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About KEMB

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  1. I agree that it's a disappointing article. Instead of offering helpful advice, it makes the case for why an emergency supply is needed and then directs you to her site to shop for the products. I understand the need to have sponsors to help support celiac.com, but I think this really blurs the lines between sharing advice and sponsored content. When sponsored content isn't identified as such, it brings into question the objectivity of what is offered across the celiac.com website. I had expected this article to be helpful, not a sales pitch.
  2. Agree massage can help, also Bowen therapy. I used to do massage, then started Bowen when the massage was no longer helping my back issues. I was amazed at how much such a gentle treatment helped. Now I do Bowen tune-ups every 6 weeks and am considering adding back a 90-minute massage in-between Bowen sessions because I love the treatment. Daily stretching to improve and maintain flexibility is essential. You have to keep at it, but when you figure out the ones you need the most you can do those more frequently (I often will do a pigeon pose unconnected to a full yoga session). Gentle yoga can do wonders. It doesn't have to be a tough session. Also mat pilates. MELT method is also good for the entire facia. I don't know how old you are, but it's also important as you age to maintain strength and balance, especially to keep the hip muscles and glutes strong and engaged. If you're feeling limited by tight muscles causing back pain, you risk losing strength and fitness - it's a downward spiral. I let my glutes and hip flexors and rotators weaken without realizing what was happening, and it's been a real chore to get them back in condition. I learned that dormant butt syndrome can happen to anyone, even runners who are in otherwise good condition. And when your glutes aren't supporting you, you transfer the impact to the back and knee and hip joints. A good therapist will address all of the connections, from your gait to your strength and flexibility, and help determine if it is something more than tight muscles causing your pain. I found success with one who uses the Mckenzie Method. Also, if excess weight is an issue, your back (and joints) may be feeling it. Losing 10 lbs made a big difference for me. Finally, I've found that the movement of dance - zumba, jazzercise, etc - helps to keep the muscles fluid through movement I would not experience in normal day to day activities.
  3. KEMB

    Distilled Vinegar

    I don't have an answer but one thing to check is whether the vinegar is actually distilled. There a Sarson's Distilled Malt Vinegar (UK) but if you look at their process on the their web site (how we make it), it's fermented and doesn't appear to be distilled (unless they use a different process not on the site). Distilled malt vinegar appears to be a UK thing. You might be able to learn whether the distilling process used for malt vinegar is a true distilling process and how the UK categorizes it for gluten content. I'm curious about it because it would be nice to be able to use malt vinegar, but I won't dare take a chance without some reliable validation of gluten content. https://www.sarsons.co.uk/range/distilled-malt-vinegar
  4. @Lou23 I don't know what might work for you but I recently went on an autoimmune diet because I felt there were other autoimmune issues that were causing system wide inflamation and pain. I am a celiac and gluten free for 15+ years. The diet is from The Autoimmune Fix, Dr. Tom Bryan, and involves an elimination diet targeting potential antibodies that get into your system through leaky gut and cause collateral damage. You eliminate gluten, sugar, and dairy in Phase I, and additional items in Phase 2 if needed. Give your gut time to heal and slowly try adding back in some foods (but never add back gluten). After a few weeks in Phase 1 I'm finding that weight loss is happening very easily. I'm also taking glutamine supplements. I'm paying more attention to what I'm eating, which helps, but I'm also finding it easier to control my appetite. I've also had more energy to be able to increase my activity. It appears that this combination for me is allowing weight to come off more easily.
  5. I use the generic loratadine tabs, AllerClear, from Costco. The bottle states that it's gluten free. I switched to it a couple of weeks ago to see if it would work better than the generic cetrizene HCL I'd been taking for a while, Aller-Tec, also from Costco. My allergies have been worse since the switch though it's possible it's due to increased pollens and not that the AllerClear is less effective. But both say they are gluten free. I do not know about the reditabs but if you are taking them only to avoid a pill form that contains gluten, you might take a look at the Costco brand or another generic. Also, I've found that some pharmacists are not very knowledgable about gluten and may state there is gluten if there is corn.
  6. @GFinDC thanks for explaining how respond to a post. This is a test!
  7. Sorry Dayle. I thought I was responding to the original post by Inc. and that she/he started having problems after moving into an apartment. Obviously I don't know how to post on this forum.
  8. If I were in your situation given the timing I'd contact the appropriate local health dept. to see about having someone test your apartment. While you may be exposed to something you are allergic to, it is also possible that your are being exposed to something that would be toxic to anyone. For example, if the apartment had previously been used to make meth.
  9. Thank you posterboy for sharing the study information. I hadn't seen this one. Even though it's a very small sample size and not enough to confirm effectiveness for celiacs, it's a start. Hopefully there are other studies going on - I haven't looked into it and need to try harder to stay up to date.
  10. The only information that seems to be available on gliadinx is from the outfit that sells it. I'm very leary of these products that people are desperate for and which are highly priced. A product to deal with incidental ingestion of gluten is what we dream of, but supplements aren't regulated enough to avoid for-profit scams. I was actually disappointed to see this website publish an article a while back that could be interpreted as endorsement of this product.. I'm waiting to see some independent analysis and support from the celiac medical community rather than dump a bunch of money to try it out. There was another product several years ago making the same claim and it disappeared from the market. And of course as already discussed, if it is effective, it would only be for incidental ingestion of gluten if taken when the food is being ingested. But wouldn't that alone be life changing!
  11. I just purchased some sugar free black cherry Halls cough drops. I had a reaction when I tried them about 10 years ago but thought they might be okay now based on forum posts. After just 2 drops I developed severe abdominal pain and headache, exactly the same as when I am glutened. I waited a couple of days, tried again and the same thing happened. Just like 10 years ago. I contacted the company to inquire about gluten content and they referred me to their product information site with ingredient information. I informed them that the ingredient information isn't adequate to determine if the product contains gluten and that is why celiacs contact manufacturers for more accurate information. They refused to provide me with any information about whether or not the sugar free drops contain gluten. I've thrown them away and am now staying away from all of their products.
  12. You might try Franz gluten free bread. They use a dedicated gluten free facility - at least in Oregon. Their Oregon facility also produces Canyon Bakehouse gluten free bread - at least they did as of a couple of years ago when I last communicated with them. I don't know about their facilities at other locations.
  13. It's too soon for me to say how quickly the B6 toxicity symtoms go away - especially the neurological ones which people say can take longer - but it does seem that some are subsiding, including the fatigue. Just very tired some days but most are better. My PCP did the complete blood count, complete metabolic panel, thyroid TSH, and vitamin D blood tests and all were fine so it stopped there. Like you, I felt the symptoms were being written off as stress and/or depression. I found the neurologist on my own and he ordered several other tests, including the B12, B6, glucose tolerance, ANA autoimmune panel, glycohemoglobin, and immunoelectrophoresis serum blood tests. I continued to try to push through my fatigue throughout all of this and stick with my exercise program as much as possible, even if I could barely get through it. I think that puts you in a better place to recover from.
  14. Have your neurologist check on vit B6 levels (pyroxidine). I've been gluten free more than 10 years but recently discovered I have toxic levels of B6 in my blood even though I was not taking very high B6 supplements, but still well above the MDR. You have to check the blood levels, because numbness/tingling (which I have) is a symptom of both high and low B6. There are also many other symtoms than may occur with B6 toxicity.
  15. Yes, primarily on one side. I've found that inflammation can spread from the sternum outward into my armpit and even my back if I let it get away, and if I'm already having pain when I get a mammogram, it seems to trigger a broader flare-up. I haven't had problems with my mammograms for several years now as my flare-up's are infrequent and I always make sure I don't go if I'm having one. I don't really have a diagnosis so don't know if it's the same as your problem. The doctors never got past calling it inflammation of the chest wall which at times has seemed to originate from my sternum. Stretch, sauna, then biofreeze (and sometimes ice while in the sauna) has been my approach (usually right after exercising) for many years for all kinds of joint and muscle issues. Time consuming but seems to help recovery and keeps me going.