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acousticmom

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by acousticmom

  1. acousticmom
    I've heard comments about how long you need to be eating gluten to be tested for celiac (around 6 mos., if I remember right), but I'm wondering how much you need to consume. Since only one member of our family is officially diagnosed with celiac, our family doctor recommended doing blood tests on the rest of the family every 1-2 years unless someone...
  2. acousticmom
    These are some great cooking tips--can't wait to try a bunch of them! We cook our own food all the time, and never even ate out much before gluten issues. But lately I've seen ads for chef-cooked meals delivered to your home, and some of the services do gluten-free cooking. If I remember correctly, it sounded pretty reasonable ($7/meal), though I don...
  3. acousticmom
    My son's GI prescribed NuLev, and it helps the pain subside quicker when he gets glutened. I know there was an earlier thread on different medications that some people found helpful. No one-size-fits-all magic pill, unfortunately. Carol
  4. acousticmom
    I feel the same way. Brainfog and fatigue set in when my first child was born, and I wish I could go back and celebrate all those wonderful moments when the kids were little. Instead, I worked very hard to simply endure and get from one day to the next. I forgot what it felt like to be really happy, but tried to make the best of it. Once the kids were...
  5. acousticmom
    My 13-year old celiac son has always had an occasional small hand tremor, usually when he's excited, like opening birthday gifts, etc. It has never seemed to impair him--he's got excellent fine motor skills, but we've never found out why he has it. Just now I was reading about neurological symptoms of celiac, and looked up "peripheral neuropathies," which...
  6. acousticmom
    Nantzie, your counselor would be interested in the research of M Hadjivassiliou, M.D. He's published a lot on the neurological manifestations of celiac. He wrote an interesting editorial in the Journal of Neurology Neurosurgery and Psychiatry in which he says, "Gluten sensitivity can be primarily and at times exclusively a neurological disease." You can find...
  7. acousticmom
    It's not a casserole, but we love grilled zucchini, brushed with a little olive oil, with salt & pepper. Yum! (I really shouldn't read this section of the board when I'm hungry!) Carol
  8. acousticmom
    Thanks for the replies. Can't wait to try these. With family in town, it's a week-long food fest, and I'm bringing as much gluten-free stuff as I can. These ideas will help! Carol
  9. acousticmom
    I'm looking for a good crumb topping to put over blueberries or apples for a quick baked dessert. I tried one topping recipe a while ago but didn't like it. I think it used rice flour with chopped nuts, brown sugar & butter, maybe cinnamon--but the rice flour left it a bit grainy. It didn't combine the way regular flour would. Any suggestions? ...
  10. acousticmom
    You guys are awesome! I was thinking about backpacking with the kids this summer, but was a little intimidated at the challenge of finding packable gluten-free foods. This thread answered my question before I even asked it! Another product we found is Jerky Direct's organic jerky (online). The "regular" products aren't gluten-free, but the organic ones...
  11. acousticmom
    My dr. gave me Niferex last month (ferritin = 11). I can handle it once or twice a week at most if I drink lots of water every day. I took Freeda Quintabs-M for a few months before that, and it didn't have any effect on the ferritin levels. Maybe it was a less absorbable form of iron, or maybe I had malabsorption issues (went gluten-free in Feb., but don...
  12. acousticmom

    ARCHIVED Probiotics

    acousticmom replied to L.A.'s topic in Coping with Celiac Disease

    I don't have any experience with probiotics, but I just read this in a book about food intolerance (Food Allergies and Food Intolerance, by Jonathan Brostoff, MD and Linda Gamlin, 2000): "Some of these [commercial preparations of bacteria intended to restore normal gut flora] have been tested and a crucial difference was found between those bought in...
  13. acousticmom
    I'm from Ortonville (between Flint & Pontiac). My son was dx'd in December '05; I've been gluten-free since Jan. and will probably challenge it next month. My celiac son (and non-celiac daughter) will be spending a week at a camp near Traverse City. Hubby and I will probably camp nearby to be available if needed--it's such a great area for a getaway...
  14. acousticmom
    It's hard to know where to stop, since so many food intolerances can be intertwined, with or without celiac disease. Best of luck! Carol
  15. acousticmom
    When my son was diagnosed with celiac disease, I started working on a database like that. But I never finished it, since he's twelve and good at reading labels and helping cook, and hubby and extended family have been learning this stuff along with me. (After reading how many people deal with unsupportive families, I tell them all the time what a blessing...
  16. acousticmom
    I read one encouraging thing in my friend's ELISA results. They say that people who follow their specific plans for eliminating offending substances, detoxing, and restoring alkalinity "have often been able to restore tolerance and overcome most or all of their reactivities." Maybe these intolerances won't last forever if we take care of ourselves now...
  17. acousticmom
    Tiffany, How did you decide what to eliminate and what to leave in? Looking at my friend's ELISA/ACT results, beyond the 8 major allergens, there seems to be a huge variety of things that cause people to react (I should mention that they look specifically at delayed reactions, not clinically allergic reactions). So even if I do a ton of research, how helpful...
  18. acousticmom
    Thanks, Tiff. Another friend of mine had the ELISA/ACT test done last year, which sounds similar, and it has helped her tremendously. They test for 300 items (including foods, pesticides, metals--bunch of stuff). They also provided a rotation diet specific to her results, and they get into pH balance and other detox recommendations. I think she spent $60...
  19. acousticmom
    I'm suspecting that food intolerances are affecting my health. I know milk is a huge allergy, but allergy testing shows not much else in terms of food. I've been gluten-free since February (to support my celiac son & satisfy my own curiosity). But I still get major fatigue, usually after eating. Looking into food intolerance, I feel like I'm tumbling...
  20. acousticmom
    We had a bunch of friends over for a bonfire last weekend. Everybody brought food, but my son was very careful about what he ate (we even kept "clean" mustard and ketchup in the fridge for him in case the public ones got rubbed on buns). Sure enough, he got glutened anyway and the next day had pain that was about 20 on a scale of 1 to 10. It didn't even...
  21. acousticmom
    I had the same bake sale dilemma: my kitchen is now gluten-free, and I didn't want to spend a fortune on ingredients, so I defaulted to rice krispy treats with regular rice krispies (cheaper than gluten-free). Not a very exciting contribution, but at least there would be less stuff in the air. But if you or your family do sometimes bake with regular flour...
  22. acousticmom
    I've been looking for a list like this all week!! Thanks for posting it! Carol (finding out I need to avoid every little bit of dairy)
  23. acousticmom
    I need to restock on gluten-free flours, and I buy whatever is priced best in our area. But it seems I've read about some people reacting to Bob's or Arrowhead Mills. Are some brands safer than others? I also remember some comment about buckwheat flour having cc issues. Here's what I usually buy: Arrowhead Mills buckwheat & amaranth flours Bob...
  24. acousticmom
    Oops--it was Jen who told me about these. Thanks again!
  25. acousticmom
    I've been taking Freeda Quintabs (thanks to Rachel for the tip earlier this year). They have iron but no gluten or casein. Check them out at freedavitamins.com.
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