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Annie/NM

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Annie/NM

  1. Annie/NM
    Just a thought, if you are having a biopsy in May you should still technically be eating gluten. They want you on it for the biopsy as well. At least my doctor did. In terms of migranes, I had them pre diagnoses a lot more frequent. I still get them but that is usually a sign of getting glutened. Hope that helps.
  2. Annie/NM
    Thanks for the positive feedback! I'm really trying with the weight thing. It is crazy, sometimes if I have purposely cheated I don't get sick. Or other times, like yesterday, I was in bed all day, head fog etc..... and I have been really good the past 2-3 months. So go figure.
  3. Annie/NM
    He was 3 and had the big D 5-6 times a day for over a month. After all the other tests came back negative they sent us to GI for Pediatrics. She was a nut and put him on a high fat diet, mentioned Celiacs but never tested him and I thought she did. 6 months later still had the problem, between constipation and D. He refused to eat much of anything, had...
  4. Annie/NM
    I have only been gluten-free for a year now too. My son was diagnosed and that's why we all went through the testing. I of course was the only one who had it too and my stomach did have damage on the biopsy. That being said, I did not have major symptoms before going gluten-free. Now, I am a lot like you. If I am really tempted to cheat, sometimes I'm...
  5. Annie/NM
    What is caesin? I will definitely try that. So either one milk, yogurt or cheese a day? And then lots of water and fiber (popcorn etc....). I appreciate the input and will try that starting today! Poor kiddo, we are both exhausted! I'm tired of being the mad mommy.
  6. Annie/NM
    I've been gluten-free for 6 months now and feeling really stressed lately. So I fell off the wagon on Friday and had a cheeseburger and a few other little cheats. Well Sunday, I slept for 5 (not kidding) hours during the day and still slept all night long. I had a migrane and was clamy but no fever. I've been exhausted on Monday and Tuesday and all I want...
  7. Annie/NM
    Thanks for your input. I've never really even thought about dairy problems. I guess we rely on it a lot because of the other things he can't eat. We are definitely playing with the dose of miralax. We've backed up quite a bit and I can already tell he isn't pooping as much and it is getting hard. He is still having pee accidents 1-2 times a day too....
  8. Annie/NM
    I am soooooooooooooooooo frustrated right now. We have been attempting to potty train for 2 1/2 years. We have gotten close (maybe one accident a day) several times. But the past few months have been aweful. He is 4 1/2 years old and been diagnosed for one year. His blood is in the normal range now so the diet is working well. But he is having major...
  9. Annie/NM
    I really feel for you. My own son is only 4 1/2 but has been diagnosed for a year now. He was such a sickly kiddo. He had asthma, pink eye, ear infections etcc..............all the time. They thought he had leukemia he was so sick all the time, bruised easily had dark circles etc.............He refused to eat most of the time and had diarhea 6 times...
  10. Annie/NM
    My 4 year old is great like that. He tells people at school and church or parties. I can't have that, it isn't gluten-free. I think I mostly just hate starting the 2 year old on the diet unless he truly has it. It wouldn't be hard to be gluten-free at home it is at other's people houses that I'm worried about. I guess I will try the one to 2 years unless...
  11. Annie/NM
    I have been gluten-free for 2 1/2 months now and am pretty good about it. At my follow up appointment my blood was in the normal range. I have been really moody the past few weeks though. I just feel overwhelmed and am wanting to take naps more and just feel unmotivated. I have 3 boys under 6 and I feel like I'm not dealing well with their hectic schedules...
  12. Annie/NM
    I have a 4 year old that has been gluten-free for 6 months and now after positive bloodwork/biopsy I have been gluten-free for 3 months. My 6 year old tested negative for the genes but my 2 year old has the DQ2 like I do. Is there any sort of protocol for how often to do the antibody screening on him? I am relieved that I don't need to worry about my oldest...
  13. Annie/NM
    My 4 year old was diagnosed 6 months ago and has been so awesome. I was diagnosed 2 months ago and not as positive as him. He tells people, I can't have that it has gluten when he is offered things he knows he can't have. I make him treats they freeze at is pre=school so he can have something gluten-free when the other kids have cupcakes. If you just...
  14. Annie/NM
    I started the dx process in July positive bloodwork and biopsy. I have only been gluten-free for 2 months due to waiting to get into a gastro dr. So I have gained 20 pounds since July but my blood is normal now. I know I should be happy about my negative bloodwork but now I'm sad about my weight gain and not feeling good about myself. Has anyone gained...
  15. Annie/NM
    I was dx with Celiac's two month's ago through blood screening and positive biopsy. They also did the Gene test so I can test my 2 children (4 year old already dx). I have the DQ2 gene. I started with my screening in July but have only been gluten-free for two months and good news is my blood is back in the normal range. But at my appointment I weighed...
  16. Annie/NM
    These are my favorite Friday, Happy Hour drink. Are they safe to drink? I"m just beginning and not quite sure about this. I know I read wine is usually ok. TIA!
  17. Annie/NM
    I'm glad to hear I'm not the only one. I have been gluten-free for one week and I have had a migrane, been realy tired and crabby. I have a hard time coping with my normal busy schedule, work 1/2 time,, 3 kids under 6, the housework and feeding everyone (2 gluten-free and 3 not gluten-free). I'm hoping I will feel better soon and pull myself together!...
  18. Annie/NM
    I have really mild symptoms too but my bloodwork came back positive and my 3 year old son was diagnosed in June. He has had amazing changes since the diet so we will see what my biopsy says (it is tomorrow at 4:00 pm). With me, because I have such mild symptoms, I needed to do the biopsy to prove it to myself. I don't love a lot of the food my son likes...
  19. Annie/NM
    Hi all, well DS had his biopsy today and all went really well. The doctor said with my positive blood test that he was almost positive that he would come back positive on the biopsy. He said he has had a few false positives on the blood work but negative biopsy but never with a positive Mother as well. So I am just realieved it is over and the staff was...
  20. Annie/NM
    Ok, you guys have been so helpful. Here is a background, middle son came back endomysial IgA positive and IgG negative. I came back endomysial IgA positive and the other Iga positive and IgG negative. Now my husband is negative, and they say the one year old is negative and the 6 year old was both IgA negative and one point over positive for the IgG (they...
  21. Annie/NM
    Didn't I read some where that it can be a symptom of Celiac's? My little guy woke up from his nap at pre school screaming out in pain and refusing to walk. They rubbed it for like 15 minutes before he would move. Are there any suggestions to help out with the pain?
  22. Annie/NM
    Thank you all for your responses. So the IgG was negative, what is that a screen for ? Or is it still a sign of Celiac's? I can't believe we have to wait so long to get seen by a Gastro doctor. Thanks for your help.
  23. Annie/NM
    sorry, meant to say positive without even having the biopsy yet.
  24. Annie/NM
    I have just recently started posting here because my middle son had a positive screening for celiac and is getting a biopsy in a week. They decided to screen me and I am freaked out that I came back positive to. My huband read me the results so I haven't seen them but this is what he said: IgA endomysial is 17.9 and below 7 is normal for me IgA gliadin...
  25. Annie/NM
    I get annoyed with our Dr.'s office when I read your statements on this board. THey tell me that he might have a "false positive" from his bloodwork and the only way to tell is with the biopsy. It sounds like from you guys that there is no such thing as a "false positive." They tell me not to worry, it might not be Celiac's and not to worry about testing...
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