gfp

I always liked being short. Basketball didnt interest me. But I learned pretty early on that the tall guys liked us short/petite girls just fine. I'm attracted to tall men because I like feeling smaller than my guy. It feels more secure/safe/natural to me. I tried dating guys close to my height and I always felt "bigger" than them (even though I wasnt). It might be because I am an Alpha Female and need a bigger male to balance me. The tallest guy I dated was 6'8.

Off topic.......sorry.......

Offtopic ????

Not really.

Women's taste in men changes with their menstrual cycle and also if they take the pill or not.

We all have a inbuilt need to breed the strongest stock but it's messed up by culture and society (no wonder we are so confused)

10,000 years ago a big strong man was better to provide ... now the quiet geek with glasses might have a better job than the jock from college and be able to provide better.

From a guy POV, we have altered our expectations from well formed hips to cultural influences saying 'heroine chic' is attractive.

My Girlfriend is about 1/8" shorter than I am.... I have to admit I prefer her wearing flat shoes ....

My last Gluten-free was 5'2" ....

I have felt the same way. However after watching what my DS goes through trying to find clothes that fit, shoes are the worst and he always has to buy a size too big and use double thick socks even in summer, and a car that is comfortable for him to drive, and the difficulties he has in social circles after years of teasing by his peers....well, my opinion has changed. Also there is a difference between being on the short side and having your growth stunted by a disease that should have been caught in childhood.

When I was 18 I looked 16 and was constantly teased. At 5'10" I'm not really short ... my place of birth that's actually pretty 'medium'. When I lived in Norway I had the same problem buying clothes ... in France I had no problem except I have a tiny waist (28") ..

Now I'm 40 suddenly the teasing when I was 18 seems somewhat old. Few people believe I'm 40 (even smoking for 15 of those years)...

For clothes, why not order from a European catalog? (or Australian).... I know you will have to pay some delivery but not much???

The strange thing I found when in Australia (which has a high percent of oriental ethnics) I had to buy XL for shirts and jackets (I'm a 42-44" chest) and small for trousers (but I could buy them) .. Perhaps NY or SF would have clothes in these sizes? (large Chinese ethnic community)

Carwise ??? Again European/Asian models retrofitted with a European Seat....

If your interested in this I can find out more.... (My brother is somewhat an expert, it's his business)

He did set up a factory in the Twin Cities area making special car seats (His patent was expiring and the US company offered him consultancy) .. The seats area really designed for disabled people to get in and out of the car BUT ... he doesn't need that part, only the top seat part which would be MUCH cheaper.

You can get 'slides' which travel further (very cheap... I might be able to ask my bro for a pair for free, either case they would be much cheaper than shipping) and also spacers under the seat. He might just need to pop out the seat (usually just 4 bolts), replace the sliders and use the spacers (with longer bolt) which are the most comfortable height.

Doing this officially probably needs a DMV test.... (I know it does in the UK) but the Twin cities company might be able to just supply the sliders, spacers and longer bolts... (This is really only a few percent of the cost of the whole unit)

Not sure point that you intended here but I'm a little concerned that someone might read it as 1 in 40 people react to an amount as little as 10mg/day. Remember that the people in the study are biopsy confirmed celiacs so that would be only 1 in 40 of celiacs or 1 in 5320 of the general population (using 1 in 133 as the rate for celiac).

Actually that is EXACTLY my point....

10 years ago 1:5000 was considered the incidence for celiac disease.

Now today we are saying that if 1:5320 people react to small amounts of gluten that is OK ?

However its not saying 1:40 react... indeed they don't provide those stats....

Of the 26 people eating gluten most of them reacted ... since they don't state EXACTLY what the percentiles are I can't back-out the figures.

Of the 13 eating 10mg/d the 'average' (by which I'm assuming mean) had NEGATIVE villi growth.

Either one was so bad they skewed the results to -9% or some didn't react...

Also, the bottom line is that we don't know how successfully the subjects were at following a GFD. Probably just a successfully as any celiac trying to follow the diet. Maybe the one who reacted to the small amount was one of those who ate a lot of gluten on the side. We don't know.

Any study has weaknesses, this one seemed to state its test conditions. It appears to be a better study than taking a few statistics out of context, guessing about the diet of the subject and reaching another conclusion.

Again I absolutely agree.... (with the first part)... we have no idea nor have the study how well they followed the GFD either before or during the trial.

When we are testing 10mg/d then environmental factors must be considered.

Any study has weaknesses

Subjects included adults with biopsy-proven celiac disease who had consumed a GFD for 2 years and who were in apparent good health.

Read carefully.... it say's included... not comprised.

As someone who has written quite a few biased scientific studies in my time... I find it worrying.

Fasano has access to thousands of subjects he has all the lab work for.

He has patient histories and data not used i the studies. (He has genetics for instance)

Nothing in this study tells me he didn't pick specific haplotypes for the study.

He also has a vested interest in a 1 Billion $ per year product specifically for allowing celiacs to eat trace amounts of gluten.

Hypothetically as an adviser to the FDA if the limit for gluten-free is set at an amount that will make people sick unless they take the pill Alba seem ready to see that 1 Billion market expand.

Overall, I just don't see how the results FIT the presented data. How does an 'average' -1% in villi growth seem positive? Did those on the placebo not do better ???

Gfp is so right. What they believed to be true 10 yrs ago, has proven to be wrong, it's just doctors never thought of celiac disease as a problem. 10 yrs later, the numbers have changed significantly, and in less than 5 yrs, in my opinion, the standards will change again. Eventually, I'm sure gluten intolerance will be discribed like pre-type 2 diabetes and diabetes. I think gluten sensitivity/gluten intolerance is still celiac, just the beginning stages. They will be telling us there are gene types more likely to get celiac disease, yet it can happen to anyone.

Its all rather scary.... and I see it exactly like type 2 diabetes when Dr.s don't even bother trying to treat via strict diet but just go straight for insulin.

There are people like me and you (and this board has a lot of them) who would ALWAYS go for a strict diet over insulin dependence.

Well, I don't have type2 diabetes (and given my diet little would change) but I do have celiac disease.

I DEMAND the right to make my own decisions on if I want a pill or the right to buy gluten-free food. Is that unreasonable?

I happen to have a friend who was clinically obese and developed some complex health problems,

He also smoked 100/d and drank a LOT.

His Dr. gave him a collection of pharmaceuticals, some of which would by themselves reduce his life expectancy.

He asked what would happen if he lost 50% of his weight, stopped smoking exersized daily and drank moderately...

His Dr. told him 'noone does'

Year later he has lost about 30% of his body weight ... stopped smoking completely, drinks moderatly and works out 2 hours EVERY day. He has been taken off the most dangerous drugs and reduced doses of many of the others.... his aim is to be drug free and lean bodymass.

He actually HATES exersize .... his aim is to be able to reduce it to swimming less than 2 miles per day (he finds swimming the least offensive exersize)... he has a metabolism which doesn't help but he's doing it despite being told he wouldn't.

The point is he wasn't given the choice... the MD didn't say you can either .... or .... she just said take the pills. If he hadn't insisted she wouldn't even have said it was an option!

The trial I am on wanted me to document my last biopsy from 1999, which showed recovery from the 1st one done in the 80's. I also brought lab tests showing negative results from different periods of time over the past 10 years. This was to document that I have celiac disease but have recovered. I was lab tested by the researchers and found to be negative for gluten exposure and all other blood tests were fine so I got the Ok to start.

There are others on this trial who recently diagnosed by biopsy, who I believe are now on the diet during the study but I could have misunderstood the researcher on that. There are different parts of the different trials and each have Celiacs required to be on a gluten-free diet 6 months before. I believe the doctors are referring the newly diagnosed patients. I do know that there is a need on the trial for biopsy proven celiac disease'ers gluten-free for 6+ months. I was told last week that now anyone new coming in will have to be biopsied as part of the trial and that I was the last patient not required to do that. My 1999 biopsy came from University of Maryland lab and my doctors were Dr Fasano and Dr Stephen James, who is now head of NIH Digestive Diseases research. The reports discuss my earlier positive biopsy and clinical history and recivery. Pretty clear cut that I have celiac disease. I guess they now want the biopsy done as part of the research in conjunction with the lab tests.

Hope this helps.

I'm still trying to work out who is who ....

Isn't Fasano a major shareholder or employed in Alba?

As I understand it the testing will attempt to show that arazotide acetate will allow celiacs to eat small amounts of gluten with minimal damage???

Open Original Shared Link

I would really like to know what share of the estimated $1 billion market Dr. Fasano has.

Is he in for 100 million or just a cool million? Just how independent are the papers he writes and the 'advice' he gives to bodies like the FDA?

I have to to say I find this paper particularly worrying: Open Original Shared Link

At (t-1), the percentage change in Vh/C_D was

9% (95% CI: 3%, 15%) in the placebo group(n=13),

-1% (-18%, 68%) in the 10-mg group (n=13), and

-20% (-22%,-13%) in the 50-mg group (n = 13).

One person had a relapse so serious on 10mg/d that he was removed from the trial.

10mg/day was declared SAFE.... regardless of the results ???? I suppose -1% Vh/C-D is better than -20% ??? but surely +9% is better (or am I just stupid)..

Of course, if you were marketing a drug that would allow people to eat this limit then letting them get sick first then selling them a drug when they no longer can find REAL gluten-free foods is a surefire money winner in the 1 BILLION $/year business?

Lets see where celiac disease research is ????

So from a $325 Million investment no one can find the money to do a clinical trial on the effect of a ZERO GLUTEN DIET on celiacs?

Perhaps they simply don't want to?

Perhaps it is time Dr. Fasano stood one one side of the fence or the other?

Of the 13 people on 10mg/d some had positive villi growth (indeed with so few and an average of -1% it is probable that a few actually gained little) however the of 13 taking the placebo non saw a (whatever Std Dev they used) of +68% ....

How RANDOMLY were these people selected?

How much gluten were everyone in the group already ingesting through CC or mistakes?

How much would it cost to actually do a study where people were actually monitored as to being gluten-free for a good 90 days prior to the trial and blood tests taken before, after 90 days 100% gluten-free and after 90 days on 10mg/d?

To do this the university of Maryland would create some staff study positions or working from home environment.

A NEW kitchen would be built.... only 100% gluten-free would enter the kitchen (raw vegetables, meats, fish etc. and for good measure no dairy or soy). The people on the trial would be allowed to eat ONLY from the kitchen.

Suddenly we have a BASELINE. We can revise the blood tests based on this study... i.e. what is the base for someone NOT eating gluten? How does this differ with different haplotypes (specifically DQ2 and DQ8) ....

One thing continually makes me angry is the lack of healthy gluten-free food.

I go to a 'heathfood' shop to buy gluten-free food and get food full of chemicals and food not really fit for human consumption (like soya).

So last night I saw a BBC program on the junk they put into food.

This is a bit like a UK Penn and Teller and Americans might find the accents a little 'thick'

Open Original Shared Link

Alex discovers manufacturers with ingenious ways of transforming poor ingredients into something that looks and tastes like good food. He unearths hidden horrors, from substitute cheese to beef connective tissue, and even creates and markets his own substandard food.

The program investigates what is legally put into food. (UK laws)... he then sets out to create the most unhealthy combination possible that people will actually EAT. He consults with nutritionists to see how he can make the food as unhealthy as possible and uses the most disgusting ingredients he can find (based on REAL food sold in catering suppliers)

Though non of this is specifically celiac related the program links to Open Original Shared Link

This is an organisation that analyse 'snack food'. The link takes you to the glutano snacks.

Hi I recently ate something that stated on the front that it was gluten free. When I read the back it had wheat based glucose syrup in the ingredients.

Is this still gluten free and should I expect a reaction

There is no easy answer to that one.

The glucose syrup from wheat can be up to 200ppm but it doesn't say what part of the product you ate is this syrup.

There is considerable debate over this topic and two camps.

There is NO evidence that small amounts do not cause damage, there is evidence it does..... HOWEVER::::

(I'll be honest here, this is the part that rattles me because if this were true YOU wouldn't be here)

You (and I) are too stupid to know the difference or be capable of sticking to a gluten free diet.... SO ....

the decision was made... just like for dietary control of diabetes. The patient is too stupid to follow a simple diet so we will presume they are ingesting things they shouldn't.

You are denied the information YOU need to make an informed choice.

The glucose syrup could be 1ppm or 200ppm. It could make up 10% of the product or 1%.

Lets say you ate 100g of the product. You ingested from 0.00001g of gluten protein to 0.002g of gluten protein. (the latter being 2000 times the former)

If anybody is basing anything on a study with 40 people, they need their heads checked. My hope is that this study is going to be a jumping point for much research to come. Maybe next test they'll use a more reliable measure than villi testing - so many feet of intestine, how do you know where the worst damage is? Everything I've read says stool testing is better...what do you guys think?

What worries me most about this is the 'baseline'.

The damage seen with 10mg/d seems totally acceptable because it is accepted that everyone in the test is 'as gluten free as they can be'.

I really strongly suspect they only had 1 single person in the whole group who was gluten-free before the tests and this is the person who had the relapse.

I also find it disturbing that one person in forty suffering clinical relapse it is acceptable. What annoys me most are the 'old timers' who campaigned when incidence was 1:5000 for the 'right to gluten-free food', the people that fought those who sais impossible for 1 person in 5000.

Now we are looking at 1:40 celiacs in an incidence of 1:150. (1:2000 of general population) and apparently its fine for these people to be clinically too ill to do a trial and to guarantee SAFE food for them. This is hypocrisy at its worse.

This is the freed slave buying slaves, the persecuted minority persecuting a smaller minority. These people are worse than the general ignorant public because they are not ignorant, they just choose to be selfish.

Every study I manage to SEE says the damage was 'not worse than'.... I just fail to see how this is acceptable.

I think you have to make a hard decision:

The first test results you show don't look very "positive" at all but then you were not eating gluten.

Having a single DQ8 just means you are at lower risk of celiac disease however its totally possible (if rare) that you can have neither DQ2 nor DQ8 and still have celiac disease. (Sorry if this is more confusing)

There are other things cause malabsorption and joint pains (lymes springs to mind)... HOWEVER

Remember: 10 years ago celiac disease was thought to be 1:5000 people ... you may have a rarer case but that doesn't rule it out.

If present incidence is thought to be 1:100 and 1:50 celiacs have a 'rare' form this is still the same incidence as we thought celiac disease was 10 yrs ago.

You could try for retesting while eating 'sufficient' gluten.

Your other path is as Jestgar said....

Can you do 100% gluten-free for several months? (No eating out, no processed food) nothing you are not 100% sure of ???

Meanwhile, non of this stops you getting sub-lingual B12 ASAP....

I think you need to. You wouldn't want to take a job and work it knowing you were making vastly less than other people. If it means you don't get the job, then so be it, but that'd be better than getting locked in for less than you should be paid.

Can't really fault that....

Do you REALLY want the job? Is it that good or were you just casting out?

Even with the cost of living are you underpaid now? Could you just get another job on say 5k more without moving?

Yes, I know my ex and his borthers all have the same mom and dad. Their eyes are all like their dad's, 3 of my sons have that same familiar look, my other 2 kids look like me, my daughter so much like me. My sister is 5'3, her husband is 5'11 or so and all 3 of their kids are tall.

As I said, height is not always determined by celiac disease. I belong to the Suffolk County Celiac support group, we have well over 100 members and we are all different heights, many being tall...we are all different sizes too, some very thin, some average, some overweight. Celiac is an equal opportunity disease, it really doesn't seem to pick and choose it's members!

LOL

However 1:20 children are not the product of their supposed father (random testing, for those that seek paternity tests its 1:7)

Always worth considering (however well we think we know) ... its like I tell people about celiac disease, take a plane with 500 people and 4-5 with have celiac disease.... take a small bus with 20 and chances are someones pop is not their pop ...

However on growth, I can't help wonder how people get so serious about height. Really, if people think its somehow important that their kid can play competitive basketball then either marry someone who is 7' or get artificial insemination from a 7' donor...

their are of course some real issues (as ravenwood mentioned) but parents overfeeding kids to get them to hit some artificial percentile (calculated from fat kids who will likely be obese when they are older) is not exactly healthy either.

For the record, my celiac disease mom is 5'2" my pop 6" and myself and non celiac disease bother 5'10.5" (measured in metric)... not like I care about the .5

I'm a lifelong celiac and decided to participate in these trials to help. I am encouraged by this drug! Everyone here who has been gluten-free for at least 6 months should consider participating in the trials, too.

Perhaps I misunderstood but they don't seem to want people who have been gluten-free... ???? Don't they require a positive biopsy as part of the trial???

I'm thinking about participating in a clinical trial for the new experimental celiac disease drug by Alba Therapeutics AT-1001 (a.k.a larazotide acetate). From what I've read, it appears that the drug is not supposed to be a substitute for a gluten-free diet, but would be useful for protecting us from a small amount of gluten in the case of cross-contamination.

Anyway, the drug is in Phase IIb of clinical trials, so it has already been tested on a few different groups of people. So far, there haven't been any serious side effects or "adverse events" reported. However, the number of people in previous trials was not particularly great maybe a few hundred or so, so they can't guarantee anything.

I'm not exactly sure what to do. I'm all for the progress of science, especially in the field of celiac disease research and it would be cool to be a hero for the cause. However, I don't think I should just jump into this blindly. When I first heard about the drug, I was under the impression that I'd be able to eat bread again and was like "sign me up", but that doesn't seem to be the case. Although I wouldn't have to be quite so paranoid about CC which would be nice. In the test, I'd still be required to maintain my gluten-free diet, I'd take the pill three times a day, and I'd have to get a total of two upper endoscopies/biopsies (one at the beginning and end of the study). Personally, I think that the greatest risk would be from the endoscopies, but at least in that case you know the risks going in. Anyway, do you think it would be worth the risk? Any insights into clinical trials in general or AT-1001 in particular?

One other confusing thing. They said that they would do a blood test to make sure that I was adhering to a gluten-free diet, but that they would also do an endoscopic biopsy to make sure I had "Active Celiac Disease." Now I was under the impression that one had to be eating gluten in order for celiac disease to be diagnosed via biopsy, but they told me to stay on a gluten-free diet. Am I missing something? I thought healed gluten-free celiac disease intestines were virtually indistinguishable from healthy non-celiac disease intestines. Anyway, just me being curious.

Hmmm, not sure a clinical trial is actually science !!!

They seem (reading what you said) to actually only take people who are gluten lite .. not 100% gluten-free.

If they were actually interested in 'science' as opposed to ONLY the bottom line they would be doing a lot research on 100% gluten-free people...

However if they did that they would have to come up with a baseline for the blood tests for someone who is actually gluten-free not gluten-lite and I suspect that they suspect this will mess up their results.

I say they suspect since they probably haven't tested ... which answers your question really about clinical trials...

The trials are done to prove a drug works ... not for science or the benefit of the population etc. but for the bottom line of the company.

The worlds most successful drug marketing campaign is said to be (according to Harvaard Business School) Ranitidine (Zantac) ...

Glaxo-Welcome spent millions developing the ideal drug (didn't cure ANYTHING but had a life long dependency) ...

Most of the way through their research two austrailian Dr's published a paper on h. pylori and how most ulcers can be cured by 25c worth of antibiotics. Glaxo-welcome then spent more millions paying off Dr's and bullying scientific journals, hiring 'PI's' to intimidate the Dr's and trying to dig up dirt...

Eventually .... (after an estimated several hundred thousand deaths from ulcers) the australian government actually interceded... and forced an open press in Australia ... this snowballed until their were investigations etc. in the scientific publishers (blackwell, elsevier etc.) ... and the publishers were found to be biassed towards their advertisers (like it needs an investigation)....

Thanks for all your suggestions.

I'm amused by the idea of a "valid" negative, since I'm convinced my negative blood test was completely false - I hadn't been eating wheat for a year! And I don't have the numbers, unfortunately, so I don't know whether they were just low or nonexistent.

This is what i thought I remembered.

You don't seem to want to make the leap to gluten free from gluten lite.... often a 'false negative' is why...

So I guess you are a mild case like me? You can 'eat the stuff' and survive for a few days? It does come in handy in a pinch, but certainly not doctor recommended.

Nope, I react to the tiniest amount....

I react the same to a pizza and beer as I do to a breadcrumb or cross contamination.

However the most serious symptoms come during withdrawal.

Once you have gluten in your system you produce antibodies and stress out the system.

It is not a matter of how much...

Peoples reactions differ, some people get constipation, others get the opposite and many get a cycle of both.

Many do not even react noticeably in the intenstines but get nerve damage, depression or hyperthyroidism.

Quite honestly I can live with some D and stomach cramps.... pop some imodium and ignore the cramps. The peripheral symptoms are much much worse.

However regular consumption of even small amounts can lead to many complications without even knowing it.

There are many people here who had no intestinal clues at all until they were diagnosed because of some other condition.

I would never encourage others to do this but when I have been caught out a mixture of slow drip of gluten (beer works for me) and imodium usually keep the worse symptoms off until i finally crash....

Did you know that smoking prevents celiac disease... it's clinically proven. I do not however encourage people to smoke to control the onset of celiac disease.

i worry about ingesting gluten and having it damage my insides. it's not always about the physical, symptomatic reaction. i read somewhere that 1/8 teaspoon of flour is enough to do damage. so why go through all the effort to avoid large quantities of gluten if the small amounts are harming you too?

some people have suffered for years so to them it IS a big deal. consider yourself lucky to only have a "mild case".

It is clinically proven that 10mg/day is enough to do damage.

I'm here to tell you that Celiac disease is not the end of the world! Some people on here sound like they are dying, and sure, I'm sure they are worse off than me.

Maybe you were recently diagnosed? Well its important to know that there is a very wide spectrum of symptoms and tolerance levels. I for one, am not sick all the time and was only sick for 3 months before my diagnosis. I don't worry about what touched my food, just what is in it, and especially large quantities. Don't get me wrong, if it says contains wheat I usually avoid it. But I came to find out that a friend of mine was feeding me some cheese sauce that had some "All-purpose flour" in it... I hadn't a clue, didn't feel a thing.

So, maybe you'll be lucky like me and your Celiac is a mild case. Life won't be too bad. Follow the gluten-free diet and live happy, things could be much worse.

Not feeling a thing means nothing.

My aunt said the same thing for 50 years about smoking until she developed emphasaema.

Can you provide scientific evidence about

Well its important to know that there is a very wide spectrum of symptoms and tolerance levels.

Before encouraging others to play Russian roulette with their health I would encourage you to do some reading.

If after doing this you wish, like my aunt to disregard scientific research and continue to damage yourself then that is your own personal decision however you should not encourage others to endanger their health and life.

Trips?

I have thought about this a lot, and there is no way to be sure other than to take your own food. It sucks, yes it sucks. Recently I went to visit a friend at college, not knowing what they would have to eat I whipped up some plain rice and chicken and took it along. I spent a good deal of the weekend eating... Rice and Chicken, but I wasn't sick and I didn't starve. Mind you this was just 3 days.

Looking at week long trips and such, I'm not really sure what I'll do either, but I'm sure I'll go with my best bet, take some food along. when we go out, I'll ask about Gluten Free. If they are clueless I'll get what I know, grilled chicken or steak and a baked potato.

I'm looking at going on a honeymoon in a year or so, and it really is just another step that you have to take. I'll be looking for a suite type room that has a kitchenette. Might cost more, but nothing like the piece of mind knowing I can whip up something if I can't go out!

Having family that is on board and supportive is a huge plus! They understand WHY I don't enjoy eating out (even if it's un-American).

Well, on longer trips I do my best....

its often not good enough.... so by the time its over I really need my refuge.

I dont' feel so alone with your story. My goal was/is at least to eat 23 g of gluten a day for the 5 1/ 2weeks I have left. What do you mean by 5 gluten a day? I don't know how to establish what equals 23grams.... there is so much information out there i.e. 1 slice of bread equals 4.8 g of gluten and 1 slice of bread equals 10 g gluten. hmmmm So i've been eating a piece with each meal and for my two snacks a day. I think I'm getting mouth sores ...

I am sooo sorry to hear of your pain - it sounds just awful. I'm worried about cancer too. I've already had thyroid cancer and hashimoto's. I would love to hear back about your biopsy and results! I hope all your hard work is enough..........I will be thinking of you...especially at night with the sweats and the constant fatigue ~ Bridget

Can I ask WHY you want to do this?

1) A negative biopsy for celiac disease is not definitive unless its post mortem.

2) A biopsy can be done to look for other things (such as cancer) without needing to eat gluten. Indeed it will be easier to see in there without all the inflamation.

3) Eating gluten is making you ill, after he biopsy will you keep eating it even if it makes you ill and the biopsy is negative?

Ummm....unless I am missing something SCD is gluten free naturally. No grains, processed foods, preservatives, etc. allowed. Only meats, veggies, fruits, nuts, seeds and dairy in the form of homemade yogurt.....

Yes and SCD is probably great and I probably do over 50% of it naturally....

However two posts were made on here 2 days ago.... both relating to gluten free and the FDA standards....

Both generated next to no responses.

You currently have groups like GIG pushing to have gluten-free defined as = < 20ppm gluten and in the words of Cynthia Kupper without any scientific evidence.

In the UK it is practically 'accepted' that coeliacs who eat codex gluten-free but don't get better have IBS.... and here IBS is non specific.

We are locked into a catch-22. Coelaic UK declares (without scientific evidence and by actually hiding the results of some research) that codex gluten-free is SAFE.

Therefore any coelaic who still has problems must also have IBS.

CUK denies any other side effects (including neuropathy, depression etc.) and prohibits its officers from giving out information on this. Further it has sponsored studies which have proven it and then refused to let them be published or attempted to restrict their circulation. Several officers have been given gagging orders and banned from discussing this and they actively make fun of the idea in their magazine. A magazine paid for by advertising from the food industry.

The US is currently saying (or again in the words of Cynthia Kupper) to paraphrase , if its OK in Europe then it must be OK here too.

Hence my statement ....

VERY VERY SOON .. we will find it impossible to find REAL gluten-free....

I'm living in central London, 90% of the produce in the supermarkets is processed. i have a 'choice' of 4-5 vegetables but 30-40 prepared meals and its getting increasingly worse.

The time for action on this is NOW....

What I'd like to know is if before trying the SCD if Ali tried a 100% gluten-free diet (no CODEX gluten-free, no prepared food from supermarkets, no eating out... all medications checked)...

Maybe she did but 90% of UK coeliacs are misled and are told they are gluten-free when they are eating products with gluten deliberately added. Thanks to CUK they are even given Rx for this to get from a chemist...

What a nice, rude answer! Are you suggesting that somebody will somehow track down my unnamed husband and steal him from me because I've anonymously posted about his supportive nature? I'm sorry if something similar has happened to you.

If you're bothered by posts by people who are not complaining about the lack of support in their family, I suggest you avoid posts that have titles like mine.

I only saw this as a humorous post ...

I'm sure veggienft meant nothing but humor... hence the little smiley

Will you marry me?

sorry, waiting for CarlaB to get divorced ....

This might take a very long time since her partner is awesome

But seriously.... I wonder if I do too much ???

I'm actually a really good cook.... (as in really good, i now that sounds conceited but really I am). I love cooking which helps but I wonder if this is somewhat intimidating???

Because of this I find it hard to cook with anyone who is not a professional chef.. for instance I dice an onion in 1-2 seconds so if a girlfriend/partner is helping I get all out of timing if my gluten-free is going to dice the onion.

When I cook with professionals I just say "dice this".... and its done.. no questions or delay so by the time the oil is hot its ready...

I do the shopping because I'm demanding on ingredients.... I'm the person on the veg stand hand picking each item and testing it for ripeness or texture ....

I bet I'm sounding a little less perfect now

My present relationship I'm really trying to stand back... but I'm a late 60's kid from a single parent family. It's instilled in me that male and female roles don't exist... so I feel just as put out when a partner won't help with DIY...

I think this is probably as much of a curse as a blessing.. somewhat like Midas and gold.

I also have an eidetic memory, people think this is so so great....

It's great for exams ... sure... It is not so great for relationships.

Now I've known since I was young, flaunting my recall is not cool. My mum always counseled me to keep it under a bushel so to speak so I do. However I find my cooking and what we in the UK call home economics skills go down just as badly in the long term with serious girlfriends. I can't say my sewing is as good as my cooking but its usually better than my girlfriends.... the reason for this being I spent summers with my gran when my mum was working and we did sewing, darning, knitting or crochet each day.

It always starts out being 'cool'.... like my girlfriend gets a dress and needs it altering .(I'm extremely fastidious).. but I think over time this breeds resentment over what my girlfriends see as female roles????

You just get into trouble with ALL type statements, but I dont think Ali is saying this. There is merit in a lot of theories. I like to read what others discover. The more information I have the better.

Hey the Title of the thread

Gut Imbalance And Dysbiosis Behind Everything

As I have said, I also see a lot of merit... however I also see merit in heavy metal toxicity and yeast overgrowth.

We could say "well there is no harm in it" except as Rachael points out, she got worse.

At the same time we have had the "all funghi are bad" threads where people have been told not to take antibiotics, an even more dangerous path. Should people THINK before popping them... absolutely ... however if you happen to have symptoms resembling bacterial meningitis taking a day to think if antibiotics are good is likely to prove fatal.

This is not even starting on the complex relationship between funghi and bacteria in our gut flora.

To my knowledge, although it has been found to help diabetes (it did nothing for mine!) no-one knows what other effects it really has on the body and those of us taking it are just guinea-pigs! i went back to insulin - I know where I am with that.

Now here is why it's a problem.

Last year I posted an article about diabetes and how medical opinion had concluded that 'just giving insulin' is the best way.

This was not based on medical fact, this was based on the opinion of the medical community that people will not follow a strict diet.

The SCD is helping - slowly. I am not as disciplined with it as I would like to be and do allow a little sugar to creep in here and there which is counter-productive, and I am very aware that I am much better when I don't have it, or starchy carbs.

Unfortunately it is now the considered opinion of the medical community to create insulin dependent diabetics INSTEAD of treating by diet.

Cutting out sugars and processed foods..... hey, I'm 100% for this however it dos nothing to explain the incidents of celiac disease prior to the 20C.

Meanwhile :

Non of my personal research or experience has shown that "A strict gluten free diet must be followed for life, to minimise the risk of developing other associated health problems."

However I find that most celiacs are NOT following a strict gluten-free diet. People (myself included) eat out. Many eat codex gluten-free... others will eat processed in a factory .. etc. etc.

I have yet to SEE one single shred of evidence that ANY amount of gluten causes NO DAMAGE.

Meanwhile, the US is adding the (modified according to Peter and i have no reason to doubt him) .. CODEX standard.

VERY VERY SOON .. we will find it impossible to find REAL gluten-free.... the US is using Europe as a model... in Europe its accepted that c(o)eliacs never get better and this is called IBS.

Will a SCD help .... YES but it is not providing the answers nor is it helping provide us with a safe diet.

There are quite a few things going on here:

1) I'm 40 and I find it embarrassing wondering if that next movement of gas will be a liquid one! I'm sure the thought of this for your son is a major factor. Heck getting a haircut can be cause for being bullied at school, let alone pooping yourself in class!

2)

And the reality of it is I'm just as nervous as he is about a new school year, FOUR new teachers, one new principal, and all that stuff!!

The school need to be more sensitive..... IMHO ...

the teacher said he sent him to the office, who sent him the the nurse, who was backed up 5 kids, so the teacher had him use his cell phone to call me

OK, this stuff happens... I wouldn't want to be at school with my tummy gurgling and standing in line to see a nurse!

Why Not?

Well because coeliac is found in places where peoples guy bacteria is completely different.

Allison is in NYC, her natural bacteria is completely different to ours in the UK....

As i said on the intial lymes thread where the poster claimed lymes was found EVERYWHERE ... it has NEVER been found in Iceland yet celiac disease is prevalent. Another weird thing about Iceland is the restricted genetic pool. Coeliac incidence is as common is Icelandas everywhere else with a gothic derived population (N. Italy, Central Europe etc.) yet no lymes...

Of course I don't believe it is behind EVERYTHING. There are a lot of diseases out there that appear to be caused by genetic malformations and those can occur anywhere, but thinking laterally, there are a lot of communities out there who do not suffer the types and/or range of diseases that befall those of us in 'civilised' society.

No because they have other things to worry about.... malnutrition and access to antibiotics being major ones.

In many parts of the world simply being alive is classed as healthy.

Why is diabetes on the increase here yet unheard of in other, less 'civilised' communities? Why do those communities only start to develop the disease when they are exposed to our environment? Something triggers it. Is it the diet? Is it the drugs? Certain Drugs disrupt the flora balance and high carb/sugar feeds the bacteria that turns pathogenic in quantity.

I have never eaten a diet high in either carbs or sugar.....

Before leaving home I had tasted soda at other peoples houses, we never bought soda, fizzy drinks or the like. We drank water or water.

I never liked sweet anything.... and still don't... a bag of sugar in my house when we were growing up would last until it was thrown out because it was going brown... I had sweets perhaps once a week to once amonth (the only time I was allowed them was at my Aunt Elsie's and then only 2-3)

The average Libyan is alloted 30kg of sugar per month.... of state subsidised sugar.

We don't think of our diet as being high in sugar and carbs because everyone is eating the same way, yet we ingest more of the stuff in a week than our ancestors would have done in a year! We have a much sweeter tooth now than even 50 years ago. The more sweet stuff we eat, the less inclined we are to eat good nutritious food. The stores are packed to the gunwhales with processed this and take-away that and we just carry on stuffing this rubbish down our throats without any thought about what it is doing to us. We are a sick society, but we don't help ourselves one iota by the food we eat.

Yet .... I don't and never have. On the other hand my brother lives off this.... he either eats at my moms or eats processed crap.

He has been repeatedly tested for celiac disease (being myself and my mother have it)....

Funny thing - I keep coming back to bacteria............

Not really, that was my point.... you keep twisting everything back to bacteria....

My point is that I actually think and believe a LOT of what you are saying has a lot of merit.

I just don't think it is helpful to basically bring everything back to bacteria .....

Just as the lady who came here and told us about Lymes disease did ....

Now the Lady in question was run-off many moons ago... and since then many of our good friends have found they have Lymes...

perhaps some of them were the ones laughing at her at the time....

Believe it or not I was one of the people supporting her..... except I didn't support her view that ALL celiac disease is caused by Lymes....

Right now I support a lot of symptoms may be caused by bacteria BUT until scientific proof is available I will never support ALL celiac disease is caused by bacterial imbalance.

I'm on a strict budget here people

OK....

How's about...

Chicken breast wrapped in ham and stuffed with garlic, herbs and cheese steamed in white wine?

You can cheat and find a soft cheese with garlic

Just get some foil ... slice open the chicken breasts sideways (the little flap on the back)

stuff with a couple of teaspoons of soft cheese, spinkle some mixed herbs.... and a little garlic (to your own taste)...

Then get a strip of parma ham (or you can use bacon).... and roll it around the closed breast... stick the two foil packets still open on a oven tray and fold over the ends... add a few tablespoons of white wine...and seal the packet

if you have bay leaves stick one on top before closing the packet

Throw these in the oven for 20 mins on medium heat...

Meanwhile choose veg of choice ... if you decided to impress then a puree of parsnip is unusual.... but its really your choice....

After 20 mins take out the packets and drain the fluids into a small saucepan.

make up some corn starch into a paste with either wine or water....

stick the unwrapped chicken back for 10 mins to brown slightly....

gently heat the starch and juices together, add a little more wine if you like....

shouldn't cost you much....