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ChiaChick

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by ChiaChick

  1. ChiaChick
    Wonderful news to hear that he has finally had his testing done, and can go gluten free. I understand that he is afraid of needles. Most children are. It is great that the hospital have acknowledged his and your family's suffering. Hopefully now they will give him the A1 treatment that he deserves. I am really looking forward to hearing of his improvement...
  2. ChiaChick
    Yum. Looks delicious. Thank you for posting. We are going to give this a whirl. We don't have Chex in Australia, so I will substitute gluten free cornflakes or rice puffs perhaps, but should still get a good result. Having lived in South Carolina for two years, I have eaten Chex, so I have some idea of what to aim for. No prizes for guessing what...
  3. ChiaChick
    @cyclinglady, this is the thread I referred to in the post about my husband's test results. I think I will call hubby ChiaChap from now on, as I think he will need to be eating some Chia soon too. lol When/if you have some time, I would be very interested in your thoughts on my situation. I have read a whole bunch of threads that you have commented on...
  4. ChiaChick
    @cyclinglady, Thank you for the super speedy reply. We are definitely continuing the gluten for him. (until a biopsy is performed) We have been trying to learn as it seems that hubby and I are both having gluten issues (see my post about my Thrombocytopenia that I started a few days ago). My children (not hubby's biological children - but still...
  5. ChiaChick
    Hi all, My husbands test results have come back as follows: Husband's Result Reference Range Deamidated Gliadin IgA 144 <15 Deamidated Gliadin IgG ...
  6. ChiaChick
    I have some of the results of our testing... The boys test results for Celiac Screening came back negative. We are still waiting on the genetic testing for Celiac and some other genetic testing. My eldest son's glucose levels came back quite low, (2.7) and he had eaten a good breakfast not too long prior. His urea was also high (7.3). We are seeing the...
  7. ChiaChick
    I see that I have not been very clear in what I wrote... (I will blame that on my brain fog...) My understanding is as follows: The array 3 is a comprehensive test for Celiac. Sometimes not all the tests are ordered by doctors, and Celiac can be missed in some cases. The array 3 is said to be more comprehensive. What I meant to say is that if you know you...
  8. ChiaChick
    @Midwitch, Hello, Just checking in to ask how your son and you are doing. I have been thinking about you both, and willing the time away before his test. I am so heartbroken for your boy. It is Monday night here in Australia, so I am guessing more like Monday morning for you. I am thinking that his procedure is Tuesday, and if correct, this is the...
  9. ChiaChick
    How soon after you became unwell? It can take time to show in the bloodwork, and can need a second test. Just trying to tick all the other possibility boxes... Interestingly, I started to become unwell sometime after my trip to Turkey... Not sure if there is any correlation though. I think I have been unwell from birth to be honest.
  10. ChiaChick
    I have been researching NCGS for weeks, (which makes me still very much a beginner - I fully acknowledge that), and from what I have seen in the scientific reports and studies, it can be very debilitating. Celiac disease is an Immune Reaction to prolamins: gliadin (wheat), secalin (rye), and hordein (barley). In Non-Celiac Gluten Intolerance, it is said that...
  11. ChiaChick
    @krikrogus Hi and welcome. I am new too. Sorry to hear you are experiencing these things. The good news is that there are a bunch of nice folks here who are kind of spirit and spend time helping people, so you have come to a good place. A couple of things: The more experienced here often ask for blood results to be posted, so it may help to...
  12. ChiaChick
    @Gemini, Thank you for the time taken to help me. Much appreciated. I would be very interested in knowing the name of the medication your colleague is taking for the increase in production of platelets. I had hoped that they were planning on weaning me off the Prednisone. I have not yet looked at the link you provided, but I will later today...
  13. ChiaChick
    I deleted much of your post to avoid scrolling for others, but wanted to comment on these things in particular. My heart goes out to you both. What a terrible time. I can only imagine how completely and utterly furious you must have been at the hospital. To your son: I know it is tough. Hang in there buddy. Two more days, and then you will be on your way...
  14. ChiaChick
    @sademerkki, Thank you very much for the information. I have just read both studies you linked for me. Yoghurt is awesome, and I eat a plain/natural yoghurt with no sugar most days. (It is only a shop bought one though) I am very open to us making our own, and will look into this. Prednisone in my case has not made my symptoms worse. I have seen...
  15. ChiaChick
    Same as above. Stay with the gluten. Bring on the two weeks and the biopsy. What an awful time for you all. Please keep us informed. Brighter days ahead. xoxo
  16. ChiaChick
    Thank you for the reply SSLRunner. I had the blood tests yesterday (Genetic and screening). I would continue with a gluten diet if it meant that I could get a diagnosis, (and that has been my intention) but the haematologist today told me that the amount of Prednisone I am on, combined with years of a low gluten diet will undoubtably bring false negative...
  17. ChiaChick
    Nicki, You are so young to have endured so much, and I feel for you. I appreciate that you have felt a reliance on your outer beauty to keep you going. I am here to tell you though, that you are so much more than that. We all are. Your strength and character are far more important than your physical appearance, and although it is hard to feel this way at...
  18. ChiaChick

    Hi Peaceflower, Just wanted to say thank you for the chat. :)

  19. ChiaChick
    Before eliminating gluten, can you do the array 3? From what I have read, this can diagnose Non-Celiac Gluten Intolerance. Would be good to know for sure what you are dealing with. (As much as it is just plain awful to see our children suffer). I'm in the same boat here. Waiting for blood test results for both my boys.
  20. ChiaChick
    Thank you Peaceflower. I will read the links you provided. I am in Australia, so it might be a bit far to go. Other thoughts: I am guessing that you already know, but I have seen that gluten is found in beauty products, shampoo/cond, toothpaste, pet food, postage stamps (don't lick them), medicines, and all sorts of other hiding spots. Sorry if I am...
  21. ChiaChick
    I am on Prednisone, for Marked Thrombocytopenia, and will be for some time they say. A catch 22 as they believe the gluten intolerance could be causing the Thrombocytopenia. This would render any testing useless, so it seems silly to continue to ingest gluten. I have put up a new thread today, and am hoping to get some feedback from others. Just now I have...
  22. ChiaChick
    Wow. Wow. I have just read this from the first post (in 2005) to the last. I can relate to so much of this. My ataxia symptoms are not as bad as many, but troublesome nonetheless. Early days for me and much to learn. I really appreciate all the links that have been posted, and will be reading through them in due course. Thank you. It makes me very...
  23. ChiaChick
    I generally do not offend easily. Perhaps it could have been worded better. My current situation is that it appears I may be Celiac, or at least gluten intolerant (see my recent post if you will), and if so, I have been for many years without knowing that this was my problem. Doctors always thought I was a hypochondriac I am sure. From the reading I have...
  24. ChiaChick
    Just a thought... You mentioned that your son has a rash on his face. Has he been tested for Lupus? Auto-immune diseases can go hand in hand, and lupus is characterised by a facial rash. I am no expert, but have just had the testing for this myself (which came back negative in my case). Perhaps it is less likely, but given the seriousness of Lupus, I would...
  25. ChiaChick
    Hi Karen, Thanks for sharing. Hopefully you will have the result of the biopsy soon. Yay for starting the gluten free diet. Hopefully you will be feeling a lot better very soon. I too have started gluten free today, so we can compare notes. lol Good luck with it all.
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