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maseymn

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Everything posted by maseymn

  1. maseymn
    Just wanted to check in, and hoping you are doing a little better. I have some social anxieties, and am quiet and not very outgoing, so I won't lie -- being celiac and living gluten free really compounded those issues for me. I decided to try to learn from situations where I feel uncomfortable, and try to find ways I can cope better with feeling isolated...
  2. maseymn
    Everything in our society that's social seems to revolve around food. Graduations? Food; Family reunions? Food; Dating? Food. Throw in the mental stress of a pandemic, the difficulty in getting gluten free groceries, and having to cook 100% everything from scratch when home all the time? Not surprising this has been difficult for you. On how to get back...
  3. maseymn
    I agree with a couple of points above. I'm better when I'm off dairy in addition to gluten, but it's hard so I keep going back and forth on that one. I sometimes have some diarrhea problems while I transition back off of dairy, for some reason. Hidden glutens are big. I had to get rid of my pyrex pans (little pits in the glass can hold gluten), I had to get...
  4. maseymn
    Holly, I figure I went at least 28 years with active celiac before I was diagnosed. Had abdominal pain all the time, tired all the time. I was diagnosed and treated for depression, then thyroid, then sleep apnea, then anemia. It was the anemia that made my doctor test me for celiac (I couldn't absorb even prescription iron). She wanted me to have a biopsy...
  5. maseymn
    If you don't follow a gluten-free diet -- you'll probably start first noticing problems because of vitamin deficiencies -- your body can't absorb nutrients from your damaged small intestine; you will be more likely to get stomach cancer (the figure I remember seeing was 800x more likely), more likely to get colon cancer and other cancers; because it is an...
  6. maseymn
    That it's the newest "fad" disease, and most people that think they have it don't really have it. And that a little bit of gluten won't really hurt you; after all, you ate it for years before you were diagnosed.
  7. maseymn
    I was not formally diagnosed. I tested positive for antibodies, and my doctor said if I feel better on a gluten-free diet that was confirmation enough for her. I didn't want to wait. Since then they've wanted to have me do a "challenge" and a small intestine biopsy, but I told the doctor I'm just not that curious. I know what's wrong with me, and a gluten...
  8. maseymn
    In addition to my comment above, I should have said, too, that yes, I did go through some similar things early on. They would kind of come in waves. At the time, I knew a naturopath who called them a "healing crisis" -- your body getting overwhelmed as it was detoxifying and healing. She had said when your body quits fighting (in this case the gluten) then...
  9. maseymn
    I got extremely reactive to gluten after I went gluten free. I wouldn't discount that you might be getting glutened from a surprising source. The four things that got me when I thought I was completely gluten free: 1) I had to replace my pyrex dishes -- apparently the glass can get pits in it that traps gluten. I got an extreme reaction every time I used...
  10. maseymn
    You sound like you have multiple food issues. As your gut heals on a gluten free diet, you might find your body gets less reactive to some of those other foods. There's a blood test (ALCAT) for multiple food sensitivities. I'm sure insurance won't cover it, but if you can afford it, it might be better than multiple elimination diets and reintroduction of...
  11. maseymn
    The only reason I can see for doing a gluten challenge and getting a diagnosis, is if you think there's a possibility that Celiac is not what you have, which would mean you could then start eating gluten again. It doesn't sound like that's a possibility for you. I was diagnosed with a blood test and never had the small bowel biopsy, so I run into this a certain...
  12. maseymn
    I went weekly to my GP until she took me seriously. I'd go in, she'd say try this, try that, I'd go out and schedule an appointment for the next week. We did this for about a month, when she finally said "You're serious about this, aren't you?" (My main symptom was abdominal pain that nobody could figure out). She ordered an abdominal CT and blood tests for...
  13. maseymn
    Laura, I never had the small bowel biopsy. I was SO sick when I was diagnosed (I thought I was dying) that I went on a gluten-free diet a couple of days later (I had to have my "farewell to gluten" tour before I quit everything cold turkey). I had a blood test that was lit up with multiple antibodies to gluten. My doctor wanted me to wait until the biopsy...
  14. maseymn
    When I first set up my kitchen after being diagnosed, I color coded things. I didn't have any red in my kitchen, so I bought red spoons, red pans, red spatulas, red mixing bowls. My family knew if they were cooking something with gluten to never use anything red. I haven't had trouble (as far as I know) using my wooden cutting board (I just flipped it over...
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