SurreyGirl
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Latest Celiac Disease News & Research:
Everything posted by SurreyGirl
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Guys, please read the second article in the weblink (about 1/3rd down)-this fits incredibly well into the autoimmunity picture! Open Original Shared Link The article is titled: INOCULATIONS: THE TRUE WEAPONS OF MASS DESTRUCTION CAUSING VIDS (VACCINE INDUCED DISEASES) (AN EPIDEMIC OF GENOCIDE) by Rebecca Carley, M.D. Court Qualified Expert...
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Thank you Julie and all who have responded. You have helped me to make up my mind. I think I better stick to my corriander + chlorella. My son's symptoms are not that severe to justify this. I would find it heartbreaking to put him through this treatment.
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ARCHIVED Celiac, Brain Fog, And Alzheimer's
SurreyGirl replied to Fiddle-Faddle's topic in Related Issues & Disorders
I think looking at celiac only (in comparison with Alzheimers) is too limiting.. The whole spectrum stretches much further to no-gut symptoms gluten sensitivity. In Alzheimers, the problem in the brain occurs because of a build up of plaques, sometimes called calcification (could these be made from calcium? - or is it just a general term?). Another... -
Hi Corrinne, that's so cool you are a scientist, I could do with some of your knowledge!! I am really grateful for your reply. The more I think about it, the more I feel that there would be a benefit to my son from chelation. You see, he had very few (virtually none really) gut symptoms - just constipation, but his prognosis was/is ataxia. He is holding...
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Hi all Just wanted to ask whether anyone considered/experienced chelation and what your opinions might be of this treatment and/or any side effects? I am considering it for my 14 year old son, who has so far greatly improved on gluten-free diet, but I feel maybe he could do with an extra cleansing. With all the effects of malabsorption and deficiencies...
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Lollie, there is a lot more to gluten than celiac: my son has gluten sensitivity with virtually no bothersome gut symptoms, but clear signs of malabsorption, consistent with gluten sensitivity. He responded so well to the gluten-free diet that it's here to stay, because I feel I don't want to put him through too much testing for the sake of a piece of paper...
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Hi Lollie I can relate to what you say about children's food likes and dislikes. Over the years I trusted my guts when my son displayed dislike of cereals and beans. My God, it has proved so right... I now feel sick at the thought that for many years I had been feeding him poison, albeit unknowingly. Have a look at this link, it talks about how the...
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Hi Claire, that's a bit tough, sorry to hear this(good website by the way!). This would definitely affect absorption and healing. Did you listen to the radio program by dr Timmins recomended in "Living with" section a few weeks ago? He talked about pockets of the damaged, infected or ulcerated gut from from pre-gluten days and when the healing starts...
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Thanks Claire, Loren Cordain is brilliant. I came across his research early on and haven't looked back since. I have even contacted him about lectins. His website is Open Original Shared Link and my start was his awesome "Cereal Grains - double edged sword" paper, it's item 26 in the Published Research section of his website.
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ARCHIVED Whats Wrong With Me?
SurreyGirl replied to num1habsfan's topic in Coping with Celiac Disease
Lisa, sweetheart, you have me very worried. It was you who talked about UTI a few weeks ago? And then the bladder infection? I hope you can prove me wrong, but it does look to me that you have something wrong with kidneys. You MUST have your kidneys assessed URGENTLY. Please don't go treating just the latest symptom. Your symptoms suggest that there... -
ARCHIVED Chipped And Cracked Teeth
SurreyGirl replied to Ashley's topic in Coping with Celiac Disease
My son's tooth once disintegrated piece by piece - dentist first tried gluing it together, but in the end, he picked out the pieces one by one. Some dentists use varnish for celiacs, but my personal view is to do it from the inside by good supplements. Remember, vit D is fat soluble and often deficient in celiacs due to fat malabsorption. My son is a teenager... -
ARCHIVED For The Guys(is This Common?)
SurreyGirl replied to spyderbabe's topic in Coping with Celiac Disease
Hi spyder, consider this: Celiac causes malabsorption of many nutrients. It's well known that various organs would enlarge over time if they experience prolonged deficiencies of nutrients as they try to enlarge their absorptive mass/area to grab more of what they need from the blood (eg thyroid enlarges when iodine is low, red blood cells when B12 and/or... -
Hi FS, have a look at Loren Cordain's research literature. He has papers on acne as well as other gluten-related issues, papers 2, 11, 26 but others too. He has recently presented his acne findings at the deramtology conference in London. Open Original Shared Link
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ARCHIVED Gluten Sensitivity - Celiac - Ataxia Etc.
SurreyGirl replied to Claire's topic in Related Issues & Disorders
Thank you Claire. No he hasn't had this test, although when he was little he was often presribed lactulose, so I am vaguely familiar with it. In those days we were completely in the dark (well, literally!). Look what I found! More about CIC (circulating immune complexes). Now I understand more why in Dangerous Grains, the authors said that anyone with... -
ARCHIVED Gluten Sensitivity - Celiac - Ataxia Etc.
SurreyGirl replied to Claire's topic in Related Issues & Disorders
Hi Claire Just had another thought and I wonder whether you/anyone can point me in the right direction. In ataxia seen in XP, it's noticeable that the tendons either don't grow or shorten - this makes it difficult to walk. I am totally convinced that there is something happening to blood vessels feeding the body with nutrients (it always starts at the... -
Just wondered whether anyone out there has looked into ataxia generally rather than gluten ataxia only? I have no doubt that gluten-free diet helps, but not yet entirely sure whether the improvement would be sustainable - and I can see from some of your experiences that it sort-of varies. I read this article (Open Original Shared Link) a while back and...
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That's so much like me (and my mum before me..). I suspect that, as with other gluten damage, some may be permanent - especially if you consider Perkinje/neuro cells. But if it stays as it is - for me that's a hope. I know of 2 cases affected by ataxia who also have eyesight damage, one of them has gone blind over the years. They have never been tested...
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ARCHIVED Nephrotic Syndrome/minimal Change Disease
SurreyGirl replied to Jnkmnky's topic in Related Issues & Disorders
Hi Jnkmnky I have persistent hematuria and I have given up on trying to get to the bottom of it. It has decreased since on gluten-free diet, so I am leaving it at that for now. From symptoms around my blood family, I suspect I have gluten intolerance rather than celiac - although I haven't been tested. Have you see Loren Cordain's article "cereal grains... -
Hi Claire Don't know what to say... Is that the HLA test/s that you are thinking of next? At least you are dealing with people who know something about gluten (around here they look at me like I am totally nuts). I would also be interested to know whether anyone anywhere has actually been recommended gluten-free diet for ataxia on the basis of any...
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There is an autoimmune condition called dermatomyositis, although this presents itself more in purple patches. Since many autoimmune conditions can be triggered by gluten, could there be a connection?
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Lisa, I don't want to worry you, only to make you aware. For years I have suffered blood in urine (highest on the charts, but not actually visible) and frequent urination. Doctors usually said that some people have these symptoms. Only recently another doctor made me aware of a condition called nephropathy, which can be very severe (can lead to kidney...
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Hi Carla I have just come back from Italy and found food a bit disappointing when it comes to gluten-free (although I loved Venice!). My son survived on risotto and supplies brought from home (and topped up at the supermarket). I don't know how/where the Italian celiacs eat, but the menus are full of typical Italian non-gluten-free foods. There was...
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It's a privilege to meet you Caeli. I do believe that we are on this earth for a reason and at times I get glimpses of someone above pointing me in certain direction. If your planned research helps some of us, then it's such a worthwhile step. Just to add a note on wheat/gluten: I have read somewhere in recent months that gluten can be washed out...
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Dear JNKM.., please expand a little more about the anti-inflammatory food/spices - or point me in the direction where I could find out more. Do you mean antioxidant-type of foods, ie fresh veg, fruits and herbs - or is there more to it? Inflammation does contribute to leaky gut, so I would be interested to work out how this can be minimised.
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ARCHIVED Genes Can Be 'changed' By Foods
SurreyGirl replied to Claire's topic in Related Issues & Disorders
Gina, thank you for your caseine enzyme idea, I never knew this existed. I will look into it and also ask our consultant about it.