dopaminegirl

Apologies for my over-reaction. As the shampoo exposure was only for a couple week or so, I doubt any lab tests would have indicated exposure. Unfortunately, since I didn't have the antibodies, I can only rely on my symptoms to tell me if I've been exposed. I'm fortunate enough that eliminating gluten (and dairy) from my diet completely fixed my...

The reason I think it was the shampoo? Process of elimination. Our house is almost entirely gluten free (except for this shampoo which slipped through the cracks until I read the ingredient label). My husband has bread that he eats at lunch, but he practices something that resembles aseptic technique from the lab when he's making his sandwiches. He's...

I also can't have dairy but through a series of experiments and a lot of research I think I've pinpointed my problem. It may or may not be the same for you, but I thought I'd share. There are two kinds of beta-casein protein A1 and A2. We'll call A1 "bad casein" and A2 "good casein". The two proteins differ only in a single amino acid, but this is enough...

I'm a scientist, and I did a little research into the study. Looks valid and it was published in a respected journal. Open Original Shared Link The science looks solid. As someone who didn't have a super clean cut diagnosis before going gluten free, I'd love to see something like this become available. Then again, there's no doubt in my mind...

I've actually been glutened by shampoo with hydrolyzed wheat protein, and I wasn't even the one using it. It was my husbands! I swear I don't go around eating my husbands hair. I am pretty sensitive though, so it's entirely believable that the trace amounts in his hair were getting onto his and my hands and then making its way to my mouth, etc...

I love light yoga when I'm recovering from a glutening. I understand how hard it is to get back into exercise when you're just beginning to recover. I find that yoga engages my muscles in a pleasant and non stressful way and it definitely helps with the aches I usually encounter post-glutening. I try to walk as much as possible, take the stairs. Exercise...

Some of the artificial sweeteners used in gum are actually used as laxatives in larger doses, especially the sugar alcohols (usually ending with -ol, e.g., sorbitol, xylitol, erythritol). We also tend to have more sensitive stomachs, so it might not take much to set yours off.

There is some very interesting research out there with regard to the benefit of Omega 3s for inflammation. Most of these clinical trials use doses that it would be difficult to achieve with diet alone. I personally take fish oil because generalized inflammation seems to be a big problem for me. As long as you're taking a gel capsule you can see through...

RLS is significantly more prevalent among the celiac population than the general population, so I think there's definitely a correlation. Unfortunately, it doesn't aways go away once you go gluten free. There's also a link between RLS and inflammation, and, for me at least, most of my post-glutening symptoms can be linked back to generalized inflammation...

Hi Dave, I'm glad your starting to feel better. My gluten challenge did a similar thing to me, and low fodmap is the only way to get relief. I did learn from past experience that eventually I'll heal enough that I can start eating normally (minus the gluten). Do onions kill you? They destroy me. I look forward to the day that I can eat JUST gluten free...

For the curious, I want to add that I had elevated liver enzymes (AST and ALT) back in October, when I was only recently gluten free. They tested for everything that could possibly cause elevated transaminases (fatty liver disease, hepatitis, Wilson's, Lupus) and found nothing. The enzymes were back to normal in February after a couple months gluten...

Thank you everyone. Finally got to see the biopsy summary for myself. He took at least 6 in a duodenal sweep, and 6 from the bulb. It looks like the increased intraepithelial lympocytes (Marsh I) were fairly diffuse across both. I've asked how the IEL counts compare between this biopsy (post gluten challenge) and my first biopsy (6 months gluten free). Hopefully...

So, after a murderous 7 week gluten challenge, my bloodwork came back negative (DGP, TTG and EMA). My EGD showed increased epithelial lymphocytes, and other tests have ruled out all the other possible causes of IEL. Between my symptoms when I was eating gluten, my positive genetics, and the lackluster biopsy, my doc has decided that we should treat this like...

Nope!

Thanks Laura