- Rice and soy beverages because their production process may utilize barley enzymes.
- Bad advice from health food store employees (i.e., that spelt and/or kamut is/are safe for celiacs).
- Cross-contamination between food store bins selling raw flours and grains (usually via the scoops).
- Wheat-bread crumbs in butter, jams, toaster, counter, etc.
- Lotions, creams and cosmetics (primarily for those with dermatitis herpetaformis).
- Toothpaste and mouthwash.
- Medicines: many contain gluten.
- Cereals: most contain malt flavoring, or some other non-gluten-free ingredient.
- Some brands of rice paper.
- Sauce mixes and sauces (soy sauce, fish sauce, catsup, mustard, mayonnaise, etc.).
- Ice cream.
- Packet & canned soups.
- Dried meals and gravy mixes.
- Laxatives.
- Grilled restaurant food - gluten contaminated grill.
- Fried restaurant foods - gluten contaminated grease.
- Ground spices - wheat flour is sometimes used to prevent clumping.
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Reviewed and edited by a celiac disease expert.Additional Things to Beware of to Maintain a 100% Gluten-Free Diet
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About Me
Scott Adams was diagnosed with celiac disease in 1994. Faced with a critical lack of resources, he dedicated himself to becoming an expert on the condition to achieve his own recovery.
In 1995, he founded Celiac.com with a clear mission: to ensure no one would have to navigate celiac disease alone. The site has since grown into one of the oldest and most trusted patient-focused resources for celiac disease and the gluten-free lifestyle.
His work to advance awareness and support includes:
- Founding Celiac.com in 1995.
- Founding in 2002, and publishing the Journal of Gluten Sensitivity.
- Co-authoring with Dr. Ron Hoggan the book Cereal Killers.
- Founding The Gluten-Free Mall in 1998, which he later sold in 2014.
Today, Celiac.com remains his primary focus. To ensure unbiased information, the site does not sell products and is 100% advertiser supported.
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Celiac.com 12/10/2000 - As reported in Ann Whelans September/October issue of Gluten-Free Living, the American Dietetic Association (ADA) has released the 6th edition of its Manual of Clinical Dietetics, which offers revised guidelines for the treatment of celiac disease. This manual is currently used by hospitals and doctors all over North America, and represents the most up-to-date source of information with regard to the dietary treatment of various illnesses. The new standards set in this publication conform more closely with current international standards. Included on their safe list are items that have been on Celiac.coms safe list for over five years, including: amaranth, buckwheat, distilled vinegar (no matter what its source), distilled alcoholic beverages (including...
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Recent Activity
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- trents replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms17
Taking Probiotics but Still Getting Sick After Gluten – Advice?
NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.- advice
- diagnostic
- (and 3 more)
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- Scott Adams replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms17
Taking Probiotics but Still Getting Sick After Gluten – Advice?
I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common: Clinical and genetic profile of patients with seronegative coeliac disease: the natural...- advice
- diagnostic
- (and 3 more)
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- Xravith replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms17
Taking Probiotics but Still Getting Sick After Gluten – Advice?
I'm very confused... My blood test came out negative, I checked all antibodies. I suppose my Total IgA levels are normal (132 mg/dl), so the test should be reliable. Still, I'm not relieved as I can't tolerate even a single biscuit. I need to talk to my doctor about whether a duodenal biopsy is necessary. But it is really possible to have intestinal...- advice
- diagnostic
- (and 3 more)
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- Scott Adams replied to JoJo0611's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms3
CT with contrast.
They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests. Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up. -
- Scott Adams replied to Shellly's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms1
New labs are now very elevated
In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times...
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