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What is Celiac Disease?
Celiac disease (aka coeliac disease) is a genetic autoimmune disorder where ingesting gluten (a protein in wheat, barley, and rye) triggers an immune response that damages the small intestine's lining. This damage leads to inflammation and atrophy of the villi, tiny finger-like projections in the intestine responsible for nutrient absorption. As a result, individuals with celiac disease may experience symptoms like diarrhea, bloating, fatigue, and malnutrition. Over time, untreated celiac disease can lead to more severe health problems, including anemia, osteoporosis, weight loss, and increased risk of certain cancers. A strict gluten-free diet is the only effective treatment. Celiac disease is an autoimmune disease, not a wheat allergy. It's also different from non-celiac gluten sensitivity, gluten intolerance, or sensitivity to gluten.
My Long Journey to Celiac Disease Diagnosis
Like many people, I spent a lot of years, a lot of dollars, and endured many tests and misdiagnoses, before doctors finally discovered that I had celiac disease (also known as coeliac disease or celiac sprue), and needed to eliminate gluten and all gluten-containing ingredients from my diet. Gluten is a protein found in the three main gluten-containing grains: wheat, rye, and barley; and is often hidden in processed foods, and things like soy sauce and beer...[READ MORE about my long and winding road to a celiac disease diagnosis and recovery.]
Gluten-Free Diet
To treat my celiac disease I had to go on a gluten-free diet for life. That meant learning to read food labels to avoid gluten ingredients, and eating a diet of mostly naturally gluten-free foods like meats, fruits, nuts, vegetables, and packaged foods only if they are certified gluten-free or labeled gluten-free, for example gluten-free breads made using gluten-free grains.
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Recent Activity
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- trents replied to TerryinCO's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms1
New Guy Here...
Welcome to the forum, @TerryinCO! Do you know what blood tests were ordered? Was it for like you would have done for an annual physical (CBC/CMP) or celiac disease specific antibody tests? I find it interesting that your GI doc did the endoscopy and biopsy before he/she ordered blood tests to check for celiac disease, assuming the blood tests ordered... -
- TerryinCO posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms1
New Guy Here...
...so lotsa questions and unknowns for me. Gastro Doc did an endoscopy and found villi damaged so Celiac is suspect/known. Subsequent blood work done and am awaiting evaluation from NP or Doc. I've started gluten free diet and that's going well. I don't have any real symptoms but have lost ~ 10# over last year or so....180 down to 170 ( I'm... -
- Scott Adams replied to Sicilygirl's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease5
Enegy level extremely low
@EricaFilpi, please tell us more about your recovery...did you need to take iron infusions or supplements? What other supplements are you taking? I'll assume you've been gluten-free since August. -
- joleenrae replied to joleenrae's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms5
+ bloodwork - endoscopy.. then + bloodwork and another + bloodwork.. next endoscopy??
We have been tested and tested negative. But we have not done the gene testing. -
- cristiana replied to sillyyak52's topic in Coping with Celiac Disease12
Family education
So true, @trents, I was a skeptic myself!
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