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manasota

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Everything posted by manasota

  1. manasota
    Dear egs1707, You will not like what I have to say. But, like Squirmingitch (whose entire post I agree with), I am only trying to help you. 1. You have already been given all the best advice possible by the nicest people. 2. You seem unable to accept this advice; so I won't focus on being nice. 3. I believe you are clinically depressed...
  2. manasota
    Cristiana, I had symptoms almost exactly how you described in our original post, when I was 12 years old. I was terrified. Nobody else seemed concerned. Luckily, this only lasted a year. I developed classic migraine symptoms when I was 26 years old. These lasted for decades. Way back then, migraines were dismissed as merely "headaches" that were...
  3. manasota
    My Celiac symptoms always flare after vaccinations. I've been gluten free for 6 1/2 years. I find the vaccine benefit to outweigh the temporary rise in symptoms--even though it is quite annoying. Since you've been gluten free for about a year, it's very likely you need more time to heal. Just stick with it as best you can . Keep getting flu shots...
  4. manasota
    Hi Carle, I didn't really get much better until I eliminated all grains. I'm diagnosed Celiac for 6 1/2 years and still do much better without any grains. I don't do dairy either because it causes me pain. (Never was lactose intolerant. Dairy "just" causes me pain.) I still stick to mostly whole foods. I still would not call myself "well"; just...
  5. manasota
    I also love Spicely Organic Spices! CERTIFIED GLUTEN FREE and very, very good. You can get them on amazon.com. For me, it's simply not worth taking the chance with un-certified spices. I've seen videos of how spices are gathered, transported, etc. in foreign countries. Not worth chancing the possible cross-contamination IMHO.
  6. manasota
    I am so sorry for your suffering. Your story drives home the point that having Celiac Disease drives us all to do our own research and try to find a doc to help--if we are lucky. I wish you a speedy recovery and my most earnest wish that you are NEVER cross-contaminated again! You are a real trooper (little comfort, I know). Wish I could do more...
  7. manasota
    Boysmom, my heart is breaking for you! I want to wrap my arms around you and beat the DEVIL BC into the ground so nobody needs to endure the fear or pain associated with it. I was diagnosed with BC 3 years before being diagnosed with Celiac. I had surgery and radiation. I thought I dealt with both very well--until other AI diseases started showing up...
  8. manasota
    Nausea, vomiting, diarrhea can happen with any oral medication. I wouldn't worry unless the diarrhea becomes very severe. If that happens, you should call your doc immediately. I had 2 courses of rifaximin last winter (6 years gluten free). I did not suffer any of the above-mentioned symptoms. People are different. I thought the rifaximin helped...
  9. manasota
    Hi Amna! Sorry, I don't know about Solgar. Country Life brand offers several different calcium supplements that are all Certified Gluten Free. Don't feel too bad about your docs not knowing much about Celiac. In the USA, it's not much better. Ha! Good luck!
  10. manasota
    Thank you so much for letting us know. Bartfull's calming optimistic peace will be missed.
  11. manasota
    Superb article especially for those with osteoporosis!
  12. manasota
    I am so impressed with you! I thought you might just curse me out and not return to the site. You are stronger than you know. You have more options than you might realize. Please keep in mind that my only goal here is to try to help you save your life--not to get you to like me. I cannot imagine that you are happy or comfortable or relaxed living...
  13. manasota
    I have no desire to argue with anyone. I'm very sorry if you took it that way. I'm simply seeking information. I have not had the benefit of the valuable experiences you describe. I agree the OP had a legitimate rant. I am frustrated sometimes too. I think my concern is that I don't want to forget those Celiacs who are gluten free and still have...
  14. manasota
    Very, very well said!
  15. manasota
    It is a small world! I used to work in a large neonatal intensive care unit in a children's hospital. Most of our babies lived. Still, I can identify with your example. I agree with almost everything you posted. However, I really do not know if "most people live successfully with Celiac". That may actually be the case. i just don't know it for a fact...
  16. manasota
    I agree that we should never let any disease "win". However, I welcome anyone who chooses to post here for support.
  17. manasota
    Let's not forget to hold good thoughts for those diagnosed late in life; and therefore, developed osteoporosis, lymphoma, or the dreaded assortment of autoimmune diseases as a direct result of having undiagnosed Celiac. Also, we must remember those few unfortunate Celiacs who are refractory. All of these people may enjoy posting here even though they are...
  18. manasota
    Muqeet, since are reaching out mainly for help with the anxiety/depression, I agree you should seek medical attention for this. There are countless meds available which can help you even if you only take them short-term. Some anti-anxiety meds can help immediately. Usually anti-depressants take some time (weeks) to take effect. You will have to try to...
  19. manasota
    Given how sick you've been and for how long, I'm very sorry to say that I don't think your poor body can recover unless you give it regular hours and stable food at regular hours. I know it's difficult to give up your job. I gave up my career (which I worked very hard for years to obtain) and which I loved dearly. My plan was never to retire. I, and all...
  20. manasota
    Hi Muqeet, Lots of people here have similar symptoms--or worse. Your symptoms will most likely go away in a matter of months (IF you are COMPLETELY gluten free); since you were so LUCKY to be diagnosed at such a young age. Everything you are describing is normal and to be expected. You are not alone.
  21. manasota
    Jeez, i am sooooooooo sorry! That really stinks! So very disappointing! You have every right to complain, cry, stomp your feet--whatever helps you to vent. Great big hugs to you, Icelandgirl!! Lots of hugs.
  22. manasota
    I've seen many posts where a Celiac whose gut has just healed is starving every 2 hours. That's me, I guess. Has anyone experienced accompanying EXTREME anxiety and abdominal pressure (as though a small child is standing on your gut)? I also have Graves Disease and thought I was simply hyperthyroid. Just got the results and not hyperthyroid. I can't...
  23. manasota
    Hi Jane, Since you mentioned taking "thyroid", I assume you are taking levothyroxine? If that's the case, you might want to rethink how you're taking it. Ideal is 30-60 min prior to breakfast. But also, you need to be aware of diet changes especially within the first 4 hrs AFTER taking your morning dose of levothyroxine. I take Tirosint and when...
  24. manasota
    Questore Boy can I identify with you. I was misdiagnosed after 60 years (of a very gluten-filled life). I have been strictly gluten free for over 6 years. I have not seen very much progress, if any. I, too, suffer from many afflictions caused by this diagnosis delay. It is now these other affliction which make me the most miserable--not the Celiac...
  25. manasota
    Superb article!
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