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cristiana

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cristiana last won the day on January 23

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Community Answers

  1. icon cristiana reacted to a post in a topic: 4.5 years into diagnosis, eating gluten-free and still struggling: would love support, tips, & stories
  2. icon knitty kitty reacted to a post in a topic: 4.5 years into diagnosis, eating gluten-free and still struggling: would love support, tips, & stories
  3. cristiana
    Hello @Heavenly Flower Welcome to the forum! It will take time to master the diet and find what foods you can eat but I'd suggest what might make it easier is to keep a food diary. You can write down what you ate, and then any symptoms that arise in a day. Patterns do start to emerge. Also, it is worth bearing in mind that sometimes intolerances...
  4. icon cristiana reacted to a post in a topic: 4.5 years into diagnosis, eating gluten-free and still struggling: would love support, tips, & stories
  5. cristiana started following Celiac support is hard to find , Terrified with diagnosis, in denial, how to live & eat? , Increased intraepithelial lymphocytes after 10 yrs gluten-free and 2 others
  6. cristiana
    Very helpful advice from @trents I just wanted to chip in to say I had elevated liver function tests prior to and some months after diagnosis. Namely raised immunoglobulins at a level of 41, when the cut off for normal in our local lab was 35. I was quite scared all this time, esp. when my GP didn't know what she was dealing with, and even...
  7. icon cristiana reacted to a post in a topic: Insomnia help
  8. icon knitty kitty reacted to a post in a topic: Insomnia help
  9. cristiana
    Thank you for your post, @nanny marley It is interesting what you say about 'It's OK not to sleep'. Worrying about sleeping only makes it much harder to sleep. One of my relatives is an insomniac and I am sure that is part of the problem. Whereas I once had a neighbour who, if she couldn't sleep, would simply get up again, make a cup of tea, read,...
  10. icon cristiana reacted to a post in a topic: Insomnia help
  11. icon knitty kitty reacted to a post in a topic: Increased intraepithelial lymphocytes after 10 yrs gluten-free
  12. icon Scott Adams reacted to a post in a topic: Increased intraepithelial lymphocytes after 10 yrs gluten-free
  13. cristiana
    Watch this space! 😊
  14. icon cristiana reacted to a post in a topic: Increased intraepithelial lymphocytes after 10 yrs gluten-free
  15. icon Scott Adams reacted to a post in a topic: Increased intraepithelial lymphocytes after 10 yrs gluten-free
  16. icon cristiana reacted to a post in a topic: Increased intraepithelial lymphocytes after 10 yrs gluten-free
  17. cristiana
    I've been reflecting on this further. The lowest TTG I've ever managed was 4.5 (normal lab reading under 10). Since then it has gone up to 10. I am not happy with that. I can only explain this by the fact that I am eating out more these days and that's where I'm being 'glutened', but such small amounts that I only occasionally react. I...
  18. cristiana
    Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result. I am interested to know, is your gastroenterologist concerned? Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous...
  19. icon cristiana reacted to a post in a topic: Insomnia help
  20. cristiana
    When I was still recovering my gastroenterologist suggested I bought lactofree product as I was very bloated. So I bought some from the supermarket and from memory, I drank a nice big glass of milk - and it went right through me literally within an hour or so, if my memory serves correctly. I came off dairy completely next and it worked like a charm...
  21. icon cristiana reacted to a post in a topic: Mallorca Guide
  22. cristiana
    I agree. If someone has Barrett's Esophagus, at least here in the UK, as I understand it under normal circumstances a PPI needs to be taken long term (or similar medication). I have two friends with this. The PPI it does have side effects but they still have to take it.
  23. icon cristiana reacted to a post in a topic: Severe severe mouth pain
  24. icon knitty kitty reacted to a post in a topic: Blood Test for Celiac wheat type matters?
  25. cristiana
    @Charlie1946 You are more than welcome. If you are struggling with mental health do consult with a medical professional and follow their advice if they think you need medication, as I did for a while, but I hope you will find these books as helpful as I did on the road to recovery.
  26. cristiana
    I agree with you @GlutenFreeChef that you should still react to European flour, so long as it is regular gluten containing flour. Even if the reaction is not anything you can actually feel, the damage should be going on internally if you do a proper gluten challenge. My gastroenterologist has told me more than once that he has coeliac patients who...
  27. icon Scott Adams reacted to a post in a topic: Shingles - Could It Be Related to Gluten/ Celiac
  28. cristiana
    Sorry... I accepted it! I don't want shingles EVER again!
  29. icon Scott Adams reacted to a post in a topic: Shingles - Could It Be Related to Gluten/ Celiac
  30. cristiana
    Thank you for your thoughtful contribution, @Tazfromoz. I live in the UK and the National Health Service funds free vaccines for people deemed to be at heightened risk. I was pleasantly surprised to discover that as a coeliac in my 50s I was eligible for this vaccine, and didn't think twice when it was offered to me. Soon after diagnosis I suffered...
  31. icon tiffanygosci reacted to a post in a topic: Celiac support is hard to find
  32. icon knitty kitty reacted to a post in a topic: Healthy diet leading to terrible bloating
  33. cristiana
    That sounds very hernia inducing work! You confirm what I have suspected, I get pain just to the right of the umbilical hernia, I am sure there is a connection. If do see my gastroenterologist I'll mention it again. I can't help thinking I've also got an issue in my groin, perhaps a hernia threatening, I guess an ultrasound would be needed to confirm...
  34. cristiana
    @Scott Adams Strange question but can you actually feel your hernia? I have so many abdominal lumps and bumps of longstanding (my GP said it's fat!) that I sometimes wonder if an inguinal hernia could be missed. I am quite sure some of my pain is from my umbilical hernia but that first came about courtesy of my second pregnancy.
  35. cristiana
    Hi @tiffanygosci Well done for reaching out, fantastic you have found this forum. It sounds like you are managing the diet well, it can be overwhelming at first, but it will get easier. I wonder if you have seen the short film 'Glutened'? - someone shared it on this forum a few months ago and it reminded me of how isolating it can be,...
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