corinne

Uggh - I've been gluten free for almost 3 years and can only eat bananas (raw), avocados (raw), canned apricots and well-cooked carrots, green beans, spinach and mushrooms. Mind you, I have a type of colitis, not celiac.

I've been a variation of the SCD (no dairy, no nuts, no beans) for 1.5 years. I have colitis, though, and not celiac. Every time I try to go off the SCD I get sick. I tried potatoes at Christmas, tapioca in march and rice in May and got sick all 3 times.

It's pretty accurate for me. I'm happiest in my lab discovering new things or outside climbing mountains. I just don't like too much pressure or too many people/noise.

you are lightgrey

Your dominant hue is red... you are passionate, energetic, and unafraid of life's changes. You're all about getting out and trying something new, even if it means taking risks that other people would be afraid of. Hey, if they're afraid and you're not, more power to you, right?

Your saturation level is very low - you have better things to do than jump headfirst into every little project. You make sure your actions are going to really accomplish something before you start because you hate wasting energy making everyone else think you're working.

Your outlook on life is brighter than most people's. You like the idea of influencing things for the better and find hope in situations where others might give up. You're not exactly a bouncy sunshine but things in your world generally look up.

I don't tolerate raw fruit yet (except for bananas) so canned fruit works well for me. Applesauce and canned peaches go down easy and have no peels/seeds. Some fruit that are fibrous ie pineapple can be hard for some people too. Cruciferous veggies ie cabbage, broccoli, etc. can be tough to digest.

Yes, Pepto Bismol is the first line of treatment for microscopic (collagenous or lymphocytic) colitis. I have this type of colitis and was on high dose (8 per day) pepto. The bismuth is anti-microbial, but is also anti-inflammatory. My symptoms completely disappeared on pepto. After about a year, peptobismol quit working for me and I was then switched onto Lomotil. I don't like Lomotil because it makes me very sleepy, but I take it when necessary. I mostly have my symptoms under control (have about 2-3 day flares of D about once a month) with a very restricted diet (only fish+chicken, bananas, cooked apricots and a few non-inflammatory veggies, no grains including no rice or corn, no dairy, soy, nuts etc etc).

Most people won't want to go that restricted and there are stronger drugs available (Asacol, entocort) that work for some people and don't for others. Also, NSAIDs should not be taken if you have this form of colitis. This is a rare form of colitis (about 2 in 100,000 people) and there isn't a lot of research about what works. Microscopic colitis shows up clearly when samples from a colonoscopy are examined under the microscope, so it's a very definite diagnosis.

Check the website: Open Original Shared Link

You can also PM if you have questions. I was diagnosed with the collagenous form about three years ago.

I too have colitis (collagenous) not celiac. My mother has celiac. These diseases can be distinguished by endoscopy. I went gluten free (and soy, casein free and no nuts, fibrous veggies etc. for the colitis) and my symptoms improved tremendously. I am now symptom free about 90% of the time.

It should be noted though that a gluten free diet does not work for everyone with colitis and most people with colitis will still have flares and may need medication. I am fastidious about cross-contamination (no gluten at all in the house etc.) and have been gluten-free for almost three years, but I still average about 6 flares a year and usually need meds to calm things down. During a flare I only drink water with a little salt/sugar and I still have D until I take meds.

Loraleena has a good point. I didn't see that you had been gluten free for only a month. I would wait until you have been gluten free for at least 3 months and probably a year without improvement before trying the diet. Dairy free and maybe eliminating other common intolerances should be tried before the SCD. Although D resolved quickly on the SCD, I still had cramps and nausea for about 6 months. It can take a long time to heal.

I just got back from a 3 day, 31 mile backpacking trip and I can't eat any grains (including rice and corn), no dairy, no eggs, no sugar, no soy, no nuts, no dried fruit etc. So it is a bit heavier, but doable and still fun.

I cooked a whole bunch of carrots and green beans before I left, put them in the deep-freeze and then packed them in a tupperware wrapped in newspaper to insulate and put them deep in my pack. They lasted the whole trip and it was up to 90 F in the day. I took some canned tuna (not sure if you can tolerate) that. If not, maybe you can take peanut or other nut butters for protein or possibly powdered eggs (no added ingredients). I took some bananas and avocados (not very ripe) and they lasted for two days.

Some ideas: justtomatoes.com sells all kinds of dried fruits and veggies that have NO added ingredients whatsoever so they should be safe for you. If you can eat corn, plain tortillas with nut butter and bananas make a good lunch. If you can eat dairy, cheddar and hard cheeses keep for at least a week. Rice and beans make a good dinner. If you put them to soak in a wide-mouth water bottle in the morning, they will cook fast in the evening. GORP is great way of getting energy for hiking during the day. Cream of rice with some fruit and a handful of nuts is a breakfast that will keep you going. Also, there has been a previous post on this site (can't remember the title) on freeze-dried food (Mountain aire) that is gluten free.

A frozen bag of peas etc. gives some temporary relief although don't put it on so long that the skin gets too cold and causes more damage.

Happy Canada Day!

I now work in California and I was homesick this morning. I play the organ at church and we started the service with the US national anthem because of the 4th this week and I lost it. I made it through the song and fortunately the organ is tall enough that noone could see the tears. I miss home.

Incredible. Especially the one foot holding the fish. That's amazing that you caught that on film.

I just want to add the difference between Lactose and Casiens. Scince your doctor tested for Lactose Intolerance and it came back negitive, your problem may be with Casiens. Lactose is milk fat, Casien is a milk protein.

Just a minor correction: lactose is a sugar not a fat.

Yummy! I'm a transplanted Canadian living in California. When I was little, my uncle in Nanaimo used to claim that it was a family recipe. I can't wait until things settle down someday and I can make them (can't eat any grains including rice plus no chocolate, dairy, soy or sugar)

I eat sardines for breakfast. Definitely not everyone's idea of a great way to start the day, but no soy.

I've been on a variation of the SCD for 1.5 years. It should be noted that I have collagenous colitis not celiac although the two conditions are related. I don't eat any nuts or dairy either. My symptoms resolved fairly quickly on the SCD. No D after about 2 weeks. I've tried going off the SCD, but I seem to react very strongly (vomiting, D) to even potatoes and rice. PM me if you have questions.

Thanks for the suggestion. The taste isn't bad, just the texture.

That's an idea. I haven't tried the foil pouches - I assumed they were the same as the cans. Thanks!

There's not a solution to this problem, just want to vent.

I'm heading out to the field in two weeks to do research. I just started last September as a professor and this will be the first time I'm directing a field work project. I'm really excited about the trip, but I'm dreading the diet. I finally have my symptoms under control most of the time, by eating a very restricted diet. I can't tolerate any grains, any starches, no nuts, only cooked fruit or veggies and not raw, no red meat, no beans, no acidic foods, no spices, no dairy and no soy. Not only that, but we will be working in the Mojave desert and we will need to use the limited refrigerator space to store samples not food. The last thing I need is D in the desert in July. I'd end up dehydrated very quickly and it's a long ways to a hospital.

So it looks like the only foods that will work will be canned - carrots, beets, fruit ie apricots, chicken and fish. I really don't want to eat canned carrots and chicken for a week blechhh!! Canned chicken is slimy.

However, the field work will be worth it.

What a relief to find your dog again!

My friend's black lab loves to run while we ski and a few times when the snow has been crystally, she's gotten pretty sore paws. Bag balm (used on cow udders) works great on dog paws too. My friend has tried the shoes, but her dog will sit down in the snow and won't move until her feet are free.

I seem to be intolerant of (besides gluten) dairy, soy, nuts, most cruciferous veggies, high amounts of fructose, all grains including corn+ rice, beef, pork and potatoes. My symptoms are stomache cramps followed by vomiting, then intestinal cramps and finally 4-8 hours of D. So pretty much the same as gluten.

I stick to making a simple meal in the evening - baked chicken or fish, a filling veggie such as carrots or squash and some green beans and other veggies and munching on things throughout the day. That kind of meal though might be hard to get kids to eat.

The title of this thread looks like "How Did They Find Out Celiacs React To Gluten?" to me.

Sure, but the body of the first post reads slightly differently.

Murph - the thread started with the notion of disproving the SCD on the basis that Gottschall states that starch not gluten is the cause of celiac disease. Gottschall's book does not make this statement and the celiac disease chapter in her book is focused on those individuals who do not respond to a gluten-free diet. It states that starch may also be associated with gluten intolerance. We do know that gluten is the problem, but there is some evidence (how strong is debatable) that starches may play an additional role and, in particular, for those who do not respond to the diet. This was the body of my reply, not just that the SCD is worth a try.

From my reading of Gottschall's book, the SCD is for those for whom a gluten-free diet alone does not relieve symptoms (p.43). A cure means relief from symptoms, not necessarily that celiac disease disappears. The theory in the celiac chapter suggests that starch may be involved in gluten intolerance, not that it alone is the cause of damage in celiac disease. Various research is presented which indicates that a carbohydrate-gliadin complex may be responsible for the damage as opposed to gliadin alone or that an inability to digest disacharides could initiate sensitivity to gluten. It's true that these results can be debated. However, the SCD, the paleo diet or other no grain, no starch diets do seem to relieve symptoms for some people whose symptoms are not relieved by a gluten-free diet alone. Intolerance to all grains does seem to be present in a very small fraction of those with celiac disease or other diseases such as collagenous colitis. As of yet (and probably in the forseeable future) there are no studies which (in)validate this type of diet. It's worth a try for those individuals who are completely gluten free and still have symptoms.

That would be fun. For some reason, noone wants to share my meals.

Open Original Shared Link

has great info including fructose content of almost all foods. And it's free.