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About captaincrab55

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    Baltimore Maryland, USA

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  1. OK, How low was your Vitamin D level??
  2. Belle, Celiac Disease isn't an allergy. Now a question for you, will an epipen work for intolerances??
  3. Sounds like the OP's Dermatologist tested her in the wrong way. squirming, Posted some great information on DH. It wasn't till I found my 4th Dermatologist over 30 years that I was diagnosed on my second visit. I suffered from an infant till the age of 56. Most of the many Doctors claimed it was just some type of food allergy. IMO, The OP needs to find a Dermatologist that knows how to do the test and treats other patients.
  4. Make sure you chose a Dermatologist that is actively treating patients with DH. I saw 4 Dermatologists in 30 years before I found one the would listen to me and knew how to test for it. The test takes 2 weeks for tissue results.
  5. Prescription eye drops, RESTASIS twice a day does wonders.
  6. I have DH and itchy skin is a symptom. Your Dermatologist could write a script for Dapsone, provided you're not allergic to Sulphur. Expect blood labs to go with using Dapsone. You need to study everything that goes in your mouth for possible gluten content, including all meds.
  7. When I was diagnosed, it cost me a bit over a $1000 just to make my kitchen gluten-free. It took another 4 years to zero in on other food issues with nuts, casein/dairy, corn and strawberries. Are you taking any generic meds? Corn starch is used in some meds and the wax coating on supermarket vegetables is also made from corn. So many foods are sweetened with fructose or corn sugar. Try eliminating corn and see how you feel.
  8. Sounds like you should visit a Dermatologist. You could try an Iodine patch test, but it's not accepted as the Gold Standard here n the USA. I suffered with that itch for over 50 years.
  9. Have you seen a Dermatologist?? I suffered for over 50 years, before I was diagnosed by the 4th Dermatologist in 30 years. They need to do a biopsy next to your break out. A simple iodine test will usually indicate that you have DH or an iodine allergy, maybe both. Pt iodine on the bandage part of a band aid and apply it to your skin for several hours. DH will usually cause a rash.
  10. It took 9 months taking prescription (50,000 IUs) Vitamin D to get my D level into a safe zone.
  11. My health plan requires one to be diagnosed with Celiac Disease to win a brand name medication(certified gluten free) request. I've had several generic meds that caused issues associated with gluten cc. It's sometimes possible to win a social security disability case when diagnosed by the Gold Standard. Good Luck.
  12. fargo, What is your current Vitamin D level?? Low D may cause joint pain in some people.
  13. Gene testing may rule out Celiac Disease.