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razzle5150

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by razzle5150

  1. razzle5150
    he wrote me this message While people with DH are at the same risk for the complications suffered by people with celiac disease, as many as 20% of people with DH will have a normal intestinal biopsy. However, DH patients with a normal intestinal biopsy and normal celiac serology (blood test) will still respond to a gluten-free diet. ...
  2. razzle5150
    yes I have had 3 endoscopy with biopsies and I can post results here but have to figure out how to do it .. and yes I did take Dapsone 200 mg for 3 months and it did absolutly nothing so quit taking it ... I am going back to Mayo on May 18 so we will see what they say this time. keep ya posted
  3. razzle5150
    saw my Dermatogist yesterday and we had a very long appointment . and he said yes you can have DH without Celiac .. he swears by it . also I have break outs on my face and he said I am his 2nd patient with DH that has it on the face. Does anyone else have it on there face.. I believe in my dr as he has been a dermatologist over 30 yrs. He also said that...
  4. razzle5150
    and yes I i get my blood checked once a month and it has been fine..
  5. razzle5150
    I have been on gluten free diet now for a year in april but still break out all the time.. so from what I am reading you have to have Celiac to have DH correct . why are these drs telling me different ... I dont know what to do
  6. razzle5150
    is it gluten free heard it was
  7. razzle5150
    is there any forzen yogurt that is gluten free
  8. razzle5150
    all I know of is Dapsone and I went from 25 , to 50 and now 100 its still not working very well. still on a gluten free diet lost over 25 lbs so now seeing a dietician... I am 101 and 5 ft .... I have a problem with protein intake .... and of course constipation.. ugh
  9. razzle5150
    no never had the sweats with DH
  10. razzle5150
    I was diax with DH and I dont haVE cELIAC. Dermatologist said anybody can get it. I was tested 3 times for Celiac and do not have it. Also had 2 dermatologist look at me and both agree DH . hAD A BIOSPY of my knee.. one was here in sioux city and the other at Mayo. Just to let people know. Roz I am on Dapsone and its not doing a good job . up to 100 mg...
  11. razzle5150
    does anybody else have contant belly aches with this... dont know whaqt to do
  12. razzle5150
    same here have lost 30 lbs and need to gain help
  13. razzle5150
    just regulat chapstick
  14. razzle5150

    ARCHIVED dAPSONE

    razzle5150 posted a topic in Dermatitis Herpetiformis

    iS THERE anybody on here that has taken dapsone and really got better with no side effects...please let me know as my dr wants to raise dosage and I am allergic to sulfa
  15. razzle5150
    I have just the rash DH not celiac and dr wants me to start dapsone ..... I am allergic to sulfa but he doesnt think I will have a problem . He is starting me out on 30 mg . I am really scared but itching so bad I cant sleep at night . what do yall think..
  16. razzle5150
    DO YOU CONSTANTLY BREAK OUT WITH DH? I AM ON A GLUTEN FREE DIET and do not cheat on anything but constantly break out with rash.. Is this normal or do you think I have something else going on.
  17. razzle5150
    Anyone in Iowa want to talk and be friends . I am a complete blank as the word I want to say..... we can share ideas and foods and etc... let me know . morganrazzle50@gmail.com Roz ... I need someone to talk to
  18. razzle5150
    thanks
  19. razzle5150
    i read that is does have gluten but such a little amt my dr said not to worry
  20. razzle5150
    does anyone else have a salty mouth all the time from switcheing to gluten free food... Its driving my nuts. I cant east the pretzels or crackers or chips
  21. razzle5150
    does anyone know if Methadone is gluten free... Some say no others say yes
  22. razzle5150
    well I went to a resturant Golden corral and watched really close as to what I ate , but evidentually something was cross contaminated .... Its a cafeteria type resturant. thanks guys
  23. razzle5150
    once you get the the rash and it heals up does it keep coming back....... I went to dermatologist and got all healed up from the rash and now I have broken out several times since. does that happen.....
  24. razzle5150

    Is there anything else beside dasonge to treat this  as I am allergic to sulf

  25. razzle5150
    I have read somewhere that you also have to change up your shampoo. bar soap, perfume etc. Is this true?
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