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Posted 08 March 2013 - 02:14 PM

So this confuses me.....take a Gluten-Free product like Chex cereal.....some celiacs say they can eat with no problem, while others are more sensitive and have a problem after eating it.  If you aren't ultra sensitive and don't react after eating it, does that mean it's not affecting you internally?? I ask because my son has NO symptoms....we found celiac by accident....and this actually makes it harder.....I let him eat things that are labeled Gluten-Free, but often wonder if some celiacs get symptoms from such foods, couldn't they be damaging his intestines as well...even though he feels ok??

I feel like I'm not explaining this well...I hope someone understands my blabber! thanks!!

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Posted 08 March 2013 - 02:18 PM

I eat Chex.  If they don't bother him and his follow-up Celiac panels are fine, he is probably not having any damage.  My antibodies are at a normal level when re-checked every year.

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Posted 08 March 2013 - 03:01 PM

There is also the possibility that when people say they "react" to something, that their reaction is to something else in the product and not to cross-contamination. 

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"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein

"Life is not weathering the storm; it is learning to dance in the rain"

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Caffeine free 1973
Lactose free 1990
(Mis)diagnosed IBS, fibromyalgia '80's and '90's
Diagnosed psoriatic arthritis 2004
Self-diagnosed gluten intolerant, gluten-free Nov. 2007
Soy free March 2008
Nightshade free Feb 2009
Citric acid free June 2009
Potato starch free July 2009
(Totally) corn free Nov. 2009
Legume free March 2010
Now tolerant of lactose

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Posted 08 March 2013 - 03:40 PM

I agree with Karen and Mushroom.


I can't eat chex because of other intolerances -- my celiac kids all eat rice, cinnamon and chocolate chex often.  We use half plain rice added to the other half flavored ones to decrease total sugar -- but all three are absolutely gluten-free.

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Undiagnosed Celiac Disease ~ 43 years

3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive

10/25/13 - MCAD

Health history since celiac diagnosis became too long -- moved to the "about me" section of my profile

My children and I all have multiple copies of the genes for Celiac Disease, along with large variety of symptoms/resolution gluten-free

Current tally from me, three kids and two grands: 4 diagnosed with Celiac Disease, 2 NCGS


ALWAYS independently research health related information found on internet forums/blogs.

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Posted 08 March 2013 - 04:10 PM

thank u, everyone!

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