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Biopsy Positve In Routine Egd

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Posted 28 February 2013 - 10:15 AM

I am new to this forum, I am 35 years old with a life history of reflux (have barrets esoph now), ulcers, constipation and diarrhea that alternates (never normal bowel habits), bloating, gi bleeding, diverticilitis (just found in scopes done this month). Along with checking for chrons and ulcertive colitis (my mother has both) my gi did biopsies to check for celiac. 

He made the remark that he didnt think I had it but would do a biopsy to rule it out (he is very ocd with his patients in covering every possible thing). Well a week and a half later my biopsy results came in the mail and it was positive for celiac along with a order for the bloodwork to go with the positive biopsy.

They are waiting for the next step of treatment for me until the blood work is done (going tomm to get it drawn). 


I am wondering if the biopsy is positive does that mean I have celiac? I do have a family member that has celiac (cousin). With that being said, out of my fathers family that cousin and myself are probably the only ones who have been  checked.


I am also worried about my oldest son, he has been having a lot of gi symptoms for 5 months now. (we are making him an appointment with a gi specialist).


Thank you for any advice you all can give me.

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Posted 28 February 2013 - 10:49 AM

I have hope that you are coming to a deep root of your problem.  I am happy for that!.  I think many hear consider a positive biopsy conclusive.  They usually verify blood results with biopsy and hope one or the other will be positive if gluten is the problem.


I would try to get your son tested as soon as possible.


Welcome, and GET WELL  ***



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Posted 28 February 2013 - 10:58 AM

I would assume so.


Stay on the gluten until after the bloodwork is over and then try the diet.

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Posted 28 February 2013 - 11:34 AM

That is great that your gastro doc was thorough and checked for celiac while he was in there.  If this is it, you have a chance to make yourself well by adhering to a gluten free diet, after testing is completed. :)    You have symptoms of celiac, and the positive biopsy is usually the "gold standard" to get the official celiac diagnosis.  So you are "trending" that way.  Getting your first degree relatives, such as your son tested, is an excellent idea.   And there are plenty of people here who can help you with any sort of diet fine - tuning and advice on how to cope with a gluten free diet that may have to avoid a few other ingredients (we are all different. ) 

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Posted 01 March 2013 - 06:22 AM

Welcome. You should go gluten free as soon as you have had the blood drawn. You have a great doctor and although it likely doesn't feel like you are lucky you now have the answer for your problems. Do get your son checked and encourage all first degree relatives to be screened. Your ped can order the blood work for your son but do be aware that there can be false negatives on blood work especially with children. After he has finished all testing for celiac do try him on the diet for at least a couple months. Ask any questions you need to. It can seem hard at first but you will feel much better soon.

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Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)

celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom

Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)


Cara in Boston

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Posted 01 March 2013 - 01:35 PM

You should consider this good news.  You have celiac and you can start on the road to recovery very soon (as soon as they take your blood.)  You will be amazed at how much better you feel.  I didn't even realize some of my symptoms were symptoms - I just thought I was getting old and tired.  You are lucky your doctor is so sharp.  Everyone in your family should be tested - even if they have no symptoms at all.  


Good luck -



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