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manasota

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Everything posted by manasota

  1. manasota
    Wow. I am stunned that you "feel really good" after only 2 years gluten free. What exactly do you eat? Maybe I could follow your meal plan.
  2. manasota
    That's a good idea for my MD to test for SIBO. I'm 65. The BB is not fat & seems to be my guts swollen. I too eat low carb and high fat. Also, the only fruit I eat is berries. I'm glad you're doing so well. May I ask your age at diagnosis?
  3. manasota
    Hi Brenna P, Yes, I've been low FODMAP and low fructose for about a year. (I will check out the Monash Univ. site) Everything I have tried has helped--just not enough. Guess I would say no grains has helped the most. No idea "what sets me off"--even though I've kept a food diary ever since being diagnosed with celiac disease (5 1/2 years). ...
  4. manasota
    I would not eat them. Nuts.com has CERTIFIED GLUTEN FREE golden raisins. Why take the chance? Please let us know if the gin and golden raisins help you. Good luck!
  5. manasota
    I'm gluten free 5 1/2 years and SCD 2 1/2 years. Tried going without dairy, no help. Cannot get rid of this uncomfortable Buddha Belly. Don't think it's SIBO as SCD is supposed to take care of that. Kind of tired of wearing loose dresses all the time. Not gas as Gas-X is no help either. Possibly simply the inflammation that is focused on trying to heal...
  6. manasota
    All of my many supplements are Country Life due to its Certified gluten free status! Hooray for Country Life. Now, if we could just get pharmaceutical manufacturers to test prescription meds for gluten cross-contamination!!!
  7. manasota
    How much honey are you consuming? It is very high in fructose and can cause lots of people problems. You'd be amazed how "sweet" plain food can taste when you consume no sweeteners whatsoever!
  8. manasota
    I don't think my Buddha Belly is from dairy because I was totally off dairy for years & still had the BB. I have restarted the SCD yogurt daily to get the giant probiotic doses recommended. The BB has not increased. (Maybe the SCD yogurt will help.) I don't think I have Sjogren's because my mouth is not dry & I do not have dental problems....
  9. manasota
    RMJ, Spicely.com has numerous Certified Gluten Free spices and herbs. I use them daily & find them to be the best seasonings I've tried. For raspberries, when I can''t get fresh, I use nuts.com for dried raspberries. Nuts.com has many Certified Gluten Free fruits and nuts. they have many Certified Gluten Free items; but I have only used the...
  10. manasota
    notme! You are too funny! It does help to have a sense of humor. Do either of you have a "Buddha Belly"? I have one most of the time now. Is that always a sign of gluten ingestion? Man, you are right on when you say you feel like you've wasted so much time being sick. I fear my lifetime will run out while I'm waiting/working so hard to get...
  11. manasota
    Gemini, that's quite a story you have. It is so very nice to not feel so all alone in the world! Sounds like we're about the same size. It is so good to know there is still hope for me. My ANA's never showed as elevated on any tests; but I am well aware of the devil inflammation. I am so sick of being sick that I only eat fresh, whole food that I...
  12. manasota
    Yes, I've had lots of bloodwork, including in the past year. My B12 is normal/high; so MD won't be giving B12 injections. I do have antibodies to my parietal cells and an endocrinologist said I would definitely need B12 injections sometime. My current internist says when my B12 gets low, he'll treat with oral B12 in very high doses. He sates that he has...
  13. manasota
    Gemini, thank you so much for reading my story and offering so many suggestions. Yours is a response I will read many times. I will take every one of your suggestions to heart. Thanks especially for the support and encouragement. It's so "funny" about the cholesterol levels. When I was about 45 yo, I was working in a hospital and took advantage of...
  14. manasota
    Thank you for this info! During the first year of two of being gluten free, they tested the tTg. If I remember correctly, my highest level was only 63 and I never did get it below 20. i think 20 is normal? Anyway, I will pursue this as you suggest! Thank you!
  15. manasota
    Many, many thanks to those of you who took the time to read my questions and write answers! It really helps to know that others deal with these issues too. It is especially helpful to me to hear from those in their "seasoned" years who have recovered enough to work! I feel an "injection" of hope! I send hugs and love to you all. Regarding the question...
  16. manasota
    I forgot to mention that part of my exercise regimen includes doing a 30 minute dance DVD with Jane Fonda at least every other day. I have gotten better over these 5 1/2 years gluten free. Not as much or as quick as I'd hoped, though. Let me ask, in regard to eye issues, I can't find anything on this forum about people feeling like "glue" is coming out...
  17. manasota
    You all are very kind and offer good info. Thank you. Yes, low thyroid hormone could be an aggravating factor now as my dose was recently increased (not long enough to provide benefit); and I will need another increase as an interacting medication (estrogen) was just reduced, requiring another boost in thyroid med. dose. These issues are definitely a consideration...
  18. manasota
    That is entirely possible. I have been to a plethora of physicians (including those at Duke, Duke's Integrative Medical Ctr, and UNC Chapel Hill) and they have run out of ideas. I have tried Rolfing, NAET, acupuncture, biofeedback, etc. Really, my hope hinges now on the length of time spent healing. I figure I'm 5 1/2 years in & wondering if anyone...
  19. manasota
    You are very kind and offer good suggestions. However, every time I "extend myself", I have to pay for it. Two days ago, I "attended" a 1-hour webinar to update my continuing education for my pharmacist license and a 1-hour webinar for Celiac info sponsored by the National Foundation for Celiac Awareness. Two extra hours of activity. Then yesterday, I...
  20. manasota
    I was diagnosed with Celiac Disease over 5 years ago at the age of 60 soon after being diagnosed with breast cancer and Graves Disease. I have been too sick to work for nearly 15 years due to extreme pain and fatigue--which nobody knew the cause or could offer help. My disabled (due to degenerative disc disease) husband and I are living off social security...
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