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A Summary of Celiac Disease and Gluten Intolerance by Scott Adams

Celiac disease, also known as gluten intolerance, is a genetic disorder that affects at least 1 in 133 Americans. Symptoms of celiac disease can range from the classic features, such as diarrhea, weight loss, and malnutrition, to latent symptoms such as isolated nutrient deficiencies but no gastrointestinal symptoms. The disease mostly affects people of European (especially Northern European) descent, but recent studies show that it also affects Hispanic, Black and Asian populations as well. Those affected suffer damage to the villi (shortening and villous flattening) in the lamina propria and crypt regions of their intestines when they eat specific food-grain antigens (toxic amino acid sequences) that are found in wheat, rye, and barley. Oats have traditionally been considered to be toxic to celiacs, but recent scientific studies have shown otherwise. This research is ongoing, however, and it may be too early to draw solid conclusions.

Based on the figure mentioned above we can extrapolate the total number of people in the United States with celiac disease: 2.18 million (based on the total population: 290,356,028). It is very important that doctors understand just how many people have this disease so that routine testing for it is done to bring the diagnosis rate in line with the diseases epidemiology. Testing is fairly simple and involves screening the patients blood for antigliadin (AGA) and endomysium antibodies (EmA), and/or doing a biopsy on the areas of the intestines mentioned above, which is still the standard for a formal diagnosis.

The only acceptable treatment for celiac disease is strict adherence to a 100% gluten-free diet for life. An adherence to a gluten-free diet can prevent almost all complications caused by the disease. A gluten-free diet means avoiding all products that contain wheat, rye and barley, or any of their derivatives. This is a difficult task as there are many hidden sources of gluten found in the ingredients of many processed foods. This site is designed to help people with celiac disease get diagnosed, and make life easier after their diagnosis. Those who are interested can read the story of my diagnosis.

  1. Alessio Fasano, MD, et. al., Arch Intern Med. 2003;163:286-292.
  2. Gastroenterology, April, 1996 First Epidemiological Study of Gluten Intolerance in the United States. By Karoly Horvath, MD, Ph.D., et. al..
  3. New England Journal of Medicine, May 2, 1996 -- Volume 334, Number 18, The Many Faces of Celiac Disease by Charles H. Halsted, MD
  4. Goggins, et. al. Celiac Disease and Other Nutrient Related Injuries to the Gastrointestinal Tract The American Journal of Gastroenterology. Vol. 89, No. 8, pages S2 - S13, 1994.
  5. United States Census Bureau, February 27, 2003.

Information on this site has been compiled from a variety of sources, including medical journals, books, doctors, scientists and the Celiac Listserv News Group. I would like to especially thank the latter for providing an invaluable source information for celiacs, doctors and researchers.

Celiac.com welcomes your comments below (registration is NOT required).



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81 Responses:

 
Georgia Lupole
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said this on
05 Feb 2008 11:42:18 AM PST
Informative

 
Melissa Noonan
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said this on
17 Feb 2008 4:31:34 PM PST
I thought it was very educational. I was just diagnosed with celiacs and I wasn't aware if untreated cancer could be a big factor down the road. I'm glad there's more information to help some one like this.

 
donna algar
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said this on
10 Nov 2008 8:10:52 AM PST
Very good but still learning all the time. I still don't understand it.

 
denise karr
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said this on
04 Feb 2009 9:59:45 AM PST
Thanks for the help. I still don't know all the names of hidden gluten.

 
Anthony Kelly
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said this on
18 May 2009 6:09:29 PM PST
I think it's really informative and a great place to learn about celiac disease.

 
Avery
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said this on
21 May 2009 12:49:23 PM PST
Thank you...i am doing a project on celiac disease and this taught me so much...my aunt also has celiac disease and I never understood it until now...thank you!

 
Emma
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said this on
07 Jun 2009 6:48:18 AM PST
Hi, great information, I have been told it is likely that I have celiac disease from my blood test, just waiting on my biopsy now! So can you have celiac and be putting on weight if anything?

 
kristy
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said this on
29 Dec 2011 3:42:38 PM PST
I am waiting for my results also and I too have gained weight. It makes me feel better knowing I'm not the only one.

 
misty
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said this on
22 Jul 2012 11:23:00 AM PST
Hey, yes you can absolutely be putting on weight. My son was a large boy and as he started eating solid foods he ate large amounts. It was just amazing how much that boy could put away. He wasn't obese but you'd never think he was malnourished. And then once he was off the bottles and completely on real food, the constant diarhea of undigested food started and his weight gain slowed. Soon, his tummy hurt too much to eat a lot and it finally occurred to me one day to try taking him off wheat. The change was enormous: within 24 hours I had a healthy, happy little boy instead of a crazy, hyperactive whiny brat that kept waking up all night every night and barfing randomly at night sometimes.

 
Cydne
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said this on
27 Jan 2013 7:52:36 PM PST
Thank you for sharing your experience. This describes my child so well, except that she refuses to stop the bottle to the point that she will starve herself rather than eat real food. The Doctors kept telling me she was fine, but the moment I cut out wheat, she started eating more real food, stopped throwing up regularly, and started sleeping better.

 
Jessa
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said this on
14 Dec 2013 11:22:36 AM PST
Wow this is teaching me so much. I'm actually becoming more and more afraid that I may have CD. I went to a new doctor and he started asking me all these questions on digestion. What I eat, how I feel, when this junk started. I can hardly eat a fist sized amount of food a day now. In 2009 I weighed 200 ibs. In 2011 I weighed 228 lbs. Now I weight 165. I lost all that in 14 months, with no extra physical activity at all. If I eat anything before half my day is over I throw up. I have stomach ulcers and so I was told years ago to stay away from acidy foods and eat more bread and rice. It is easier on my stomach said the doctors. If my diagnosis is confirmed, this website will be my new favorite.

 
Marva
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said this on
02 May 2013 12:34:33 PM PST
Yes. Weight loss is not one of the most prevalent symptoms of celiac disease. This is from my personal experience, as well as other research that I have done.

 
theresa carpenter
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said this on
27 Jun 2009 7:55:50 PM PST
this was great info for me.

 
Sandy
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said this on
15 Jul 2009 9:40:35 PM PST
I'm not sure if I have it. I tested positive for 2 out of 3 antibodies and I seem to break out whenever I eat gluten. I take lots of probiotics (esp. reuteri). I don't have any gastrointestinal symptoms. How can I know for sure? Do I have to get the biopsy to know for sure?

 
Terry
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said this on
15 Aug 2009 8:02:28 PM PST
After suffering for years I now believe this is what I have. So many blood tests, etc and no one could figure this out. I'm going to try the gluten free and tell my doctor about this.

 
marion kilmurray
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said this on
30 Sep 2009 5:15:44 AM PST
I am just waiting on results coming back but thanks for the help.

 
Brett
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said this on
20 Oct 2009 6:51:29 PM PST
I have gluten intolerance and this is great info for me to know and help others to understand this better.

 
dazza
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said this on
05 Nov 2009 11:31:21 AM PST
Appendix was about to burst after 6 months constant diarrhea, hair loss, stabbing pains in legs, search for info IBS etc, (self diagnose, as I'm clever lol). Been gluten free for 2 months, getting back to normal now, was weird at first, zero digestive problems, felt like a miracle, talking multi vitamin etc, doctors are useless, as I can sort myself out. Found it impossible to put on weight, but have come up with a concoction that is brilliant, might mass produce it and sell is, hmmm...

 
Luna
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said this on
08 Jan 2010 1:18:38 PM PST
This was pretty good, tho the doctors that diagnosed me did a lot better...

 
Sherrie
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said this on
10 Feb 2010 11:52:00 AM PST
Thanks for having this site. I may have this and will find out today. So reading a bit about what might be in store for me is somewhat overwhelming. But I am glad this site is so informative. I guess I should keep reading. Thanks.

 
Rhonda
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said this on
12 May 2010 4:47:33 AM PST
Thanks for developing this site. I am feeling overwhelmed with it all but am thankful for the helpful resources I am finding.. i.e., this website and the greatest book I have found thus far. The G free survival guide, by Elisabeth Hasseback! A great read for anyone who has celiac or a loved one that has it!

 
Leonie Potgieter
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said this on
03 Aug 2010 12:46:56 PM PST
Thanks for all the information. I have known for a year that I have Celiac but still have trouble with the hidden gluten. My headaches have disappeared, and I am not anemic anymore but sometimes fall back because of not knowing what is in some of the food. No restaurants take it serious if you ask if there is any gluten in the food.

 
Olga
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said this on
25 Jul 2011 8:41:28 AM PST
PF Changs has a small menu that is gluten free. But I have noticed that the majority of restaurants don't cater to people with celiac disease.

 
Catherine Nochella
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said this on
03 Dec 2011 8:33:39 AM PST
You are 100% correct. I myself worked in a restaurant where the owner thought it was a joke to cater to people who asked if something was gluten free.

 
C M
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said this on
25 Sep 2010 6:13:17 PM PST
Great info and suggestions

 
Diana
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said this on
02 Nov 2010 2:19:38 PM PST
Hey Great info thanks for the article!

 
Nicole
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said this on
12 Nov 2010 6:18:37 AM PST
I just started myself on a gluten free diet to see if it would help some symptoms I was having. It has made all the difference! I found your site while searching for information and it has become my favorite! Thanks for starting this and for all the good info you have on here.

 
Nicole
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said this on
12 Nov 2010 6:19:59 AM PST
Thanks for this awesome site! I appreciate all the info you have on here and it has become one of my favorite sites to look at.

 
myrna
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said this on
27 Nov 2010 4:37:48 AM PST
I was diagnosed 5 years ago, no obvious symptoms. I was 106 pounds...I have been gaining over these years and am at 142 pounds. Too much weight for me and can't seem to lose any thing. Also, my celiac numbers in my blood work have gone down since I was diagnosed, however, they still indicate that I am still ingesting gluten and I am very very careful what I eat. I am very frustrated. Interesting, I never hear of anyone mentioning their blood work and their numbers indicating celiac.

 
Jeanne
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said this on
10 Jan 2011 3:02:25 PM PST
Good question! Exactly what I'm looking for - what do the test numbers mean?

 
erica
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said this on
30 Jan 2011 6:09:24 AM PST
its hard to be on a gluten-free- diet but what else can you do if you have it...I mean you must stay on the diet in order to be healthy again...(that's what they told me...if you do then it'll go away) but its hard to believe...it said you have to stay on the diet for the rest of your life...

 
Ramona
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said this on
05 Feb 2011 8:30:50 PM PST
I appreciate the info - but boy is it hard to go gluten free. I am of Northern European descent which my doctor told me was the reason for my tendency to be anemic. Now I have a good reason for my anemia and bloating.

 
Betty N.
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said this on
02 Mar 2011 9:16:43 AM PST
I really had no knowledge of what celiac disease was and now feel much more informed. I found out yesterday that my granddaughter might have it so I called my cousin who informed me that her sister's one son has it and her sister is a carrier. This article helped me to understand the disease a lot better.

 
Cynthia R. :)
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said this on
25 Mar 2011 6:55:06 AM PST
I just found out I had celiac about 5 days ago! I had symptoms of bloating and really bad cramps whenever I ate!! I couldn't take it any more and my doctor gave me a stomach scope and biopsy of my small intestine. It came back positive. This web site really helped me out with what the disease is and what to watch out for. Who new that Gluten could be hidden everywhere (sauces, hot dogs, Ect.) Bummed out that I can't have certain things anymore, but once I dabble and experiment with my new way of life I'm sure I'll do just fine, If not be a healthier person because of it.

 
frazer
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said this on
13 Aug 2013 11:51:16 AM PST
When I was diagnosed some 25 years ago by a rare physician that actually knew about celiac disease, he gave me a diet. The diet was written on an 8 1/2 by 11 inch page and said in very large letters, "Fresh meat, vegetables, fruit ~ nothing else!" He explained to me that I was ignorant of the issue (gluten) and that if I followed the fresh diet I could get better. I did! At that time, there was little labeling of processed foods about gluten and labeling today is little better for a very brittle celiac such as myself, so a fresh diet is SAFE and HEALTHFUL. Give it a try (at least until you become much more savvy about gluten).

 
Sandi
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said this on
27 Mar 2011 3:13:42 PM PST
All my life I have been so ill, sick all the time, after many doctors we moved away and my new doctor, she's wonderful diagnosed me with celiac, not IBS. for the 1st time in years I ate and didn't buckle over in pain, it feels wonderful to eat gluten free foods, it only too 43 yrs but I'm getting better now...

 
Alison
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said this on
06 Apr 2011 7:42:18 AM PST
One of my professors got diagnosed with it a little while back. This helps me understand what he could have gone through. He said that when he ate gluten, he felt really bad. Now I understand what that "really bad" was. Thank you!

 
Cierra
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said this on
18 Apr 2011 2:55:33 PM PST
I'm scared that I might have celiac due to the consistency of the symptoms being mine in this list.. I have gotten blood work done and I'm just waiting for the tests to come back.. hopefully negative. I eat gluten products on a daily basis and I don't think I can live without it which is why I'm quite terrified currently. my fingers are crossed..

 
DEANA
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said this on
17 Jun 2011 5:30:42 AM PST
I have too much gluten free food. Two Brothers Market (owners have celiac) provide everything I need for cooking gourmet meals. Being able to eat hot dogs, hamburgers, pizza, lasagna, tacos, etc. make me feel like a normal person. Set your mind, gluten food is poison. Plan weekly meals! It will get better. It has taken me 3 months to learn how to cook buns, bread, and noodles all GF.

 
tina
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said this on
06 May 2011 5:08:13 AM PST
I don't trust doctors. At least the ones I met so far, but anyway, I have been diagnosed with IBS at age 16, and have had some episodes of constipation, diarrhea and stuff since, plus constant bloating problems, but now, for a few days straight, I'm getting loose stools no matter what I eat.
I also had some pretty severe anemia when I last tested, about 5 years ago...at 17, but, anyway, I have been wondering if it is possible to have this disease and be obese?

 
Stacey
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said this on
05 Apr 2013 11:35:09 AM PST
YES! My grandmother wasn't diagnosed until she was nearly 80, and she was overweight most of her life.

 
Michelle
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said this on
24 Jun 2011 12:03:43 AM PST
I am new to the celiac family, and was only diagnosed 3 months ago. I must say, this is a great article and helped me a lot. I'm still in the stages of "what can I eat". I restrict myself to things labeled "gluten free" and go to a lot of the gluten-free websites that specialize in and sell gluten-free foods. I feel so much better and my friends and co-workers say they can see a huge difference in my energy and coloring. I went for years with small symptoms I chalked up to "just getting older" and then a few months ago it hit me all at once. Thought I may have the flu, but after 2 hospital stays and a biopsy, I had my diagnosis. Stay strong folks, this is a lifetime thing, but well worth the fight to stay healthy, and alive!

 
ari
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said this on
24 Jun 2011 11:15:50 AM PST
My 17 month old daughter is 18 lbs. and got her blood work done and her antigluten was really high ant that is what is causing her to gain weight very slowly, the doctors said she might have celiac disease so they are running a lot of test before they say if it is really celiac. Her nutritionist had her go on a gluten free diet right away and it's not that bad and it was really easy to to rearrange the pantry, but it very expensive.

 
Anita G
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said this on
22 Jul 2011 12:12:41 PM PST
Migraines should be added to the list of symptoms. At least 10-15 people I have talked to with this suffer from severe migraines and I have only talked to about 20 people with this disease thus far!

 
Steve
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said this on
05 Aug 2011 12:00:09 PM PST
Good to know, helps explain a lot of things...even the migraines.

 
minnie
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said this on
18 Oct 2011 10:52:19 AM PST
Excellent source of info... Does anyone with this illness suffer from severe depression?

 
Cynthia
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said this on
20 Aug 2012 6:05:54 AM PST
I have been suffering from depression and anxiety. My bowels have always been loose so I thought that it was normal. Now that I am doing gluten-free, I have realized that diarrhea all the time (that interrupts your life) is NOT normal. I almost feel weird because I am not going to the bathroom all the time. My headaches seem to have decreased, too.

I wonder if there is a relation between gluten and depression... I feel that there may be..

 
Maddy
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said this on
05 Nov 2012 6:56:25 AM PST
Cynthia, I would have to say that there is a connection between gluten and depression. It makes your brain foggy and your overall feelings are sluggish too. When I know I've had gluten, I get on my treadmill and give her. It really helps!

 
Laura
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said this on
29 Sep 2012 1:44:58 AM PST
Yes, I was diagnosed with depression 4 years ago and celiac disease a few months ago. I've heard from many different doctors, gastroenterologists, dietitians etc that untreated celiac disease can cause depression.

 
Ruth D.
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said this on
05 Jun 2014 11:19:38 AM PST
I am 83 years old and just this past Christmas season started having the loose bowl problems; I was very depressed with life in general. Anything that happened seemed to make me feel worse. After a couple of months I finally decided to see a doctor. She told me to stop eating dairy and she also arranged for me to see another doctor about the problem. It didn't clear up going dairy free. In the meantime someone mentioned celiac disease. I looked it up on several sites on the internet and was convinced that was my problem. So I gave
up gluten and immediately started feeling better. Within just a few days I was much better,the depression was much better right away also. However, for about three weeks now it seems the gluten is appearing in spices,etc.,so that I have a reaction. I need to read labels 'all' the time now. I am thinking of going on the Paleo Diet, also known as the Caveman Diet. In other words if it wasn't around for the cavemen to eat then I shouldn't.

 
Christina
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said this on
29 Oct 2011 8:32:46 PM PST
This is crazy! First time I've heard of it, and everyone in my family has at least two of the symptoms! Very educational. I'm going to research further. Thank you!

 
Christine
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said this on
25 Feb 2012 4:27:25 AM PST
My 5 year old grandson has just been diagnosed with celiac disease. We are finding it difficult to adjust his food. This site has been such a great help. Thank you very much.

 
Cyndi
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said this on
09 Mar 2012 2:30:13 PM PST
I mentioned my symptoms to my orthopedic surgeon(he said...this is not my field but...) you might have celiac disease. I'm 5ft. 6 inches tall and weighed 113 lbs. Not digesting nutrients, acne, diarrhea, head aches and fatigue. I haven't been tested but put myself on a gluten free diet. It has only been a week and I feel 100% better. I can't thank him enough!

 
Sue Seward
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said this on
11 Mar 2012 3:20:19 PM PST
I was very ill until complying with a Gluten Free diet. I had severe joint pain, debilitating migraines, stomach issues, foggy brain, memory loss, skin conditions, thyroid issues for 32 years and was almost to the point of having to walk with a cane. I could barely walk two feet without holding on to my husband. I looked 80 years old. My holistic doctor/chiropractor was the one who did blood food allergy testing in 2005 to find out why I had been sick for so long. It took me almost two years in denial and being so sick that she said I was going to die if I didn't stop consuming gluten and wheat. That was my wake up call. I started changing my diet in 2008 and now look younger at age 58 then I have in years. I still get gluten by accident, mostly when going out to eat. This website is a life saver! Thank you!

 
Rochelle
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said this on
02 Apr 2012 9:05:48 AM PST
This is helpful. I don't know if I have celiac disease or gluten allergy (or just a gluten intolerance for that matter), but I'm pretty sure I've got something gluten-related going on. I got irritable bowel syndrome and Hashimoto's disease, and am ALWAYS fatigued. My doctor hasn't been able to figure out why I'm always tired (though her testing uncovered the Hashimoto's, so that was good), and I'm now waiting on the results of a blood test I took for food allergies, including gluten. I won't be at all surprised if it is positive, and I'm currently getting myself mentally prepared for giving up gluten. If the test is negative, I'll seriously consider asking for a biopsy to determine if I have celiac.

 
sarah glenn
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said this on
21 Apr 2012 8:52:28 AM PST
We're waiting on my 9 year old daughter's blood results to come back. She's pale all the time, never puts weight on, always tired, and gets lots of stomach pains and headaches. She struggles to concentrate at school and her work suffers. Last week our doctor came across this in the newspaper.

 
Claudia
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said this on
30 Apr 2012 10:07:33 AM PST
Heads up: I was diagnosed with celiac when I was very young (about 1-2 yrs old) and have adhered to a gluten free diet since then. I was just diagnosed with vitamin B12 anemia and after talking to my doctor and doing some research people with celiac are more prone to not be able to absorb the vitamin through food, thus I now have to get B12 injections.

 
Kasey
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said this on
07 May 2012 11:52:20 AM PST
I was also diagnosed at a very early age, around 1-2 years old. Spent many days and nights at the children's hospital until they finally diagnosed me with celiac. My symptoms are severe nausea and vomiting when I consume gluten, bloating, migraines which I take daily medications for and also have a hormone imbalance so I'm prescribed a natural progesterone. I'm now 38 years old and it seems it's worse when I get sick. I think it's time to see a gastro specialist or one that treats celiac patients because I know over time more and more health issues come up.

 
Chloe Boggs
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said this on
13 May 2012 4:51:32 AM PST
Wow thank you for the information regarding celiac disease and the underlying treatments behind it. It will definitely give people more awareness regarding their disease. Hope to read some more!

 
gail
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said this on
30 May 2012 6:31:33 AM PST
I am 74 and have suffered my whole life with misdiagnosis and prescriptions that didn't really help. At one point I thought I was lactose intolerant so I used lactose-free milk, which also was gluten-free, which I did not notice. It seemed to help but I never really got well. So now I am trying the gluten-free diet and it really works so I am gluten intolerant. There is no medication for this so I guess that is why it isn't a consideration for the patient. I feel great unless I accidentally get gluten. I really can't see blood test and biopsies at this point.

 
Kaye
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said this on
01 Jun 2012 9:50:33 AM PST
To Gail---I can't drink regular milk either but hadn't considered lactose-free milk. Some favorite recipes call for milk so I started using soy milk which gives a different taste I don't always care for. Thanks for the tip!

 
Carol
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said this on
13 Sep 2012 9:11:20 AM PST
I don't drink cows' milk or soy milk. I found the almond milk good and it's unsweetened, vanilla flavored. Works for cooking too.

 
Kaye
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said this on
01 Jun 2012 9:45:17 AM PST
Thank you for all the information! I have chronic anemia and diarrhea, cramping, depression, and Hashimoto's disease. My doctor has always asked me if I'm of middle-European descent (which I am not) as to explain the constant anemia. I guess it never occured to him to test me for any cause for it!

A friend of mine has celiac sprue and she mentioned some of the symptoms and how a gluten-free diet has helped tremendously. A coloscopy 5 years ago revealed I have diverticulosis (and 5 polyps, 2 were pre-cancerous) but no celiac disease. Recently, I took on a gluten-free diet to see if it helped and it did, thankfully! It must be gluten intolerance that I have. Your website is wonderful and gives extensive information and resources for gluten-free food. Thanks again.

 
Katie
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said this on
18 Jun 2012 6:41:58 AM PST
A colonoscopy is for the large intestines, but the endoscopy checks the small intestines, which is where celiac disease affects the villi, so I don't think a colonoscopy will catch celiac disease. I am so happy you found relief! The symptoms of celiac disease were so debilitating for my daughter. Her life has changed b/c of living gluten free. The hidden gluten is a bugger though. Wish companies were better about preventing cross contamination. Oh well.

 
kathie
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said this on
26 Jul 2012 9:18:09 AM PST
I'm surprised no one has mentioned thyoid issues in association with celiac. So many times they are connected. I would say if you have hypothyroidism be sure to get tested for celiac disease. In our family, synthroid hides the symptoms of celiac... but we just recently learned that we're still supposed to eat gluten-free diets because the damage will still occur.

 
Tina
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said this on
02 Oct 2012 9:47:12 PM PST
Ok I am sure I have this now. The medicine cannot seem to help level out my thyroid levels. With each blood test, it just seems to get worse. I'm going crazy between the nerve pain in my legs and no sleep or energy. Then add depression. Not good. The doctor, after asking him about it today, wanted me to try going gluten-free without testing first. But I heard it's better to be tested first because if you go gluten-free first, it can mess up later lab work. Has anyone else heard of this? Thank you so much, everyone

 
amanda
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said this on
10 Nov 2012 7:20:16 PM PST
Tina,
Yes, it can affect the test. However, if you are not having an endoscopy, I would not bank on the blood test. I am from a smaller community of 25,000 people, and I know 3 people, along with myself, whose blood tests came back negative, but the scope showed blunting of the celia. The tests are very expensive just to have them say you are celiac. So if you think you are, just try it for 6 months to a year, and if you start to feel better, you know without spending all that money. For me, I could tell a different within a month. I also will add that the doctors found this when they were trying to solve all the problems I was having in other areas. My normal was not “normal” -Take time to talk about your stool, your pain in all parts of your body, your appetite, etc., and tell/ask them in depth what “normal” is. Good luck!

 
Ruth D.
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said this on
05 Jun 2014 11:45:43 AM PST
Yes Tina,when I called the doctor to let her know that I had been going gluten free she said it would have been better to have had the test before I gave up gluten,because now I will have to eat gluten for 2 months before I can get the test.

 
Donna
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said this on
03 Dec 2012 10:15:22 PM PST
I found this article very interesting. Helpful as well.

 
Jacquie
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said this on
11 Dec 2012 8:55:43 AM PST
I was just diagnosed with Celiac disease a couple of days ago.
I was diagnosed with Hashimoto disease a year ago. Although my blood work for thyroid was always within the normal range, my doctor decided to test it further and came to the conclusion that normal range was too high for me. I have had severe heartburn for a few years, which I was masking with acid reducers. No one seemed to question that until I made the appointment for the colonoscopy. My doctor highly recommended that I get an endoscopy also, which showed inflammation of the small intestine. The blood work revealed celiac disease. I have had a lot of the symptoms for several years: depression, weight gain, headaches, aches and pains, and heartburn. So now that I know what the "diagnosis" is, going gluten-free might be my resolve.

 
Christine
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said this on
07 Feb 2013 3:03:41 PM PST
Very interested and want to learn more.

 
Karen
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said this on
26 Feb 2013 8:41:35 AM PST
Don't you think it's confusing for readers to say celiac disease is gluten intolerance? I do.

 
Steve
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said this on
16 May 2014 2:07:44 PM PST
I agree. Here is an article stating the difference:
http://www.celiac.com/categories/Allergy-vs.-Intolerance-%252d-What-is-the-Difference%3F/

 
Steve
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said this on
16 May 2014 2:10:37 PM PST
I just realized this article is from 1996. While it has some good information, it is woefully out of date.

 
Anna
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said this on
03 May 2013 9:02:56 AM PST
Well I just got diagnosed today with celiac disease. Oh joy. I have had the very tired symptoms, borderline anemic as my body ate up iron, vitamin D and B12 consistently. I have recently in the past 6 months lost 35+ pounds and I couldn't understand why after being overweight for about 10 years now. I have sleep apnea to boot. And I have severe cramps quite often after eating and even had blood and pain when excrementing. So to find out all these things are tied together save for the sleep apnea, but definitely couldn't sleep well, is finally answered. This condition is genetic and been latent I suppose for a while. Though, I was very skinny growing up, and not until about 10 years ago I started having weight gain I couldn't understand. Now it is all clear as to why, and I am happy that finally someone caught it. I had to undergo a endoscopy where they took biopsy samples in my large intestine/colon which confirmed the blood tests. Hope this was helpful.

 
Dell
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said this on
23 May 2013 5:54:30 AM PST
Your sleep apnea is a part of the disease. I hadn't had a good night's sleep in years. Within a week of going gluten-free, I began to sleep better and better. It was the disturbance in my gut that woke me up and now I sleep hours straight through the night without waking up. That was one of the first things that impressed me. Now after almost two years gluten-free, I sleep well and therefore have so much more energy each day. I feel I have gained back about 10 years. I thought it was just what getting old felt like.

 
Brooke
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said this on
25 May 2013 5:15:32 PM PST
I'm 21 years old and finally went to the gastroenterologist a few days ago. Ever since I have been around 14 I've had horrible nausea, constipation and diarrhea, some stomach cramps and pains, and also fatigue continuously happening. When I was young I was diagnosed with IGA deficiency and was told I grew out of it. When I was around 14-17 I was diagnosed with very mild anemia, zinc deficiency, Reynauds syndrome, anxiety, and IBS. I have tried literally everything and I feel like my doctor has given up just saying it's my IBS and I just need to take Mirilax. Well I took it upon myself to make this appointment with the best gastro doctor near me. The first thing he did was comfort me because I just want to feel normal and I would cherish even just one day of feeling 100% perfect. Second he said celiac disease. I'm still waiting for the results but I'm convinced after reading up on it and what my doctor said. This site and reading all your personal stories are so comforting. I honestly thought I was the only one and it was a horrible feeling. If it turns out I do not have it and everything's still a mystery, I will not forget all the support on here. Thank you everyone!

 
Saria de Kock
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said this on
20 Nov 2013 3:25:35 AM PST
Nobody ever mentions the blood group diet. Have been following it for about 19 months now and not only lost weight, but also felt better and more energetic. Also cut out gluten, the oats, barley and rye which made me felt bad. Once you follow the blood group diet, AS A GUIDELINE, your body becomes normal and then you start noticing what causes problems. Anemia might indicate you are A blood group.

 
Emily

said this on
27 Nov 2013 5:11:26 PM PST
I've been celiac diagnosed for 3 years. No gluten eating ever and no restaurant eating--not safe anytime. I get weak, sick nausea, fee like the flu. I'm working on getting to work and still seriously worried can not 100% control condition. It should be healed by now and my doctor considers it healed. Well, I'm sick from something. Just need more deep information on this if available.

 
Steve
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said this on
16 May 2014 1:49:25 PM PST
Nice article, but the first sentence threw me. It says that Gluten Intolerance and Celiac Disease are the same thing? I have always been told they are two separate things, so correct me if I am wrong. I am celiac (biopsy) and have no intolerance issues that I know of, which I understand is common. The few times I have accidentally had gluten I had no problems. I have been gluten free for one year.

 
susan cain
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said this on
12 Nov 2014 9:55:43 PM PST
Are you a new parent? If you are, you may be looking for safe and healthy foods to feed your baby. Parents should know the best for their babies. If this causes your concern, you may want to take the time to examine organic baby food.




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