Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Do You Cope Post Gluten?


Vinturi

Recommended Posts

Vinturi Rookie

Those damn delicious cadbury eggs! I ate 2 minis and 2hrs later comes the sweating, chills, horrible cramps, D, nausea, headache, exhaustion and the list could go on! What was I thinking?

What do you do to handle the aftermath? I was diagnosed Celiac just 10 weeks ago, but I still can't believe I was so careless. It is a reminder to be so careful, that's for sure.

I wish there were some kind of miracle pill for this!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



shadowicewolf Proficient

I tell myself no, its not worth the trouble.

 

I don't do candy anymore for a reason. As a child i only really ate atomic fireballs (had to stop after my tongue decided to go all rough and irritated and last for a week or two without the ability to taste and being really sore), gum does the same (cinnamon flavor). I think its due to the red food coloring in it... (this was before i knew i had major problems with it) There was also a similar incident with another type of candy on a stick, but i think that it was just too much sugar at a time (candy has long since stopped being produced). Made my tongue rough but not as bad as the red stuff does (no hurting, no loss of taste, no irritation). I had to stop chocolate because my GERD would act up so bad that it wasn't even worth it.

 

My favorite "candy" at the moment? Take an apple, cut it up. Refrigerate honey overnight in the fridge. Put some honey on the plate with the apple as a dip. Honey turns into the consistency of a soft caramel. Yum, Yum.

 

Lots of water, foods that are easy on the stomach, and heating pads are lovely for those unwanted cramps.

EmiPark210 Contributor

You have to find your way around things that you can't let go of. For me it's cookies... totally addicted. But if you want some positivity about this whole experience, check out glutenfreegirl.com - amazing articles about her life gluten free and great recipes.

 

It will get easier, you just have to embrace it as part of who you are as well as not letting it define you.

 

As to coping, probiotics to replenish what your body just flushed out, crappy but awesome movies (trash TV works too any guilty pleasure), lots of blankets or whatever you need to feel comfortable, and water.

GFinDC Veteran

Pepto Bismol and aspirin.   Lots of water and pro-biotics.  Maybe some peppermint tea.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,154
    • Most Online (within 30 mins)
      7,748

    keeperofthebooks
    Newest Member
    keeperofthebooks
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • mermaidluver22
      @Scott Adams Thank you so much for this thoughtful and encouraging reply 💛 It really helps me feel less alone navigating all of this! I’ve definitely been strict gluten-free, but I’ll admit — in the beginning, I honestly knew nothing about cross-contamination 😅 so it’s very possible my gut is still healing from that. I feel very abnormal because I am not a typical celiac or a typical Crohn's, so it makes me feel very stuck. 
    • nanny marley
      Hi still the same unfortunately, they had to cancel my colonoscopy due to my trapped nerve , I'm awaiting some kind of scan , it was the nurses who  told me to refuse and asked a docter , and I was told to cancel and go back to my consultant , I think because my sciatic nerve is compressed between my herniated discs , the prep was enough I could handle , but the colonoscopy itself , they advised me to seek something different ,due to the position I had to be in and the movements , so I will update Wen I know more , thankyou for asking appreciated 🤗
    • Scott Adams
      It sounds like you're navigating a complex situation with your celiac disease, and it’s understandable to feel confused by the GI world! While celiac disease typically affects the duodenum and proximal small intestine, it’s possible for inflammation to extend to the ileum, especially in cases of more severe or longstanding damage. Since your tTG-IgA remains elevated despite a strict gluten-free diet, this could indicate ongoing healing or subtle gluten exposure. The ileal inflammation might still be related to celiac, though it’s good your doctor is ruling out other conditions like Crohn’s, given the nonspecific biopsy findings. Some people with celiac do report ileal involvement, particularly if they have refractory disease or delayed healing. Keeping close follow-up with your GI and possibly revisiting your diet for hidden gluten sources could help. Hang in there—it’s a journey, and you’re doing great by staying proactive!
    • mermaidluver22
      hi, how are u now? any answers?
    • mermaidluver22
      I have biopsy-confirmed celiac disease and have been strictly gluten-free, but my tTG-IgA is still elevated, so I know I'm still healing. I recently had a capsule endoscopy that showed small erosions and inflammation only in the distal ileum — nothing in the upper small intestine. My GI isn’t calling it Crohn’s yet because biopsies showed only mild, non-specific inflammation with no chronic features. Has anyone experienced celiac impacting their ileum as well? the gi world is so confusing! thank u ❤️ 
×
×
  • Create New...