penguin

I get that kind of pain, although in my case, it's only my stomach that hurts. It feels like my stomach is trying to eat itself. It's awful and lasts at least a full day. I don't get D, but I'll usually throw up. Bentyl helps sometimes, but usually it takes at least 2 doses of phenergan to get rid of it totally.

The doctors are dumbfounded as to why, but my doctor said it was pyloric spasms, like getting a charley horse in your stomach muscle.

I've noticed the last 2 times I got glutened, I got the pain a few days later, totally seperate from any other gluten symptoms. I don't know if they're necessarily related, though. There seems to be no rhyme or reason to it.

chels,

did you use a mandolin or carefully cut the potatoes thinly with a knife?

Thanks

I just cut them into 1/4-1/8 inch sliced with a knife. Since you boil the sliced potatoes anyway before cooking, it's ok if they're a little uneven.

Mandolins take up a lot of space, and I'm not allowed to buy any more gadgets

I'm pretty handy with a knife.

Rachel- I'll throw in my two cents- I love my bread maker! I use it all the time. It only took me about a week of that frozen stuff to decide I could make it myself, cheaper and better! I wish I had a good recipe to share with you but my favorite has eggs and sour cream. If you want it anyway, maybe you have good substitutes, I would be happy to post it for you! It really tastes like real bread, and I make it by hand and bake it. I make rolls with it. And it is really easy- I just throw it all together.

OK, so I'm not Rachel, but I'd like that recipe, if you wouldn't mind posting it

Malt comes from barley, so it's definitley a nono, sorry....

Cocoa pebbles are gluten-free though!

Sorry you feel so crappy...

I'd go for non-high fiber cooked to death fruits and veggies, and plain meats if you can handle it.

Applesauce, canned pears and peaches (in their own juices), nothing very acidic.

I miss saltines, too.

That's awesome, Judy!

Maybe some good will come out of the crappy experience you had! Pave the way for other celiacs!

NO PATIENCE FOR BAD MANAGERS!!!

And your manager is giving you a free meal, that's awesome!

POWER TO THE PEOPLE!!!

I have the fabled cuisinart breadmaker with the gluten-free setting. I've only made one loaf of gluten-free bread, but I had to scrape down the sides in the middle of it and I had to take it out of the machine 10 minutes early because it was already burned! On the light setting! You just have to watch it.

I had it like, a month before dx, so I made gluteny bread in it a few times and the crust always came out excessively crunchy. Go for a breadman or something. I haven't tried since that first loaf, because the bread ate the paddle and DH threw out the bread, and thus, the paddle.

I will say that it rose beautifully, however, although a bit uneven.

So for Easter I decided I wanted scalloped potatoes. I've never made them before, so I didn't have a favorite recipe to adapt. This is comfort food to the max! I modified a recipe (a lot) from allrecipes.com

I'm almost positive this would be nearly impossible cf, sorry.

Scalloped Potatoes - Not for the faint of cheese!

INGREDIENTS:

6 potatoes, peeled and sliced

4 oz. (about 1/2 c) Cheddar cheese, shredded

4 oz. Velveeta

4 tbsp. butter

1 cup milk

generous splash white wine

Dash of pepper

1 cup van's waffle crumbs, or gluten-free breadcrumbs of choice

--------------------------------------------------------------------------------

DIRECTIONS:

-Preheat oven to 350 degrees F (175 degrees C).

-Bring a large pot of salted water to a boil. Add potatoes and cook until tender, about 15 minutes. Drain and place in a 2 quart casserole dish.

-In a small saucepan combine velveeta, butter and milk. Cook until cheese and butter melt and get hot; stir in cheddar cheese, and then stir in the wine once the cheese melts. Pour cheese mixture over potatoes and sprinkle crumbs on top.

-Bake in preheated oven for 15 to 30 minutes, or until heated through.

--------------------------------------------------------------------------------

For waffle breadcrumbs, I think I found instructions at the gluten-free goddess' website. You toast plain Van's gluten-free waffles really crispy, then break them up. I found that sending them into the oven after the initial crumble helped them dry out to what I wanted them to be, and then I put them through the food processor. YUM!!!

I get it from time to time and I can't figure out where it comes from. Sometimes it's from too much dairy, but mostly I have no idea.

Are the sour ones gluten-free also? I've always loved those, but they sure do tear your mouth up.

I can only help with numbers 1 and 2, sorry...

1: Absolutely. I'm 22 and was dx'ed about 2 mos ago. I started having stomach problems after getting mono.

2: I'm overweight, but not black. Anyone can get Celiac, it's just more common in northern european populations. My best friend is mixed race and she has Celiac in her family, though I don't know which side. Also, some people have weight GAIN as a symptom.

Welcome to the board!

The Easter Bunny brought me FOUR packages of Peeps. That's 60 marshmallows covered in crunchy sugar.

They should last me at least 3 months.

Or they'll feed the cockroaches during a nuclear holocaust. Along with twinkies.

I would definitely reccommend the Sony Wonder Technology Lab at Madison Ave. and 56th st. It's in the Sony building, and best of all, it's FREE !!! It's kind of a museum type thing with technology and you get to play with gadgets and video games. I think a 14 year old girl would like it, my 28 year old brother and I (I was 19 at the time) both loved it. I've been there a couple of times since, and it's awesome.

The Central Park Zoo is my favorite zoo in the whole wide world! It's cheap to get in, I think it's $8, and they have seals, polar bears, penguins, and tons of other animals. It's not the biggest zoo in the world, but it's got a lot of charm. Spend a lot of time in Central Park, actually. You've got strawberry fields, Belvedere Castle, you can rent a bike...so much to do.

Shows I've seen are RENT, Les Mis (obviously while it was still on broadway), Chicago, AIDA, and Into the Woods. I'd reccommend all but Chicago, I wasn't terribly impressed. Tix are way cheaper at the cheap tickets booth in Times Square, and you would be surprised how good the seats are. Get there early, and have a top three shows you'd like to see, more than likely one will be available.

If she's up for getting up early, go to the Today show and stand outside. One of the most touristy things you can do, but it's a fun experience. Also ride the Staten Island Ferry, it's free and you can get better pics of the skyline and the statue of liberty than you can on the boats that go to the statue of liberty. Oh, and the best places to find knock off designer stuff is in Battery Park, and to a lesser extent Chinatown.

I don't have a clue about what to eat, I haven't been up there to see my mom since Dx. I think I've read that sabrett's hot dogs are gluten-free though...

I'M SO EXCITED FOR YOU!!!!! :-D

So I have this massive GS campout to go to in a few weeks at a big fancy summer camp that part of the council is renting for the weekend. As a rule, they have a strict policy of outside food, but they're letting me bring some of my own. Especially since I have to keep up with twelve lively 4th grade girls, and having only outhouses, it's imparitive that I don't get sick. Oh, I'm hypoglycemic and allergic to tree nuts, as well.

We will be eating every meal in the camp's cafeteria. I have to cover 2 breakfasts, a lunch, and a dinner. I also have to deal with a fast food dinner on the way there, but I think I'll pick up a chick-fil-a salad before we leave.

They always have fresh fruit available, and they have a salad bar at lunch and dinner, though I do not know if I can trust it or not, as I am quite sensitive. I can't have most gluten-free snack/energy bars because of the nuts thing, and they're pretty sugary to boot. I'm thinking I'm going to live primarily off boost and dinty moore beef stew, and carry some glucose tablets with me. I'm afraid I'm going to need an ever so fashionable fanny pack

Any suggestions about the best way to handle this? What flavors of boost are good?

Any help is appreciated!

See, the good thing about us putting one of these things on is that it would be "for the people". It would be more of a Star Wars convention than an Association of Hoity-Toity Doctors convention.

Have them come to US for a change! Instead of a bunch of professors and scientists and people out to make money talking about Celiac for a weekend, it'll be Celiacs themselves!!!

Viva la revolución!

what the hell are peeps? other then that, sounds easy to make

--matt

You don't have peeps in Canada?!?!?!?!??!

Open Original Shared Link

Marshmallows coated in sugar shaped into bunnies and chicks. Excellent.

Welcome to the board! I'm sorry about all of the losses you have endured, and I'm glad you have a supportive husband. Incedentially, my father was adopted also and he died when I was 13.

I'm currently grappling with the "should we have kids" question, also. I'm 22, got married last July, and got diagnosed in February. We're not planning on having kids for another 3-5 years, but I don't know if it would be right to bring a child into this world that may end up with this disease. I know it's not like passing on any number of far worse diseases, but still. I'm with you there and I'm not sure what to think yet either.

I need to get back into yoga, I did it a while ago while I was planning my wedding. The dr told me that would help my stomach problems by releasing stress.

I think I did hatha yoga and I loved that it left me feeling like a wet noodle.

I didn't like that I had to sit in positions of eons though, I think I need one that moves a bit more...

I don't think I can handle being in downward facing dog for 5 minutes at a time if I'm going to stick with it.

But I don't want the one that moves constantly

Suggestions on what would be good for me? Less boring noodle making yoga?

this all started with elisabeth having a gluten problem, but not saying Celiac disease, maybe she does not have Celiac, or does not wish to share her problems with the rest of the world, maybe they will not let her go in to detail about it, I dont think we need to be so hard on someone when we would not want someone to doubt the severity of any of our conditions!

Explaining it to family and friends gets annoying, I can't imagine what a pain it would be to have to explain it to the world constantly. I don't blame her, but it would be good to get out some publicity.

I don't think she's doing gluten-free for the heck of it, because if she were, I think she'd talk about it more. Like, "I keep all my weight off with the gluten-free diet" bla bla bla. The fact that she IS so closed lipped about it tells me that she does have a gluten problem.

I know you're being funny, and I'm not offended - but please be careful and sensitive about what you joke about. I have an adopted son from overseas (he needed a home just as badly as any child in the US) and I have friends who just adopted 2 from Ethiopia. I don't care for Angelina Jolie one little bit, but her splash on the media with her adoptions has raised awareness of the need for adoptive homes for children all over the world.

Really? You do sound offended. I in no way implied that it was a bad thing that she is adopting children. I'm all for it, my dad was adopted, my cousins are adopted. Yay for adoption, I'd like to adopt a child myself. There are children all over the world that need homes, and it doesn't matter to me where those homes are found, as long as they're good homes.

I don't think I should have to defend myself for something that was in no way spiteful or remotely offensive. I'll refrain from making jokes in the future, since I'm not good at walking on eggshells and being politically correct.

I'm sorry for being insensitive.

Except her lips.......

Karen

I think they're real, too. My freakin' gorgeous college roomate has them also. I love her, but I hate that she's so gorgeous....

I think you're talking about toaster bags, here's a link to some good ones:

Open Original Shared Link

The line alone is enough to keep me with o-s-c-a-r!

My fav story was when I contacted an asian restaraunt and when I asked if a particular item had wheat there was a short pause with a cute asian woman that spoke little english replies "no, no wheat. Cash only. "

Ladies and gentlemen, we have a winner!!!

Also, just a thought, Sour Patch Kids are kind of rough on the stomach, there's a lot of acid in them, aside from being a pretty stiff gummy.

I love the things, but I gotta be careful!

Blood sugar spike in your case, I'm sure.