- Rice and soy beverages because their production process may utilize barley enzymes.
- Bad advice from health food store employees (i.e., that spelt and/or kamut is/are safe for celiacs).
- Cross-contamination between food store bins selling raw flours and grains (usually via the scoops).
- Wheat-bread crumbs in butter, jams, toaster, counter, etc.
- Lotions, creams and cosmetics (primarily for those with dermatitis herpetaformis).
- Toothpaste and mouthwash.
- Medicines: many contain gluten.
- Cereals: most contain malt flavoring, or some other non-gluten-free ingredient.
- Some brands of rice paper.
- Sauce mixes and sauces (soy sauce, fish sauce, catsup, mustard, mayonnaise, etc.).
- Ice cream.
- Packet & canned soups.
- Dried meals and gravy mixes.
- Laxatives.
- Grilled restaurant food - gluten contaminated grill.
- Fried restaurant foods - gluten contaminated grease.
- Ground spices - wheat flour is sometimes used to prevent clumping.
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By Scott Adams
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Reviewed and edited by a celiac disease expert.Additional Things to Beware of to Maintain a 100% Gluten-Free Diet
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About Me
Scott Adams was diagnosed with celiac disease in 1994. Faced with a critical lack of resources, he dedicated himself to becoming an expert on the condition to achieve his own recovery.
In 1995, he founded Celiac.com with a clear mission: to ensure no one would have to navigate celiac disease alone. The site has since grown into one of the oldest and most trusted patient-focused resources for celiac disease and the gluten-free lifestyle.
His work to advance awareness and support includes:
- Founding Celiac.com in 1995.
- Founding in 2002, and publishing the Journal of Gluten Sensitivity.
- Co-authoring with Dr. Ron Hoggan the book Cereal Killers.
- Founding The Gluten-Free Mall in 1998, which he later sold in 2014.
Today, Celiac.com remains his primary focus. To ensure unbiased information, the site does not sell products and is 100% advertiser supported.
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Sorry to hear you're going through such a hard time. It would be worth looking into MCAS/histamine issues and also Long Covid. Perhaps there is something occurring in addition to celiac disease. It would be worth ruling out micronutrient deficiencies such as the b vitamins (B12, folate, B1, etc), vit D, and ferritin (iron stores). -
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This sounds very similar to the neuropathic pain I experienced with type two diabetes. Gloves and boots pattern of neuropathy is common with deficiencies in Cobalamine B12 (especially the pain in the big toe), Niacin B3, and Pyridoxine B6. These are vitamins frequently found to be low in people with pre-diabetes and diabetes. Remember that blood tests... -
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