Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Biopsy Positve In Routine Egd

angelas78

Recommended Posts

angelas78 Newbie
angelas78
Posted

I am new to this forum, I am 35 years old with a life history of reflux (have barrets esoph now), ulcers, constipation and diarrhea that alternates (never normal bowel habits), bloating, gi bleeding, diverticilitis (just found in scopes done this month). Along with checking for chrons and ulcertive colitis (my mother has both) my gi did biopsies to check for celiac. 

He made the remark that he didnt think I had it but would do a biopsy to rule it out (he is very ocd with his patients in covering every possible thing). Well a week and a half later my biopsy results came in the mail and it was positive for celiac along with a order for the bloodwork to go with the positive biopsy.

They are waiting for the next step of treatment for me until the blood work is done (going tomm to get it drawn). 

 

I am wondering if the biopsy is positive does that mean I have celiac? I do have a family member that has celiac (cousin). With that being said, out of my fathers family that cousin and myself are probably the only ones who have been  checked.

 

I am also worried about my oldest son, he has been having a lot of gi symptoms for 5 months now. (we are making him an appointment with a gi specialist).

 

Thank you for any advice you all can give me.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


1desperateladysaved Proficient
1desperateladysaved
Posted

I have hope that you are coming to a deep root of your problem.  I am happy for that!.  I think many hear consider a positive biopsy conclusive.  They usually verify blood results with biopsy and hope one or the other will be positive if gluten is the problem.

 

I would try to get your son tested as soon as possible.

 

Welcome, and GET WELL  ***

 

Diana

shadowicewolf Proficient
shadowicewolf
Posted

I would assume so.

 

Stay on the gluten until after the bloodwork is over and then try the diet.

Takala Enthusiast
Takala
Posted

That is great that your gastro doc was thorough and checked for celiac while he was in there.  If this is it, you have a chance to make yourself well by adhering to a gluten free diet, after testing is completed. :)    You have symptoms of celiac, and the positive biopsy is usually the "gold standard" to get the official celiac diagnosis.  So you are "trending" that way.  Getting your first degree relatives, such as your son tested, is an excellent idea.   And there are plenty of people here who can help you with any sort of diet fine - tuning and advice on how to cope with a gluten free diet that may have to avoid a few other ingredients (we are all different. ) 

ravenwoodglass Mentor
ravenwoodglass
Posted

Welcome. You should go gluten free as soon as you have had the blood drawn. You have a great doctor and although it likely doesn't feel like you are lucky you now have the answer for your problems. Do get your son checked and encourage all first degree relatives to be screened. Your ped can order the blood work for your son but do be aware that there can be false negatives on blood work especially with children. After he has finished all testing for celiac do try him on the diet for at least a couple months. Ask any questions you need to. It can seem hard at first but you will feel much better soon.

Cara in Boston Enthusiast
Cara in Boston
Posted

You should consider this good news.  You have celiac and you can start on the road to recovery very soon (as soon as they take your blood.)  You will be amazed at how much better you feel.  I didn't even realize some of my symptoms were symptoms - I just thought I was getting old and tired.  You are lucky your doctor is so sharp.  Everyone in your family should be tested - even if they have no symptoms at all.  

 

Good luck -

 

Cara

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      130,200
    • Most Online (within 30 mins)
      7,748
    vickymd
    Newest Member
    vickymd
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • lizzie42
      Is tTG 9 normal after 4 months gluten-free?

      By lizzie42 · Posted

      It says normal is less than 5. 
    • RMJ
      Is tTG 9 normal after 4 months gluten-free?

      By RMJ · Posted

      The test result will never be shown as zero because the most negative the result can be reported as is less than the lowest amount the test can detect.  For example, you might see <2. What is the normal range for your daughter’s test?  Antibodies can hang around in the body for a while. Even if her result is not yet in the normal range, going from more than 100 to 9 in a few months is great! Good job, mom.
    • lizzie42
      Is tTG 9 normal after 4 months gluten-free?

      By lizzie42 · Posted

      My daughter has been gluten-free about 4 months. Prior, her tTG was over 100 (test maxed at 100). Her liver, iron, vit d are all normal again and she has grown 2 inches and gained 4.5 pounds in just 4 months! It's amazing. But her tTG is still at 9. Is that normal or should it be zero? Is she still getting gluten? We are SO strict. We don't eat out.  She was previously having tummy pain still. I cut oats completely 3 weeks ago and that is gone.  Can gluten-free oats raise tTG? Would I know based on symptoms? I was going to try her on oats again now that she doesn't say her tummy hurts anymore.  Also, our house is gluten free apart from one loaf of bread my husband uses. He makes sandwiches on a plate then puts it in the dishwasher. Yesterday when my celiac kids weren't home, my youngest and I ate "real" pasta. I was SO careful. All pans went in the dishwasher, I didn't spill any, I cleaned the sink I drained it in. Today my girl has her dermatitis herpetiformis rash back and had a huge hour long meltdown then fell asleep. Just like before diagnosis. Is it that hard to avoid cross contamination? Will one crumb off the plate or me cooking pasta when she's not home get her?  Again, we do not eat out, she's not in school yet, and she doesn't eat anything I don't give her. 
    • knitty kitty
      TTG IgA and IGA elevated mildy

      By knitty kitty · Posted

      Hi, @thejayland10, Do you still consume dairy?  Dairy can cause increased tTg IgA levels in some people with celiac disease who react to casein, the protein in dairy, just like to gluten.   You might try cutting out the processed gluten free foods.  Try a whole foods, no carbohydrate Paleo diet instead, like the AIP diet (the Autoimmune Protocol Diet by Dr. Sarah Ballantyne, a Celiac herself). Processed gluten free foods can be full of excess carbohydrates which can alter your microbiome leading to Small Intestinal Bacterial Overgrowth (SIBO).  SIBO is found in some people who are not responding to a gluten free diet.  SIBO can elevate tTg IgA levels.  The AIP diet cuts out sources of carbohydrates like rice, potatoes (nightshades), quinoa, peas, lentils, legumes, which starves out the SIBO bacteria.  Better bacteria can then proliferate.   I followed the AIP diet to get rid of my SIBO.  It's a strict diet, but my digestive tract had time to rest and heal.  I started feeling better within a few days.  Feeling improvement so soon made sticking to the AIP diet much easier. References: Small intestinal bacterial overgrowth among patients with celiac disease unresponsive to a gluten free diet https://pmc.ncbi.nlm.nih.gov/articles/PMC7759221/   Luminal antigliadin antibodies in small intestinal bacterial overgrowth https://pubmed.ncbi.nlm.nih.gov/9260801/#:~:text=Luminal total IgA concentrations (p,response to local bacterial antigens.   Potato glycoalkaloids adversely affect intestinal permeability and aggravate inflammatory bowel disease https://pubmed.ncbi.nlm.nih.gov/12479649/
    • trents
      New to gluten free living, in5ro and small question

      By trents · Posted

      First, welcome to the forum, @boy-wonder! Second, a little clarification in terminology is in order. Granted, inconsistency is rampant when it comes to the terminology associated with gluten disorders, but it has more or less become settled in this fashion: "Gluten intolerance" is a general term that car refer to either celiac disease or NCGS (Non Celiac Gluten Sensitivity). "Gluten Sensitivity" is the shortened version of NCGS. Third, Celiac disease is not an allergy to gluten. It is an autoimmune disorder characterized by gluten ingestion causing the immunes system to attack the lining of the small bowel, causing damage to it over time due to the constant inflammation that wears down the "villi" (mucosal finger-like projections that make up the lining). Over a significant period of time as gluten continues to be consumed, this generally results in impaired nutrient absorption. There are specific blood antibody tests available to check for celiac disease but the testing will not be valid while on a reduced gluten diet or a gluten free diet. Those already having having begun a gluten free diet must go back to consuming generous amounts of gluten for a period of weeks if they wish to pursue testing for celiac disease. Fourth, NCGS shares many of the same symptoms of celiac disease but does not damage the lining of the small bowel as does celiac disease. There is no test for it. A diagnosis for NCGS depends on first ruling out celiac disease. It is 10x more common than celiac disease. Some experts feel it can be a precursor to the development of celiac disease. Eliminating gluten from your life is the antidote for both. Fifth, you state that you are convince you don't have celiac disease by are just "gluten intolerant" (aka, gluten sensitive). How do you know that? It seems to me you are making a dangerous assumption here. I suggest you consider getting formally tested for celiac disease.
×
×
  • Create New...