briefly brought up the topic of celiac when speaking with the consultant. None of us were really thinking of it as a possibility at the time. I had gone from feeling fine to a fairly sudden onset of symptoms that all seemed to point toward ulcer. The symptoms...
  3. Galixie
    I apologize in advance for the length of this. I'm complicated and very confused. 8 years ago I was tested for celiac because of some vitamin deficiencies. The only test that came back positive was a gliadin iga. An upper endoscopy also didn't find celiac. I didn't have any typical celiac symptoms but going off of gluten seemed to improve the dizzy spells...
  4. Galixie
    The hematologist doesn't think my iron is a problem and I totally forgot to bring up the itching (mostly because I was so floored that he didn't think iron was a problem that I was speechless). He does think I have low blood volume. Getting that confirmed is not going to happen, so he's treating me for that based on symptoms (mainly hypotension and anemia...
  5. Galixie
    Sadly there are a bunch of reasons why it hasn't been treated yet. 1. The doctor who I asked to check my iron levels isn't my regular GP, so when everything came back "in the normal range" she didn't think anything needed to be done. 2. It took a month for me to get a copy of the actual results because record requests are, apparently, that slow...
  6. Galixie
    I do plan to go gluten free again. I've just been so fed up with my body's various problems that I needed a break from at least one of them, ya know? It looks like iron deficiency can also cause this type of itching, so it might be related to that. All of the problems I'm currently dealing with (dizziness, hypoxia, iron deficiency) were all happening...
  7. Galixie
    I know I'm adding to a long and old thread, but as I'm really just describing my own idiocy, I figure I don't need to create a separate thread for it. lol In the realm of 'don't try this at home': To sum up my previous experience, I've figured out that I have gluten ataxia and it is the only symptom that I was able to clearly point to after reintroducing...
  8. Galixie

    ARCHIVED Defeated

    Galixie replied to Galixie's topic in Coping with Celiac Disease

    Thanks you guys. I think part of my sadness is that, lately, I am seeing items that I used to buy regularly at my local store getting discontinued. I can understand that gluten and dairy free stuff is not a big seller, but it really sucks when your go-to items are no longer available. Dairy is kind of a big deal for me. I'm sensitive to both casein...
  9. Galixie

    ARCHIVED Defeated

    Galixie posted a topic in Coping with Celiac Disease

    I miss being able to find food I can eat. After going up and down the frozen food isle at Albertsons (twice) and not finding any frozen dinners that were gluten and dairy free, I went over to the ready-made counter and asked the attendant if the roasted chicken had any gluten in it. He looked puzzled, so I asked if there was any flour in it. He told me...
  10. Galixie
    I was watching the news a couple of nights ago and there was a story about a treatment for celiac that is under development. It sounds kind of neat because some researchers have been able to invent an enzyme that doesn't exist in nature that can destroy gliadin. Obviously the goal is to treat people with celiac disease. It sounds like it might also be promising...
  11. Galixie

    ARCHIVED My weekend

    Galixie replied to Galixie's topic in Coping with Celiac Disease

    I did and I left her a thank you note also.
  12. Galixie
    I suspect, considering how long ago you posted the question, that you have already gotten your answer. I'm sure it's different for everyone. I ended up eliminating dairy (kind of by accident, but I decided to just roll with it when it happened) and the first thing that happened for me was a splitting sinus headache. I think that was within the first...
  13. Galixie

    ARCHIVED My weekend

    Galixie replied to Galixie's topic in Coping with Celiac Disease

    If only I had a medical diagnosis... ::sigh::
  14. Galixie

    ARCHIVED My weekend

    Galixie posted a topic in Coping with Celiac Disease

    I had two experiences this weekend. One was unusual and one was not. The unusual one happened at a restaurant. I had ordered a burger on a gluten free bun. We were waiting for our food for a long time and had just begun to speculate on what the hold up was, when our server came over to explain that my burger had been put on a regular bun and she had...
  15. Galixie
    You'll want to keep an eye on all your vitamin levels, as absorption problems are quite common with gastritis. You've probably already looked it up, but this is the WebMD page on gastritis. Open Original Shared Link It's not the best article as they mention 'treating' it with antacids which is pretty much the opposite of helpful. (Open Original Shared Link ...
  16. Galixie
    You mentioned PCOS and also that you're B12 deficient and that rang some bells with me. Are you getting treated for the B12 deficiency? I ask because I was once diagnosed with 'atypical PCOS' (I had small peripheral cysts on each ovary but normal hormone levels). It was later discovered that my B12 was low and, after several months of B12 injections...
  17. Galixie
    Thank you Boron. So far I haven't been given any recommendations on treatment, but I do think I prefer not to have surgery if I can avoid it.
  18. Galixie
    Yeah, my hemoglobin always seems to be around 13, so it's totally fine. Thanks for all the info! I'm still stumped on my oxygen problem. If my heart and lungs are both fine, then it has to be a blood disorder of some kind. The weird part is that there really doesn't appear to be any anemia going on, so it doesn't make any sense whatsoever. Hopefully...
  19. Galixie
    Yeah, I know it sounds kind of crazy. The really crazy part is that they all came to the idea on their own and I really don't fit any of this: "Risk factors for thalassemia include: Asian, Chinese, Mediterranean, or African American ethnicity Family history of the disorder" I haven't had any genetic testing done. The reason the most recent...
  20. Galixie
    Do you ever feel like cheating when you're sick because you already feel miserable and it couldn't really make you feel worse? 'Cuz that is how I feel currently. So far I've managed to resist the urge, but the longer I feel unwell the harder it is becoming. Last night I was fantasizing about fried chicken, sourdough bread, and a milkshake. In the past...
  21. Galixie
    Thanks Cyclinglady. I think you are right that the woman in the article probably didn't have celiac to begin with. Hope spring eternal that I'll someday stumble upon something that lets me go back to a semi-normal way of eating. (Life would be easier if I could have soy sauce.) Gallstones seem to run in my family also. Oddly, though multiple people...
  22. Galixie
    It turns out that I have a very large gallstone (think golf ball sized). I know it's been there for over a year because it was spotted on a CT scan that was done in January 2015 as well as one that was done two weeks ago. As far as I know, I've never had a gallbladder attack. (I'm guessing I would know if I had.) One of my friends suggested that maybe...
  23. Galixie
    I always find myself reading the articles about how to tell if you have a gluten intolerance. I don't know why I read them. This one caught my eye though: Open Original Shared Link It sounds fascinating and I wonder if it works. Unfortunately, it seems to be specifically useful for people who have gut issues (and I'm guessing only gut issues), so...
  24. Galixie
    I tried Quorn a number of (more than 10) years ago. I had a pretty significant reaction to it (bloody D) and have never eaten it again. I'm sure it is fine for many people, but some, like myself, clearly do have a bad reaction to it. I wasn't watching for gluten back then, so I would never have noticed if it had any gluten or not. Gluten alone doesn't give...
  25. Galixie
    I find myself trying to explain this to pretty much everyone, so I'll just explain it here too: I have a couple of forms of anemia. One of them is treatable with B12 injections and the other is largely untreatable. This means that nothing I eat will increase my energy levels. (Neither form of my anemia are treatable through food or oral supplements....
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