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Ivy

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Everything posted by Ivy

  1. Ivy

    ARCHIVED Hair Loss...?

    Ivy replied to AJoy's topic in Coping with Celiac Disease

    I have had handfuls of hair during shampooing. Apparently for me it's alopecia. Probably related to my fibromyalgia, or not, who knows? I have yet to have any bald spots, and it does seem to grow back. Shedding seasons just seem to be extreme sometimes. I have found two things helpful. Vitamins (B's including sublingual methylcobalamin) and monitoring...
  2. Ivy
    I have a very long history of duodenal ulcers. I have been on proton pump inhibitors for at least 18 years. They check every time I've been scoped about every 4 years, but no pilori. No medicine as cause for explanation. Have always been told that I plain pump too much stomach acid. Have been gluten free about 4 years. Recently removed corn from diet...
  3. Ivy

    ARCHIVED What Kind Of Doctor?

    Ivy posted a topic in Doctors

    Does anyone know what kind of Doctor I need to be looking for to treat severe osteoporosis (brought on by celiac/vitamin D deficiency/ etc.)? What kind of qualifications I should be looking for? How will I know if the Doctor is any good? Thanks
  4. Ivy
    Could you please tell me if they do any follow up and treatment, look at related disorders, or do they just diagnose? Thank you.
  5. Ivy
    There's nothing wrong with venting....we've all earned that right! I just went to a GI dr. that supposedly "knows" Celiac. I have a check back in 2 weeks but in the interim his nurse called to inform me that the biopsy from the endoscopy was back and I don't have Celiac. I didn't know he was testing me for celiac and I've been gluten free almost 4 years...
  6. Ivy

    ARCHIVED Gluten Intolerant Vs. Celiac

    Ivy replied to Presto's topic in Doctors

    Just wanted to thank you for posting the link. It was a real aha moment for me and helped me figure out how to approach my idiot doctor. Ivy
  7. Ivy
    Thanks for all the input. What the nurse said was my results were back, that the doctor said that I don't have Celiac but that I could continue on the gluten-free diet if it makes me feel better because it frequently helps with IBS. (I didn't know I had IBS. Don't have symptoms of IBS.) I said but I've been gluten free 3 years - are you sure that doesn...
  8. Ivy
    Thank you both so much. I thought I was going to loose my mind today when his nurse called and said, "your biopsy results are back and you don't have Celiac. But if it makes you feel better you can continue on the gluten-free diet. It frequently helps with IBS" I said, "But I've been gluten-free 3 years." She said, "It doesn't matter with the biopsy...
  9. Ivy
    Please can anyone tell me any information regarding the need for a gluten challenge with a biopsy? I'm in my 50's and without too long a story, I saw a new GI Dr. who decided to biopsy test for Celiac during an endoscopy. The results came back and he told me I don't have Celiac. I have been gluten-free over 3 years. Does anyone have any information...
  10. Ivy
    It had been a couple of years since I went to the Whole Foods site and read their gluten free information. Recently I purchased some of their 365 brand, packaged - as they do not recommend we (celiacs) use the "bin food". The labeling was lacking a bit, it had declared allergen info, but nothing on gluten really, so I went to their site. Sifting through...
  11. Ivy
    I learned the hard way on the Whole Foods bins too. I remember reading a disclaimer somewhere by them that they don't recommend use of the bin foods for us - not gluten-free. Which I think stinks personally. But then a few weeks ago I was also less than thrilled to see spelt noodles in the middle of the gluten-free noodle section. I also had some trouble...
  12. Ivy
    Does anyone else tire of looking for food to eat? I need to know if anyone has found a good source of gluten-free raw nuts and seeds, bulk quantity if possible. I have a corn problem apparently in addition to the gluten and so I roast my own. Commercial nuts use what is called best blend, it's listed as salt but is a corn/salt blend so it sticks to...
  13. Ivy
    I don't know the exact answer to your question, only a direction to head you. Most universities have an ADA compliance office/ officer. Otherwise, where I would start is with the office of civil rights at the Dept. of ED. 1-800-421-3481. Mediation of some sort should be possible, there is a difference between room and board. Most places will want to...
  14. Ivy
    Went through the standard mega dose of 50,000 units once a week for many months. Then the Dr. moved me to 1000 a day. My pharmacy amazingly enough carries Gluten Freeda's which is D3. Dr. retested after two months of 1000 a day and levels were good. Undiagnosed too long, I have permanent damage. With malabsorption, I think it's a good idea to have...
  15. Ivy
    I understand the lesser of evils and GERD, teaching myself to sleep on a wedge . The only thing I know long term on proton pump inhibitors is that it can lead to more food sensitivities. I didn't know if anyone else knew of anything else. I read the article AliB, thanks. I did a lot of thinking about what exactly could have changed and I think it...
  16. Ivy
    I've been gluten-free for 3 years. Am about to be labelled with Fibromyalgia. Have had restless leg on and off for years so it wouldn't surprise me. Recently pain that seems to move around causing different parts of my body (shoulder, arm, hands, a hip) to hurt or go numb, or just not work right for a day or two, or three, has been worsening. I haven...
  17. Ivy
    My daughter uses the Dove with no problem but she doesn't have skin issues. I can't speak to any of the other brands. Before being dx'ed I used to have to use Pantene Dandruff or the back of my scalp was awful. Then I went semi-organic and try for unprocessed. It's not as "natural" as I'd like but now I use Organic Excellence, after trying many it was...
  18. Ivy
    Has anyone else had problems with depression AFTER going gluten-free, and what do you think helps that? My other question is, how long after going gluten-free did you find your energy levels improving? I realize these are personal questions, but I'm getting really put out with myself and would like to know if anyone else experienced similar problems. ...
  19. Ivy
    Thank you all so much. It's all soooo confusing: allergy, intolerant, celiac. I think part of me is in denial still, and lack of knowledgable Dr.s doesn't help. I live in a small town so will have to go elsewhere. In the meantime, all I have is how I'm feeling. I tried McCann's oatmeal two weeks ago and was sick for 3 days, and it's taken two weeks to...
  20. Ivy
    I'm really hoping someone can help me with the mishmash of questions I have. I wasn't sure what section to post this in, so if this is the wrong place, sorry. I guess I should explain some things before I ask my questions. Every few years, my stomach medicine seems to quit working and the Dr.s switch it. This last time didn't seem to make any difference...
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