No popular authors found.

Categories

No categories found.


Join Celiac.com's forum / message board and get your questions answered! Our forum has nearly 1 MILLION POSTS, and over 62,000 MEMBERS just waiting to help you with any questions about celiac disease and the gluten-free diet. We'll see you there!






Follow / Share


  FOLLOW US:
Twitter Facebook Google Plus RSS Podcast Email  Get Email Alerts

SHARE:

Popular Articles

No popular articles found.
Celiac.com Sponsors:

What You Need to Know About False Gluten-Free Labeling

Celiac.com 01/30/2012 - Over the last decade, many companies are adding labels to their products like: "gluten-free," "low gluten," "no gluten," "no gluten ingredients used," "naturally gluten-free" and "celiac friendly."  To many celiacs and individuals with gluten intolerance, the idea of companies labeling products without gluten is refreshing.  To experts on celiac disease and gluten intolerance, the gluten labeling currently happening in the United States is frightening. 

Photo: CC - liberalmind1012United States versus Other Countries' Gluten Free Labeling Laws
Many countries diligently regulate gluten-free labeling.  A few months ago, an exchange student from Italy stopped by our Gluten Free Specialty Market and told me that she was horrified by the gluten-free labeling laws in the United States.  For the first time in her life, she was being contaminated by products that weren’t safe for her to eat.  After purchasing bakery products that were manufactured in a non-dedicated gluten-free environment, she became deathly ill for more than a week and told me she was only just starting to feel like she could travel more than a few steps from the nearest restroom.  “I’m afraid to eat anywhere,” she told me, “Every time I eat out in this country, I get sick.  I can’t wait to be home where I don’t have to worry like this.”

This is not the first or even the 100th time I’ve heard a story like this.  For 4 years, I have heard story after story of individuals eating what appeared to be a ‘gluten-free’ product and getting violently ill.  So what does gluten-free mean?

What Does Gluten Free Mean?
According to the FDA, as of September 2011, gluten-free labeled products should (a) not include ingredients from gluten or gluten derivatives and (b) maintain a status of less than 20ppm of gluten for all gluten-free labeled products.  For more information about the FDA’s Gluten Free Food Labeling Request, go to:
http://www.fda.gov/Food/LabelingNutrition/FoodAllergensLabeling/GuidanceComplianceRegulatoryInformation/ucm111487.htm#q9

Though many companies try to follow the FDA's current gluten-free recommendation, mistakes are often made.  In food manufacturing, companies are driven by supply and demand.  Right now, the supply of gluten-free product options is low and the demand for gluten-free products is high.  For this reason, companies are jumping on the band wagon trying to produce options to fill the demand.  Some companies are started by an individual that is gluten intolerant, gluten allergic or has celiac disease.  Other companies are producing gluten-free products solely for profit.  While companies do their best to provide gluten-free products to the public, they often don’t understand what gluten-free actually means.

Common Mistakes Made by Product Manufacturers
While product manufacturers are trying to produce safe products, mistakes are often made.  Most mistakes occur due to lack of education regarding what "gluten-free" really means and what it takes to prevent cross-contamination.

The Product is Gluten Free Enough for Me 
Many gluten free products are created by individuals that have celiac disease, gluten intolerance or a gluten allergy.  Many of these products are made to be safe enough for the individual that made the product.  This is a problem because, experts like Dr. Alessio Fasano from the Stanford Celiac Center, estimate that only 1% of the population diagnosed with celiac disease is aware that they are being contaminated.  In other words, contamination may be affecting the health of an individual with celiac, even when they are not experiencing blatant symptoms. 

Example 1:
A brownie company produced their product in a facility that also produced regular gluten products.  The company is asked if they test their products for gluten, and they answer, "no, we don’t need to.  If the product wasn’t gluten-free someone would have let us know by now.  We’ve been in business for 4 years."

Example 2:
A pie company reports that their product is "celiac safe," and the company reports that they use a flour that tests above the safe range of 20ppm and the pies are made in a facility that produces gluten.  Research presented by the Celiac Sprue Association has shown that facilities that use gluten flours generally create products that contain gluten.

Heterogeneous Mixtures Versus Homogeneous Mixtures
This problem sometimes happens when gluten-free companies are trying to keep the price down on their products.  Flours produced in facilities that produce gluten are often times cheaper than flours produced in dedicated facilities and tested on import and export.  Companies often believe that when you mix one flour that’s above 20ppm with another flour that’s non-detectable at 5 or 10ppm, then the outcome of the flour blend will be below 20ppm.  This is not true because flour mixtures are not homogenous, they are heterogenous.  In other words, if you have a chocolate chip size morsel of gluten in one bag of flour, even if you mix it with a another flour that doesn’t have any gluten in it, the morsel of gluten still exists.  Therefore, the flour is not gluten-free.

Example 1:
Customers were reporting contamination after consuming a specific product from a gluten-free bakery.  The facility was visited and it was found that both flours and corn meal were being made in facilities that produce gluten.  Additionally, those facilities had reported that their flours routinely test above the safety zone of 20ppm.  When the bakery was questioned about the flours, it was reported that they knew that some of their flours were above 20ppm but they didn’t use very much of them in the flour blend so it shouldn’t matter.

If a Product Contains Gluten, it Contains Gluten
If you put gluten in a product, it contains gluten.  If your tests show results below 20ppm, they (1) might be read or performed inaccurately, (2) multiple samples could result in discrepancies (in other words, some samples may show higher than 20ppm and others lower).

Example:
A barbecue sauce has gluten as an ingredient and states "gluten free*" on their product label.  At the bottom of the label the product states: "*tested below 20ppm for gluten."  Though the end product might test as non-detectable, the product still contains gluten and should not be labeled gluten free.

Manufacturer Produces Gluten, but the Product has "No Gluten Ingredients Used" on the Label
Many manufacturers produce both gluten-containing and non-gluten containing products in their facilities.  When a product is produced on machinery that produces gluten or in a facility that has flour dust in the air, the product should be tested for its gluten status before it is labeled gluten-free.

Example 1:
A clam chowder company labels it’s product as gluten-free and reports that the soup is gluten-free.  Then later reports that wheat flour is used in other soups they make and that there is no allergen sterilization that occurs between the soup with wheat flour and the clam chowder without wheat flour.  The company does not test for gluten status, but decides to label their soups as gluten free anyway.  It is very possible that the soup will not test below 20ppm.

Example 2:
A flour company produces flours that appear to be gluten-free, but the flours are made in a facility that produces gluten-containing flours and are produced on equipment  with gluten and exposed to gluten flour dust from the air.  To cut back on the amount of gluten in their product, the company throws away the initial batches of flour and only keeps later batches.  The later batches on average test around 30-35ppm.  The flour is not labeled as gluten-free, nor does it state on the label made in a facility that produces gluten.

Labeling Mishaps
Lawyers often recommend that products not be recalled even when a gluten-free labeled product is determined to contain gluten. 

Example 1:
Wellshire Farms products were sold with a gluten-free label despite having tests showing a ppm reading far above 20ppm.

Example 2:
A chocolate fitness bar was certified to be below 20ppm.  The ingredients changed and wheat starch was added instead of corn starch.  The starch was listed on the ingredients as “starch” and the product was labeled as “gluten-free” and noted to be tested below 20ppm. 

The Product is "Naturally Gluten-Free"
Oftentimes, companies report that their product is gluten-free, because they use naturally gluten-free ingredients.  The problem with this statement is that even a naturally gluten-free ingredient can become contaminated with gluten through production, storage or shipment.

Example 1:
A chia beverage company reports on their label that their product is naturally gluten-free.  When informed that chia is often cross-contaminated with gluten, the company stated that "our chia tests at 30ppm, but since chia is naturally gluten-free they can still place gluten-free on their label."

Example 2:
To protect their consumers, Kettle Cuisine soups tests "naturally gluten-free" ingredients before using them in their manufactured products.  More than once their cumin and coriander tested above 20ppm, and Morjoram tested above 5ppm.  As a side note the company reports that they have had no problems with their current supplier of organic spices.  So far, the organic spices have been consistently testing below 5ppm.  Like many companies attempting the safest standards possible for their customers, Kettle cuisine requires that both the ingredients going into their product and the final product test below 5ppm.  This allows even the most sensitive of gluten reactors to feel safe consuming their products.

Many gluten-free product manufacturers regularly test their ingredients for gluten status.  Naturally gluten-free products that should always be double checked for their parts per million (ppm) status include: vinegar, chia seed, hemp seed, oats, buckwheat, spices, produce stored with flour, flours or grains made in a facility producing gluten, B vitamins, E vitamins, modified food starch (should be listed as wheat if from wheat, but this doesn’t always happen).

Offering Safe Gluten-Free Options to the Community
At the Gluten Free Specialty Market in Sacramento, California we work hard to educate the community and manufacturing companies regarding the need for safe products.  Local companies often ask us for information on how to provide safe gluten-free options.  Nachez, a dairy free and vegan Nacho cheese sauce, contacted us last year while setting up the manufacturing of their cheese sauce.  After speaking with us, it was decided that the product would be produced by a company that regularly batch tests the product to be below 20ppm.  It is very empowering to feel like we, as a market, are activists for the health and wellness of our customers.

In the past four years we have learned vast amounts of information on the manufacturing of gluten-free products throughout the United States.  In 2012, we hope to press local legislators to help us do this by creating a gluten-free labeling standard for California.  We hope that if the FDA doesn’t pass a gluten-free labeling law in the next year, California will pass a state law to help protect us.  In the meantime, we continue to drill gluten-free manufacturers on their products and do our best to provide the safest gluten-free options to our customers.

Celiac.com welcomes your comments below (registration is NOT required).



Related Articles




Spread The Word





18 Responses:

 
Tracey
Rating: ratingfullratingemptyratingemptyratingemptyratingempty Unrated
said this on
30 Jan 2012 12:37:59 AM PST
There is no US gluten-free labeling law. It was a proposal that was never adopted.

 
Paula
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
30 Jan 2012 1:30:01 PM PST
Excellent article! Thanks for your continued work towards keeping the celiac and gluten-sensitive community safe.

 
Melanie
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
06 Feb 2012 7:12:25 PM PST
As a side note: Dr. Alessio Fasano is with the University of Maryland, but the following comment, "only 1% of the population diagnosed with celiac disease is aware that they are being contaminated" came from Dr. Fasano's lecture at the Stanford Celiac Conference in 2010.

 
Donnie
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
30 Jan 2012 6:04:52 PM PST
Took me a few months to figure out that the gluten-free labeled rice crackers I was eating, was not actually free of gluten. I was having serious celiac symptoms, despite the belief that I was eating totally gluten-free foods. I learned not to trust gluten-free labels. They are not always truthful.

 
susan
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
31 Jan 2012 1:51:18 PM PST
I have had celiac symptoms from supposedly gluten free foods such as nuts, candy, hot chocolate mixes, plain popcorn. The list is long. I'm always finding something new that should be, but obviously isn't, gluten free. Contamination can happen as far back as the farm. Our neighbors harvest both corn and wheat and use the same equipment for both.

 
Yvonne
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
06 Feb 2012 5:59:45 AM PST
I am one of those overly sensitive individuals that cannot tolerate the new gluten free Chex cereals , the cornmeal etc.

 
Stu
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
06 Feb 2012 11:04:37 AM PST
Thanks for a great article. I am sometimes amused by "Gluten Free" labeling. The companies that state "Manufactured on equipment that handles gluten products, but does not contain gluten ingredients", would they be so proud to state "Mixed in a dirty dog bowl, but contains no kibble" on their packages? It goes to the opposite extreme as well. I once saw an 8oz bag of "Gluten Free" marshmallows for $4.50, about 5 times the cost of ordinary marshmallows. I know that the only reason *some* companies resort to these specious labeling practices is so they can jack-up their prices for the sake of profit, but it absolutely disgusts me that they're willing to make people sick to do it. The same thing happens with Tartrazine, (Yellow#5 which also makes me sick). It's happened to me often enough that I don't trust *ANY* label anymore, and I make my own Marshmallows!

 
dennis
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
06 Feb 2012 6:33:46 PM PST
Maybe Canada is different than the U.S for labeling but in response to the comment about Chex cereals I've been eating them for a year now and have had no bad reaction. They are made by General Mills and they are a lot cheaper. They are labeled gluten-free.

 
Katrina
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
06 Feb 2012 7:24:28 PM PST
Great article makes me want to move to Italy so I can eat and not worry every second about the validity of the product I'm using. I'm very sensitive because it affects my nerves so I would say to even stay away from pre-packaged foods. Food most of the time I get glutened at least once every two weeks.

 
Flick
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
07 Feb 2012 3:24:18 AM PST
Fantastic article! I didn't realize it was that bad in the states. I am heading over to California in March, coming from Australia, and suddenly I'm not liking the idea of eating anything over there now that I know even things that state GF may not actually be GF!

 
Emily D.
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
07 Feb 2012 3:59:15 AM PST
I am in so much fear of having a reaction, and I read all labels. Thanks for the information you've given!

 
Lilian
Rating: ratingfullratingfullratingfullratingfullratingempty Unrated
said this on
07 Feb 2012 6:10:56 AM PST
I live in Argentina. Myself and most of my family are celiac. I am going to start a self help group for celiac people in this community. I will need to get in touch with psychologists with experience in this field. Thanks.

 
David
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
07 Feb 2012 5:07:46 PM PST
Fantastic article. I have had to abandon processed gluten free foods due to the problems listed in the article. Nice to have someone bring it to light in a public forum. As usual, US policies are profit driven. Another thing I have noticed is that some companies give you evasive answers when you quiz them on things like processing and sourcing. It would be great to find products you could use, but the double talk makes you throw up your arms and say "just forget it!"

 
Lee-Anne
Rating: ratingfullratingfullratingfullratingfullratingempty Unrated
said this on
08 Feb 2012 8:08:34 AM PST
Thank you for an article that supports what I've been telling my husband for a couple of years. I am very sensitive as well (I can't eat oats at all), so I have to read labels extremely carefully. I have bought items many times that have "Gluten-Free Oats" in them and had reactions later. For the people who have problems with Chex (Rice, Corn, Chocolate, Honey Nut): there IS a preservative on them, maybe that's where the problem is. I wish Oats were still included in "Gluten-Free". I'm also Lactose & Casein intolerant, and cannot have cooked apple products (protein in cooked apples is too close to a milk protein). All of this is really a challenge when you add "no preservatives, artificial flavors, food dyes"... and expensive!

 
Heather
Rating: ratingfullratingfullratingfullratingemptyratingempty Unrated
said this on
11 Feb 2012 9:04:29 PM PST
This news is so discouraging.

 
Melanie
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated ( Author)
said this on
07 Apr 2012 8:18:54 PM PST
@Heather Don't be discouraged. As a community we have the strength to fight for proper gluten free labelling. Currently in California, we are working on a gluten free and wheat free labeling bill. It can help us by creating a common gluten free definition for food manufacturers. If all goes well we will one day have a properly regulated labeling program. If you'd like to support the bill, contact Senator Emmerson at:
State Capitol, Room 4082
Sacramento, CA 95814
Phone: (916) 651-4037
Fax: (916) 327-2187
Email: senator.emmerson@sen.ca.gov

For more information on Senate Bill 1293 introduced in March 2012, go to: e-lobbyist.com/gaits/text/587563

You can also contact your local chamber of commerce. Go to: uschamber.com/about/contact for more information.

 
Annah
Rating: ratingfullratingfullratingfullratingemptyratingempty Unrated
said this on
08 Apr 2013 5:28:13 AM PST
Thank you for this article. I wish you had used the names of the products. If it is for fear of being sued, I am sorry about that. As a group we would have more power in class action suits against these companies that do not care that they are making us sick. The best thing we can do is NOT buy their products. Annie's is a big offender. There are others. Eat fresh good food. Do not eat packaged foods!

 
kschatz
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
26 Aug 2013 5:25:55 AM PST
I would like to put something in THEIR food that will, almost immediately after they've eaten it, give them unbelievable stomach pain, massive diarrhea, and nausea for days that leaves them on a liquid diet of ginger ale. Then when they ask me what happened, I will look at them with a blank stare and stand there hands upturned.




Rate this article and leave a comment:
Rating: * Poor Excellent
Your Name *: Email (private) *: