gfp

And the madness continues:

Celiac tests in Down children may fail

INDIANAPOLIS, IN, United States (UPI) -- Researchers at the Indiana University School of Medicine say children with Down syndrome may still develop celiac disease even if routinely tested.

Really, testing doesn't stop damage?

I thought we just had to get tested and the disease went away?

Of course they are going to develop it.... especially now that its decided testing before the damage is ... "ineffective" ?

Please take note: This article has a talk-back option!

Perhaps some of you would care to comment?

I have to agree with others that the gluten free treats etc. is a hige trap. I guess we all like making excuses that "well its gluten-free" and so many people seem to fall into eating more bread/pasta than they did before ....

People don't just gain or loose weight overnight... it usually involves the body switching from one stage and going to the oppostite. This makes it a little dissapointing, its easy to feel its not working but its just the body going from one phase to the other.

I don't really agree on walking, its a pretty inefficent way to loose weight if you are time limited. If you are not its excellent but you need to be spending a long time walking to burn off the same calories....

try to have (2) 30 minute walks each day(apparently this burns stored fat whereas strenuous excercise burns available carbs first)

Its an excellent way to maintain your weight .... but not an efficient way to burn it. Having said that any exersize you enjoy is good! My mum walks 10 miles a day evey day... (and across the countryside, up and down hills) and is still a few pounds over weight but in pretty good shape for a nearly 70yr old.

If you really wanna loose weight then walking a lot will certainly work.... I just got back from Italy where I was walking 14-16 hours per day, up and down hills carrying packs in 40C (105F) and higher and probably lost 10lbs in 2 weeks.... (I don't know cause I don't and won't own scales)

On another thread I posted a calories burned per hour chart for different "exersizes" ... these include ironing and vacuuming, square dancing and tennis ... etc .etc. but you can find these pretty easily with google.

I don't really think 2x30 minute walks is "exersize" in a lot of ways... 2x30 minute walks is what everyone should be doing who expects to be at least able to enjoy an active retirement....

i plan to join a new gym and maybe get a few personal training sessions to help me.

I think this is an excellent start.... get with it and don't delay....

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Walking in a park at moderate speed burns 130kCal/hr .. this sounds OK until you compare this to driving in heavy traffic at 120kCal/hr or

Busily cleaning house, doing laundry, hanging clothes outside on clothesline, going up and down stairs, cleaning refrigerator, picking up clothes (doing a lot of bending over and picking up items) which is the same at 130 kCal/hr!

*Swimming for pleasure, no time limits, no stress. This can only be considered aerobic if it is continuous for 20 - 30 minutes without stopping at your THR (as I said 15 mins is 3 steps forward and 2 back!)

Tennis, Doubles, Square Dancing: 350 per hour

So really you can't say joining a square dancing group isn't social! But its nearly 3x the efficiency of walking.

But the real shocker is Reading, Watching TV, Sitting (some brain activity) 75 per hour is over half of moderate walking..... and this is the real point.

Do you spend an hour doing something double the efficiency of sitting at a desk or watching TV or 5x-6x ? or even 10x

*Bicycycling, (12 - 14 mph) (working at your THR for 20 - 30 minutes without stopping) 530 per hour

*Stairclimbing in a gym, 125 - 140 sets of stairs (10 stairs to a set) (working at your THR for 20 - 30 minutes without stopping) 600 per hour

*Exercising using an Elliptial Rider or Rowing Machine, (working at your THR for 20 - 30 minutes without stopping) 850 per hour

Source: Compiled by Helen Ann, Public Health Educator using various health education resources including Utah State University textbooks

(edited bits out for brevity so check the original.....)

The thing is choose something efficent ... you have a timetable that is completely realistic ...

What I tend to do is a compromise.... I enjoy walking but its a waste of time (I mean this in its literal sense) to do it to loose weight. Most people are time restricted, its the nature of our lives.

Most manual workers spend more time doing exersize at double or triple walking at 3mph .... working on a building site etc. but many eating crap .... you can pretty much figure out for yourself that many of them are not skinny !

So back to what do I do..... I do an hour or so of high aerobic activity during the week.... every day. This might be rollerblading, running or cycling. (but could be any of the exersizes from the link!) and at weekends I walk for pleasure.... at least one of the days. If I am going out I will walk to a bar.... (You can do this in Paris, I guess not in Chicago) at the other end of Paris (I have a place I walk to that involves all the hills in Paris and is 4-5 miles) and walk back afterwards.... when I go shopping I take a backpack and walk... and once a week I do a bigger shop and walk to a supermarket a bit further away that has lots of "treats" like artichokes in Olive oil and canned tomatoes or such. Its not the closest place I can get this stuff but its just a decent distance away ...

When I'm in a rush I take the metro (subway) but then I (usually) walk up the stairs instead of the lift or escalator and sometimes take a stop or two before.

On vacation I just walked because I had the time and other than museums this is what I wanted to do.... the only exception was sitting in trains but other than this almost every day was spent waking up, having breakfast and walking until dinner at 8PM with a small lunch stop (most days but not all) ... 3-4 days of 14 we sat on the beach but we walked to the beach (4-5 miles and a lot of altitude) and then i also swam for 1-2 hours... (it wasn't the closest beach... that was the point) ....

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neither drug represented a good use of "scarce NHS resources".

"We are now the only nation in the EU not to offer cetuximab and bevacizumab to bowel cancer patients in the disease's advanced stages,"

In tests, it was found to extend life expectancy by at least four months for 50% of patients, and to shrink tumours by 50% in a quarter.

I guess no comment is really needed ?

I think the ban applies to liquids and gels only. I flew a few days ago and brought a sandwich. They didn't seem to have a problem with that.

Good to know... any potential terrorists can reduce the risk of premature explosions by stabilising the liquid explosive first

They should give out a Nobel prize for the most inventive use of stabilising a liquid high explosive....

nah.. wait someone already did this.... if only I could remember who?

It sounds like you are doing everything right.

Just remember to value the experience.... your goal is to feel normal again but your body has a feeling of normal associated with nicotine. Any nicotine you have now will just reset the process .....

The worst physical part is already over.... what you are left with are ghost memories of how to "feel good" again.... its just your body playing tricks on you. It can be very convincing but its not smart.... it just replays the same "give me nicotine" ... imagine it is a little "devil" in your stomach... the little devil that nagged you for every cigarette ... right now that little Devil is dying and getting weaker and weaker, its fighting for its life because it knows a little longer and it will be gone.... so its trying harder than ever but its getting weaker and weaker.

Hi Y'all. I think my celiac was pretty quiet as a kid, burped (not literally!) a bit as a teen (fatigue) and blew up during my pregnancy 18 years ago. I've never been the same. No gi symptoms either except constipation until about 4 years ago. See my life story below. BTW: I learn so much from others' life stories and experiences; it goes to show how different we all are (and yet the same)! I've diagnosed one person, not related, so far ... so one down, and ?? more to go?!

Anyway, I wanted to note what Danna Korn wrote in her book Living Gluten-Free for Dummies re: reducing the chance your baby develops celiac disease:

"New studies show that you may be able to protect a baby from developing celiac disease later in life. Univ. of CO scientists have pulished info indicating that exposing babies to gluten in the first three months of a baby's life increases the risk of celiac disease fivefold. Their studies indicate that waiting until the baby is a least six months old decreases the risk but that waiting beyond seven months increases the risk again. In other words, the best time to introduce gluten, according to this study, is between four and six months.

Another factor that seems to have an effect on the development of celiac disease is breastfeeding. Studies show that breastfeeding longer than three months may delay the onset of celiac symptoms and decrease the risk of developing celiac disease. Gradual introduction of gluten-containing foods and continuing to breastfeed while those foods are introduced seem to reduce the risk of developing celiac disease, as well."

This is all true but what it doesn't address is the link between the two.

Which mothers were gluten-free in pregnancy and which were not and then which mothers breast fed and which did not ....

In other words we have 3 groups: pre 6 months, 6-7 months and post 7 months but each of these has subsets of eating gluten in pregnancy or not ... and breast feeding or not and also eating gluten while breast feeding.

It could well be that the important thing might be the correct combination of all of these variables.... not to mention the timing of each one. Perhaps eating gluten and transmitting the IgG antibodies during a particualr phase of foetal development ? or introducing IgA through breast milk at a certain time (or not)

Indeed common sense says since IgA is not transferred to the placenta that the reason for delay is to allow the child to develop an immune system of its own with boosted IgA from the mother which it will only get if she is eating gluten???

Your anger and frustration are all very understandable but lets instead adress how lucky you are.

I am a married, young mother of two small boys.

Congratualtions do you know how many people think you are lucky

I was convinced I was dying of cancer of aids or god knows what!

Well, you're not and you are not going to be parting this world anytime soon leaving two small boys!

Step back. Today in surguries across the world thousands of Dr.s will be reading results to thousands of young mom's telling them that they will not be here for thier kids, that they face chemotherapy, surgury or radiation therapy.......

I went to my family prac. dr. (quack-dr.)

Yes and you might have seen the same Dr. with something like early stage breast cancer and been dismissed and now facing inoperable cancer because of this quack!

I hope your husband is giving you a lot of support during this difficult time?

This is really important. I can't stress enough the need to get a spouse onboard.

Scientifically and personally I have never heard of having to "detoxify" from gluten as it is a foreign whole protein mistakenly allowed into the body and not a chemical dependence????

Gluten is classed as an exorphin, it binds to endorphin receptors however less perfectly than the opoids and casuses damage to the receptor.

On top of this the mechanism which allows the glaidin's to cross the gut blood barrier are usually also present in the brain blood barrier, which is largely to do with increaded zonulin levels.

There is a lot of scientific evidence, what is missing is clinical trails but clinical trials are not science.

Hi

Does anyone have a sample of what a doctors note should say to allow you travel with gluten-free food on the plane? i was going to ask my dr but not sure what to ask him to write and how much detail to go into. does anyone already have one.

thanks

Jess

Given they are not even letting pilots take contact lens solution (and hence willing to endanger everyone on the plane) This strikes me as a weird thing, the pilots are behind a bullet proof door and flying the plane but they would smuggle on a bomb when they could just crash the plane???? I'm afraid at the moment 'medical need' is going to mean real need, not discomfort or whatever. Its going to be a pain .... I just can't see them accepting that over the pilot's contact lens solution or eyedrops.

I can't see them accepting a Dr.s note. The longest lights are only 30-40 hours and medically the human body can go without food for 3-4 times that.

I understand your arguament, I just don't think they will. Just as an example most smokers are going to go through far more discomfort than you are and that has never bothered them... I'm sure there are plenty of people on methadone who could claim they need to jab-up on a long flight... etc. etc. I realise its not just the flight, you are going to be stuck in the airport as well ...

Give me the choice of a 30 hour long haul without food and one without children on the flight and I'd go hungry everytime... give most smokers the same option and they would go hungry too.

wow i feel alot better today, so far my stomic has not acted up and my vision is clear (thank you b12 )

Lister, 90% of the problems you describe can be caused or aggravated my stress.

yah i really hope its just gastritis, just after reading about all those other things i got myself into a worry tissy

Stress causes more stomach acid and more stomach acid causes your symptoms and stresses you out....

Everyone gets 'worrying' things ... if its a one off its not a problem but if you stress over it you will just make the acid problems worse.

Everything we eat or drink is a poision to some extent or other. Enough water will kill you in excess.

I'm sure the antioxidants found in wine can be found elsewhere too (green teas?) but if you are just not drinking because you think its "bad" then a glass of wine with a meal isn't going to hurt either.

Don´t you get 6 loaves and 6 pkts of bics for your one prescription charge? That´s what I used to get from my UK doc.

It depends what the Dr. will write on a single prescription I think.... If he/she words it as a 6 pack of loaves then it counts as one item ... and also 'guidelines' from your NHS trust. It can be affected by things like the same Dr. having a speciality in something requiring very expensive meds so having more than the average number of patients on high cost meds.

The thing is its all very vague.... mostly its guidlines as opposed to strict rules.

or more simply as Kyalesyin said (Proof) the UK system sucks.

I have lived in a lot of countries in different continents and I have to say "The UK system sucks"

It costs a huge amount of public money but stops short of actually making it work in many cases.

Just a old but true story:

My father needed a heart bypass, a long time ago now and the UK led the world in this but he got told that the budget for his operation was finished for the year and he would have to wait for the next financial year but put simply he wouldn't be around in the next financial year.

He managed to cough up the money (try getting a second mortgage when the Dr's say you have 3 months to live) and had the op .... when he came round from anaesthesia the consultant had the good news that once they opened him up they found it was actually a different operation ... and that this still had budget left on the NHS so he could have it for free....

Carla (jcc) has saved The Gluten File here: Open Original Shared Link

As many people keep pointing out you have gluten intolerance or not. Just like you can't be a little bit pregnant ...

Read the honeymoon thread (when it goes away in kids)

If you have gluten intolerance then your body is reacting... however our body is doing things all the time .. for instance the stomach lining is replaced very often... (daily I think) but its designed to do this.

This is happening all the time by cell replication, we shed skin... etc. etc.

If you say burn yourself then the skin is damaged beyond what it can repair in a day... it takes time and eventually a 1st degree burn just repairs.... it might scar but it repairs.

Now imagine rubbing your finger down a rough wall.... it pulls of skin but you could do this every day (or rub your feet with pumice) and it repairs but if you stand for all day rubbing your finger against a rough wall you will damage it because it can't repair fast enough , indeed 20-30 mins and you are likely to damage...

There is some point that you could find where its perfectly balanced... you rub off exactly the same amount as your body can repair. If you exceed this limit it gets progressively worse....

Now imagine you are pregnant, ill or have a large burn. The bodies ability to self repair is already stretched. The balance point shifts downwards...

Now imagine that we are talking villi.... they are being attacked and repairing.... as we get older our self reparing slows down so eventually we can just have the same amouint of daily damage but our ability to repair (the balance point) gets gradually lower. Once we exceed this balance point the inability to repair is self sustaining ... its constantly in backlog... continuing to rub our finger or eat gluten will just make it worse and worse until either we loose our finger or our villi are all gone.

Pregnancy, illness stress etc. the self repair.. during pregnancy you are growing a whole extra person.... in addition to self repairing. This pulls down the balance point ... but chances are you were getting towards that stage anyway.. this just provides as you say a trigger.

However cell division is a risky thing, we repair millions everyday according to a prescription wirtten in DNA but every one in several million times this goes wrong, we call it cancer (OK its more complex and I'm not a cancer expert) Cells that replicate frequently like the stomach lining or mouth have spent millions of years adapting to this... they have very low failure rates because it has been genetically cleaned by evolution and those who couldn't sucessfully replicate stomach cells daily never had offspring to pass on the DNA.

However the villi are not designed to replicate to the same extent as the stomach.... we don't have this DNA.

This is why biopsy is such a stupid method of diagnositic.... a postive biopsy means we have exceeded and passed the balance point then continued to do damage. The cells are replicating as fast as they can and its not fast enough.

was also dx with ibs 10 years ago and depression altho telling them i wasnt i havent had endoscopy for officail dx as when i did see the GI doc at the hospital he said ok you had a good reaction from the diet but we want you to go back on gluten for 8 weeks to have endoscopy, the prob being i didnt survive past 4 days, i was so sick i have to pay for my prescriptions so i dont see te need for formal dx to prove to them im celiac i know i am, and that is the hardest thing to come to terms with. i know how you feel its like haveing a piece of paper with you to prove to everyone that you are celiac " there see i tol you " kind of thing. if you feel better being gluten-free then you know you are celiac. excuse me but F*** um. do what you need to feel well. it took me a long time to realize this. i know celiac uk is pro testing at all costs but you must do what you feel healthy with. ide suggest you change docs or take a visit to accident and emmergency present with symptoms( severe) and ask for the test there, they can allways send the test to your surgery. its worth a shot, you can only be told no. hope i havent dribbled on to much or being a mum and wagged my finger at you, sorry. best of luck.

oh by the way, your totally right, the uk systym is crap!!!!!!!

It sux... the thing is CUK is automatically informed (anyone wondering about privacy here) when postive biopsies are done. They steadfastly refuse any other sort of diagnosis but .... I know they do make exceptions on membership... at one point they wanted to get rid of all parents who were not themselves diagnosed ?? (strange since to work for them in HQ you need to have "Basic computer knoewledge of office software" but no prior knowledge of celiac disease.

CUK like to think they control the prescriptions and they certainly want their members to think so but the reality is its your Dr and your NHS trust that does that. Anyone can have a pre-paid prescription for about £80?? a year ... (unless this has changed - you just fill out the form, you can use it for asprin if you wanted and your Dr. prescribes it!)

The problem is its a bit of a catch-22 .... Your NHS trust is unfortunately primarily concerned at saving money.

For some reason the NHS pay about £5 for a basic gluten-free loaf... that you can buy in a supermarket for £1.50 ...

So while anyone can get a pre-paid sub and the gluten-free industry and its lobby group are benefiting from the price hike on NHS buying... (reminds me of independence day) -

President Thomas Whitmore: I don't understand, where does all this come from? How do you get funding for something like this?

Julius Levinson: You don't actually think they spend $20 thousand on a hammer, $30 thousand on a toilet seat do you?

Dr.s are "highly discouraged" from making positive diagnosis on blood tests! Obviously selling a £1.50 loaf for £5 is a huge profit margin... and it is obviously unsupportable if 1:133 people were actually diagnosed.

Equally biopsies are very expensive, anything with a general or semi-general anaesthetic is... in the thousands .. if anyone can give an actual price please say.

Now on the other hand... if you can get a dr. to positively diagnose you in the UK then all good and a Dr. from a different NHS trust is going to get less of a ticking off and threats this way. There is nothing stopping him/her except the NHS trust ... just like the choice of triple vaccine... its not illegal its just the trust will make life difficult for the Dr.

Can I just speak out for another member..????

Carla, hope this doesn't break a bandwidth limit for your site

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This is an almost definative reference on anything and everything gluten like.

It is hundreds of hours, perhaps thousands of research and categorisation of papers, usually of medical/scientific level, specifically the sort of thing you can take to your MD. but that's doing it an injustice .... its huge, its like a huge library for celiacs.....

You can read the story on the site but do check it out.

Hi Carla... (stevel) have you heard from Paris Hanna recently or at all?

I think she is your side of the pond at the moment for sad reasons.

Trust me bub, you're making sense.

She had depression a lot during her teens, although that was mostly situational and mostly picked up when we moved. I did figure there would be some depression involved when she was diagnosed. Kinda feel like a bad partenr for admitting that fact that I go to peices when she's depressed.

Caffeine isn't an issue. I can't even go near it, so neitherof us drink it. She was a hyperactive kid despite being ill a lot, so she's always avoided caffeine/food colourings/etc anyhow.

She reacted badly to the anitdepressants when she tried them. They actually made her worse, and when they changed the pills it was like watching a junkie go through withdrawl. I actually called an ambulance for her twice when she was coming off the pills at various times. We're trying the fresh air/frsh fruit way of doing things. We're right on dartmoor, so there have been plenty of long walks.

If she was on any psychoctropics then I'm not surprised. Omneparazole has recently been pulled off the UK list for under 18's but also has been shown to have a very worrying suicide risk in non suicidal patients. All psychoctropics are IMHO very dangerous outside of direct medical supervision and they are given out like candy.

The way they work is intrinsically dangerous... there are safer ones but non of them is really safe.

For all you read on St Johns Wort (good and bad) its cheap and it seems pretty good for most.

I get some stuff here for almost nothing which is called Euphytose. if you search the ingredients are in French and so Ill translate, you won't get them in a mini dictionary!

Hawthorne extract 10mg, passion flower 40mg, valerian 50mg and Black Horehound (seriously its called that scientific name is Ballota nigra

And in answer to your question about how someone lying around in bed gets their excersise? Wouldn't you like to know?

Non of my business but I hope stopping the meds has allowed her to release endorphins ... which i hope you both appreciate!

You're spot on about the cold thing. She'd be wearing fifteen laters, have the heating right up and be cuddled up to a radiator wrapped in a quilt and still cry that she was cold. What the hell is with that? Cake was what set that off. Bread wasn't so bad, but anything sugary- cake, doughnuts, cookies, really set her off.

I wish I knew....

Hi. I'm new, but have reading the forum for over a year. My daughter who is 17 was diagnosed as possibly having celiac disease when I took her into a GI for constipation and blood on her stool. Other than those two symptoms she felt great. He did a blood test and then scheduled her for a colonoscopy. The blood test came back with a Ttg of 69 and he said he should do an endoscopy to test for a wheat allergy. The biopsy came back negative, the villi were not damaged, but the colonoscopy showed ulcerative proctitis. She's been gluten free for a year, but since she has never had symptoms it's hard to say whether or not she actually has celiac. Could ulcerative proctitis cause an elevated Ttg?

Any light anyone can shed on this would be much appreciated!

Totsy

If this was the only test done then its not much to go on. If you have other test results it would help, if not then you should probably get them done.

A negative biopsy by itself doesn't mean much... it could mean bad sampling, it could mean she is lucky and not yet damaged but reacting or it could mean its something else completely.

Is Celiac more common in Italy or are they just more aware of it? I am wondering because I was reading a thread on here where people were talking about the affiliation with Celiac and the Irish. My husband is Irish (non Celiac) but it is my Italian side that has been passing it along (father, aunt, son, 3 cousins, possibly grandfather who was never tested because God forbid anyone knew he had "D"). I have heard a lot about this being common in "Northern Europe". I wasn't sure about Italy.

Nicole

As far as I know there are no real differences in haplotype R peoples which includes celts and italians.

The numbers from screening are available in different countires but some like the UK have hidden them from public view.

Italy has a screening rate of 1:133, identical to studies in the US but has a diagnosis rate of 1:200 ....

There are local clusters such as Kerry and even a small one in Western Norway but both of these seem to be more Spanish influence than Italian dating back to the Armada? So I think the main difference is simply screening.

I am starting to wonder if these clusters themselves were not part of the whole non-identification of celiac.. that is people were using incidence rates of 1:5000 until 10 yrs ago and still use 1:1000 if they want to screw people from getting tested .... so if one family had 2-3 people and the Dr. became aware and then found others and all along the 1:133 figure was correct then its easy to see how even this triggering a study and 1:500 would be regarded as exceptional.

Hi.. me again!

First off I have to agree 100% with eleep.

but on top of this you should consider depression, its very common with gluten and gluten withdrawal especially.

If you want to know why ask and I'll explain. Indeed I can provide links and explanations to any of this but my posts tend to be long enough as it is.

Also you just moved and changed your life, got married (obviously recently) etc. etc.

All of these are extremely stressful changes... and it doesn't mean she's depressed because you moved or married or whatever but that the body can respond by depression to these triggers. If you add the gluten withdrawal then heck...

Seriously, just search for depression on the forum, its incredibly common in celiacs and withdrawal actually makes it worse.

Self help can include natural anti-depressants (St johns wort or a cocktail I get in France for abut €3 for 180 but also prescribable under the French system)

Exersize.... yeah, i know how does someone lying in bed exersize. The answer is they need someone to drag them out. Lots of Fresh air ... and some sun can work wonders (do you sail?) ... and this links with the technical reason behind the depession.

Sublingual B6 and B12.... are also recommended.

and the biggest thing in all sleep disorders is getting up at the same time everyday regardless. Can be a killer to start but then after 2-3 days it resets the clock.... if the sleep disorder is depression induced then exersize, fresh air and getting out are needed so when you get home, open a bottle of wine and a meal or whatever you will drop off. (not necassarily what newlyweds want )

No coffee after mid day.... seriously... one of the easiest fixes. This is even more true for women who process caffine much more slowly than men AND much much more slowly if pregnant.

(again of you don't believe me say so ... I don't mind)

She'd also complain that she couldn't get warm

Lots of reasons for this... but I have my own question.

Does she ever get REALLY REALLY cold.

i have had episodes a few times when I have been chilling out with my girlfriend and felt a slight chill. I go and try and close a windows, put on a shirt etc. and a slight chill goes directly into incipient hypothermia .. I mean shaking uncontrollably and crawling under a duvet (comforter for our american friends) with my girlfriend doesn't even help for 30 mins.

Not totally off-topic.... but is Clamato gluten-free?

the chances, as were mentioned in the fasano study someone posted, are around 5%. thing is, celiac is totally controllable, and, once on the diet, no more of a health threat than no having it. having bi-polar or the genes for cystic fibrosis, breast cancer, haemophilia, or sickle cell anemia run in the family might be a good reason to reconsider having kids (though I'm not saying it's a reason to not have them), but celiac? nope. since you're aware of it and know to have any potential kids tested for it and will already have knowledge of the gluten-free diet, it's relatively minor in the world of "what negative legacy could I leave my kids with, medically?" comparitively speaking.

BUT! this change is new and very big to her. when first faced with it, particularly if she hadn't heard of it before, it can seem earth-shaking, because it changes the core of what you were taught. ('what, wheat is bad?!') so I'd suggest shelving the children conversation for four months, while she gets the hang of the diet, and comes to understand what it's like to have the condition from a state of understanding where it's easier to respond less on pure emotion. she may still feel the same way in the end, and that's ok, but she'll have more experience to support her opinion.

i agree totally and just want to add that the UK has come a long way in the last 5 years and as for 10 years ago being a celiac is far simpler. Once testing catches up you can expect life to be completely different. I say this having just returned from Italy where kids are routinly screened pre-school. You can find certified gluten-free resto's allover if you just ask and when you do ask its not like you have two heads. Even dining in any resto the waiter usually knows a friend or relative with celiac disease.

By the time you have the baby (don't know how you are planning to conceive but add any delays to 9 months) and you start having any problems outside your control, for instance starting school or wanting to eat out once the child reaches 5 you can expect this to have changed again.

kettle chips ( i was eating a bag a day and doing good and hten bag after bag was cced so i gave up)

Its also possible they were all CC'd except certain flavors and that " i was eating a bag a day " eventually caused a build-up reaction.

I actually wondered about this a while ago and tried to find info on prevalence of reactive infants at birth from undiagnosed celiac moms. Also info on passing gluten to newborns through breast milk.

There's not a lot of info out there on these specific questions, but I can probably find studies on other proteins and antibody reactions. I do my pubmed searches at work since the university connection gives me full access to the journals online and right now I don't have time.

I do find the question interesting , however. Does the mom passing anti-gluten antibodies help the newborn by offering some protection? Or does she quicken the destructive process? And does it matter if she is celiac and eating gluten?

I actually suspect that the best way to find the answer to this is to poll the moms on this site. There is an amazing collection of knowledge here.

And the celaics.....

I was bottle fed, my mother is celiac (not diagnosed until 65 though) my brother was breast fed and is non celiac.

My mother would have been eating gluten in both pregnancies.

I thought you might find it interesting

love the avatar: put down any hot liquids and click Open Original Shared Link

taken from celiac.com, based on a study by leading Celiac researcher Dr. Fassano: (I have been interested in this as well, as we want a family in the next few years)

According to a recently published large-scale multi-year and multi-center study, 1 in 133, or a total of 2,131,019 Americans have celiac disease. Alessio Fasano, MD, et. al., and colleagues screened 13,145 subjects using serum antigliadin antibodies and anti–endomysial antibodies (EMA). Those who had positive EMA results were screened again for human tissue transglutaminase IgA antibodies and celiac disease-associated human leukocyte antigen DQ2/DQ8 haplotypes, and when possible, intestinal biopsies were also given. Additionally, for those with biopsy-proven celiac disease, 4,508 first-degree relatives and 1,275 second-degree relatives were also screened for the disease. A total of 3,236 symptomatic patients and 4,126 not-at-risk individuals were screened.

The study determined the following:

Group Prevalence

First degree relatives 1 in 22

Second-degree relatives 1 in 39

Symptomatic patients 1 in 56

Not-at-risk individuals (overall prevalence) 1 in 133

These results are much higher than previous studies have found, and they indicate that celiac disease is perhaps the most common genetic disorder in the United States, as well as one of the most poorly diagnosed diseases.

Yes of course the previous studies were fundamentally flawed because they included lots of celiacs in the non celiac group. That is they presumed celiac was so rare 1:5000 that they had more non symptomatic celiacs in the control than diagnosed ones in the test group.