Jump to content

SurreyGirl

Advanced Members
 View Profile  See their activity

  • Posts

    56

  • Joined

  • Last visited

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by SurreyGirl

  1. SurreyGirl
    Keep going Claire, I have high hopes that with people like you we can get somewhere with this. I have been reading the medical stuff for years now (my son is 13), but celiac discovery is recent and explains ALL the symptoms seen in my son's condition and is directly related to ataxia/gluten ataxia research. I have told him what the worst scenario could...
  2. SurreyGirl
    Thank you Claire, we are thinking the same.. Until now I have been told by all the doctors that my son is doing "better than expected" too. Now he improved so much that the school are sending me notes how well he is doing. Stiffness in his feet joints has subsided and the foot angle improved by 10 degrees in less then a month. He always had a decent...
  3. SurreyGirl
    Thank you so much, Claire, Good point about MRI, no we haven't had it done yet. We were told (approx 12 years ago) that his faulty gene will cause neurological damage *full stop*, nothing can be done to stop it or slow it down. The same gene (I am not yet sure whether the same exactly fault though) is responsible for Friedeirich's ataxia, ataxia and...
  4. SurreyGirl
    Not very heavy at all, thank you Claire, Nantzie, Everyone... I have once seen a metaphor in a scientific paper by a Chinese cancer researcher comparing genetic makeup to a loaded gun: on its own is harmless, but if you pull the trigger then it can kill. I am convinced that even if someone carries a faulty gene, then given the right sort of diet/lifestyle...
  5. SurreyGirl
    I am incredibly impressed by your no-milk knowledge and how switched on you all are... it feels like I am on the right planet at last! But why is the contradictory advice still so abundant not just in commercials but even in doctors' surgeries?? If anyone would like to expand their knowledge why dairy are not what they appear to be, then I can recommend...
  6. SurreyGirl
    Dear EVERYONE I am most grateful for ALL your replies.. I will print this thread and show it to our priest when I pluck up the courage. SG Hi Rachel I am making a long list of questions before the appointment with Dr Hadjivassiliou. I have actually been in touch with him already and it all looks very interesting, exciting even. Now we...
  7. SurreyGirl
    Hello everyone I have been reading this board for a while and I think everyone here is absolutely awesome. I am still learning the gluten-free ropes and I would be grateful for some advice on this particular topic. Here is the background: my son (age 13) has a prognosis of a severe ataxia and soft signs already (this was discovered after genetic testing...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.