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Additional Things to Beware of to Maintain a 100% Gluten-Free Diet

  • Rice and soy beverages because their production process may utilize barley enzymes.
  • Bad advice from health food store employees (i.e., that spelt and/or kamut is/are safe for celiacs).
  • Cross-contamination between food store bins selling raw flours and grains (usually via the scoops).
  • Wheat-bread crumbs in butter, jams, toaster, counter, etc.
  • Lotions, creams and cosmetics (primarily for those with dermatitis herpetaformis).
  • Stamps,
    envelopes or other gummed labels.
  • Toothpaste and mouthwash.
  • Medicines: many contain gluten.
  • Cereals: most contain malt flavoring, or some other non-GF ingredient.
  • Some brands of rice paper.
  • Sauce mixes and sauces (soy sauce, fish sauce, catsup, mustard, mayonnaise, etc.).
  • Ice cream.
  • Packet & canned soups.
  • Dried meals and gravy mixes.
  • Laxatives.
  • Grilled restaurant food - gluten contaminated grill.
  • Fried restaurant foods - gluten contaminated grease.
  • Ground spices - wheat flour is sometimes used to prevent clumping.

Celiac.com welcomes your comments below (registration is NOT required).



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53 Responses:

 
Solange Milan
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said this on
22 Oct 2007 1:00:05 AM PST
Thank you so very much for all your hard work in presenting this information.
I join all those who appreciate you!

 
Miriam Romanowski
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said this on
29 Jun 2013 7:49:25 AM PST
As a newly diagnosed gluten intolerant person trying to navigate the need to be gluten-free, I agree that you have done so much research and work. Thank you from the bottom of my heart!

 
gailkezele
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said this on
22 Oct 2007 9:18:00 AM PST
Found your site to be very helpful. I am recently diagnosed and I am trying to trace a hidden gluten that I am ingesting unknowingly.

 
Alecia Rochelle
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said this on
24 Oct 2007 11:15:25 PM PST
Great additional information! Thanks for your continuing research.


 
an unknown user
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said this on
30 Oct 2007 8:31:27 AM PST
Another resouce to add to the arsenal. Thanks!

 
Jette L Mortensen
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said this on
02 Nov 2007 1:12:51 PM PST
I appreciate your reseach. Hidden gluten can be tricky.

 
Paul
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said this on
06 Nov 2007 12:18:30 PM PST
Excellent site. I'm newly diagnosed and have learned more here than I have at any other site.

 
Sherida Jett
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said this on
06 Nov 2007 3:41:42 PM PST
Diagnosed June '07, 3-month testing for anemia & celiac marker showed marked improvement. I'd been drinking Rice Milk for this past week & used up the end for gluten-free pancakes yesterday. I knew I'd been getting sicker again, but couldn't pinpoint the culprit. Saw this article last night, shocked to see Rice Milk at the top. Sure enough, when I retrieved the carton from the garbage, it was stated at the end of ingredients! I'd been so diligent all summer, how did I miss it? Just proves you should never let down your guard. I read labels throughout the grocery store, but how this got by my scrutiny, I'll never know!

 
Diane Fields
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said this on
06 Nov 2007 7:51:57 PM PST
Enjoy this newsletter a lot. Not too much to take in and gives me choices of what to read.

 
Rosalina Melendez
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said this on
09 Nov 2007 9:15:36 PM PST
Very good information. I have to be more alert about what I buy.

 
tina ellis
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said this on
10 Nov 2007 10:45:20 AM PST
I have celiac disease and I am constantly worrying about different products, this is very helpful. I read labels and sometimes find it confusing. I have been on a gluten free diet since 2003. My celiac disease is called 'refractory,' but I manage. This site is very helpful...thanks.

 
Sandy
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said this on
06 Feb 2013 7:41:10 AM PST
What do you different from other people with celiac disease since you have refractory celiac?

 
Claire Panke
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said this on
11 Nov 2007 8:16:53 AM PST
Some brands of rice milk do NOT have the barley that is found in Rice Dream. Westsoy is made without using barley.

 
Hayat Yazidi
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said this on
13 Nov 2007 1:12:52 PM PST
Excellent site as I'm newly diagnosed with celiac disease, though very careful I'm not always well after going to restaurants--I insist on having only grilled meat and vegetables...

 
Carol the Dabbler
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said this on
26 Nov 2007 1:33:03 PM PST
According to the manufacturer's web site all varieties of Rice Dream non-dairy beverages and all varieties of Soy Dream non-dairy beverages are currently GLUTEN-FREE.

 
louis
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said this on
27 Nov 2007 8:29:40 PM PST
THANK YOU

 
Kathryn
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said this on
01 Dec 2007 11:16:23 AM PST
Rice Dream states directly on the packaging that it is 'gluten free.' .

 
Barbara
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said this on
21 Dec 2007 4:22:26 AM PST
I called the manufacturer of Rice Dream, and was assured that their (at least the organic variety) rice beverage was completely gluten-free. And as for malt flavoring, check with the manufacturer again, as some malt flavoring is from corn, not barley. It's annoying to have to make calls, but better safe than sorry, and sometimes you get the happy surprise that a seemingly 'unsafe' product is really safe.

 
Eddie Acevedo
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said this on
04 Feb 2008 6:17:38 AM PST
I have been diagnosed with Celiac since 2004 and never thought of the toaster oven as being a gluten carrier. Thank you so much for the tip. It's so hard to maintain a 100% gluten free diet in this high gluten society.

 
Nancy Adams
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said this on
22 Feb 2008 6:38:33 AM PST
What a great site, and very helpful information. My daughter who is 14 just got diagnosed last month and I also now have to read all labels and help her make sure that she is following the diet as best as she can. Thanks for the great work......

 
cluppins

said this on
27 Feb 2008 2:24:52 PM PST
Rice Dream irritates my stomach. I use West Soy Rice beverage, plain. It tastes like real milk. Don't forget to shake the rice containers before drinking because of settling.

 
Doug Newsam
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said this on
13 Apr 2008 7:17:29 AM PST
Many thanks for this column! It is a wonderful source of invaluable information.

 
Virginia Wood
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said this on
23 Apr 2008 8:12:59 PM PST
Your site is very helpful. Thank you for sharing all the information with us. I am newly diagnosed with this wheat gluten allergy.

 
melenda casey
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said this on
11 May 2008 9:33:06 AM PST
Thanks you for this site, it is very helpful. keep up the good work

 
Paula
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said this on
28 May 2008 7:19:29 PM PST
Re: Cluppins and Rice Dream irritating stomach. You're tummy may actually be bothered by the thickener used in many alternative 'milks' such as Rice Dream - carrageenan. My doctor brought this to my attention, along with problems attached to sugar substitute Chicolin. Both can cause cramping and stomach upset in general. Both don't bother my husband but they did me.

 
Paula

said this on
28 May 2008 7:32:19 PM PST
Oops. I didn't realize that Rice Dream actually has barley in it. I was diagnosed AFTER I had stopped drinking it. However, my comments still stand for anybody out there regarding Chicolin and Carrageenan. Cheerio.

 
Melinda
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said this on
20 Jul 2008 10:11:15 AM PST
Thank you so much for this! I have to use laxatives fairly regularly and never thought they might not be Gluten-Free. I also had no idea about toothpaste/mouthwash. Thanks.

 
silvia
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said this on
09 Aug 2008 11:39:11 PM PST
Excellent, all that you say, I've been on a gluten free diet since 2004 and all the things you say in the beginning made me sick constantly, until I realized and read in this site the horrible truth, I hope our family and friends understand these alerts too.

 
Kirsten Staples
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said this on
04 Oct 2008 9:13:53 AM PST
Thanks for the info. Pay attention to Licorice. Every brand of licorice commonly found in the store lists wheat flour as a main ingredient. I never thought to check it because it wasn't a starchy crispy snack.

 
Taylor
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said this on
14 Oct 2008 8:51:10 PM PST
This is really good--it was not long ago that I was told that I had to go on the gluten free diet. I get so sick when I eat food and this is a great web site that has helped me choose better foods to eat.

 
poesy
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said this on
14 Nov 2008 4:56:30 PM PST
West Soy and Rice Dream both have a very small amount of gluten from barley. The FDA laws allow the gluten free label for small amounts of gluten. This is bad for those who can not tolerate small amounts of gluten.

 
Linda
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said this on
31 Jan 2009 7:23:32 PM PST
I would like to add that some drywall may have gluten in it. I kept getting sick at work because the building is being renovated. I kept saying that it has to be the dust from the drywall as it was everywhere. No one believed me but I just read it on another site that there is gluten in drywall.

 
Liana
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said this on
18 Mar 2009 9:13:39 AM PST
I always wondered why I'd still feel bad after having Rice Dream (never tried the Westsoy brand). Thanks for continuing good updates and help!

 
Shirley Walker
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said this on
01 Dec 2009 3:49:38 PM PST
I HAVE LEARNED A LOT ABOUT MY ALLERGIES, SYMPTOMS AND DISEASES.

 
Sally Collins
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said this on
03 Jan 2010 11:35:27 AM PST
I would only drink the potato vodka as others definitely don't work for me.

 
Pat Miller
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said this on
24 Jan 2010 5:37:21 PM PST
I love herbs and spices of all kinds. I don't want to give them all up because some may have wheat in them. How do I know which ground spices have wheat? None list it on the label.

 
Dianne Bird
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said this on
15 May 2010 2:38:59 AM PST
As a Ceoliac patient I am always very careful. Imagine my surprise when a visit to the dentist for a Crown left me unwell, no toothpaste had been used. Thanks to the practice manager who contacted all the suppliers of the products that had been used we found the culprit. So be very aware and make sure your dental practiced checks first.

 
SweetDee
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said this on
28 Jul 2010 10:12:48 AM PST
ugh! I love mayonnaise.... drat!

 
Jolhowell
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said this on
18 Oct 2010 8:24:50 PM PST
Hellman's mayonnaise says it's "gluten free" on the ingredients list.

 
Judy
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said this on
16 Apr 2012 4:34:43 PM PST
I love mayo too and Cain's Mayonnaise (found in the New England states is gluten free) I live in Georgia and have someone I know up there send me 2-3 large jars in the cooler weather to get me thru.

 
Zana weber
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said this on
26 Aug 2014 7:23:33 AM PST
I believe Hellmann's is also gluten free.

 
Debby M
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said this on
07 Aug 2010 2:26:23 AM PST
Where have you been for the past 2 years? I've been trying things hit or miss weekly. I've found if I make it it's gluten free. I'm still looking for a list of chain restaurants that have gluten-free menus.

 
Melanie
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said this on
06 Oct 2010 10:03:37 AM PST
Interesting....

I don't have celiac (tested by endoscopy), but I certainly have IBS and a certain amount of GI gluten intolerance, so I am keeping my gluten intake very low.

BTW: San J Brand Tamari soy sauce is GF and I think it's the most delicious available - better than the kinds including wheat.

Mel

 
Lisa Lou
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said this on
10 Dec 2011 9:35:04 PM PST
To Debbie M, a friend tipped me off to good restaurants that have gluten-free menus or are open to customize meals for various health needs, she suggested vegan restaurants. I have also found Thai and Vietnamese restaurants are good. I also have to stay away from dairy and MSG, so finding restaurants has been challenging and my work keeps me on the road a lot. Hope this helps.

 
Lisa Lou
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said this on
10 Dec 2011 9:44:22 PM PST
My Naturepath suggested I read Living Gluten-Free for Dummies, it is an excellent book and led me to your website. This is my first time viewing the blog and reading your information. Thank you for having this website, some very good info here. Just a note for those who have been tested for celiac by endoscopy you may want to read chapter 2 of Living Gluten-free for Dummies.

 
Tanibee
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said this on
16 Jan 2012 11:47:24 AM PST
Thanks! This site is GREAT!

 
Colleen
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said this on
29 Feb 2012 5:16:26 PM PST
So happy to be here! Keep up the GREAT work!!
You will be with me every inch of the way healing; mentally, physically and Spiritually!!

 
Louise
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said this on
22 May 2012 10:02:09 AM PST
I rushed to my rice milk to discover it looks good! Trader Joe's organic rice drink in wonderful cartons to store unopened in the pantry.

 
Maia
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said this on
03 Sep 2012 1:40:50 PM PST
Please be careful of liquors, also! Not because of the distillation process (which does eliminate the gluten), but from the caramel color, which is added to maintain a consistent color between batches in mass-produced liquors. I only discovered this after consistently getting sick from tequila and sherry in my own cooking. After contacting the manufacturers, I discovered the caramel color problem... I now avoid any liquor with a brown or yellow color, unless I have contacted the manufacturer and found out it is safe.

 
Heather Siladi
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said this on
14 Oct 2012 11:07:59 PM PST
This thing just gets more daunting.

I thought I was on top of things, I no longer get GI distress (which was my normal for about a decade). I no longer fall off the wagon with "eh, it's worth a belly ache," followed by, "well, the damage is done, since I'm headed to bathroom all night, I may as well enjoy a piece of cake."

So I've been super good, I don't even have the cravings I used to have. I go to the doctor because I'm exhausted, achy, have muscle twitches and cramps... and it turns out a lot of important electrolytes are low (sodium, potassium, magnesium, and a few other are borderline low). So for lack of any other explanation, I'm thinking I must be eating these hidden glutens.

So, am I going to have to quarantine a cupboard in my house and never eat at a restaurant?

I don't even know if this is a question or a rant.

Does anyone else here ever feel like their diet is an inconvenience for their whole family?

 
Anna
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said this on
31 Jul 2014 4:21:35 PM PST
I know how you feel. My fiance is Italian and loves his toast and pasta. I try so hard to keep my diet gluten free, or else I'll have the GI problems and extreme dizziness that turns my vision gray, headaches, weakness, pain, and even moodiness.

It's just hard when other people don't understand how many things contain gluten and where they hide.

He tries to understand me, but it's just beyond comprehension for someone without our problems. I'm not forcing him to stop eating toast or anything, it just feels like I need to cook two separate meals every once in a while to keep the peace.

 
Julie
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said this on
07 Sep 2013 12:34:33 AM PST
Really appreciate all this free information. Thank you.

 
Deb
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said this on
27 Feb 2015 12:52:22 PM PST
Thank you! I've just been diagnosed and I already feel more informed and know many things to watch for.




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