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Sandi*

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Sandi*

  1. Sandi*
    Hi, thanks a bunch for the recipe, I really appreciate it, especially after hearing you're sick! Hopefully you feel better, soon! The link works great, I'll need to stop by my HFS tomorrow to get ingredients. Using lettuce is a great idea, Iceberg lettuce has these large, soft leaves on the otside that I'm sure will work great .
  2. Sandi*
    Thank you everyone for your suggestions! Unfortunately I can't eat nuts safely (I do sometimes, but then I pay for it later). A few people suggested corn tortillas - that's really a bummer because believe it or not, the "corn" tortillas they sell here (Czech Republic) are actually a mix of wheat/corn flours! So annoying! I'm visiting my relatives for Thanksgiving...
  3. Sandi*
    First I want to thank everyone who read my last "complaining" post, I also got a lot of helpful feedback and dietary advice. I also did some more thinking and reviewing of my diet, as well as more research. I felt so much worse once I started the gluten-free diet, more bloating, pain, constipation....it just didn't make sense since I expected to feel better...
  4. Sandi*
    ravenwoodglass - yes, I've been to an allergist before but it's exactly as you said - all about histamine reaction, which I think was a good place to start but didn't solve my problem. I'm seeing my GI doc next week to discuss why I'm feeling this bad, so maybe she'll be able to help me with the diet. I may look for a new allergist in the future; however...
  5. Sandi*
    Hmm, that's really interesting about pre-soaking, I knew it about legumes but not about other grains. I will definitely have to give it a try. I guess that rules out eating out, huh? I try to eat as healthy/preservative free as possible, but I do eat out for lunch about 3x per week. I try to order as simple meals as possible (aka chicken breast with a plain...
  6. Sandi*
    Thanks, guys! Yes, something's bothering me, it's just so hard to find out what it is! I'll try going back to the limited diet, I'm just not sure how well that will last since I also remember being very hungry back then. Oh well, I just wish it was easier! As for stress - actually, it's weird but I feel better GI-wise when stressed because I get the D...
  7. Sandi*
    Soy - yes, dairy - mostly, like I'd have a bit here and there, and only fermented stuff such as yogurt or cheese, not ice cream. I'd been on a dairy-free diet about 2 years ago but no result. When I first went gluten-free about 3 years ago I felt better at the beginning but worse towards the end. The whole episode lasted about 4 monts. I felt better initially...
  8. Sandi*
    I couln't wait to join those posters who were diagnosed by a biopsy and were able to start a new, gluten-free chapter of their lives, knowing the difinite underlying cause of their sickness! I just got my results back - blood test negative (but low IgA so it could be a false negative, too) and negative biopsy. No visible signs of damage, either. I...
  9. Sandi*
    My biopsy was a week ago, on 9/30, and the doctor said I could start eating gluten-free right after. I couldn't wait, I expected to feel better right away. Instead, I actually feel worse, I'm really bloated and have that typical stabbing pain in my lower abdomen. I didn't have this pain during my 7-week gluten challenge (before that I was eating wheat-light...
  10. Sandi*
    It depends on how long and how strictly you were off gluten before. I was gluten-light before, not strict and even then my doctor recommended to wait just to make sure I'd consume enough of it for the tests. If I were you and if I could, I would push the dates by anther 2 wks or so.
  11. Sandi*
    Usually 6-8 weeks is recommended. I'm having my bloodwork after 6 weeks of gluten and endoscopy after 7 1/2.
  12. Sandi*
    Yes, I agree here! It's like you don't realize how many of your problems can be related to gluten (except for GI problems). Let's hope our endoscopies turn out positive .
  13. Sandi*
    Hi Jillian, thanks, and sorry for the late reply . I was able to find a new doctor who actually seems to be knowledgeable about celiac disease so I hope she will also take many biopsies. No matter what, I'm going to go gluten-free right after the procedure anyway because I feel so crappy eating gluten. The symptoms have just gradually crept in - constipation...
  14. Sandi*
    Hi and congratulations! It must be a relief to finally know! I am currently waiting for a diagnosis myself, I have an endoscopy in a month (which means a month of gluten ). I must ask, though, in your signature it says that you had you endoscopy in June, it actually took over two months for your doctor to get the test results?
  15. Sandi*
    I'm so glad you posted this! I've had the same experience, I started eating gluten about 3 weeks ago and expected to feel a lot worse. Just like you said, the longer I eat regular bread and pasta, the less bad I feel. It's so weird. I am very tired and dizzy but I expected more GI problems, mainly the pain. I'd always had the pain when I ate regular bread...
  16. Sandi*
    This is so interesting...my BP has on the low side my whole life. Usually I get a reading around 95/65, those few times that my BP was in the normal range was when I was really nervous about the appointment which may have increased it. I have the same experience with nurses, though, they were always like "it's low, that's good". Yesterday I had a check-up...
  17. Sandi*

    Hi Sandy

  18. Sandi*
    Hi, I am currently eating gluten for an endoscopy. I've had problems for as long as I can remember (pain, bloating, constipation, fatigue, really skinny as a kid - albeit tall, mouth ulcers, etc.). I was actually tested for celiac three years ago. My blood tests were negative due to me producing very low levels of IgA, and my biopsy was negative. However...
  19. Sandi*
    The biopsy was 3 years ago, the latest blood test (the home test was last year). Since then I've been on the diet on and off (felt a bit better, then had a bad day, decided it wasn't worth it, and so on). It's a good idea emailing the lab before. I didn't know this. Definitely something else to watch out for . Emily, your husband...
  20. Sandi*
    Thank you for your answer. I'm actually trying to get an appointment with a GI doctor that got good reviews online, but cannot get a hold of anyone in her office. I think it might be closed for summer while she works at a hospital or something. However, I'm staying away from gluten right now. I had some pizza bread last week (I though I could get that appointment...
  21. Sandi*
    I am wondering whether the stool test done by enterolab could show antibodies that were missed by the regular blood test. I've had tests for celiac before - blood test at the GI's office, home blood test (Biocard), upper GI endoscopy, coloscopy, and finally the camera pill. All was negative for celiac disease. The only thing that was found was an inflammation...
  22. Sandi*
    Thank you both. I had gluten yesterday, I had seitan for lunch and then two slices of bread for dinner, and I got this very uncomfortable, full, bloated feeling afterward. So that may be my answer...I would just feel much better and determined if I had an official diagnosis.
  23. Sandi*
    I am going to see a new doctor and see if I can push for a diagnosis . So there is a very good chance she might do the endoscopy/biopsy again. I've been gluten-free on and off over the last couple months. Usually I avoid it for two weeks, then decide it's not helping, so I eat it for two weeks again, then go back to not eating it because I feel worse...
  24. Sandi*
    I've head digestive problems for as long as I can remember, mostly constipation, pain, gas, and horrible bloating. I was diagnosed with IBS a couple years ago. I've also been tested for fructose and lactose malabsorption and for celiac disease but all tests were negative. Here are my test results: t-Transglutaminase (tTG) IgA 1 U/mL t-Transglutaminase...
  25. Sandi*
    Not yet, but I do want to see a new gastroenterologist and sort of "start anew". So there's a good chance I may need to do it as well.
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