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miamia

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Everything posted by miamia

  1. miamia
    julie- i just sent it to you
  2. miamia
    Laura- 3 of them are in my area- I just googled them- all seem reputable and really different in their approaches. I'll have to do some more research. Rachel- the heater thing- I have been feeling the same thing since the heater has come on I definitly feel affected by it -
  3. miamia
    thanks laura- that would be great. From everything it souds like about lyme no matter what my tests show i think it would be good to contact someone whos specialty is Lyme. I have to go in tomorrow to get all the blood work done- at 2 different labs which is a drag but at least I will hopefully get it done and be a step closer to finding something out Miamia
  4. miamia
    Rachel- I woudl love it if you could send me the list Miamia
  5. miamia
    Rachel- this girl seems to have said very well everything you and I said last night- the idea of not accepting a diagnosis if you do not get better. I miss Andrea too!!!I hope she is holding up alright! Miamia
  6. miamia
    Rachel- Same for me I got sick around New Years- Its not an anniversary that I like celebrating ! I have been completly baffled by the idea that once you cut out gluten you develop all these further intolerances- and all these further problems - How is this an accepted idea? especially considering that a large population of celiacs cut out gluten...
  7. miamia
    Julie- This time of year does make me very reflective. Its rough I think for me because it makes me realize how long i have been sick- I don't think oh its september 5th I was sick last sept.5th but I do think oh its christmas I was sick last christmas- Does this make sense? It just seems to draw attention to how long I have been suffering from whatever...
  8. miamia
    Laura- how are you feeling? have you recovered from eating all those fods for your test/? Did you discover new stuff you could eat? Miamia
  9. miamia
    Laura- thank you so much for your kind words- you are such a sweetheart. I am glad you had such a good time with your friend- it is always good to see people who remind you of who you were before you were sick and remind you you are still that person despite the illness you deal with. You are more than your illness- I think we all forget this sometimes....
  10. miamia
    Oh my god rachel- before I got sick I never cried- I used to have this joke with my roommate who cried all the time- that my new years resolution every year was to cry more!! Now its like daily activity wither becuase of pain or emotional stuff. Especially if I am really not feeling well I feel like everyone is mad at me or somethign if I drive my mom crazy...
  11. miamia
    rinne- congratulations on the new babe!!! Rachel- sorry to hear about your day- that sounds terrible. I am having a terrible day myself. I felt so sick all day. SO SICK!! I had called all last week to get an appointment at this health center I go to and no one called me back. So finally on Wednesday I got in touch with the girl I see there ( we are...
  12. miamia
    Rachel- thank you so much for your support and your willingness to help me with my results. if i find out I have lyme my doctor and I discussed bringing in a 3rd party who is an expert- so I plan to pursue that. My first step right now is to get these tests done on Monday after I see the results I will plan my next move- If they are negative I think I still...
  13. miamia
    Donna- good for you - relax, make bracelets, - sometimes I fel like i spend all my time grocery shopping!!! Today I ahve to go way out of my way to buy special ingredients- so frustrating. I was laughing when I read your post- becasue most people are like I screwed up I ate 5 pumpmpkin pies and you cheated by eating fresh crab and I was anxious cause I...
  14. miamia
    Rinne- I usually am good about reading my tests but I guess not always- when it somes to tests with lots of numbers and things I completly feel like go over me head I guess I kind of get overwhelmed but I should not let that deter me from tryign to understand as much as I can. I alread printed out the article and rachels info from last night and I am going...
  15. miamia
    Rinne- Don't worry at all about what you call" harshness" I take it as compassion and I am touched by it. when I had the lyme test done I had alot of tests done and I think my malabsorbton was so bad we tried to address that and the lyme test kind of got looked over- I know it is not a good excuse but I have a feeling that is what happened. I was angry at...
  16. miamia
    Donna- so glad you had a good thanksgiving!!! Mine started out really badly- I ahd a bit of a breakdown but I recovered- I can never stay sad when I am sround my neice and nephew- Ny meal tasted really good, unfortunatly I wasen't feeling well but the good news is it didn't make me any sicker- and I had all this unusual (for me unusual) things The only...
  17. miamia
    Rachel- Easy........I don't even know if that word is part of my vocabulary anymore.Dec. 4th- that seems to far away!! Ok my doctor told me 2 intersting lyme realted stories- one of a women who like me had struggled to figure out what was wrong for ages- similar sympotoms- not exactly the same but siimlar test results and was diagnosed with lyme though...
  18. miamia
    Rachel- MY God- thank you!!! I can't believe the research you did and that you applied it to my results for me. That was really great. ITs making me even more impatient to just get all this stuff done- the testing I hate that I have to wait til monday. besides the bioset are there any other steps your taking with the lyme right now? Miamia
  19. miamia
    rinne- these are my results These are my results- there are no definite positives IgM Western Blot /my numbers for the IgG: 18 kDa. neg /18 kDa + 22 kDa. neg /22 kDa neg. **23-25 neg /**23-25 kDa IND 28 kDa. neg /28 kDa neg. 30 kDa. ++ /30 kDa neg. ** 31 kDa IND /**31 kDa IND. **34 kDa. Neg /**34 kDa IND. 37kDa Neg/Neg **39 kDa. IND /**39 kDa...
  20. miamia
  21. miamia
    Rachel- I completly relate to this. Yesturday I had alittle break down becasue I wasen't feeling well I was talking to my mom and I rememembered 2 Thanksgivings ago my sister said oh you'll be better by thanksgiving now its 3 later and I am sicker!!! I've always been a holiday person- not for the gifts- I don't like shopping but I love a day dedicated to...
  22. miamia
    Thanks Donna- I should let the people at the lab know they have to put a rush on my tests becasue its not just me there keeping in suspense. Rachel- I would die I worked in a cafe even after I got sick and giving people all this good food I coulden't eat wasen't the hard part it was that I know they didn;t appreciate how lucky they were to...
  23. miamia
    Rachel- I hate the idea of you being home alone on Thanksgiving. I was really down but tonight and really thought about wanting to play hookie from the festivities but I know my family wants me there and I love my family especially mmy neice and nephew sometimes they are the only things in this worldthat make me want to keep going. My family is very laid...
  24. miamia
    I put C D and it put in celiac. Tricky little thing!! I know I ahte that I ahve to wait til monday to get the blood work done becasue tomorrow is thanksgiving. Holidays are so inconvinent!!
  25. miamia
    Rinne- I am so sorry to hear about your experience today. I feel your frustration- in terms of the appointment and in terms of everyday living. Its the worst feeling when you can feel your old self almost being pushed out to make room for the "sick you" because the sick you is so powerful at times- but you just have to fight it. ( I hope this makes sense...
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