exseitanist
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I have a plot in a community garden. Today I inquired about the tall grass-like plants in my neighbor's plot: rye, I was told.
My first reaction is to wonder whether my regular rinsing is enough for lettuce. Is there anything in truth to be concerned about with cereal grains swaying over my plot in the breeze? Or when they harvest?
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I was diagnosed with occipital neuralgia several years ago, before celiac disease diagnosis. Symptoms that led to that diagnosis included constant migraines for a decade. The doctor said that it was due to osteoarthritis at C2-C3 on the spine. I had radiofrequency neurotomy several years ago to disable the third occipital nerves but was told that they would come back after a year or two.
Post-diagnosis of celiac disease, I have had only three migraines, all traceable to accidental glutening, plus occasional stabbing neck pain when it's cold and humid out. The gluten-free diet certainly feels like it reduces flareups of ON.
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Until my diagnosis in October 2013, I was always warm, wearing shorts when it was above 25 F outside. Last winter, I was colder than I had ever been and the only changes were a gluten-free diet and aging. This fall I'm starting to get cold at 30 F!
This summer is the first one that I haven't been absolutely miserable during the summer, and it was the hottest summer I've experienced in Seattle.
Does recovery include having a more 'normal' experience of the weather?
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. I think maybe my tongue swells up. I also bite the inside of my cheeks. I think this causes me to talk with difficulty and I have begun to suspect these are linked with my gluten/other intolerance problems.
Dee
I certainly experience this combination of symptoms when glutened, as well as stumbling over words, phrasing, pronunciation. All very frustrating! The saving grace is that I now know that I have celiac disease; before, I thought I was losing intelligence daily.
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A diagnosis of osteoarthritis in my neck was made a few years ago, providing a physical cause for decades of crippling migraines. My celiac diagnosis came 2 years after the arthritis diagnosis and I imagine the celiac-related digestive problems contributed to the arthritis development.
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I had severe memory issues for about a decade prior to celiac diagnosis...it was one of the first things that made my family notice things were deteriorating because I had an excellent memory for my first 35 years...so when I started saying regularly...."I don't remember that" my family and close friends couldn't believe it. Also had the can't pull the correct words out of the brain-itis for a very long time and it returns when I flare.
Thankfully, my memory has returned and I am enjoying reliving many fond ones lately. It did take a very long time to recover from my memory issues and there are still a few holes...hoping to get even more back with time.
That gives me hope as I have had difficulty retrieving memories and words over the past few years. 8 months post-diagnosis and I don't stumble over words like I did a year ago, but memory issues seem to linger and it's quite annoying.
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Here's one that I haven't tried but would like to: Open Original Shared Link
I have tried this one and I like it fairly well:
Gluten Free Seitan
I'm curious, are you a vegetarian?
I personally am a gluten-free ovo vegetarian.
That looks interesting, I'll try it soon.
I went ovo-lacto vegetarian 25 years ago; 7 months on celiac diet. I've had dairy on occasion since diagnosis but it wreaks havoc on me when I do, so I'm now also gluten-free ovo vegetarian.
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Hi there,
Here are two really good links (particularly the second one) that may help explain 23andme's weird reporting system as it relates to the more common DQ type nomenclature:
Open Original Shared Link
Open Original Shared Link!po=53.1250 – This is actually a study. Very informative and interesting if you choose to read through the whole thing. However, if you skip to page 10 and click on table 3, you'll find a list of the celiac related DQ types, their SNP tags as well as risk alleles. I'm not sure if 23andme is still testing for all of these SNP tags, but the DQ2.2, DQ2.5 and DQ8 tags still work for me (my chip is from last September/October). I suggest referencing the first link for DQ2.2, because I think they've since updated one of the tags.
As others have said, 23andme only looks for DQ2.5 when establishing celiac disease risk, however they are also reporting on a few other SNP's (from different chromosomes or different parts of chromosomes, so non HLA-DQ types) that may be associated with celiac. Their studies and any they cite on these other genes/risk factors have yet to be validated.
Best wishes,
Ninja
This is great information, particularly table 3 you referenced. That helped me understand that my DQ type is DQ2.5 since I have a T on s2187668.
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I had my doctor order them thru Quest years after I was officially diagnosed. There are several places that do it. To my surprise, my insurance paid for it without a peep! Just proving, that when it comes to Celiac Disease, they haven't a clue.
Nice that they covered it for you, I'll have to ask at my next doctor visit unless I decide that my 23andme snp data is sufficient for me.
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I find that I have no problems at the store finding dried beans without a "packaged in/on/with blah blah blah" statement. Rinse well before using because that's the directions anyway and on I go. I do though usually buy canned because it's easier, I don't need the hassle of turning dry beans into food when I need 1 can cooking for 2 people. If you go into a grocery store during the day on a weekday you should easily be able to make a few phone calls to the brands you find of chickpeas on the shelves. While not necessarily certified, I think you'll be able to find ones that you deem safe.
Shortly after my diagnosis I found an argument for only purchasing certified gluten-free beans (Open Original Shared Link) and it seemed like a reasonable goal. Since I'm still settling in to the reality of celiac disease, I'd rather eliminate as much uncertainty as possible.
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Since diagnosis, I've been careful to buy dry legumes that are certified gluten-free, primarily from augasonfarms.com. I'm mostly fine with their limited selection, but I really miss hummus.
Would anyone point me to chickpeas that are known to be safe - not processed on shared equipment, ideally certified gluten-free? Or is this an unrealistic goal?
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That place has had some issues. They seem to look for genes with associations (apparently not all proven) and go with statistics.
"we still do not have any assurance that the firm has analytically or clinically validated the PGS for its intended uses, which have expanded from the uses that the firm identified in its submissions."
Open Original Shared Link
Open Original Shared Link
Read the company's info carefully to see what the issues might be.
I see, thanks. Are there low-cost genetic tests that would highlight the gene variants associated with celiac disease? It's purely curiosity at this time since I had my diagnosis via biopsy.
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I just joined this site, 6 months after my celiac diagnosis. Thank you for talking about this disease!
23andme lists several SNPs associated with my risk of celiac disease, but none of their descriptions mention HLA-DQ2 or HLA-DQ8. Even looking up those SNPs in snpedia.com only showed HLA-DQA1.
I read that -DQ2 or -DQ8 are almost always found in celiac patients. If 23andme doesn't list either of those variants for my genetic profile, does that mean that I don't have either of them? Or is there a knowledge gap I need to fill?
Can Food In My Garden Get Contaminated?
in Coping with Celiac Disease
Posted
Thank you both for confirming my belief. btw, I've never eaten banana skin, and barely have tolerated eating lemon or orange peels.